Angela37
10-04-2007, 01:52 AM
Hi, I am seeking information for those more experienced and smarter out there than me! ha ha (bad joke)~!
I am a 37 Y.O. mom. My life is very hard right now! As probably everyone's is here or we wouldnt be here we would be out at the beach or something...
I simply just do not what to think any longer. I was sick alot when I was little, but just like allergies and stuff , yet I missed alot of school. But when I turned 20, for 4 years my life took a sharp turn. My legs begin getting numb, it worsened. It seemed to go from the legs up. Once I would have seizures, maybe 3-4 times a year. I would tell my GP. We lived in a small town. I had lost my first 2 babies during this time to stillbirths, they were just born too preemie and I would seem to lose them after a few months. Still all those years I was never refered to anyone. The doctors there just I guess thought I was making it up, depression whatever... Then at age 25..it just stopped! I cant tell you how relieved I was. I guess I was a fool thinking it would never return. Then I sucessfully managed to have two children, alittle on the wee side of preemie but they were healthy!
By the time I was 27 however, I was up to 254 LBS, needless to say this was more than alittle stressing for my 5ft frame. So I had gastric bypass! Lost 110 lbs. Got alittle attutitude...told my cheatin husband there was the door...flew thru dental hygiene school like a hungry flea on a dog...and proceeded to re-marry...have my most healthiest child, at 7 lbs even. Then I just sorta STOPPPPPPPED at 33! By 35 it was back slooowly creeping its way into my life. Now what was I gonna do...I had a career, my youngest, although healthy was a wandering child, and very hard to deal with ADHD (extreme)/ODD/CD!! He will probably be on American;s Most Wanted or Cops before he is 10! God help us all!!! Needless to say, I think I have bit off more than I can chew--and my husband keeps moving every 2 years with his fast-track job! He wont stay put...and I can not manage my situation with my health status.
My current phyiscan insisted for 2 years I had fibromaylgia. I couldnt bare the pain. I started going into pain management without his consent having spinal blocks which didnt help. One year later a kindly OTHER pain management doctor did a MRI and one of those electrical impulse things that zap you--Low and behold...after how many years now--- it come back positive with Motor, Sensory and I am really not sure if she said Automaic or not Per Neuropathy. She said she wasss very surprised since I had not other health problems and I am not diabetic...well she said like 65% disability, so I can only work 1 day week now (I force myself), life is pretty choatic...I cant do art anymore. I used to type 70wpm, now barely 20...is this going to go away again? I dont think I can stand having this for like another 10 years. I have that glove/slipper thing...(where you feel like your wearing tight gloves and slippers), she thinks my PN is due to my Gastric Bypass...I am anemic, so I started B-12 injections, iron infusions and vita D 50,000 iu everyweek...that parts better now....but noo nooo I cant convience her this is what I had before...it seemed worse then, but maybe because of my weight? This is worse in some ways than before, but different.
The interesting side note is this. My first cousin who is 2 years younger just came back with all tests postitive for MS. My doctor says there totally different. But I both read they are damaging the mylien sheath, so arent they similar....I cant tell you how lost and alone and confused in all this...I have been under her treatment for over a year. Lyrica helps, I am stable, but not at a tolerable level. I take alternations of Tramadol and Opana, I have to constantly alternate them. They bad thing is my stomach doesnt absorb anymore, it passes right through...on those days I dont absorb, it doesnt matter what I take or how much. I could take 100 and it wouldnt matter...so I have to fine tune everything. By the 2nd one I know if I am absorbing and then if not...forget it ...NOTHING will help!
I asked my doctor last week if I had told her about my cousin. That I thought the two diseases were similar, she asked if I thought my condition was going into the MS "I told her it wasnt that, it just sounded like the two were similar"....she told me that I could not get MS if I had PN. She also told me, I would gradually get worse, it could not go into remission. I just dont know what to do. Also, does anyone have any suggestions AND do you know if there are ppl diagnoised with PN as young as 20?
