chablis3
10-08-2007, 03:45 PM
Am posting again and hope this is the right board! I was on the Back Problem board and had some good answers from two board members there concerning my neck problems, and would also like to obtain some info from everyone else. First, to explain my problems a bit: Had X-Rays taken about a year ago and the results were: Severe degenerative disc disease at C4 through C6 intervertebral disc levels with bilateral neuroforaminal narrowing at C5/6 level. Moderate degenerative facet joint change at every level with the cervical spine column. No soft tissue swelling.
All this sounds very scary to me, and I don't know exactly what it all means except that my neck seems to be a mess! I get strange headaches, mostly at the base of the skull, as well as a tight feeling in the neck area. I also have constant ringing in the ears along with a "squishy" sound when I turn my head. I am interested in hearing what other members symptoms might be, and what kind of treatments did everyone try?
I have tried chiopractors and shots, but that didn't help a heck of a lot. Just wondering if I should be thinking of surgery at this point, or is there something else I could try? Haven't been to a neurosurgeon yet, but thinking that might be a good thing to do soon. Hope to hear other's experiences, and hope to hear from Tulip and Sage again to see what they think.
Thanks everyone!
All this sounds very scary to me, and I don't know exactly what it all means except that my neck seems to be a mess! I get strange headaches, mostly at the base of the skull, as well as a tight feeling in the neck area. I also have constant ringing in the ears along with a "squishy" sound when I turn my head. I am interested in hearing what other members symptoms might be, and what kind of treatments did everyone try?
I have tried chiopractors and shots, but that didn't help a heck of a lot. Just wondering if I should be thinking of surgery at this point, or is there something else I could try? Haven't been to a neurosurgeon yet, but thinking that might be a good thing to do soon. Hope to hear other's experiences, and hope to hear from Tulip and Sage again to see what they think.
Thanks everyone!
Sponsor
alex12
10-08-2007, 04:33 PM
Hi
I sympathize since I am in pain too.
You mentioned an X-Ray did you mean an MRI? If you haven't you should get an MRI and make sure there is no cord compression, if you are having that tight feeling at the base of your neck and it is radiating down your shoulder blade and arm sometimes, you may have a cord compressed which happends from bone spurs growing.
Most of us here have disc degeneration and narrowing of the canals so you are not alone there.
My symtons are exreme pain in my neck that radiates to my shoulder blades...weakness in my arms and headaches.
I sympathize since I am in pain too.
You mentioned an X-Ray did you mean an MRI? If you haven't you should get an MRI and make sure there is no cord compression, if you are having that tight feeling at the base of your neck and it is radiating down your shoulder blade and arm sometimes, you may have a cord compressed which happends from bone spurs growing.
Most of us here have disc degeneration and narrowing of the canals so you are not alone there.
My symtons are exreme pain in my neck that radiates to my shoulder blades...weakness in my arms and headaches.
Sage48
10-08-2007, 05:08 PM
Ok...I followed you!!!! Just wanted to check up and make sure you got here!! The headaches are the worst I have ever had...more than a migrane...when I went to the ER with one....HORRIBLE headache...the Dr. said it was a cervogenic headache... Thank goodness, once I had surgery,,,they went away.. I used to have different sounds in my neck and head...like a rushing sound...not very pleasant... Once I finally got to a good neurosurgeon, he diagnosed me...did a mylogram/ct...then a few weeks later did the ACDF... I did not wear a collar...my neuro. said the plate and screws would hold my neck together...not to worry!! I did do a couple of weeks of thereapy after the 6 week mark...but it wasn't really anything major...just got me loosened up a bit.. As I said before, the neck has been pretty good...I do have a couple of other things wrong in there...but I can live with what I have for now. Just wish the lower back could find a diagnosis!! (Remember I fell 5 yrs. ago...and caused all of this for myself....neck and lower back...)...
I do hope you can find some resolution.... BUT, remember if you do go for surgery...get the straws...and only drink very small sips... The throat will be better within a week or so...two at the most.... you may loose some weight...awww too bad on that...(15 pounds for me)...but go for small bites and soft stuff if you can... Good luck to you..
Sage
I do hope you can find some resolution.... BUT, remember if you do go for surgery...get the straws...and only drink very small sips... The throat will be better within a week or so...two at the most.... you may loose some weight...awww too bad on that...(15 pounds for me)...but go for small bites and soft stuff if you can... Good luck to you..
Sage
SpineAZ
10-08-2007, 10:28 PM
I reccomend you get an evaulation by both a neurosurgeon and an orthopedic spine surgeon. Even though they are surgeons - they will reccomend less invasive treatment if it's appropriate.
chablis3
10-08-2007, 11:12 PM
I am so glad I got on here tonight and found 3 good replies! Alex; I haven't had an MRI, just the X-ray. I imagine when I go to a surgeon he would recommend an MRI, which I would think will show more. I don't have any shoulder pain or arm pain, just the terrible kind of numb feeling at the base of the skull, and I get what I describe as "hot flashes" in the head/face area. What have you tried so far for your pain? Thanks for your reply!
Kross; your suggestion is a good one and I will check on both a neuro guy and an orthepedic guy....as soon as I get up my nerve to go see somebody! I sure am hoping my problem can be fixed by a less invasive treatment. Thanks so much!
Sarge; Glad to see you found me, and your posts have been very helpful and informative. Yes, the headaches are terrible, and I too, have gone to the ER...before I knew I had the neck thing going on. All they did was give me some headache pills, not knowing about the neck issue at that time. The sound you described as a rushing sound is exactly what I have, and it is so annoying. Can you tell me what a mylogram is and how do they do that? And, what does ACDF stand for? What scares me the most is that they have to go through the front of the neck to operate; I almost think I could take going through the back of the neck! You sound like me, Sarge, I have a herniated disc in the lower back, and that hurts, too. Sorry to hear about your fall, that is a darn shame. Was the pain after the surgery real bad? I could stand to lose a good 20 pounds, so that won't bother me. The straw tip is excellent, and I will keep that in mind.
