supernova_krose
09-28-2007, 06:54 PM
I have one eye that has gone permanently blurry (it's actually like double vision), and one eye that goes blurry occasionally and then my eyes hurt. I went to the opthamalogist, who did an extremely throrough exam, said I had an afferant pupil, and sent me on for a brain and orbit MRI with contrast. That came back saying I had white spots, and suggested several possibilities, one being MS. My PCP ordered a bunch of blood tests, and has ruled out cardiovascular conditions and diabetes. She sent me to a neurologist. He showed me the MRI images, and said he suspected MS. Heordered a spinal fluid draw, which came back normal. He wants me to have another MRI in 3 months, then suggested having them yearly, and said to come back earlier if any other symptoms crop up. I asked him what else this could be, and he said that in his opinion, they'd ruled out other possibilities. He also won't say I have MS, but he won't say I don't have it either. He wants to continue monitoring, and then described what sort of medication treatments are available pending what subsequent MRI's show.
My question for all of you is...what else could this be? Other than being more tired than I used to be, I have not other MS symptoms.
Thanks all,
Kay
My question for all of you is...what else could this be? Other than being more tired than I used to be, I have not other MS symptoms.
Thanks all,
Kay
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njgirl14
09-28-2007, 07:15 PM
Kay
Have you considered lyme disease? The tests for lyme are not very accurate and false negatives are common. Most Drs are not up on proper lyme treatment and ID Drs are usually the worst to see for lyme. If you look up lyme you will see it is controversal and and some Drs are even denying the existance of chronic lyme.
The best testing (still only about 60% accurate) is Igenix Labs in Palo Alto, CA. With lyme lessions on MRIs are common too. If you decide to be evaluated you should go to the lyme board and ask for a lyme literate MD (LLMD) closest to you.
Just wanted to answer your question of what else this could be. I was dx with MS for many years before I found out it is lyme. I can barely walk and have many neuro problems. I know many people like me who have similar problems, who were misdiagnosed with things like ALS, MS, chronic fatigue and other things before finding out lyme was the cause of ther problems.
I wish someone had suggested lyme to me and I hope I can help someone else. No saying this is your problem but I strongly suggest researching it.
Best of Luck and keep us posted
Have you considered lyme disease? The tests for lyme are not very accurate and false negatives are common. Most Drs are not up on proper lyme treatment and ID Drs are usually the worst to see for lyme. If you look up lyme you will see it is controversal and and some Drs are even denying the existance of chronic lyme.
The best testing (still only about 60% accurate) is Igenix Labs in Palo Alto, CA. With lyme lessions on MRIs are common too. If you decide to be evaluated you should go to the lyme board and ask for a lyme literate MD (LLMD) closest to you.
Just wanted to answer your question of what else this could be. I was dx with MS for many years before I found out it is lyme. I can barely walk and have many neuro problems. I know many people like me who have similar problems, who were misdiagnosed with things like ALS, MS, chronic fatigue and other things before finding out lyme was the cause of ther problems.
I wish someone had suggested lyme to me and I hope I can help someone else. No saying this is your problem but I strongly suggest researching it.
Best of Luck and keep us posted
MSJayhawk
09-28-2007, 08:29 PM
There are a myriad of possibilities. Follow the neurologist's instruction explicitly and you will reach a resolution. It was more stressful to me not to know. I can understand (as well as many many others!) what you are feeling.