I have got a sister inlaw that says she has this Fibromyalgia. I think that she is a total fake and using this as an excuse not to get off her big backside. And I think what she has done is read sites like this and used the information to her advantage.
Now she is on a full pension and is in better shape than I am. I have read through the things what make up this bad problem. And I to could quite easily say that I to have it, as I have got more than 30% of the things that go to constatute this.
I also have friend that says she has it but she is still in the work force doing her bit and doesn't whinge about things. Where as my sister inlaw uses this as much as she can to get out of doint things. And to this I totally hate.
I truely suffer with a bad back and I hate it when people say they have got a bad back. No, you have a sore back for a couple of days so don't use that as an excuse not to do things. Live with it all the time and then you will know how true it is.
Like this Fibro I don't know what its like. But I could honestly could say I have it, as like I have said I have heaps of what is discribed in one of the posts.
I think people who use thing like this and know they don't have it should be exposed for the frauds they really are. She just uses this an a true excuse not to do anything.
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jojim
11-12-2007, 06:13 AM
well in fear of making this a attack on you , let me tell you this, if you had fibro you wouldn,t attack anyone one who has this, we all have bad days and good days , we all went throu and are still going throu different stages, when i first was hit with fibro i didn,t and couldn,t do sh..t for a year, not only dealing with the pain and life change, mental was a big issuse. i think you should stop being nasty and read up on it . make sure you know the degree,s in which fibro, rare's it's ugly head before you comment, cheers good health for you go see doctor and pray you haven't got fibro :angel:
lninohio
11-12-2007, 09:22 AM
You know one of the worst things about having Fibromyalgia is the number of people who think you "seem" fine and think you are a fake.... there are no visible or outward symptoms of this ugly nasty disease, the pain is chronic and constant, on your good days the pain is there, on your bad days the pain is all but unbearable. I use the flu as a comparision, when you have the flu and your body hurts, you ache all over, your muscles and joints hurt, well when you have fibro you feel like this ALL OF THE TIME.... that is your good day 24/7 then when you have a flare up its like someone has beaten the crap out of you. You really should not judge someone until you walk a mile in their shoes, I am sorry that you have chronic back pain, you deal with that in your way, but I am sure there are others who do not get through things the same way you do... please take a moment, and be compassionate and think just for a minute, what if no one believed that you have a bad back and when you told them so they say, "oh just come on its not that bad, you can do this" we live with enough pain as it is, don't add emotional pain on top of it.
:confused:
bluelakelady
11-12-2007, 09:23 AM
hi bushranger,
did you have a question for us or are you just venting? it is very hard to know someone with fibro. it takes a level of compassion few possess. how a person handles their fibro is as individual as we are. some of us are very proactive and upbeat, knowing we are still who we are. others become lost in it all. they are not as strong so we show them deep compassion as we know how hard this road is.
i have been in a wheelchair and bedridden. that was years ago. i worked long and hard to get as healthy as i can be. there are still many things others must do as i cannot. it is what it is. they know that and we work with what i can do today.
i am curious and feel i must ask. why are you here? how may we help you? you sound so angry. perhaps we can help you there?
peace,
bluelakelady
kdel
11-12-2007, 10:07 AM
Your first sentence was enough. Those of us who have to deal with Fibromyalgia everyday eventually just cut people like you out of our lives for good.
What makes you think she DOESN'T have it?
Why do you care what she does all day?
You say she uses it as an excuse not to get off her "big backside". what is that all about? Are you perfect? Do you think if she weren't big as you say she would feel better?
She is probably afraid to get up and do something because she knows it will cause her pain. Something that is simple and done without thought for others like, chopping vegetables, vacuuming, washing the floor etc. can put us into agony. We avoid it because we are in pain, then on a "good" day which some one else already described to you as horrible we have to decide if we should try to do something that could put us into bed and tears for a week or more or try to let it go and enjoy the fact that we can move around a bit.
usually out of guilt we choose to do whatever it is that needs to be done, Then when we can't so much as walk from the bed to the bathroom without exrutiating pain and we can't keep our eyes open yet we can't sleep either We have to deal with someone like you who thinks we are lazy.