Thanks everyone, and hope to hear more. All information will be appreciated and I know it is going to help me make a decision.
Kross; your suggestion is a good one and I will check on both a neuro guy and an orthepedic guy....as soon as I get up my nerve to go see somebody! I sure am hoping my problem can be fixed by a less invasive treatment. Thanks so much!
Sarge; Glad to see you found me, and your posts have been very helpful and informative. Yes, the headaches are terrible, and I too, have gone to the ER...before I knew I had the neck thing going on. All they did was give me some headache pills, not knowing about the neck issue at that time. The sound you described as a rushing sound is exactly what I have, and it is so annoying. Can you tell me what a mylogram is and how do they do that? And, what does ACDF stand for? What scares me the most is that they have to go through the front of the neck to operate; I almost think I could take going through the back of the neck! You sound like me, Sarge, I have a herniated disc in the lower back, and that hurts, too. Sorry to hear about your fall, that is a darn shame. Was the pain after the surgery real bad? I could stand to lose a good 20 pounds, so that won't bother me. The straw tip is excellent, and I will keep that in mind.
Thanks everyone, and hope to hear more. All information will be appreciated and I know it is going to help me make a decision.
alex12
10-09-2007, 09:28 AM
Chablis,
So far I havn't had any success with pain management. I tried epidural injections 2 weeks ago and had a bad experience... they didnt take since my stenosis is to bad and the pain managment doctor doesnt want to do anymore...she said surgery is all that is left for me.
I don't take any codien related pain meds because I can't really function on them. I take Klonopin to ease my anxiety and if the headaches get out of control I have Fioricet.
Actually I am about to post a question on dealing witht he pain myself, hopefully I will get some hits.
I am seeing my Neurosurgeon Monday to schedule ACDF, I have been having nightmares about this...ugh! I am only 35 and just don't know how I will handle the recovery with 2 little kids...this is a total nightmare!
Good Luck to you!
So far I havn't had any success with pain management. I tried epidural injections 2 weeks ago and had a bad experience... they didnt take since my stenosis is to bad and the pain managment doctor doesnt want to do anymore...she said surgery is all that is left for me.
I don't take any codien related pain meds because I can't really function on them. I take Klonopin to ease my anxiety and if the headaches get out of control I have Fioricet.
Actually I am about to post a question on dealing witht he pain myself, hopefully I will get some hits.
I am seeing my Neurosurgeon Monday to schedule ACDF, I have been having nightmares about this...ugh! I am only 35 and just don't know how I will handle the recovery with 2 little kids...this is a total nightmare!
Good Luck to you!
Tulip15
10-09-2007, 09:58 AM
Hi Chablis see you made it over here, it scared me also and freaked me out to know that they had to go through the front of my neck but as my surgeon described it to me it's less painful that way then going through the back of the neck cause when they go through the back they have to cut through muscle and that is what is painful afterwards. The pain afterwards I know for myself wasn't nearly as bad as the pain I had before surgery, it was just the swallowing difficulties that I had trouble with but it eventually subsided I did a lot of popsicles and soft easy foods and lots of cold liquids and I rested a lot and every day I tried to walk a little bit my surgeon said that walking helps the healing and the fusion process but you cannot overdo this either a little bit at a time and I think I waited 2-3 weeks to start the walking.
Yes you should get an MRI, and x-ray will only tell so much, and also seek out two opinions just don't go with one that is if your insurance will cover it all.
I know from my experience I had a neuro-surgeon, and others have had ortho's, it's all who you are comfortable with and ask a ton of questions, in fact as your thinking of questions now right them down and take them with you.
As I think of more I"ll let you know.
Tulip15
Yes you should get an MRI, and x-ray will only tell so much, and also seek out two opinions just don't go with one that is if your insurance will cover it all.
I know from my experience I had a neuro-surgeon, and others have had ortho's, it's all who you are comfortable with and ask a ton of questions, in fact as your thinking of questions now right them down and take them with you.
As I think of more I"ll let you know.
Tulip15
chablis3
10-09-2007, 05:16 PM
Hi Alex and Tulip, Yes, Tulip, I did find the right site! I didn't know there was one for neck problems, glad you told me! I am really going to have to go see somebody soon about my problem, and at least that way I will know what my options are and what to do. But, with my luck (not usually that good!), I am afraid a doctor is going to tell me all kinds of scary things. But, it seems that you went through your surgery fairly well, and that gives me inspiration. A friends daughter had some kind of neck surgery (not sure exactly what), and her daughter was operated on and went home the same day. Amazed me....were you in hospital just one day, or longer? How long did your operation take? Thanks for all the info; it helps!
Alex, oh, you are so young to have to deal with such pain and problems. I am 64, so I kind of expect things to happen to me as I age. I am active, love going places, doing things, but this neck and my back has really put a damper on my lifestyle. It has to be very tough for you, especially having to take care of the two little ones. I have had the epidural shots also; started doing that last year when it all started. They did help then, but just had another one two weeks ago and it didn't do anything. This time I had a very bad headache that evening, and a "flare up" of pain. Not sure if I want to go back for the second one; trying to make up my mind! I don't take anything on a regular basis.....just pop an ibuprofin or half of a pain pill at night if I can't sleep. I have all kinds of pills, but I try not to take them. Maybe I should; my hubby says I should, but I don't like the side effects. Let me know what your neuro guy says. I wish you luck; hope he eases your mind and helps you make a decision.
