Hi, I have a question!! Is it possible to take colostrum and 3 mg Naltrexone since both are immune stimulators? My doctor is willing to prescribe the low dose naltrexone and said "humm" when I mentioned the colostrum some of you have been trying. Insurance won't cover the colostrum, I doubt. (I had to take advice from the message board, and printout everything for my doctor.) He is going to write the prescription for Naltrexone. I wonder if others are on it and how is it going? I would really appreciate some information on the naltrexone. He also considered the guiafenesen therapy, but it is my choice. I feel I have three choices if the colostrum works for some of you, and I am hoping it really is an immune booster. I don't see how it can relieve pain----unless it is a placebo effect? Keep us informed you lucky people if the colostrum is working!! And expect a miracle, in the new year. Sending gentle hugs to all. Dawnsmist

I forgot to mention that Naltrexone in LOW dose at bedtime will help the body produce endorphins, the bodies NATURAL PAIN RELIEVER. I am desperate for any kind of pain relief. A day does not go by that is pain free for me. It used to be day by day now it is hour by hour. I have tried almost everything except the guiafenesen, naltrexone, or the colostrum. If it takes all three of these things I will do it! The only thing lately that gives me some relief is the 40 minute fast-paced-walk. (The exercise raises the body's natural endorphins.) I get two hours of relief per day and that is all. So if the Naltrexone can raise my endorphins and enhance my immunity system in the near future I will be happy to tell the world. Since mookiemike claims colostrum is safe for most people...I am interested in hearing more about results from those that are trying it. So keep us informed! As we all know, we all respond differently to various drugs and therapies.
I still want to hear from others who are trying Naltrexone, and it is not just for those people who are recouperating from heroine or other drug addictions. It is--or--WAS used in large doses to treat that in the 1980's. Now it is used in very small doses for a great variety of diseases and is being used with good success for fibromyalgia sufferes.
God bless all. Dawnsmist

Hi Dawnmist!
Don't forget to keep your carbs and sugars down, and eat more proteins. Don't listen to this "no-fat" garbage that has most people forgetting how good meats and other sources of protein are for you, and how much damage high carbs and sugars do to the body. Carbs turn into sugars when eaten, and this in turn causes the body to produce more insulin which is the main culprit in causing fat to be stored in your cells, and colestorol in your blood. Too much insulin is the main culprit in obesity, diabetes, high colestorol, high blood pressure, and many other things we don't realize. I brought my blood pressure, colestorol, and weight down by eating more meat, green veggies, eggs, cheese, and less bread and buns and desserts. My wife has FMS, and when she went on this way of eating ( I don't call it a diet!) she lost her pain in 2 1/2 weeks, and regained a lot of her energy. But you MUST NOT cheat afterwards, or you will go right back again to where you were when you started, and maybe worse. That's what happened to my wife. She felt so good she ended up over-doing it, thinking she could ease off a bit. She wasn't far enough into the program yet though. But it does definitely work wonders. Buy yourself the book called Protein Power by Drs. Eades, a husband and wife team who have a clinic in Arkansas somewhere based on these principles. Out of 1000 patients, at the time of the writing of the book, they have had NO negative results. They weren't deaking just with FMSers, but with lots of problems. You can get it in a paper back for pretty cheap, like $6-7. But read it well, and give it a try. Proper nutrition is a definite must for FMS sufferers. Hope this gives you some guideline to follow. All the best,
kfh

Thank you for the excellent advice. I am still debating the Naltrexone. On the Mayo Clinic site all the info there sounded scary. I have been on a low sugar, low carbohydrate and high protein diet plus fast-paced walks. My weight was 108 lbs. After doing this diet and walks for 6 weeks I lost more weight went down to 98 lbs. not my intension. I did feel better on the diet. I guess I didn't mention my back is a mess with spurs and DDD and 5 bulging disks so the fibro symptoms must be the combination that causes the pain. It is the total body pain I can't get rid of. Around the holidays I went off the diet, couldn't resist the goodies. But this advice of yours is sound and does bring results for some sufferes. It helps me by about 20%. Then I want more relief! Guess I just expect too much. Here is some gentle hugs for your wife and you too. Thanks. Dawnsmist

Hello DawnMist,
Have your doctor prescribe the 4.5mg (not 3mg) Low Dose Naltrexone (LDN)- You will not regret it! It truly is a miracle drug. I never found Colostrum to be helpful, just a waste of money. I highly recommend that additionally you take Vinpocetine, sublingual vitamin B-12, Melatonin, Calcium, Magnesium, Zinc. High doses of Pancreatic Enzymes with Lipase, Protease, Amylase will work wonders- don't know why.

