osteoblast
11-06-2007, 03:21 PM
Yesterday on Oprah , Dr Oz praised vit d extensively and said that a deficiency may be implicated in certain cancers, and other diseases including OSTEOPOROSIS as well as autoimmune disorders. This is not really new to readers of this board. We often talk about vit d. But it is just another reinforcement and reminder to be sure we stay at a good level on this vitamin. I feel that long term vit d deficiency has had a huge impact on me both with my osteoporosis and autoimmune hashimoto's thyroidititis.I have found alot of great info on this at the Vitamin D Council. Also, I have had mds who were way off , telling me a vit d level of 30 was ok, or do not in any case exceed 2000IU vit d a day. From what I have read that advice is very old school. And, if you are on forteo, be aware that forteo uses vit d at a higher than normal rate. Look at the forteo insert and it talks about significant decline in vit d levels while people are on forteo.So everybody, be sure to get your vit d levels to a good level and supplement adequately esp. those in the northern regions as we go into winter.
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Turquoise
11-07-2007, 07:27 AM
I saw Dr. Oz on Oprah and I noticed he didn't mentioned any of the bisphosphates for treatment which may mean he forgot or he is not a fan. He recomended weight training and sunlight for vitamin D. But he didn't go into it enough. Sunlight is great but you if you use sunscreen you won't get the benefits. Also, you can't sit in the sun with just your hands and face exposed. You need a certain percentage of your body exposed.He also said the audience was tested and those with osteopenia would probably get osteoporosis which isn't true. Some bone loss is normal in aging. The drug companies coined the word osteopenia to scare the heck out of us so we go on the bisphosphates.
I wish Gillian Sansone or one of the other medical professionals who aren't beholding to the drug compaines would come on Oprah and really debunk some of the myths surrounding osteoporosis and let the masses know what's really going on.
Turquoise
I wish Gillian Sansone or one of the other medical professionals who aren't beholding to the drug compaines would come on Oprah and really debunk some of the myths surrounding osteoporosis and let the masses know what's really going on.
Turquoise
phylwill1152
11-07-2007, 07:55 AM
BRAVO TOURQUISE :bouncing::bouncing::bouncing:...I thought the same thing when i saw it. I can see it now...women sitting outside on a sunny winter day sunny their hands and face thinking they are doing the right thing and maybe nothing else to help themselves. I'd love to see and hear what Gillian Sansone and others have to say, but its mostly the ones recommending meds that get the time to talk. I think Dr. Oz missed an opportunity to give helpful info and said too little. Haven't seen you here for a while...how ya been? take care...phyllis
Turquoise
11-07-2007, 08:14 AM
Haven't seen you here for a while...how ya been?
phylwil:
I check the board almost daily but have been busy with aging moms (one with alz) and grandkids. I am trying not to dwell on my osteoporosis and am lucky I don't have any symptoms that tell me I have it. I have an endo appt. this month and I'm going to bring in my Strontium to see what she has to say about it. She hasn't helped my situation at all and this may be my last appt.
She thinks I should keep taking the Fosamax which didn't help and gave me horrible neck and shoulder pain.
For those of us that the conventional meds do not help... it's up to us to find something that does. My readings were stable this year which may be because I'm past menopause or my exercise and diet routine. Who knows. Certainly not the medical community.
Hope all is well with you.
Turquoise
phylwil:
I check the board almost daily but have been busy with aging moms (one with alz) and grandkids. I am trying not to dwell on my osteoporosis and am lucky I don't have any symptoms that tell me I have it. I have an endo appt. this month and I'm going to bring in my Strontium to see what she has to say about it. She hasn't helped my situation at all and this may be my last appt.
She thinks I should keep taking the Fosamax which didn't help and gave me horrible neck and shoulder pain.
For those of us that the conventional meds do not help... it's up to us to find something that does. My readings were stable this year which may be because I'm past menopause or my exercise and diet routine. Who knows. Certainly not the medical community.
Hope all is well with you.