Thanks for the info and help!
Alex, oh, you are so young to have to deal with such pain and problems. I am 64, so I kind of expect things to happen to me as I age. I am active, love going places, doing things, but this neck and my back has really put a damper on my lifestyle. It has to be very tough for you, especially having to take care of the two little ones. I have had the epidural shots also; started doing that last year when it all started. They did help then, but just had another one two weeks ago and it didn't do anything. This time I had a very bad headache that evening, and a "flare up" of pain. Not sure if I want to go back for the second one; trying to make up my mind! I don't take anything on a regular basis.....just pop an ibuprofin or half of a pain pill at night if I can't sleep. I have all kinds of pills, but I try not to take them. Maybe I should; my hubby says I should, but I don't like the side effects. Let me know what your neuro guy says. I wish you luck; hope he eases your mind and helps you make a decision.
Thanks for the info and help!
Tulip15
10-09-2007, 06:29 PM
Hi Chablis, I was only in the hospital over night my surgery was scheduled for early morning 8:00 am took 2- 2 1/2 hours the in recovery for several hours, and then was home the next day in the afternoon, I forgot to mention that both surgeries I did not have to wear a neck brace I know some people do but my surgeon said that the plates and screws will hold me together, I just had to be very careful, no bending over, no lifting my arms above my head, and no lifting anything over 10 pounds for several months, I was also lucky that I started to fuse at 6 weeks post-op and was completely fused at 6 months, I know some people it takes them longer. The one thing that is not good is if your a smoker it really slows down the fusion process, eating healthy helps and like I said before walking also helps, this is what I was told, and I just really took care of myself only, my husband managed the kids, and I got someone to clean the house for awhile for me, and I just sat back read a lot of magazines and watched tv, and just really slept alot the first couple of weeks.
Tulip15
Tulip15
chablis3
10-09-2007, 07:13 PM
Tulip, from what you are telling me, the recovery period sounds more stressful than the actual surgery! Not that the surgery isn't something to be concerned and scared about, but having to put a limit on doing things and watching every move you make seems like it had to be very hard. I could deal with a week, but then after that it would drive me nuts, I think. I do understand the reason, though, and a person has to do it....and take care of themselves. I really thought this type of surgery would put a person in the hospital for at least 3 days. Much surprised that it doesn't! I would have to definitely work on my bad habit of smoking, though. I was on the way of quitting, down to 6 a day, but now I find myself lighting one up at night when I wake up in pain. Bad thing to do, but I get so frustrated waking up every two hours in pain. I even put the pack out in the other room last night, but after the 3rd time waking up, I finally gave in and got them and had a few puffs. Not very wise, I admit. If I think of anymore questions, I'll be back looking for you! Thanks again for all your help.
Judy
Judy
Janatee
10-09-2007, 07:28 PM
Hello Chablis3, Welcome and join the club....I m just going into my 6th week post op. I had a 4 level partial discectomy, plus 1 corpectomy.. This is where they remove the entire vertebra and insert a cage. I had this through the neck. I will tell you that my symptoms caused my legs not to work! Yes, I was hobbling and walking with a cane for a few years. This started many years ago, after falling OUT of a bathtub, after I slipped and landed hard on the rim. I was all soaped up and slipped off the rim and landed on a tile floor, with my neck facing one way, and my torso, another.. After a few years, things started to happen to me, like not being able to lift my left leg very high, and when walking I started to stumble. Not to mention the leg becoming heavy numb and tingling. After a Decompressive Lumbar Laminectomy in 2003, that helped one problem, but after 2 years it started up again. Finally, I had to find out what was going on.. So after many MRI's with contrast, I was told this was the problem. If I chose to do nothing, I would end up in a wheelchair, because of all of the compression on my spinal cord. Scared??? Not even close... I prayed a lot, and was blessed with a wonderful surgeon. After listening to what he thought I should do, and him answering my many questions, I went home to think things over. I did not rush into this, yet I did not want to be in a wheelchair the rest of my life, I made the choice and in I went. Going in the front, was the best way for me, and I hardly had any pain. After 2 days in the hospital, I came home with a sore and scratchy throat, and slightly swollen on the inside, (to be expected) and a big Aspen Collar. It has become my second skin...lol lol lol I did drink with straws, and you learn to take small bites, because somethings don't go down like they should. I did stay propped up in a recliner for a few nights, but was able to lay very flat on one pillow in my bed, and it felt great. After many many sponge baths, sitting on a medical stool in the tub, I finally took my first full stand up shower by myself, with out my husbands help... One small step at a time... I do everything they tell me to do, for I do not want to have another operation again. I will go next week for my first set of x rays to see how the fusion is.. I started to walk about 3 weeks ago outside, as long as I was on level ground. If I feel up to it, I go with my husband on some errands in town, and get to walk around some there also. You just can't over do it, believe me your body will tell you if you do. My surgeon said this surgery will give me 95% outcome, that I WILL NOT GET WORSE.... and at least a 65-70% I will get better. The compression on my cord, might have caused some damage, but, will only know in time. As long as I can avoid the wheelchair, it has been worth every little thing... I would do it again. I hope you don't wait too long...it could mean things could get worse. Get all the info you can and ask lots of questions....knowledge is POWER... Good luck and let us know how things progress... We all seem to be in the same boat... Janatee:angel:
chablis3
10-09-2007, 11:50 PM
Janatee, thanks for the welcome! Phew, after reading your post, I am sweating and having a major hot flash.....my nerves got all jumbled up reading what you have been through. I have read a few posts so far that said the pain isn't too bad after the surgery, and glad you told me that also. All my problems are just from degenerating disc's; never had an accident or injury. What an awful thing to happen to you; but it sounds like you are doing well now, and I hope you continue to improve very quickly. When people talk about going through the neck, I have this picture in my mind that the whole front of my neck will be split wide open, and that makes me very nervous. Just how big is the incision? I don't have any pain or such in the shoulder or hands, etc. I am hoping that means that I am not too bad off...yet. Have a little leg and pain on right side, along with lower back pain but that is from a herniated disc in the lower lumbar area. You sure have been through a lot, and your decision kept you out of a wheelchair, so you did make a good decision, for sure.