Forgot to mention- Start using transdermal Progesterone NOW! (any vitamin store). If you are a woman also use Estriol!

Maybe this is a dumb question, but isn't Naltrexone the narcotic agonist Narcan? How does that help with pain control? Just curious, I have never heard of that being used for fibro symptoms.

You are thinking of 50mg Naltrexone which will not work and has many side-effects and is useless.

I am talking about 4.5mg Low Dose Naltrexone (LDN) which has virtually NO side-effects! No one really knows how it works. It does something to the endocrine system which stabilizes the immune system.

It is a miracle drug and it WILL eliminate or greatly reduce all the FMS symptoms. The hardest part is finding a doctor to prescribe it.

[This message has been edited by moderator1 (edited 02-28-2003).]

Hello Dawnsmist,
Are you going to try the Low Dose Naltrexone?

I am, with minor exceptions, leading a symptom free life. The remaining reduced symptoms that I have, I am able to ignore. I am back to weight lifting, biking, and kickboxing and doing the things that I want to in life.

I came back to this board for the sole purpose of encouraging you to try LDN. Afterwards I am going to leave! I want to see you beat FMS!

I fear this falls under "if it's too good to be true, it probably is." What do others think?????

Sorry so long, and rambling, just amazed and yet skeptical. I fear this doctor who is involved in this is one that the medical community probably ignores as a whacko. Otheriwse, like I said, SOMEONE in the medical community would be shouting about this drug's good effects, no??



[This message has been edited by moderator1 (edited 02-28-2003).]

It is not too good to be true- It is a miracle drug and it will change your life (and maybe your father's life)! It has virtually no side effects- So nothing to lose and everything to GAIN.

During the first week, all fatigue will go away. Subsequently with continued use, all your symptoms will drop away or be greatly reduced. I must tell you that as a general rule LDN is ineffective below 3mg or above 4.5mg. The updated protocol is to use 4.5mg LDN. I recommend that you also take the additional supplements that I mentioned previously.

Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS) and Multiple Sclerosis (MS) are "sister" disorders in that the SYMPTOMS of each disease can overlap into the other diseases. CFS, FMS and MS are variations of an as yet undefined phenomena in an unbalanced endocrine system. An unbalanced endocrine system will cause autoimmune disorders- Thus FMS is an autoimmune disorder.



[This message has been edited by moderator1 (edited 02-28-2003).]

I strongly believe that pharmaceutical companies are strictly self serving and are in it for the money- they make more money treating symptoms rather than curing diseases. If an effective treatment is not patentable or a money maker, you the patient will never hear about it.

Low Dose Naltrexone is one of those drugs that doctors and patients will never hear about because it is not a money maker for the drug companies.

Well, I certainly hope someone IS spending the money and time to do the necessary studies to prove efficacy for Fibro and then some of the other diseases mentioned. It takes TIME and MONEY to do this, but doctors can do it while treating us as off-use test patients. If this Dr. believes it is a miracle, then he would do this and definitely be making money with the patients who see him who are not involved in studies. Is he currently doing anything to document and prove this so he can get approval for treating diseases with LDN?

If he got an approval for treating Fibro, documted tests and stuff, he would be not only a life saver, but the entire world would sit up and take notice. He'd also be a zillionaire! We would sit back and watch how fast the trials would go through for all the other diseases mentioned too!

One can hope!

Hi again, the pharmacist here said the lowest dose is 15 mg and could be broken down in a liquid form to get the small dose. I printed all pages and highlighted the areas with a yellow marker for my doctor which relates to fibromyalgia. I gave the material to him personally but do not know if he read it yet. At my last appointment he was trying me to go with guaifenesin, and I said no, I want to try LDN. That was three weeks ago. I guess I have to go back into the office to get any results. My doctor is trying to help me but...it is so slow. I would love to take only my thyroid meds and the LDN! Thanks for all the new input, it keeps me encouraged to keep requesting what I think will help. By the way, the information states that no one on this med should be taking opioids so I will have to stop the sleeping pill and the pain med, but you said that in a week LDN helps. If mentioning this is free advertising of a drug, I can't help it. We need to be informed and to inform others. There should be no secrets for healthcare. There is too much suffering that may not be necessary. Batman, thanks for coming back to us. As soon as I get results I will let ya all know. Dawnsmist

[This message has been edited by Dawnsmist (edited 02-02-2003).]