Thanks!
Gigi
I am a 37 Y.O. mom. My life is very hard right now! As probably everyone's is here or we wouldnt be here we would be out at the beach or something...
I simply just do not what to think any longer. I was sick alot when I was little, but just like allergies and stuff , yet I missed alot of school. But when I turned 20, for 4 years my life took a sharp turn. My legs begin getting numb, it worsened. It seemed to go from the legs up. Once I would have seizures, maybe 3-4 times a year. I would tell my GP. We lived in a small town. I had lost my first 2 babies during this time to stillbirths, they were just born too preemie and I would seem to lose them after a few months. Still all those years I was never refered to anyone. The doctors there just I guess thought I was making it up, depression whatever... Then at age 25..it just stopped! I cant tell you how relieved I was. I guess I was a fool thinking it would never return. Then I sucessfully managed to have two children, alittle on the wee side of preemie but they were healthy!
By the time I was 27 however, I was up to 254 LBS, needless to say this was more than alittle stressing for my 5ft frame. So I had gastric bypass! Lost 110 lbs. Got alittle attutitude...told my cheatin husband there was the door...flew thru dental hygiene school like a hungry flea on a dog...and proceeded to re-marry...have my most healthiest child, at 7 lbs even. Then I just sorta STOPPPPPPPED at 33! By 35 it was back slooowly creeping its way into my life. Now what was I gonna do...I had a career, my youngest, although healthy was a wandering child, and very hard to deal with ADHD (extreme)/ODD/CD!! He will probably be on American;s Most Wanted or Cops before he is 10! God help us all!!! Needless to say, I think I have bit off more than I can chew--and my husband keeps moving every 2 years with his fast-track job! He wont stay put...and I can not manage my situation with my health status.
My current phyiscan insisted for 2 years I had fibromaylgia. I couldnt bare the pain. I started going into pain management without his consent having spinal blocks which didnt help. One year later a kindly OTHER pain management doctor did a MRI and one of those electrical impulse things that zap you--Low and behold...after how many years now--- it come back positive with Motor, Sensory and I am really not sure if she said Automaic or not Per Neuropathy. She said she wasss very surprised since I had not other health problems and I am not diabetic...well she said like 65% disability, so I can only work 1 day week now (I force myself), life is pretty choatic...I cant do art anymore. I used to type 70wpm, now barely 20...is this going to go away again? I dont think I can stand having this for like another 10 years. I have that glove/slipper thing...(where you feel like your wearing tight gloves and slippers), she thinks my PN is due to my Gastric Bypass...I am anemic, so I started B-12 injections, iron infusions and vita D 50,000 iu everyweek...that parts better now....but noo nooo I cant convience her this is what I had before...it seemed worse then, but maybe because of my weight? This is worse in some ways than before, but different.
The interesting side note is this. My first cousin who is 2 years younger just came back with all tests postitive for MS. My doctor says there totally different. But I both read they are damaging the mylien sheath, so arent they similar....I cant tell you how lost and alone and confused in all this...I have been under her treatment for over a year. Lyrica helps, I am stable, but not at a tolerable level. I take alternations of Tramadol and Opana, I have to constantly alternate them. They bad thing is my stomach doesnt absorb anymore, it passes right through...on those days I dont absorb, it doesnt matter what I take or how much. I could take 100 and it wouldnt matter...so I have to fine tune everything. By the 2nd one I know if I am absorbing and then if not...forget it ...NOTHING will help!
I asked my doctor last week if I had told her about my cousin. That I thought the two diseases were similar, she asked if I thought my condition was going into the MS "I told her it wasnt that, it just sounded like the two were similar"....she told me that I could not get MS if I had PN. She also told me, I would gradually get worse, it could not go into remission. I just dont know what to do. Also, does anyone have any suggestions AND do you know if there are ppl diagnoised with PN as young as 20?
Thanks!
Gigi