Turquoise
starfish81
11-07-2007, 08:50 PM
Hey Turquoise-great to hear from you again:D-wondered where you were. You wrote a wonderful post to reply to my initial one way back in....July I think? Anyway, I agree-Gillian Sanson ought to be on national TV instead of these fear-mongering medical professionals. We don't have TV (by choice) but a close friend saw the Oprah segment you're probably referring to and she said that Dr Oz took a "normal" spine and one with osteoporosis and showed how the osteoporosis spine was basically moth-eaten looking and it crumbled readily.
I know my friend didn't mean to upset me by telling me that, but I am upset. And I can feel the fear creeping back. Why, oh why, was it not mentioned that there are other factors besides BMD that determine fracture risk? Gawd-as much as I've benefitted from these boards, sometimes I get "too much" info here too. Someone recently said that, because of a -3.4 lumbar reading, her doctor told her not to bend over at the waist. Well, that's my reading too, and I not only bend over at the waist, but I do back exercises with weights, lumbar stretches, and I've taken some pretty spectacular falls downhill sking. And I don't intend to stop any of it.
I have been consumed by this "diagnosis" for 7 precious years of my life. I'm now undergoing painful prolotherapy treatments for both knees, which have damaged ligaments and cartilage by overdoing it with exercise-all in the name of paranoia about BMD. Hey, maybe some of us should go public with what is possibly the biggest scam against women since HRT:mad:!
I know my friend didn't mean to upset me by telling me that, but I am upset. And I can feel the fear creeping back. Why, oh why, was it not mentioned that there are other factors besides BMD that determine fracture risk? Gawd-as much as I've benefitted from these boards, sometimes I get "too much" info here too. Someone recently said that, because of a -3.4 lumbar reading, her doctor told her not to bend over at the waist. Well, that's my reading too, and I not only bend over at the waist, but I do back exercises with weights, lumbar stretches, and I've taken some pretty spectacular falls downhill sking. And I don't intend to stop any of it.
I have been consumed by this "diagnosis" for 7 precious years of my life. I'm now undergoing painful prolotherapy treatments for both knees, which have damaged ligaments and cartilage by overdoing it with exercise-all in the name of paranoia about BMD. Hey, maybe some of us should go public with what is possibly the biggest scam against women since HRT:mad:!
peppurr
11-08-2007, 12:09 AM
Interesting thread. I missed Oprah but I'm not really a big fan of Dr Oz. I can't get past him wearing his scrubs to every show!:jester:
My naturopath that I saw a couple of weeks ago empathized Vit D too. I live in Vancouver Canada. He said the same thing - even in the summer we don't get enough sun because of covering up and sunscreen.
I'm presently on 1732 iu Vit D. I've been told the max is 2000iu. Vit D is in my calcium supplements and daily vit pill. I also have a bottle of liquid vit D and I put 2 drops on my tongue daily (400iu each drop). It tastes terrible but I deal with it.:)
My naturopath that I saw a couple of weeks ago empathized Vit D too. I live in Vancouver Canada. He said the same thing - even in the summer we don't get enough sun because of covering up and sunscreen.
I'm presently on 1732 iu Vit D. I've been told the max is 2000iu. Vit D is in my calcium supplements and daily vit pill. I also have a bottle of liquid vit D and I put 2 drops on my tongue daily (400iu each drop). It tastes terrible but I deal with it.:)
Turquoise
11-08-2007, 08:42 AM
Hi Starfish:
My spine reading is -3.5 and my 91 year old mother's is -5.0. Neither of us has a hump back and we can still stand upright.(he-he) That's why there HAS to be another type of test to read the strength of bones. The bone density test is totally useless in this respect! I,too, exercise, pick up my grandkids, do yard work, run, dance, etc, etc and my spine has not crumbled to dust. This is common sense. Many of us have osteoporosis but we don't have brittle bone disease.
But the voices of reason don't get airplay. They are looked at which skepticism and are thought to be radical. I,too, wasted years of my life thinking I was going to end up in a wheel chair. Well, no more. I rarely think about it. I've never had a broken bone and that's not saying I've never fallen or knocked into something extremely hard. Until someone finds the key difference in those who do break bones easily and people like me with osteo who have always been "stong like bull", we're are at the mercy of those selling drugs.