LDN is FDA approved but is considered experimental for the treatment of Autoimmune/Immune disorders.

The only way you can get LDN is to go to a pharmacy that compounds LDN to the correct doses. Most pharmacies do not compound drugs anymore. LDN costs approx $25-$30/month (a very inexpensive treatment).

My fatigue went away after 2 days of use- I told you it would take a week because that is longest it would take.

LDN certainly has fewer side effects than pain pills. I suggest using large doses of Melatonin (any vitamin store) for sleeping problems- much safer! I take 9mg/nite of Melatonin- your dosage may vary.

I live in southern California. After nagging/pursuading my doctor and showing him LDN literature, he saw there were no side-effects and humored me by giving me a prescription. The joke was on him because LDN really does work.

Keep going to different doctors until you find one that is open minded to letting you choose your treatments- a cure for FMS does not exist and the doctors treatment ideas are not any better than your ideas.

[This message has been edited by moderator1 (edited 01-31-2003).]

Posting a product name is not a problem.

The problem starts when you you tell others specifically where to get the product, or describe how to get to websites, post email addresses, or post websites against the guidelines.

Each member is capable of doing their own research where to get products.

OK, batman777, you convinced me! I will get a RX as soon as possible. Thank you, this does look very promising.

[This message has been edited by moderator1 (edited 02-28-2003).]

I'm totally convinced also,Batman777! Thank you so much for the information. Am calling my Dr. right now to ask for the script. Will let you know.

MrsChickapea

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Thankyou and remember that the updated treatment protocol is 4.5mg LDN and not 3mg. You must take on an empty stomach before sleep. You can't be taking any Opiate Based pain killers at the same time.

I also recommend that you use vinpocetine, and veinotonic. The veinotonic, although for circulatory problems, seems to have positive but undocumented effects on connective tissue and elsewhere.

Is it OK to use it with sleeping meds like Ambien or Desyrel?

Hello, Batman777. I did call my dr. earlier today regarding the 4.5mg med.. He said that he didn't oppose giving me the script, but that he had never prescribed it before, and he wasn't familiar with the drug either. Told me that he'd do some research and call me right back.

When I got the call he said that he could only write it for 25 or 50mg. I told him again what I had read here and on another site, but he was adamant about the mg's, and said that I could cut the pills.

So, I then called the pharmacist that we have used for 20 yrs.. His story was the same! He said that 4.5mg dose has not been approved by the FDA, and so therefore he can not dispense it, only the 50mg's.

I now have a bottle of 50's waiting at the store for me. This has totally infuriated me this afternoon.
Is it approved or not? Why can I get 50 & not 4.5mg?

Have also read that drs. have stopped writing it for 50mg's because the side effects were pretty bad, and patients wouldn't use it. But my bottle is waiting for me, side effects and all. Soooo confused!! http://www.healthboards.com/ubb/biggrin.gif

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A WOMAN IS LIKE A TEA BAG...YOU DON'T KNOW HOW STRONG SHE IS UNTIL YOU PUT HER IN HOT WATER! ô¿ô

The reason your doctor and pharmacist won't give you the 4.5 dose is twofold. One, the FDA has not approved the drug's use in low dose form for autoimmune disorders, but since it has passed safety tests in the higher dosage form as an opiate agonist, it is perfectly OK for doctors to prescribe it "off use." Your doctor just doesn't want to prescribe it for you -- he is definitely allowed to. Perhaps he doesn't believe in prescribing drugs for a use which has not had the expensive clinical trials that the FDA requires. Second, your pharmacist is probably not a "compounding pharmacist," which it is necessary to find in order to get the low dose, since drug manufacturers are not making it in the low dosage form. It's not that he "can't" as in "isn't allowed to" dispense it -- it's that he's not set up to do anything more than count out already manufactured pills.


[This message has been edited by moderator1 (edited 02-28-2003).]

MrsChickapea-

1. Your doctor needs to write out an RX that specifically calls out for "fast release 4.5mg low dose naltrexone". As I stated before regular 50mg naltrexone will not work and is useless.

2. You have to submit the RX to a compounding pharmacy. They will physically make the "low dose naltrexone" for you. You must use a compounding pharmacy that has experience making low dose naltrexone.

I am happy for you- you are half way there. Don't give up and stay persistent!



[This message has been edited by moderator1 (edited 02-28-2003).]

You don't have to worry about side effects- there are virtually NO side effects. Low dose naltrexone is a different animal than 50mg naltrexone!

This thread is closed due to board abuse.

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