hi
i was wondering if anyone out there has won disability with fibro. i am in constant pain and have most of the pressure points. i cant sleep for the pain and can barley walk some days, neck hurts so bad, and cant do alot of what i use to do.. ALWAYS in pain. i also have arrythmias, diabetes, hiatal hernia, arthritis, panic disorder, depression, ptsd, so pain is always felt. i have mobic and neurotion for the fibro. thank you .

check out the post under "do you tell anyone", the guy there has a weblink you can look into...hope this helps! god bless! http://www.healthboards.com/ubb/wave.gif

Yes, I was awarded SSD 4 months after I applied. The primary reason for award was fibro. A couple years ago Social Security recognized Fibro as a potiental disability. I guess it is based on severity. I have all 18 tender points, and am in constant pain even with painkillers

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Becky

[This message has been edited by beckygb (edited 06-11-2003).]

thank you for your replys. Becky did a doctor document all your pressure points? mine has not. i was just told i have this after suffering for years, i applied for ssd before i knew that i had it , had so much pain all the time and didnt know what it was. and i dont know what all documents i need. its been 3 yrs and i have to go to the judge now. how do they judge severity? thank you for the help.

Hi I am the guy that Kirsten is refering to. I was awarded my disability due to spinal injusries way before I was diagnosed with fibro, but I already had fibro. Since we cannot post links here look on yahoo, for soc sec disabilty and fibro, you will find a few docs on this subject. Soc sec does recognize this a sa disabilty!

There is aletter posted that is from soc dis spelling it all out, Take care, Jay M. Silverman

Our oldest daughter is receiving benefits. She was awarded this on our second try. She has other things than FMS involved that make it difficult for her to work, but FMS is the cause of the dizzines and brain fog.

Our youngest daughter has had her hearing with the judge and is awaiting the decision. She has just FMS. ("just" as being inconsequencial, LOL)

The judge looks at whether you can work. If the judge believes the extent of the disability you claim or assigns limitations that the judge feels are supported, the judge then compares the limitations to the job market to see if you can hold a paying job of any type.

thanks for the replys... im so depressed lately, i havent been on. i am so tired of the pain, day and night. no one that doesnt have fibro understands. they want to pick and play and its hurts too bad. they think im a cry baby when i say "it hurts dont do that".
or im lazy because im tired all the time....but according to social security im able enough to work, but i cant hardly stand to move most days lol. i wish they had a cure for us. sorry for whinning so much just needed to tell someone that understands. thanks for listening. GOD bless you all..

It took four years to be "labeled disabled"

My first appearance before a judge was terrible. He said I could work because I was on medication and being treated for fibromyalgia. He said "There are people out there working who are quadraplegics that use a pencil and a computer to earn a living. I do not see you as being disabled. You are denied."

Ahh, the magic words, "I do not SEE you as disabled."

I went home crying, hurting from the stress of it all, plus the long trip, very angry and frustrated.

I continued to work part-time. Until I got fired. I made the employer write out why I got fired. She said I was under too much medication to perform my job.

Then I was sent to a psychiatrist who said I was in a major depression. I showed the therapist my dismissal report. It was two months later in which I got my social security. I did not go before a judge again, but I sent a lot of paper work to Social Security.

Prior to that I had hired a lawyer and after 6 months he dropped me as a client. He said I would never win "just because you have fibromyalgia."

I was told that I had to sign up for vocational rehab. Which I did. I spent three years taking correspondance courses only to find out I couldn't do that either. My state wasted a lot of money on me so far. (In my opinion.)

Well, that is how it went for me. I hear that some people are finding it easier now to get disability because this illness is becoming more recognized, but it is still a battle for some who are trying to get it.

It was hard to work and harder still to be getting by on disability. Some days I feel so worthless. I have had some really great jobs in the past and I miss the interaction with employees and a chance to make a difference. I won't say what kind of work I did but I did hospital work in what at that time was new field. I don't miss the long hours or being on call. I miss helping others get well. Crapola, I can't make myself well these days.......lol. I am sure many of you have or will go through this same dilemmia. Hugs to all, MistyMisty

thank you misty. i feel like when i go before the judge (if that day ever gets here, its been 8 months) they will laugh at me for being there. the fibro has gotten worse and have been put on neurontin and it helps but not a cure all,and narc meds for breakthrough pain. and my arrythmias are horrible most days.

i dont understand why they put you through all that. i couldnt have gone through it. i have to many panic attacks. if they lived with this for one day they would think totally different.

I AM GLAD YOU WON...

thank you for the hope, my candle was almost out LOL..
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