I like when people say they would "do it again" as that makes me feel it wasn't too bad and was well worth going through. I will remember all the pointers you gave me on recovery. I am remembering all the ones I get from everyone! My sister-in-law keeps telling me, "oh, you don't want to have surgery; it's so risky, etc.! Like I don't know that...and, if she had this pain, she would think again.
Thanks, Janatee, your post was so informative, and I appreciate you advise. Please take care of yourself, and get stronger and better fast! Let me know how your doing cause I am going to wonder how it is going for you!
I like when people say they would "do it again" as that makes me feel it wasn't too bad and was well worth going through. I will remember all the pointers you gave me on recovery. I am remembering all the ones I get from everyone! My sister-in-law keeps telling me, "oh, you don't want to have surgery; it's so risky, etc.! Like I don't know that...and, if she had this pain, she would think again.
Thanks, Janatee, your post was so informative, and I appreciate you advise. Please take care of yourself, and get stronger and better fast! Let me know how your doing cause I am going to wonder how it is going for you!
sadie22
10-09-2007, 11:51 PM
I had a laminectomy 7 years ago - through the back of the neck. My symptoms at the time were severe numbness and tingling in the arm and fingers. The docs tell me I have an unusually high pain tolerance - good in some aspects, but it also means that I usually don't seek help until it's really bad. Anyway - Chablis - they should run a lot more tests on you before anyone even suggests surgery. The neurosurgeon that I finally ended up with was wonderful and the first thing they told me when I went was that he does not like to operate on young women. At first I thought that was wierd but as time progressed I realized that meant he only operated if there were no other choices. In my case I have spinal stenosis which has narrowed the spinal column down considerably and on top of that I had 2 bone spurs - one that pointed into the spinal column and one that compressed a nerve. The recovery from the surgery was painful but worth it. The bad thing is that this surgery doesn't cure it forever....usually it lasts about 6 years. So about a year ago I started up with the symptoms all over again, but of course I knew this time exactly what was going on so I got to avoid all the misdiagnose's I had before. I had another MRI and it indicates the same problem again just in a different spot. It really hit me hard since I have already been through all this before and quite frankly, just how many times can my body go through this? I am about to turn 50. I went back to my chiropractor and we talked - he is the one who knew enough to diagnose me correctly the first time. I am happy to say that he has been able to keep me relatively pain free. At first I had to go to him a couple times a week but now I go about once a month. I know this is not a cure but it is keeping me from having the surgery until I really have no other choice. He does no adjusting - it is called active release technique which in some respects seems like a very deep tissue massage with certain movements. He was not trained in this when I went to him prior to the surgery. See if you can find a good chiropractor who is trained in this and give it a shot.
Janatee
10-10-2007, 02:35 PM
Hi Again... To answer your question about my incision, its only about 3-1/2 " long. Not bad at all. What wonderful things they can do today in surgery and how well they work in tiny places. It is healing really nice. When I go back to the docs on the 16th, they said I could start using Shea Butter on it, to reduce the scarring. Chablis3, please don't let all these post scare you! I know, I've been there. Just get yourself a really good doctor, one you trust, and one that will guide you in the right path. I know this could be a long journey, but if you research, and ask questions, you will be able to make the right choice for you, and what you really need. So many of us want to share our stories with others like ourselves. Nothing wrong with that. But I know some things can be very frightening. Just remember to go one step at a time, and to do only the right thing for you, and not anyone else. I really waited and did my homework, and I was very sure, thinking I could live with this limp the rest of my life. But for me, things just went way down hill. And believe me, I did all the other stuff, but nothing really helped me. Maybe for you, things will be different and you will be one who will benefit from NOT having surgery. We can only hope...But if you do, just remember all who came before you, and all who will come after!!!! Good luck and let us know what you find out... Be strong....we are all in this together....Janatee:angel:
chablis3
10-12-2007, 09:38 PM
Hi Janatee and Sadie, Thanks for the messages! You two have sure been through a heck of a lot! Janatee, when I read all the posts about people going through these operations, I sit here all tense and nervous, but, I have to say, from reading everyone's experiences, I am learning a lot. And, I also am gaining more confidence in the fact that if I do have to have surgery, well, I can make it through it, from all the guidance and knowledge I have learned from talking to you all. I hope your feeling better every day, and thanks for all your support!
Sadie, yes, I would definitely have more tests run, and also have two opinions. I haven't been to see a specialist yet; I am trying to wait it out until the first of the year. I would like to get through the upcoming holidays and then concentrate on ME! I figure I have been in pain all this time, so I can wait a bit longer. My last X-Ray didn't show any pinched nerves in the neck or back, so I think I can wait a bit longer. I am being real careful and not doing anything real streneous, so I don't make things worse, I was going to a chiopractor last year, but I didn't feel that he helped much. He did the "cracking stuff", where he twisted the neck, and the back, and you could hear things cracking. Also, did some neck traction and some exercises. Funny thing, after a few treatments, my hands did start falling asleep at night, and they did have this tingly feeling at times. Well, after I stopped going to him, those symptoms all went away. I have to wonder if it was the treatments that caused that? I do have a traction thing here at home that you hook to a doorframe, and I use that about 3 times a week...helps a little bit. I will have to do more research in that active release technique....sonds interesting.
