MSNik
11-19-2007, 07:36 AM
duttin,
wanted to check in to make sure all is well. Heard you are having some pretty lousy weather where you are, and havent seen you on the board at all this week. You were also supposed to be following up with Neuro 3. PLease let me know you are okay; and know Im missing you!
Nikki
wanted to check in to make sure all is well. Heard you are having some pretty lousy weather where you are, and havent seen you on the board at all this week. You were also supposed to be following up with Neuro 3. PLease let me know you are okay; and know Im missing you!
Nikki
Sponsor
duttin
11-19-2007, 04:03 PM
Nikki,
I'm doing , its been a rough week or so.Dealing with lots of emotions right now.
The MS has progressed thats been hard to absorb.My upclose vision has become very poor.And now I'm dealing with a secondary disease of unknow orgin.Thats what my neuro told me today.
He said he doesn't know what it is but the chronic spasms and progressive leg weakness is not all from the MS.He said theres definatly a disease process occurring and all we can do is treat the symptoms and pain.All blood work is great,muscle enzymes and all that are great,emg/ncs is good except for radiculopathy and I have had that for 6 years and that does not cause leg weakness to this extent.
Having a lumbar mri on monday to see if implants have shifted.And on thursday another vep,baer and ssep.
He wants me to see a spine DR to see if I am having a reaction to the steel rod in my back and if the nerves surrounding it are having a toxcity reaction and therefore causing the legs to not move.
Right now they have me on round the clock high powered pain meds so I can walk.
Its just another bump in the road,but it gets discouraging.
T
I'm doing , its been a rough week or so.Dealing with lots of emotions right now.
The MS has progressed thats been hard to absorb.My upclose vision has become very poor.And now I'm dealing with a secondary disease of unknow orgin.Thats what my neuro told me today.
He said he doesn't know what it is but the chronic spasms and progressive leg weakness is not all from the MS.He said theres definatly a disease process occurring and all we can do is treat the symptoms and pain.All blood work is great,muscle enzymes and all that are great,emg/ncs is good except for radiculopathy and I have had that for 6 years and that does not cause leg weakness to this extent.
Having a lumbar mri on monday to see if implants have shifted.And on thursday another vep,baer and ssep.
He wants me to see a spine DR to see if I am having a reaction to the steel rod in my back and if the nerves surrounding it are having a toxcity reaction and therefore causing the legs to not move.
Right now they have me on round the clock high powered pain meds so I can walk.
Its just another bump in the road,but it gets discouraging.
T
MSNik
11-19-2007, 04:34 PM
Hey sweetie. Ill bet you're are discouraged, and this is NOT the time of the year to have to deal with this, on top of busy holidays....
Im sorry T. I really am. Wish I could come there and help you; at the very least give you a big hug and drive you from doctor to doctor. I DO KNOW how hard this gets. But, I also know you are one of the strongest people Ive ever heard of- and YOU CAN GET THRU THIS!
The progression of the MS; you know we talk about this all the time on this board. How sure can any doctor be of what progression is, or where it is headed? Yes, this is a progressive disease....but road bumps such as yours- can also cause relapses which are almost impossible to define. You know this, I know this....have alittle faith right now, ok? Because you also know there is something else causing this underlying pain and loss of movement, maybe it ISNT the MS which is the culprit. Have alittle hope.
Not sure if a toxicity reaction to the spine would be a good thing (knowing what it is) or a bad thing (what will they do? remove it?) but I do think that limbo land stinks, and knowing is always better...so please make that appointment and let me know what happens...
Sounds like you have a ton of appointments next week and they should be telling. It also sounds like your Neuro is keeping on top of much of this..
PLease, try to enjoy Thanksgiving. Is your daughter coming home for the holiday? And, if she isnt, when is she coming home? YOU NEED a good dose of daughterly love right now, I can tell! Whatever is happening, please know your good buddy Nikki is with you in spirit, at all times, and I will send prayers, hugs and positive vibes your way. ALWAYS.
