Nan07
10-29-2007, 11:37 PM
Hi,
Will my tummy go back down after I get off prednisone? I never had a stomach in my life, always in good shape, but now with the autoimmone disease it's hard for me to even exercise..I'm trying to get off the prednisone, but it takes time. Am on Metrotrexate along with the Pred. I take 7 a day and 8 Metrotrexate..
I can't believe my stomach, I haven't even gained that much weight, about 8 lbs......Help..
Will my tummy go back down after I get off prednisone? I never had a stomach in my life, always in good shape, but now with the autoimmone disease it's hard for me to even exercise..I'm trying to get off the prednisone, but it takes time. Am on Metrotrexate along with the Pred. I take 7 a day and 8 Metrotrexate..
I can't believe my stomach, I haven't even gained that much weight, about 8 lbs......Help..
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Leper Messiah
10-31-2007, 02:26 AM
I've read weight gain is one side effect. I woul dsggest that your going to have to carefully montitor your diet to prevent wieght gain, as exercise is obviously out of the question.
Nan07
10-31-2007, 09:11 PM
thanks Leper for your reply. I was never a big eater and I have been cutting back, but my arms are so thin that I hate to cut back too much..
I just hope the stomach and face go back down when I can get the prednisone dropped..
Thanks again..Nel:confused:
I just hope the stomach and face go back down when I can get the prednisone dropped..
Thanks again..Nel:confused:
garethsgirl
11-01-2007, 04:43 PM
I know everyone is talking about prednisone . I have been taking prednisolone , are they the same ? Have had similar problems with stomach bloating.
Nan07
11-01-2007, 05:39 PM
I know everyone is talking about prednisone . I have been taking prednisolone , are they the same ? Have had similar problems with stomach bloating.
Nan07
11-01-2007, 05:44 PM
I looked up prednisolone on google and it seems it's in the same catagory as predinsone..you can read all about it in google..
I've really gained weight in the stomach and around the waist, not just blouting.(if there is a difference)...still only 8 lbs. gain since I've been on it....Nel
I've really gained weight in the stomach and around the waist, not just blouting.(if there is a difference)...still only 8 lbs. gain since I've been on it....Nel
garethsgirl
11-01-2007, 06:02 PM
thanks for your reply , have been on prednisolone twice and had various side effects including depression and palpitations . Have tried azathioprine as well but suffered infections on it - currently not on any medication at all , there doesn't seem to be a lot out there ! Sharon
Leper Messiah
11-01-2007, 08:25 PM
thanks for your reply , have been on prednisolone twice and had various side effects including depression and palpitations . Have tried azathioprine as well but suffered infections on it - currently not on any medication at all , there doesn't seem to be a lot out there ! Sharon
Prednisolone is essentially the same as Prednisone. I think its jsut easier on the liver, because Prednisone is converted into Prednisolone by the liver, so its probably easier on the liver to straight up administer prednisolone,
Prednisolone is essentially the same as Prednisone. I think its jsut easier on the liver, because Prednisone is converted into Prednisolone by the liver, so its probably easier on the liver to straight up administer prednisolone,
garethsgirl
11-01-2007, 08:36 PM
It's good to talk to other people in the same boat ! Don't get a lot of feedback from my consultant , he just seems to take it a stage at a time . He hasn't discussed the illness with me at all - just left it to me to look things up on the net .
MaryNY
11-06-2007, 06:19 PM
Depending on what the prednisolone is for you could try other medications. Once on methotrexate and Imuran my focal myositis lessened and then I eventually was able to taper off prednisone. I feel a whole lot better, I just now need to be carefully with illnesses from others.
Nan07
11-06-2007, 11:23 PM
Hi Mary,
My Rheomy doesn't seem to know which autoimmune disease I have as of yet. I've been on prednisone for at least a year. Small doses. I just cut back to 6.5mgs. I was put on Metrotrexate about 4 months ago..don't know if I'm doing any better..I bumped my leg Sat. and it's really bad, going to the Drs. tomorrow..my skin has gotten so thin that every little bump makes me blue, but this one is really ugly. The nurse at the hospital that my brother in law is in, told me to promise her I would go to the Drs..SOOOO.
I may have to try something else also if I don't start getting better..I see my Rheomy the 4th..