Hope you both are having good days, and I will keep in touch on an update here and there. Thanks again!
Sadie, yes, I would definitely have more tests run, and also have two opinions. I haven't been to see a specialist yet; I am trying to wait it out until the first of the year. I would like to get through the upcoming holidays and then concentrate on ME! I figure I have been in pain all this time, so I can wait a bit longer. My last X-Ray didn't show any pinched nerves in the neck or back, so I think I can wait a bit longer. I am being real careful and not doing anything real streneous, so I don't make things worse, I was going to a chiopractor last year, but I didn't feel that he helped much. He did the "cracking stuff", where he twisted the neck, and the back, and you could hear things cracking. Also, did some neck traction and some exercises. Funny thing, after a few treatments, my hands did start falling asleep at night, and they did have this tingly feeling at times. Well, after I stopped going to him, those symptoms all went away. I have to wonder if it was the treatments that caused that? I do have a traction thing here at home that you hook to a doorframe, and I use that about 3 times a week...helps a little bit. I will have to do more research in that active release technique....sonds interesting.
Hope you both are having good days, and I will keep in touch on an update here and there. Thanks again!
SpineAZ
10-12-2007, 10:09 PM
Keep in mind an xray won't show pinched nerves - only bone structures. Only an MRI can really see deeply into what is going on.
sadie22
10-12-2007, 10:18 PM
In my case some of it did show on an xray, but I then had to have an MRI and a myleogram (sp.?) as well as nerve conduction testing. Usually you do most of that before you go to a specialist. Got to watch out for the knife happy ones.....
chablis3
10-16-2007, 10:00 PM
Thanks everyone! I definitely will have an MRI done when I make up my mind to go see a neurosurgeon or a orthepedic man. I bet I will have to have a bunch of different tests done at that time. Just trying to hang in for awhile as I need to get through the holidays. After that, it will be time for me to make a decision and take care of myself.
My best to everyone.
My best to everyone.
Tulip15
10-17-2007, 12:01 PM
Hi Chablis, I just read that you had a chiro, adjust your neck, yikes!, please don't ever let them do that to you again, especially since you have degenerative disks that is one area you've got to be careful with.
My incision is about 2- 2 1/2 inches long, and it faded very quickly, it doesn't bother me at all, unless I constantly look at it in the mirror of course I don't do that.
I would say the good thing is you don't have pain going down your arms, or burning, I had that severely, but you do have the numbness and that is concern.
Yes you do need at least two opinions, and x-rays won't show a specialist much, you will probably need MRI's done, in fact I would schedule your appointments now because not much won't get done till after the holidays anyways, maybe at least you can get your appointments, schedule your MRI's, and then after the holidays come to a conclusion as to what to do with your doctor.
You hang in there.
Tulip15
My incision is about 2- 2 1/2 inches long, and it faded very quickly, it doesn't bother me at all, unless I constantly look at it in the mirror of course I don't do that.
I would say the good thing is you don't have pain going down your arms, or burning, I had that severely, but you do have the numbness and that is concern.
Yes you do need at least two opinions, and x-rays won't show a specialist much, you will probably need MRI's done, in fact I would schedule your appointments now because not much won't get done till after the holidays anyways, maybe at least you can get your appointments, schedule your MRI's, and then after the holidays come to a conclusion as to what to do with your doctor.
You hang in there.
Tulip15
chablis3
10-17-2007, 08:18 PM
Hi Tulip, Yes, I did go to a chiopractor for awhile; I think I went twice a week for about three months. This was after I had some epidural shots. I did mention also, that my hands started falling asleep and got tingly, and since I stopped going, my hands don't do that anymore. It sure makes me think the chio treatments were doing something "not right." I definitely will not go to any more chiopractors, for sure. I am so surprised about the incisions from the neck surgeries being so small.....thank goodness. I just have this thing in my mind that they would be really big. Glad to hear your scar is faded and looking good; wear it proudly, though! You've been through a heck of a lot if you ask me!
Good idea of making some appointments now.....I will have to consider that. It would probably ease my mind talking with a good neurosurgeon or orthepedic doc. Thanks, Tulip!
Good idea of making some appointments now.....I will have to consider that. It would probably ease my mind talking with a good neurosurgeon or orthepedic doc. Thanks, Tulip!