Keep me posted - I really want to know youre okay getting thru all this...
PS. PT is helping, alittle...no relief of the hand, but the neck pain is starting to disspate!
Im sorry T. I really am. Wish I could come there and help you; at the very least give you a big hug and drive you from doctor to doctor. I DO KNOW how hard this gets. But, I also know you are one of the strongest people Ive ever heard of- and YOU CAN GET THRU THIS!
The progression of the MS; you know we talk about this all the time on this board. How sure can any doctor be of what progression is, or where it is headed? Yes, this is a progressive disease....but road bumps such as yours- can also cause relapses which are almost impossible to define. You know this, I know this....have alittle faith right now, ok? Because you also know there is something else causing this underlying pain and loss of movement, maybe it ISNT the MS which is the culprit. Have alittle hope.
Not sure if a toxicity reaction to the spine would be a good thing (knowing what it is) or a bad thing (what will they do? remove it?) but I do think that limbo land stinks, and knowing is always better...so please make that appointment and let me know what happens...
Sounds like you have a ton of appointments next week and they should be telling. It also sounds like your Neuro is keeping on top of much of this..
PLease, try to enjoy Thanksgiving. Is your daughter coming home for the holiday? And, if she isnt, when is she coming home? YOU NEED a good dose of daughterly love right now, I can tell! Whatever is happening, please know your good buddy Nikki is with you in spirit, at all times, and I will send prayers, hugs and positive vibes your way. ALWAYS.
Keep me posted - I really want to know youre okay getting thru all this...
PS. PT is helping, alittle...no relief of the hand, but the neck pain is starting to disspate!
duttin
11-19-2007, 07:31 PM
Nikki,
Just really bumbed out right now.
Thanks for your thoughts hugs,prayers and positive vibes they done me good.
I'm not worried about the MS progression so much as to the back issues.A surgery of that nature --- the removal of the hardware and implants is very dangerous and a very long recovery.It has to be done from the front and the back.
I had this discussion with a surgeon in 2004.
If it has to be done it has to be done,but I'm scared of what type of prolonged disability will come from it.In the long run if I get the use of my legs back that'll be great.
Whats gonna be is gonna be.Its in the Lord's hands now.
All my appointments have been scheduled,ya don't get out of my neuro's office without them.
My daughter will be home for Christmas,she flies in Dec.21st and leaves Jan.2nd.So I'm excited to see her.Her Navy boyfriend will be flying here Dec.28th,that was a sticker shock.Can't wait to see her and meet her sailor man.
We talked for an hour the other night and I caught her up on everything except the latest and that can wait until after the holidays.
I'm gonna keep positive,I gotta for my kids.
I told the neuro I had some mood swings happening and I get in depression modes,he says your not nutts just complicated.He never addressed that issue.
The pain meds helped some but ya know they made my left eye do some funky things.I had no control over it,it just kept going around in circles.Hubby thought I should go to the ER,it just freaked him out.
I'm glad PT has helped your neck,maybe the neck has to straighten out before the hand does.
I'm gonna take some time and reflect what has been going on and absorb everything,enjoy Thanksgiving and go from there.
hugs back to ya
T
Just really bumbed out right now.
Thanks for your thoughts hugs,prayers and positive vibes they done me good.
I'm not worried about the MS progression so much as to the back issues.A surgery of that nature --- the removal of the hardware and implants is very dangerous and a very long recovery.It has to be done from the front and the back.
I had this discussion with a surgeon in 2004.
If it has to be done it has to be done,but I'm scared of what type of prolonged disability will come from it.In the long run if I get the use of my legs back that'll be great.
Whats gonna be is gonna be.Its in the Lord's hands now.
All my appointments have been scheduled,ya don't get out of my neuro's office without them.