We are not lazy, we don't want to sit home while everyone else is out and about, we don't want to miss special events. We don't want to have to ask you to help zipper the kids jackets because last night we made you dinner that involved chopping something and now our hands don't work!
We learn to not make plans in advance so as not to dissapoint and if that's not possible we either push it or we do dissapoint.
We cannot just live spontaniously-we must always consider what the price will be that we know we will have to pay for doing something you take for granted. We don't WANT to dissapoint our children because we can't help out in their class trip that we volunteered for a month ago because the day we said yes was "good" day. I could go on and on but hey it's actually PAINFUL to type for this long. Dealing with attitudes such as your is also very painful. I really feel for your sister in law. I am so glad she is not married to you which brings me back to-What do you care? Really, if you can't accept it, why not just leave her alone? You say you have a bad back? and you hate it when people say they do? We WISH we had a bad back and hate it when you think it can even compare.
Jenn4508
11-12-2007, 10:52 AM
bushranger - I have to say amen to the rest of the posters and add the following... The other things that have not been mentioned is some of us do have depression along with the Fibro.... I myself have been diagnosed with BiPolar1 and have been fighting for over 20 years to find the right med combo. We also suffer from "Fibro Fog" which is hard to explain sometimes however, it is like you are out in left field, trying to remember words, put sentences together, where did you put the groceries you just bought (are they in the refrig or did you put them in the pantry).... Then the sensory overload... the noises, lights everything bothers you....
Then when you do overdo it and you need those trigger point injections, sometimes 8-10 or more at a visit, sometimes those even put you in bed for a couple of days.... but you take them because hey, they may help for a couple of day or a week, but then again, maybe not at all... But you do everything in your power so that you are able to do something, anything.
No, I do not as for a pity party for myself nor for the rest of my fibro friends... as we all have to do what we can do to stay healthy.... Somedays are good which means on a pain scale of 1-10, you hurt at 9 and on a bad day you hurt at +25....
I am sorry that you have a bad back however, we also have bad backs... that is where I get some of my trigger point injections that hurt the worst every 28 days... The way you know if they hit the trigger point is if it really hurts when the needle goes in....
Fibro is a real disease/disorder, whatever you want to call it.... It is no different than if you had diabetes, high blood pressure or anything else... The thing about Fibro is that YOU cannot see it... However we can see it every day, we feel it, and we deserve respect just as you do with your back pain....
We carry the guilt when our children want us to play, take them somewhere, or even to give us a hug, yes my friend, sometimes even hugs hurt us but we need them just the same....
So please, don't judge a book by its cover and I pray to God that you do not have Fibro and never have a full-blown flare-up....
I think you are angry about something else and should look deeper into that.... We are human beings that have feelings and care and wish only the best for you.... Jenn
rosebuddy61
11-12-2007, 11:09 AM
Is this some kind of joke? You're kidding aren't you?
If not, and i am highly suspect, my advice to you is to stay as far away from your sis in law as you can unless you can be compassionate. Her life is none of your business. I hope that you will be honest with her the next time she speaks to you about her fibromyalgia and tell her you don't believe she has fibromyalgia and that you will not be there for her so that she will not seek validation from you. She needs to cut you loose and she will eventually. Most of us learn to seek out the people in our families that are supportive and encouraging. We get tired of explaining our illness to people like you. I strongly suggest that you get some counseling and find out how to channel your hostility in a healthy manner instead of bashing your sister in law. If you don't already see a pain mgmt doctor for your back pain, that might be a good idea too.
jojim
11-12-2007, 04:00 PM
well bushranger hope you got the response you wanted, leave your sister inlaw alone and get on with your own life. also most people with fibro do stumble onto this sight trying to find help ,love , and support. because of people like you out there,so i suggest you go see a doctor and get help for your back, as far as i,m concerned your post was nasty and attention seeking, well you got our ATTENTION, :confused:
Jenn4508
11-12-2007, 06:35 PM
bushranger - I hope you will see that this is not something that is "fake". Please do your sister in law a favor and send her our way... We will welcome her with open arms, warmth, caring thoughts and all the support she needs.