glorifay
10-22-2007, 02:41 PM
Hi everyone. I'm new to this site. I have been reading many of your e-mails about your experiences with cervical spine operations. I have had 5 operations through the front of my neck, having every Level down to C-7. My problems have been in front of the spine and that's why they operated through the front of my neck. My last operation was 7 years ago. I'm now having the same problems all over again. The last operation, the doctor put a hole in my throat and this caused major problems. I got an infection that went clear thorugh my entire body. I was very very sick. So with this last experience, I now have fear that I never had before. I always had a positive outlook and a good attitude as I went under the knife. I no longer would have this if I have to go through another operation. My family doctor ordered an MRI and after getting the results, wants me to go to a spine center. With all the new technology, I was hoping something could new could be done. The doctors have taken bones out of my hips and the last one, a donor bone, which another operation had to be performed because of the infection and the donor bone was removed. So my neck is nothing but screws and metal plates. I'm now looking for the best spinal doctor in Maryland. On the positive note for those of you who are going through this type of surgery, there is no pain after the surgery. I didn't have any pain in my neck at all. I just followed the doctor's orders, wore my neck brace and took in easy. The pain was relieved immediately. I'm not afraid of the surgery itself but after the last experience, I more worried of the outcome. Thanks for listening. glorifay
Janatee
10-22-2007, 03:02 PM
Welcome... I sure hope these post from everyone will help you calm your nerves, and give some good information. I am now 8 weeks post-op from a 4 level and 1 corpectomy operation. Things are going great so far, and I too, am following the doctors orders! One thing I had was, they took my vertebrae from my neck, they shaved it up and mixed it in the cement mix they use, and placed it back into my neck with what they call a cage. I had no donor bone, or bone from the hip. I had this done in Augusta, Ga.. Sorry to hear you had those awful problems. I would think going to people who are specialist in this field, will give much better care, and peace of mind...Our thoughts and prayers are with you... Did you have different levels done, at different times, or did you have problems after doing all of them at once? Let us know how things turn out. This board is always here to give advice and comfort.. I know, these people have been good to me! Good luck...Janatee:angel:
glorifay
10-22-2007, 03:12 PM
Welcome... I sure hope these post from everyone will help you calm your nerves, and give some good information. I am now 8 weeks post-op from a 4 level and 1 corpectomy operation. Things are going great so far, and I too, am following the doctors orders! One thing I had was, they took my vertebrae from my neck, they shaved it up and mixed it in the cement mix they use, and placed it back into my neck with what they call a cage. I had no donor bone, or bone from the hip. I had this done in Augusta, Ga.. Sorry to hear you had those awful problems. I would think going to people who are specialist in this field, will give much better care, and peace of mind...Our thoughts and prayers are with you... Did you have different levels done, at different times, or did you have problems after doing all of them at once? Let us know how things turn out. This board is always here to give advice and comfort.. I know, these people have been good to me! Good luck...Janatee:angel:
glorifay
10-22-2007, 03:25 PM
Thanks Janatee! These neck operations all have been separate except the last one. This operation turned into three operations causing me to have tubes in my stomach and chest. I couldn't eat for 5 months, taking liquids through a tube. I was put in a nursing home for 3 months, paralized on the left side. I have to tell you I was put through through hell. It took me a total of 9 months to get better. And, to beat all, the doctor told me I would never get any better. That made me mad and I worked myself to death proving him wrong. I did get better and have been pain free for 7 years. I don't know why now all this is starting over again and showing wedging, causing posterior central bony protrusion, impinging the spinal cord in C3-4, C5-6 and C6-7, C7-T1. I honestly believe by the doctor removing the donor bone, leaving nothing, has caused stress of the above levels and now causing all of them to buldge. I'm not a doctor but something has to be the cause. I'm waiting to hear back from a doctor who only works on spinal problems. I've already had the MRI, without contrast. I do know I won't go through a mylagram or a discogram test. The mylagram is a very painful test and I had that done two times many years ago. They maybe have improved it by now but I'm not willing to take that chance. I only read about the discogram and it sounds similiar to the other one. I'll try to keep in touch to let you know how things are going. I'm not use to this site and was having a hard time figuring out how to get back here. Thanks again for all your support! Hope you will be better too real soon. gloriafay
chablis3
10-22-2007, 08:14 PM
Hi Glorify, Just read through your post and I am totally amazed at how many operations you have been through. You have been very brave! I can see why you are so upset now, since you have been through so much, and now everything is coming back. I have heard that can happen, and it is so unfortunate when it does. I am so very sorry to hear you have to face more problems. But, your post did give me some comfort in you saying there is no pain after the operation. I figure after all you have been through, I can take your word to heart! I haven't been to see a specialist yet, but I am afraid I have multiple disc problems, as my X-Ray result stated I have degenerative disc disease at the C4 through C6 level. Not sure what that all means yet, but it sounds scary to me. Also have a herniated disc in the lower back, and I am not sure which problem to address first when I do go to a specialist. They both hurt, and I have a feeling I may need an operation on both parts of me!! But, your post gave me some inspiration; if you went through so much, then I should be ablt to also. I wish you much luck, and let us know what happens.
Take care,
Judy
Take care,
Judy
chablis3
10-22-2007, 08:18 PM
Hi Janatee....good to hear that things are going good for you, and that your following the doctors orders. Keep up the good work and I hope you will be back to feeling well real soon. Take care of yourself.
Judy
Judy
glorifay
10-23-2007, 01:04 PM
Judy....the first thing you need to do is find a doctor who specialized in the spine. These doctors perform over 600 a year. I have learned the hard way, believe me. I have been through allot, including a thyroid operation in the neck and that resulted in opening my entire chest because of a growth called a goiter. That was after the first neck operation. Please make sure you get a spine specialist for I didn't the first time and that doctor severed my right vocal cord. I no longer can sing. I studied opera at Peabody Institute for 5 years. After surgery, I couldn't even talk. I went to a ENT specialist to find what had been done to my vocal cord. That doctor got away with it because I didn't make a living with my voice. The other two neck operations was a breeze. I didn't have any pain. I don't believe there is much pain in the front of the neck area. My problems are all in front of the spine and that's why they go through the front of my neck and not in the back. The last neck surgery was a misfortune, what else can I say. I was strong enough to fight it and I did. It's also a misfortune that I have to go through this maybe again. Nevertheless, if it has to be done, then I will go through with it. You need to get an MRI. X-Rays do not show all the nerves that are being exposed. They may show the buldge but there is more to it then just that. I will keep you in my prayers. But just remember, the longer you put this off, the worse it could get and more damage could be done. Find that doctor, I can't express that enough. Most often, the doctor will have you try therapy, pain management, etc. None of this worked for me. If anything, it just aggravated the area affected. Your case may be different as each individual responds to these different types of procedures. You take care and I'll try and keep you posted. Gosh! I have such a terrible time trying to find my way back here. I've never been on this type of posting before. :confused: Glorifay
Janatee
10-23-2007, 02:13 PM
Judy, Thanks for the uplifting words.. I see the doc on the 30th, and hoping I will be able to come out of my collar. I know I will have to wear the collar when riding in the car, and maybe when I sleep. At least for awhile now. Please don't wait too long to find out all the answers, my problem has been on going for 8 years now. I had a lumbar operation in 2003 in NJ (where I use to live) South Jersey. But, since I moved to SC, had to get new docs, and get ones who knew what they were doing, and were the top of their game!!! That's important. If I had waited much longer, I was told I would be in a wheel chair in the future. My neck problems were affecting my legs, and walking... I had no problems with my head or shoulders or arms! Funny, you would think the opposite. Keep us informed. We all seem to be in this same boat, and talking about it and getting new info each day, makes it go just a bit better... Take care.. Janatee:angel:
chablis3
10-23-2007, 09:30 PM
Hello Janatee and Glorifay:
Janatee, Yes, that has been in the back of my mind about waiting too long to go see a surgeon. I think I am kidding myself in thinking these problems might go away!! I just don't know which problem to address first, the neck problem or the lower back problem! I suppose I should think about the back first, as if that gets worse, then I am afraid of what could happen. The neck problem causes bad headaches, crackling, and squeezing, but no arm or leg problems, so I think the back might be more important, cause I want to continue walking!! Good luck when you go see the doc on the 30th. Hope you can throw that collar away! I always felt so sorry for little doggies that had to wear those funny collars, and my goodness, I can just imagine how uncomfortable you have been with wearing the kind you have. Good luck and keep in touch.