Thanks for your answer, and everyone else.......Nel
My Rheomy doesn't seem to know which autoimmune disease I have as of yet. I've been on prednisone for at least a year. Small doses. I just cut back to 6.5mgs. I was put on Metrotrexate about 4 months ago..don't know if I'm doing any better..I bumped my leg Sat. and it's really bad, going to the Drs. tomorrow..my skin has gotten so thin that every little bump makes me blue, but this one is really ugly. The nurse at the hospital that my brother in law is in, told me to promise her I would go to the Drs..SOOOO.
I may have to try something else also if I don't start getting better..I see my Rheomy the 4th..
Thanks for your answer, and everyone else.......Nel
garethsgirl
11-07-2007, 12:36 PM
hi Mary , I have dermatomyositis . Was diagnosed about a year ago with the skin problems and have recently developed muscle problems . I have been on prednisolone twice this year and have also tried azathioprine too . Have had various side effects with both treatments , at the moment I am recieving no treatment at all . Sharon
ltr
11-10-2007, 11:01 PM
Mary - I see you live in Watkins. I live in Elmira and am amazed that someone so close has a rare disease like mine. I have polymyositis. Would love to talk.
MaryNY
01-16-2008, 10:58 AM
Mary - I see you live in Watkins. I live in Elmira and am amazed that someone so close has a rare disease like mine. I have polymyositis. Would love to talk.
i'm not sure the best way to contact me but I have added your to my buddy list, and would be interested in talking more.
i'm not sure the best way to contact me but I have added your to my buddy list, and would be interested in talking more.
littlehouse114
06-21-2008, 12:03 PM
Hi,
My dad has polymysitis as well. He is MISERABLE from the prednisone treatments. What else are you doing as far as medication to help with your disease. His numbers are in the 500's. He's SOOOO DEPRESSED from always being sick from the pred. and taking some kind of chemo therapy. He changed his awful eating habits too and we think that's why his numbers are no longer in the 1000's. Please help with any advice. I'd love to hear from someone going through this. Thank you.
Stacy
My dad has polymysitis as well. He is MISERABLE from the prednisone treatments. What else are you doing as far as medication to help with your disease. His numbers are in the 500's. He's SOOOO DEPRESSED from always being sick from the pred. and taking some kind of chemo therapy. He changed his awful eating habits too and we think that's why his numbers are no longer in the 1000's. Please help with any advice. I'd love to hear from someone going through this. Thank you.
Stacy
Nan07
06-21-2008, 08:41 PM
Hi Stacy,
I don't have a clue as to what to do..I don't understand the #'s you are speaking of..do you mean the prednisone?
I'm down to 4&1/2 mgs. as of Monday..I feel awful today, I don't know if it's the heat or just got to tired from a short trip up north. I can't seem to get back to feeling even as good as I did, which wasn't really well.
My Reumy has me on Methrotrexate, 8pills, one day a week..that and pred. is the only thing I've tried..I've had this something, what ever it is, for 2 and 1/2 years now and it's really got to me..The Dr. is pleased because my sed rate is holding in the 20's, so he can drop the prednisone..but everyone on the Myositic group have tried different meds.
I've always had good eating habits and did yoga, dancing and used my treadmill and stationary bike, so why did I get this awful thing that I never had heard of, and the Dr. still doesn't know what kind of autoimmune disease I have..you'd think they would know by now..Only test I haven't had is the Muscle Biopsy..maybe that's what he plans on next. I have read that if you have the MB while on jpred, you could get a faust negation...
I wish I knew what to tell you to help, but sometimes I starting crying too can't stand being this way, I was always so active...
Is you dad bruising really bad? I'm imbarrassed to go anywhere with my hands and legs all bruised up..
They should have more clinical Trials for autoimmune diseases
Glad you got my message.....take care........Nel
I don't have a clue as to what to do..I don't understand the #'s you are speaking of..do you mean the prednisone?
I'm down to 4&1/2 mgs. as of Monday..I feel awful today, I don't know if it's the heat or just got to tired from a short trip up north. I can't seem to get back to feeling even as good as I did, which wasn't really well.
My Reumy has me on Methrotrexate, 8pills, one day a week..that and pred. is the only thing I've tried..I've had this something, what ever it is, for 2 and 1/2 years now and it's really got to me..The Dr. is pleased because my sed rate is holding in the 20's, so he can drop the prednisone..but everyone on the Myositic group have tried different meds.