I work in the medical field and it's all I can do to keep my mouth shut when we have drug lunches from Fosamax or Actonel. I have said to the Fosamax rep that I was on it for 3 1/2 years and it didn't do anything but give me terrible neck and shoulder pain. He was dumbfounded.
Starfish, just live your life. Take your calcium, vit. D, exercise, step carefully and enjoy.
Turquoise
My spine reading is -3.5 and my 91 year old mother's is -5.0. Neither of us has a hump back and we can still stand upright.(he-he) That's why there HAS to be another type of test to read the strength of bones. The bone density test is totally useless in this respect! I,too, exercise, pick up my grandkids, do yard work, run, dance, etc, etc and my spine has not crumbled to dust. This is common sense. Many of us have osteoporosis but we don't have brittle bone disease.
But the voices of reason don't get airplay. They are looked at which skepticism and are thought to be radical. I,too, wasted years of my life thinking I was going to end up in a wheel chair. Well, no more. I rarely think about it. I've never had a broken bone and that's not saying I've never fallen or knocked into something extremely hard. Until someone finds the key difference in those who do break bones easily and people like me with osteo who have always been "stong like bull", we're are at the mercy of those selling drugs.
I work in the medical field and it's all I can do to keep my mouth shut when we have drug lunches from Fosamax or Actonel. I have said to the Fosamax rep that I was on it for 3 1/2 years and it didn't do anything but give me terrible neck and shoulder pain. He was dumbfounded.
Starfish, just live your life. Take your calcium, vit. D, exercise, step carefully and enjoy.
Turquoise
phylwill1152
11-08-2007, 10:21 AM
Hi stafish...i saw Dr. Oz show the 2 spines and at first thought "wow..thats pretty awful" but then realized he was showing an example of the worst possible conditon a spine could get in. He has a tendency to go for the extreme to prove his point. Don't let his or anyone else's scare tactics lure you back into fear. Turquoise gave you very good advice...get back to doing the things you love to do. take care...phyllis
starfish81
11-08-2007, 10:54 AM
Thanks Turquoise and Phylwill (and others too); your replies brought me back from fear to reality. And reminded me of something I meant to post a month ago but didn't get around to. You'll find this interesting: we were in Montreal for a 90th birthday party. We were at a large hotel which had breakfast included, and one morning we happened to be seated by a table of pharmaceutical marketing reps who were attending a convention. One thirtysomething was particularly loud, and said that the best marketing tactic was fear. You show a sportscar with a young beautiful person and people will want it because the implication is that, if you own one of these, you'll be perceived as young and beautiful just like the ad (fear of aging).
He went on to blab that older women were the best targets when marketing fear. Then he said "take Fosamax for example....tell them they'll end up humped over or in a wheelchair and they'll be begging their doctors to spare them this horrible fate". Someone else at the table then said "yeah, but sales of Fosamax are dropping.....we have to think of a new scare tactic to get them back up again".
Well, I guess that says it all :D :mad: (don't know whether to laugh or cry)...
He went on to blab that older women were the best targets when marketing fear. Then he said "take Fosamax for example....tell them they'll end up humped over or in a wheelchair and they'll be begging their doctors to spare them this horrible fate". Someone else at the table then said "yeah, but sales of Fosamax are dropping.....we have to think of a new scare tactic to get them back up again".
Well, I guess that says it all :D :mad: (don't know whether to laugh or cry)...
phylwill1152
11-08-2007, 04:02 PM
Hi Starfish...thanks for sharing what you overheard..i'm surprised the sales reps aren't warned about talking like that in public. Fear is a great motivator and they are masters at creating it. Whenever you get that fear feeling just think of what those men said...utter a few choice words and go do something fun. I'm off to take the dogs for a walk in the cornfield across from our house. i'll take my backpack and fill it with the corn the picker missed. take care...phyllis