Glorifay, oh what a terrible time you have had. And such a heartbreaking thing to happen after all your years of studying singing. It just isn't fair the way life treats people at times. Yes, someone else mentioned to me that an x-ray doesn't show everything, and I am sure I will have to eventually have an MRI. But, what kind of doctor did you have for your neck surguries? Should I go see a neurosurgeon or a orthepedic doctor? My neice is a nurse in the ER and she recommended neurosurgeon, so I was thinking of going to see him first. I have already tried other treatments, the therapy, the chiopractor, shots. Nothing has helped long term. But, as I said, reading your post along with the other people's experiences on here has really helped me, so, thanks for your input. To find your way back here, just type www.HealthBoards.com into your Address window and it should bring you right to the site. Click on Spinal Cord Disorders once you find the site. I wish you lots of luck, and I will be praying you won't need another surgery. I will be thinking about you; let us know what happens.
Judy
Janatee, Yes, that has been in the back of my mind about waiting too long to go see a surgeon. I think I am kidding myself in thinking these problems might go away!! I just don't know which problem to address first, the neck problem or the lower back problem! I suppose I should think about the back first, as if that gets worse, then I am afraid of what could happen. The neck problem causes bad headaches, crackling, and squeezing, but no arm or leg problems, so I think the back might be more important, cause I want to continue walking!! Good luck when you go see the doc on the 30th. Hope you can throw that collar away! I always felt so sorry for little doggies that had to wear those funny collars, and my goodness, I can just imagine how uncomfortable you have been with wearing the kind you have. Good luck and keep in touch.
Glorifay, oh what a terrible time you have had. And such a heartbreaking thing to happen after all your years of studying singing. It just isn't fair the way life treats people at times. Yes, someone else mentioned to me that an x-ray doesn't show everything, and I am sure I will have to eventually have an MRI. But, what kind of doctor did you have for your neck surguries? Should I go see a neurosurgeon or a orthepedic doctor? My neice is a nurse in the ER and she recommended neurosurgeon, so I was thinking of going to see him first. I have already tried other treatments, the therapy, the chiopractor, shots. Nothing has helped long term. But, as I said, reading your post along with the other people's experiences on here has really helped me, so, thanks for your input. To find your way back here, just type www.HealthBoards.com into your Address window and it should bring you right to the site. Click on Spinal Cord Disorders once you find the site. I wish you lots of luck, and I will be praying you won't need another surgery. I will be thinking about you; let us know what happens.
Judy
glorifay
10-24-2007, 11:49 AM
Judy,
For the other 3 neck operations, I saw a Neurosurgeon. My doctor made the recommendation of an Orthopedic doctor this time, specializing in the spine. I did get a call this morning from the spine specialist this morning. I have an appointment Nov. 20th. I'm not an expert by no means but I will tell you that the problems in my neck causes pain in the middle of back because the the exposed nerve endings. My suggestion would see the doctor and he most probably will order an MRI of your entire spine to see what is going on. You wouldn't believe the areas that are affected by the neck. Lower back pain usually causes pain in the hip, leg, etc. area. I would look into taking care of my neck first and then go from there. No matter what Judy, just like Janatee said, don't put this off. I can honestly tell you the problem you are having won't go away by itself. I use to think that too when I first had these problems. I did all the therapy, the needles, pain management, acupuncture, pain meds, anti-inflammatory....you name it, I did it. Only a doctor can get to the bottom of this. Janatee said also, get the best doctor you can that specializes in this field. Don't be afraid because even with all the problems I had, and this was doctor's error, I felt 100% better after the operation. The pain was gone and I felt great. Keep in touch and hope you get to feeling better real soon:) . gloria
For the other 3 neck operations, I saw a Neurosurgeon. My doctor made the recommendation of an Orthopedic doctor this time, specializing in the spine. I did get a call this morning from the spine specialist this morning. I have an appointment Nov. 20th. I'm not an expert by no means but I will tell you that the problems in my neck causes pain in the middle of back because the the exposed nerve endings. My suggestion would see the doctor and he most probably will order an MRI of your entire spine to see what is going on. You wouldn't believe the areas that are affected by the neck. Lower back pain usually causes pain in the hip, leg, etc. area. I would look into taking care of my neck first and then go from there. No matter what Judy, just like Janatee said, don't put this off. I can honestly tell you the problem you are having won't go away by itself. I use to think that too when I first had these problems. I did all the therapy, the needles, pain management, acupuncture, pain meds, anti-inflammatory....you name it, I did it. Only a doctor can get to the bottom of this. Janatee said also, get the best doctor you can that specializes in this field. Don't be afraid because even with all the problems I had, and this was doctor's error, I felt 100% better after the operation. The pain was gone and I felt great. Keep in touch and hope you get to feeling better real soon:) . gloria
sadie22
10-25-2007, 12:12 AM