My daughter will be home for Christmas,she flies in Dec.21st and leaves Jan.2nd.So I'm excited to see her.Her Navy boyfriend will be flying here Dec.28th,that was a sticker shock.Can't wait to see her and meet her sailor man.
We talked for an hour the other night and I caught her up on everything except the latest and that can wait until after the holidays.
I'm gonna keep positive,I gotta for my kids.
I told the neuro I had some mood swings happening and I get in depression modes,he says your not nutts just complicated.He never addressed that issue.
The pain meds helped some but ya know they made my left eye do some funky things.I had no control over it,it just kept going around in circles.Hubby thought I should go to the ER,it just freaked him out.
I'm glad PT has helped your neck,maybe the neck has to straighten out before the hand does.
I'm gonna take some time and reflect what has been going on and absorb everything,enjoy Thanksgiving and go from there.
hugs back to ya
T
MSNik
11-19-2007, 08:57 PM
Please know that Im here if you need to vent...and my thoughts, prayers and positive vibes will be with you continuously! Im glad to hear your daughter is coming home for a week, sailor boy or not, you need her around for support too.
Big hugs, and keep me posted.
Nikki
Big hugs, and keep me posted.
Nikki
duttin
11-19-2007, 10:01 PM
Nikki,
Neuro had called to see how the meds were doing and he knew I was rather upset about my appointment today.
He reveiwed blood test and is not investigating the metal implants ,he's investigating arachnoiditis.An inflamation in the arachnoid space in the lumbar.Its a neurological disease with no cure.Its caused by failed lumbar surgeries,myelograms and tramatic lumbar punctures.I've had 2 failed surgeries,several myelograms and a LP from hey-day.
Its treated with the same meds I'm on,this can explain the lumbar pain and the chronic leg weakness and spasms.When it flairs up its treated with IV steroids.
I'm not a fan of pain meds,but if it releives the pain,what the heck.
I've read many articles on AA tonight and many mentioned MS and AA together.
Its now a waiting game and I'm very much releived now that surgical intervention is an after thought.:)
Oh.I can't wait to see my sailor girl,looking forward to meeting her sailor man.She'll be home in 5 weeks.I'm so excited.
She donates 25 dollars out of every pay to the local MS society.
I'm hoping to get the house cleaned and her room painted before she gets home,it don't look like its gonna get done.
My mom is gonna come and help me get the upstairs cleaned,I quess my sisters are gonna help.Bless there hearts.
T
Neuro had called to see how the meds were doing and he knew I was rather upset about my appointment today.
He reveiwed blood test and is not investigating the metal implants ,he's investigating arachnoiditis.An inflamation in the arachnoid space in the lumbar.Its a neurological disease with no cure.Its caused by failed lumbar surgeries,myelograms and tramatic lumbar punctures.I've had 2 failed surgeries,several myelograms and a LP from hey-day.
Its treated with the same meds I'm on,this can explain the lumbar pain and the chronic leg weakness and spasms.When it flairs up its treated with IV steroids.
I'm not a fan of pain meds,but if it releives the pain,what the heck.
I've read many articles on AA tonight and many mentioned MS and AA together.
Its now a waiting game and I'm very much releived now that surgical intervention is an after thought.:)
Oh.I can't wait to see my sailor girl,looking forward to meeting her sailor man.She'll be home in 5 weeks.I'm so excited.
She donates 25 dollars out of every pay to the local MS society.
I'm hoping to get the house cleaned and her room painted before she gets home,it don't look like its gonna get done.
My mom is gonna come and help me get the upstairs cleaned,I quess my sisters are gonna help.Bless there hearts.
T
MSNik
11-19-2007, 10:19 PM
Very happy to hear that some of this is "off the table" you sound much relieved, that makes me happy too!:D
Would you please forget cleaning for a few days? You are such a nut, worrying about your house. Ill bet you could eat off your floors! Hows that new puppy, anyway? If all else fails, tie a few rags to the dog's feet!