I've always had good eating habits and did yoga, dancing and used my treadmill and stationary bike, so why did I get this awful thing that I never had heard of, and the Dr. still doesn't know what kind of autoimmune disease I have..you'd think they would know by now..Only test I haven't had is the Muscle Biopsy..maybe that's what he plans on next. I have read that if you have the MB while on jpred, you could get a faust negation...
I wish I knew what to tell you to help, but sometimes I starting crying too can't stand being this way, I was always so active...
Is you dad bruising really bad? I'm imbarrassed to go anywhere with my hands and legs all bruised up..
They should have more clinical Trials for autoimmune diseases
Glad you got my message.....take care........Nel
maz70
08-20-2008, 10:19 PM
Hi, yes your stomach will go down once you drop down to a small dose on the steroid, surprisingly quickly too. Goodluck.
Nan07
08-25-2008, 08:40 PM
Hi,
What dose were you on when you noticed you stomach going down? I'm only on 4 &1/2. I thought the other day it had come down some, but all the meds I take keep me bloated so I don't know if I'm down or not. My pants are a bit looser..
I'm waiting now for a call from my Rheumy to find out if I can go down lower. I was there last week and the girl that took my blood was new, she finally call for the regular girl, thank heavens, she had tried 3 times and one was in my wrist, it turned blue about 5 inches long...I'll tell them next time I want Lorraine to do it...
Take care and blessings..Nel
What dose were you on when you noticed you stomach going down? I'm only on 4 &1/2. I thought the other day it had come down some, but all the meds I take keep me bloated so I don't know if I'm down or not. My pants are a bit looser..
I'm waiting now for a call from my Rheumy to find out if I can go down lower. I was there last week and the girl that took my blood was new, she finally call for the regular girl, thank heavens, she had tried 3 times and one was in my wrist, it turned blue about 5 inches long...I'll tell them next time I want Lorraine to do it...
Take care and blessings..Nel
maz70
08-26-2008, 01:40 AM
Hi Nel,
Good to hear from you. I noticed my stomach going down once i went below 10mgs. I am on 5 now and don't have any bloating. It only took about 3 weeks for my belly to get back to normal, thank goodness. Good luck with your tests, hope the results come back good and you can go down lower. I have the same girl do my blood test all the time, sometimes she bruises and sometimes not, but i have shocking veins. It can also depend on how much fluid you have had before the test as to how good your veins are. Drinking plenty of water beforehand helps. Hope you are feeling well.
Maz.
Good to hear from you. I noticed my stomach going down once i went below 10mgs. I am on 5 now and don't have any bloating. It only took about 3 weeks for my belly to get back to normal, thank goodness. Good luck with your tests, hope the results come back good and you can go down lower. I have the same girl do my blood test all the time, sometimes she bruises and sometimes not, but i have shocking veins. It can also depend on how much fluid you have had before the test as to how good your veins are. Drinking plenty of water beforehand helps. Hope you are feeling well.
Maz.
Nan07
08-31-2008, 07:24 PM
Hi Maz,
Well the Dr. called and had me go down to 4 mgs..my sed rate is at 26, I guess that's good, but I notice it's a bit higher everytime...that's what they are looking for with the Polymyalgia, if that's what it is...
Thanks for writing. It's a bit hard for me to answer right away, but love hearing from everyone..
I have that darn Atrial Fib also, so I have a few groups and try to keep up with all of them and some time can't remember witch is which....
Hugs to all....Nel
Well the Dr. called and had me go down to 4 mgs..my sed rate is at 26, I guess that's good, but I notice it's a bit higher everytime...that's what they are looking for with the Polymyalgia, if that's what it is...
Thanks for writing. It's a bit hard for me to answer right away, but love hearing from everyone..
I have that darn Atrial Fib also, so I have a few groups and try to keep up with all of them and some time can't remember witch is which....
Hugs to all....Nel
maz70
09-01-2008, 01:55 AM
Hi Nel,
Glad to hear you've gone down a little more. I hate being on the prendisalone but it is the only thing that keeps the pain away (well better than usual anyway). I will be glad though when i can get off it completely. Take care of yourself and chat soon.
Maz.
Glad to hear you've gone down a little more. I hate being on the prendisalone but it is the only thing that keeps the pain away (well better than usual anyway). I will be glad though when i can get off it completely. Take care of yourself and chat soon.
Maz.