What is this with these sites? Sure fibro will not kill you, but when you cannot exercise, can barely walk, have a hard time getting out of bed even when you are popping every pill in the world that is supposed to help you, and that is a good day, everything else will kill you. I was finally diagnosed about 5 years ago after a battery of tests. Just to let you know how bad I get, I have had one good day out of 2 months. I have the creepy skin, insomnia, every point is sore, I take vicodin, darvocet (at the same time), 3 muscle relaxers a day, and so on. I have tried every natural remedy. I have tried exercising, meditation, massage, every different med around and I get very little relief. So, of course, I do some more research to see what will help and the first thing that jumps out at me is this is not a life threatening disease. Well, I disagree. I have gained 60 lbs. taking meds, I cannot think, and I can barely walk; if that doesn't hurt your heart and vital organs, I do not know what does. And, what about the meds, great for the kidneys heh doc. So, I look at another site and guess what? I says flares are temporary. Well, I have had a temporary flare for the past 5 years. When will these people wake up and stop making these stupid statements. Keep a good attitude. Right. That person does not have severe fibro. And, family, they are the worse. No comprehension on what is going on. They are only concerned about what mom can do for them. I think that people with severe fibro should run these sites. Not doctors who do not know what it is like to be in pain day after day. It wears on you. Sure it doesn't kill you directly, but it drains every bit of life out of you. It is a slow, progressive, death of a persons sole. So, read on doc. I hope this will open your eyes.:mad:

I understand your level of hopelessness and hope venting helped you. We all feel your pain. Have you tried the guafenesin protocol? Dr. St. Amand is the pioneer of this treatment and has a book entitled "What Your Doctor May Not Tell You About Fibromyalgia" that will tell you about the treatment. It may just change your life, as it did for me.

Blessings,
Kirstee

Hi notacare, I would just like to say-AMEN!

I know the feeling: docs that just wanted to send me to the phyic ward or once realized that something was wrong they wanted to knife it...could tell ya horror stories and this was in Boston home of the AMA.
I did the research(couldn't get out much then), found a great MD that switched to holistic. Did Chelation (an IV drip treatment that removes heavy metals such as mercury). The Navy used it back in the 1940's for lead poisining for decades.
I eat mostly organic now(not much choice evrything else causes pain).
coconut oil also help , look up tropicaltraditions. ... , needs. is also a good source for info in laymens terms. those are a start.
Most of all You must do the research , never take No for an answer
God Bless