Im going to have to read up on AA so that I can have a more educated conversation with you about this, but for now, I can go to sleep knowing that you are not as freaked out as you were earlier. I like this new Neuro, he seems to care about you!
Please tell your daughter thank you. It means the world to hear that someone like her thinks its important enough to donate money to such an important cause. Your kid is one in a million!
big hugs, sweet dreams.
Nikki
Would you please forget cleaning for a few days? You are such a nut, worrying about your house. Ill bet you could eat off your floors! Hows that new puppy, anyway? If all else fails, tie a few rags to the dog's feet!
Im going to have to read up on AA so that I can have a more educated conversation with you about this, but for now, I can go to sleep knowing that you are not as freaked out as you were earlier. I like this new Neuro, he seems to care about you!
Please tell your daughter thank you. It means the world to hear that someone like her thinks its important enough to donate money to such an important cause. Your kid is one in a million!
big hugs, sweet dreams.
Nikki
duttin
11-19-2007, 11:53 PM
Nikki,
I wouldn't eat off my floors,that pup has dirty paw prints on it.If theres dirt to be found she finds it.She's a very large sweety,pushing 70 pounds.Every morning she wakes me with 2 paws in the face and kisses.
Thats a visual my dogs cleaning up after themselves,maybe they'll teach the kids.:D
I like this neuro,its getting past his ego.At least he validates my pain and doesn't allocate everything to MS.He's honest and says that he beleives theres another disease process occurring.Better to be safe than sorry.
I will tell my daughter.
Its off to bed for me.
T
I wouldn't eat off my floors,that pup has dirty paw prints on it.If theres dirt to be found she finds it.She's a very large sweety,pushing 70 pounds.Every morning she wakes me with 2 paws in the face and kisses.
Thats a visual my dogs cleaning up after themselves,maybe they'll teach the kids.:D
I like this neuro,its getting past his ego.At least he validates my pain and doesn't allocate everything to MS.He's honest and says that he beleives theres another disease process occurring.Better to be safe than sorry.
I will tell my daughter.
Its off to bed for me.
T
MSNik
11-20-2007, 09:07 AM
Hey, hopefully you got some much needed sleep! im off to work, but wanted you to know your on my mind...
Can you imagine the dogs cleaning? lol! Everyone is asking me what I want for my birthday, I keep saying a maid and a vacation. No one seems to be biting on that one....figures!
Have a feel good day, okay? Dont mind the doc and his ego so much...as long as he cares about you, he must have a little clink in his armour...he IS putting your well being into the equation, we know that. I like him. Send him to Jersey, huh?
Will check in with you later..
N
Can you imagine the dogs cleaning? lol! Everyone is asking me what I want for my birthday, I keep saying a maid and a vacation. No one seems to be biting on that one....figures!
Have a feel good day, okay? Dont mind the doc and his ego so much...as long as he cares about you, he must have a little clink in his armour...he IS putting your well being into the equation, we know that. I like him. Send him to Jersey, huh?
Will check in with you later..
N
duttin
11-20-2007, 09:09 PM
Nikki,
Just checking in,I was awake until 3 am.Its getting adjusted to the pain meds,I don't like them,but my pain level is at a 5 now and tolerable.
I went today and done all my Christmas shopping,it took me 5 hours and oh do I hurt,I'll pay for it tomorrow.
I done a lot of soul searching last night and I'm okay with what the DR. told me,thats after I cried my fool eyes out.I regrouped and going to take each day as they come.
The Neuro called today just to check on me.He said dealing with one disease is bad enough but two will take its toll.He said he's 99% its AA after reading a MRI from 2 years ago.
I have talked to my mom and oldest sis and that was the best medicine for me.My mom took the news really bad and I had to straighten her out,its liveable through meds and if I can deal with it so can she.It could be worse.
I'm on a positive track now.
Still ain't got my house done yet,maybe tomorrow.
