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View Full Version : Just diagnosed, now what?


MrsAck
10-19-2007, 11:07 AM
Hello all-

I was recently diagnosed with a leaky aortic valve. For the past few months I have been having dizzy spells that did not seem to be triggered by anything I could put my finger on. Then a few weeks ago I ended up in ER, because instead of the "normal" dizzy spells that seemed to clear up in just a minute or two, I could not get my head on straight. I also had some chest discomfort this time.

They found that I was having PVC's, my BP was 148/104, and recommended followup.

So now after a Holter monitor, an "echo", and a Stress Test, the verdict is...no substantial blockages, but a leaking aortic valve. I was put on a beta blocker, then a few days later, an ACE inhibitor (no longer on this as I was having reactions after the first dose). My BP has been regularly in the 114/74 range since, except when I have "spells".

Right now that is where it stands. I have done some research on the net, trying to be more informed about what it can mean to me and what the potential is, but I still don't know anything. I get the functional implications and options, but I have a hard time relating that to where I am in the process. I continue to have the dizzy spells, and chest discomfort, although not as often. Even today, I was sitting at my desk, sorting papers, and got dizzy. I checked my BP right away (I now have a cuff at my desk) and it was 131/92. Nearly an hour later, it was still cranked up at 142/99 at I have a somewhat sedentary job, but until this all started, was very active. Now I don't hardly have the energy to throw a toy for our dog.

Can someone help me out with what kinds of questions to ask? What are the things that I NEED to know? I have lots of questions, but am not sure they will get me the information I need to make educated decisions about my lifestyle and treatment options.

Thank you in advance for any info
MrsAck

maisie jane
10-25-2007, 03:45 PM
Hi Mrsack
Like you i have just been diagnosed with a significant leak of my aorta, they are unsure why i have this so are currently doing blood tests, and i am waiting for an appointmentment for an endioscope so they can look at the aorta, I also have dizzy spells and lethargy, which appears to have gotten worse since i started on the blood pressure tab 2 wks ago, you say you stopped taking yours due to side affects what were they? Re the future the only way it can be sorted is by medication and eventually surgery, this is only what i have found on the net, but dont go searching coz you will end up making your sely worse as i did, the best thing is to make an appointment with your cardioligist and ask them about the prognosis, and to continu to use this health board coz it is ressuring to get support from others who are also going through it. good luck Maisie Jane

 
 
 




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