Maybe your insurance works differently but the usual course that I am aware of would be to first see your primary physician. Your primary should be ordering the proper tests first - such as an x ray, an mri, and a nerve conduction test. Depending on the results of those tests you should be referred to a specialist. Your primary physician should be the person that makes the decision which surgeon is the best choice for you based on the results of the tests. And once you do see the specialist they probably should order a mylegram ( xray but with dye) that truly outlines where the problems lie and if there are any blockages to your spinal column. When your primary physician recommends a specialist they usually give you a couple of names - you should do some research to see who is rated as the best. As someone else posted, it can take quite a while to get an appointment with a highly respected specialist, so I wouldn't wait to make these appointments if you are in pain. You may get lucky and get in on a cancellation. I was lucky enough to do this but even then the time between my initial visit with the surgeon and my surgury was about 1 1/2 months. My incision is in the back of my neck, which did require cutting through the muscle and I have a scar about 4 inches long. The surgery relieved 100% of my pain - it was a much more painful recovery than I expected but as long as I took it easy as I was instructed it was ok. The only depressing part is that as I stated in a previous post - this surgery only lasts about 6 years. Then it typically does re-appear, maybe the next section down. I just think that any major surgery needs to be carefully considered as there are risks and complications to any surgery. Even though you may be in pain it is always risky to operate on the spine as one mistake can paralyze you for life - I do not want to scare anyone - I just think that a person needs to go into this with their eyes wide open. If you were crossing the street you would not just look one way.....
julyg
10-25-2007, 06:04 PM
Glorifay
I am very interested in your vocal cord damage. One of mine was paralyzed
during surgery 1 yr ago. Didnt realize that was why I couldnt breath or speak right and was immediately readmitted post ACDF surgery to another hospital for 5 days. After they ruled out cardiac symptoms they started medicating me for breathing disorder. It was not until 2 months post surgery did I find out from ENT the true problem was a paralyzed vocal fold (cord) and had 2 more surgeries to get limited voice back. I have gone for numereous voice therepy sessions and still over 1 yr out I do vocal exercises 2x daily. I use my speaking voice professionally and this has been a huge nightmare. My paralysis has been reduced but still live daily with pain and no I could not dream of singing. I am in pain daily where my vocal cord is strained from use.
I was just in a frightning situation where I needed to call out for help (bad dogs) and could not! I had to wait for someone to notice the problem! How are you dealing with your voice problems?
July
I am very interested in your vocal cord damage. One of mine was paralyzed
during surgery 1 yr ago. Didnt realize that was why I couldnt breath or speak right and was immediately readmitted post ACDF surgery to another hospital for 5 days. After they ruled out cardiac symptoms they started medicating me for breathing disorder. It was not until 2 months post surgery did I find out from ENT the true problem was a paralyzed vocal fold (cord) and had 2 more surgeries to get limited voice back. I have gone for numereous voice therepy sessions and still over 1 yr out I do vocal exercises 2x daily. I use my speaking voice professionally and this has been a huge nightmare. My paralysis has been reduced but still live daily with pain and no I could not dream of singing. I am in pain daily where my vocal cord is strained from use.
I was just in a frightning situation where I needed to call out for help (bad dogs) and could not! I had to wait for someone to notice the problem! How are you dealing with your voice problems?
July
chablis3
10-26-2007, 08:10 PM
Hi Sadie and Everyone, I just read through all the posts again to refresh my memory on all the advice and experiences. I just want to thank everone very much for all the info; it is important to me to read all I can on neck surgeries. Sadie, the kind of insurance I have enables me to go to any type doctor I need to; I don't need to be pre-authorized by my primary care physician. I like this insurance because I don't have to seek "permission" so to speak to go see a specialist. But, in the case of having a major operation, I definitely would consult with my primary care doc to get his opinion, and his suggestions as to who is the best to go to in my area. I would want to have my primary care man involved in what is going on with me, so, yes, I would go see him first even though I am not required to. Also, my neice is a nurse in the OR and she recommended two neurosurgeons and I would like to ask my pcp what he thinks of these guys. Your only the 2nd person I have talked with that said your surgery was through the back of the neck. Why did they do yours that way? I am wondering what the difference is between doing operations on the neck either from the front or the back? Does it depend on what disc is affected? I have also read about problems reappearing years later......I wonder why this happens? So glad to hear you are 100% better, and I hope you stay that way for a long, long time.
Thanks and take care,
Judy
Thanks and take care,
Judy
chablis3
10-26-2007, 08:23 PM
Glorifay, my neck problems seem to be confined to the head area; with the strange headaches (almost like a brain freeze from eating something real cold), to stiffness, cracking and squishing noises, and a buzzing sound in my head. No arm or middle back pain, thank goodness. Now, the lower back pain radiates from a dull constant ache in the middle of back, to a real bad sore feeling in the right side area and under the breast area. It seems to move around at times. My right leg feels a little numb and sometimes my toes, as well. Very strange how it moves to different places. I hope when you go see the Orthepedic doc in November he can help you, and I wish lots of luck. After all you have been through, it's time for you to have some good luck.
Thanks and take care,
Judy
Thanks and take care,
Judy