Heck for my birthday I want a butler in a lime green speedo :D
T
Just checking in,I was awake until 3 am.Its getting adjusted to the pain meds,I don't like them,but my pain level is at a 5 now and tolerable.
I went today and done all my Christmas shopping,it took me 5 hours and oh do I hurt,I'll pay for it tomorrow.
I done a lot of soul searching last night and I'm okay with what the DR. told me,thats after I cried my fool eyes out.I regrouped and going to take each day as they come.
The Neuro called today just to check on me.He said dealing with one disease is bad enough but two will take its toll.He said he's 99% its AA after reading a MRI from 2 years ago.
I have talked to my mom and oldest sis and that was the best medicine for me.My mom took the news really bad and I had to straighten her out,its liveable through meds and if I can deal with it so can she.It could be worse.
I'm on a positive track now.
Still ain't got my house done yet,maybe tomorrow.
Heck for my birthday I want a butler in a lime green speedo :D
T
MSNik
11-20-2007, 10:08 PM
OMG- thats a hysterical vision! A butler in lime green...
Seriously though, Im sorry that you had to go thru all those emotions to get to where you are. I did do some research on AA today- I realized that I have some of the same symptoms in my feet and legs and have had them for quite some time. Im not suggesting that I have this disease, but other than the fact that you went thru all the surgery youve had, are you that certain you have it? What tests are actually done to dx this? You said that the Neuro is pretty sure based on MRIs- but from what I read, arent there other things besides the Myelograms and surgeries which could cause these symtoms? Why couldnt plain old MS cause these symtoms? Like I said, I have many of them, and with the exception of half a dozen Myelograms over the past 4 years, Ive never had any of the other stuff.....
I dont want to "test' your knowledge, but I dont want you to have to deal with this on top of everything else you deal with daily....
Im glad you talked to your mom and sister today. I know when I talk to my mom, Its always a big help, which is why I cant wait to see her Thursday. My stepdad isnt doing so great right now, his Parkinsons is really progressing, so Im trying to be the strong one....not always easy....but I am happy that you had your family to talk to today.
Toni, dont let this bum you out. Really and seriously. You have alot of faith and support and together we will get you thru this....
I cannot believe you did all your shopping in 5 hours. Youre superwoman. And youre going to let alittle thing like possible AA stop you? I dont think so! It must feel good to have that shopping done...Ive got a good jump on it, did most of it online this year, but done? Not even close! Its gong to have to wait, too...I refuse to battle the black friday stuff!
Hey heading to bed. Big hugs...and much support...and love.
Nikki
Seriously though, Im sorry that you had to go thru all those emotions to get to where you are. I did do some research on AA today- I realized that I have some of the same symptoms in my feet and legs and have had them for quite some time. Im not suggesting that I have this disease, but other than the fact that you went thru all the surgery youve had, are you that certain you have it? What tests are actually done to dx this? You said that the Neuro is pretty sure based on MRIs- but from what I read, arent there other things besides the Myelograms and surgeries which could cause these symtoms? Why couldnt plain old MS cause these symtoms? Like I said, I have many of them, and with the exception of half a dozen Myelograms over the past 4 years, Ive never had any of the other stuff.....
I dont want to "test' your knowledge, but I dont want you to have to deal with this on top of everything else you deal with daily....
Im glad you talked to your mom and sister today. I know when I talk to my mom, Its always a big help, which is why I cant wait to see her Thursday. My stepdad isnt doing so great right now, his Parkinsons is really progressing, so Im trying to be the strong one....not always easy....but I am happy that you had your family to talk to today.
Toni, dont let this bum you out. Really and seriously. You have alot of faith and support and together we will get you thru this....
I cannot believe you did all your shopping in 5 hours. Youre superwoman. And youre going to let alittle thing like possible AA stop you? I dont think so! It must feel good to have that shopping done...Ive got a good jump on it, did most of it online this year, but done? Not even close! Its gong to have to wait, too...I refuse to battle the black friday stuff!
