unhappy162
11-18-2007, 07:37 PM
i have been diagnosed with m,e but i wonder if i have another illness, im exhausted and bed bound, i have burning hot feet at the bottoms and my body overheats, i also have very red palms, i was tested for ms but it came bk negative im so confused
Sponsor
tuckersmom
11-18-2007, 08:27 PM
Hello. Welcome to our board. Can I ask a few questions? What type of MS testing have you had? Did they do MRI's or a spinal tap?
Lisa:wave:
Lisa:wave:
unhappy162
11-19-2007, 05:34 AM
Hello. Welcome to our board. Can I ask a few questions? What type of MS testing have you had? Did they do MRI's or a spinal tap?
Lisa:wave:
hi, the only test i had was an mri brain scan , and it said i never had it, all they could see on the brain scan was fluid running down my ear, im dreadfully ill, i have been diagnosed with m,e, but think i have something else, i have so many wierd symptoms
Lisa:wave:
hi, the only test i had was an mri brain scan , and it said i never had it, all they could see on the brain scan was fluid running down my ear, im dreadfully ill, i have been diagnosed with m,e, but think i have something else, i have so many wierd symptoms
c57s53
11-19-2007, 11:54 PM
Unhappy.....Have you been checked for Lupus? maybe you should see a Rheumatologist......just a suggestion!
Connie
Connie
greenacres
11-20-2007, 10:08 AM
What is m,e? What exactly have you been diagnosed with. I have the exact same symptoms, burning of feet (and a host of other symptoms), but I also have the red palms of hands. I am going to ask my neuro at my 1st appt. on 12/5 to be retested for Lupus. What are your other symptoms? ALso, was a brain MRI the only test you had to rule out/in MS?
unhappy162
11-20-2007, 11:26 AM
hi m,e is myalga encephalites its chronic fatigue and a list of other symptoms, i only had an mri and it said i did not have ms, but there was fluid running down my ear but they did not know what it was, i do belive i have something else also but get no joy from any medic, i have inflamation in my body and they dont even know whats causing that either its a night mare
unhappy162
11-20-2007, 11:28 AM
hi connie, no i have not been checked for lupus who would i see for that im not sure, i have no faith in the medical proffesion anymore, i know im ill and need to have some anwsers
unhappy162
11-20-2007, 11:30 AM
What is m,e? What exactly have you been diagnosed with. I have the exact same symptoms, burning of feet (and a host of other symptoms), but I also have the red palms of hands. I am going to ask my neuro at my 1st appt. on 12/5 to be retested for Lupus. What are your other symptoms? ALso, was a brain MRI the only test you had to rule out/in MS?
hi, m,e is myalga encephalites its a name for a number of conditions im sick to death of being so ill and bed bound, i dont think the medical profession realy care
hi, m,e is myalga encephalites its a name for a number of conditions im sick to death of being so ill and bed bound, i dont think the medical profession realy care
greenacres
11-20-2007, 12:13 PM
LUPUS I believe can be diagnosed though your regular physician. They order a blood test to do this. Mine, was normally run through my dermatologist because I already have an autoimmune disordered called Vitiligo, so she would routinely run this blood test for Lupus every 2-3 years for me. But I would call your physician and ask them to run that along with LYME Titer and possibly B-12 deficiency test as well. GOOD LUCK, I'm so sorry you are feeling so horrible. Sending some HUGS to you :)
unhappy162
11-20-2007, 01:33 PM
LUPUS I believe can be diagnosed though your regular physician. They order a blood test to do this. Mine, was normally run through my dermatologist because I already have an autoimmune disordered called Vitiligo, so she would routinely run this blood test for Lupus every 2-3 years for me. But I would call your physician and ask them to run that along with LYME Titer and possibly B-12 deficiency test as well. GOOD LUCK, I'm so sorry you are feeling so horrible. Sending some HUGS to you :)
hi, thank you so much for that its so kind to pass things on, i realy do appreciate it and i will speak to my doc, thanks x
hi, thank you so much for that its so kind to pass things on, i realy do appreciate it and i will speak to my doc, thanks x