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Soleil11
10-23-2003, 11:32 PM
I have been not well for about a month.Curious as to whether others are in a flare period where it is worse now with the weather change, even tho it's not really cold out. It still is a season change and my body reacts to it as I ache more than I did this summer.

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sTaR_cHyLd
10-24-2003, 12:19 AM
I definetly agree with you soleil, im aching all over right now, it doesn't end. I keep taking my pain pills, but im in fear that I will run out and then what am i going to do. Its not fair life shouldn't have to be like this should it? But yes again i would say the last month has definetly been horrid.

Wittesea
10-24-2003, 01:03 AM
I am also flaring pretty badly. The season change is in full effect here in Connecticut. I woke up to 2 inches of snow this morning!

Summer is my best time of the year, and Autumn always hits me pretty hard.

I hope that your flare is short-lived.
~Wittesea

painsucks
10-24-2003, 02:44 PM
I think the barometric pressure has a definite effect on us. When a storm is brewing, I feel lousy. I can always feel the cold coming in a few days before the "weather-guessers" predict it. Those are the days I just want to stay at home in bed or curl up with a good book by the fire. Too bad that's not reality and I have to come to work! Hahaha! On the flip side, I don't do well when it is really hot either, do any of you experience flare ups in the dead of summer? I live in Utah and we had countless days of well over 100 degrees this summer, I thought I would die. Because I already have a lot of swelling in my joints, the heat caused more swelling and water retention and the pain was insane.

dayton
10-25-2003, 10:51 AM
I guess must be something in Fort Worth too. This started about a week ago. Neck and shoulder, hips, I mean I hurt all over. "Run over by a Mack truck" is about accurate only he backed up and ran over me again!!

I walk around like 100. I do things because I have to, going to grocery store, laundry, SAMs or Walmart but I pay for it later.


Dayton

Ladywolfe
10-25-2003, 09:24 PM
I am sooooo glad I found this board. I am 41 yrs old, diagnosed with fibro about 3 years ago. I was on pain meds for awhile when first diagnosed. Through the summer months I seem to feel much better.
I live in Illinois, and with the cold weather coming,I have been feeling like someone has been beating me up -lol. I walk lik

Just curious...what kind of pain meds do your drs have you on - and do they seem to work for you?

Thanks for you answers http://www.healthboards.com/ubb/smile.gif

Soleil11
10-26-2003, 02:31 PM
I wanted to add after reading replies that I also feel better in the summer except for those really hot days which then cause stiffness and retention and swelling. I do not normally retain fluid, but hot weather causes it.
Come this time of yr and forward til' next summer is like something out of a horror story. You know what is coming healthwise as summer draws to an end. I can be quoted in August as saying I dread the end of summer every yr. I know that in the the winter and spring I will think I have gotten this much worse and I will never be better. That is what runs thru my mind. It is a dread to have summer end.
I don't know if I have metioned on here before but I also am writing a book on Fibromyalgia. It will take me awhile as I have another one going on something else.
I am writing from the personal perspective of having Fibromyalgia. It is really challenging to do this as my fingers don't even hit these keys right half the time. It will be a major job editing in the end. But, I know there are books out there on the clinical aspects of this disease. I am writing about the everyday functioning perspective and the things that happen in a day of someone with Fibro. It is a compassionate book as the drs. don't really walk in our shoes each day. No one knows but us. This is hard for me to do as I don't have a lot of energy having other medical issues as well. So do most people with this. I think I will even try to make one laugh hysterically at some of the crazy functioning problems we have. Sometimes, my hands won't work in the grocery line dealing with my purse, change and thinking straight by the time I have walked thru an entire store and shopped. There has to be a book here. There is so much more and maybe it will give comfort to others. Soleil

MistyMisty
10-26-2003, 03:00 PM
Hi everyone, I can certainly relate to grocery shopping! In the past there were times when I was so fumble-fingered I could hardly write the check!! The cement floors are very hard on the hips. back, and legs. Exhaustion used to come upon me, then I had forgotten what the necessary items were!

Now, I always carry a list and check off the items as I put them in my grocery cart. I keep a food item list on my fridge and a pencil or pen handy next to the fridge so I can write out the items I need as I run out. I don't usually forget my list, but can't say I have never forgotten it.

Once I had a whole cartfull of groceries and I had no check blanks! Now I keep an extra pack in my purse. It is awful that we have to "keep checking up on ourselves" just to do everyday tasks. It isn't quite as bad as it used to be for me. That LDN has worked wonders. I don't get as tired shopping these days.
I also don't get as rattle-brained, but occasionally there are days when I have some cognitive dysfunction!
It isn't as bad or as often as it used to be though.

As for changes in the weather, I can still get flares when the barometric pressure is not stable. In the past two days there has been a cold front passing through with lots of wind and it has been much cooler. This has definately added more pain in my muscles. LDN helps, but it does not keep me 100% pain free 24 hours a day. I am grateful for what it does do, because the flares are controlled easier with Norflex or Baclofen. MistyMisty

[This message has been edited by MistyMisty (edited 10-26-2003).]

 
 
 




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