Hey heading to bed. Big hugs...and much support...and love.
Nikki
duttin
11-20-2007, 11:00 PM
Nikki,
The only reliable test is a MRI with contrast.With AA the nerves become inflamed and adhere together thus causing the nerves to constantly misfire and cause the severe lumbar pain and muscle pain.With the pain meds the lumbar pain has lessoned so maybe now I can get my legs strengthened.
I did disguss this with my electro-muscular DR and she reveiwed the last 3 emg/ncs and she said it would explain the lumbar innervation.What ever that means.
I'm gonna wait and see what the new MRI says.I have the updated evoked potentials done next week and see my neuro on the 3rd.
Right now I'm content on the meds providing releive,its a first in a long time to have a little releif.
When I went shopping I had a list ,what stores I needed to go to and got it done.Mall shopping is great,ya can go boom boom boom and have what ya need.I ain't going no where on Friday,some of those shoppers are rude.We had some really good sale adds this week that helped.
Sorry to hear about your step dad,this has to be hard on your mom.Holidays are great,nothing better than good food,laughter and togetherness.
My ma told me today if she caught me on another ladder she's gonna take it,I don't think so.It's my little giant.I like my ladder it helps us that are height challenged.
Gotta get to bed gotta see the neuro -optho in the morning
T
The only reliable test is a MRI with contrast.With AA the nerves become inflamed and adhere together thus causing the nerves to constantly misfire and cause the severe lumbar pain and muscle pain.With the pain meds the lumbar pain has lessoned so maybe now I can get my legs strengthened.
I did disguss this with my electro-muscular DR and she reveiwed the last 3 emg/ncs and she said it would explain the lumbar innervation.What ever that means.
I'm gonna wait and see what the new MRI says.I have the updated evoked potentials done next week and see my neuro on the 3rd.
Right now I'm content on the meds providing releive,its a first in a long time to have a little releif.
When I went shopping I had a list ,what stores I needed to go to and got it done.Mall shopping is great,ya can go boom boom boom and have what ya need.I ain't going no where on Friday,some of those shoppers are rude.We had some really good sale adds this week that helped.
Sorry to hear about your step dad,this has to be hard on your mom.Holidays are great,nothing better than good food,laughter and togetherness.
My ma told me today if she caught me on another ladder she's gonna take it,I don't think so.It's my little giant.I like my ladder it helps us that are height challenged.
Gotta get to bed gotta see the neuro -optho in the morning
T
MSNik
11-21-2007, 07:38 AM
Morning bud. Im off to PT and then the office. Ive got a very long day ahead of me and then I have a few days off...so this will be short. Height challenged? Yeah, me too. Im only 5'4. I love my little giant too!
Okay, I understand the gist of what you are facing...lets just say prayers and have deep breaths that when you have your tests, things are status quo and not any worse, ok? Neuro Opth today...good luck with that. I know you were concerned a few weeks ago, but dont be. I gave you the low down, you know what to expect. Heck, youre a pro at this stuff.....this is going to be a cake walk. But fill me in later, let me know how it went. Ok??
Hugs,
Nikki
Okay, I understand the gist of what you are facing...lets just say prayers and have deep breaths that when you have your tests, things are status quo and not any worse, ok? Neuro Opth today...good luck with that. I know you were concerned a few weeks ago, but dont be. I gave you the low down, you know what to expect. Heck, youre a pro at this stuff.....this is going to be a cake walk. But fill me in later, let me know how it went. Ok??
Hugs,
Nikki
duttin
11-21-2007, 10:17 AM
Nikki,
Don't work to hard today.
Just getting around some test results around for the eye doc today.I'm taking the mri report that states ocipital atrophy,the vng report stating ocular movement disorders and the vep that was abnormal.
I'm really okay with everything occuring right night,it just took sometime absorbing it all,dealing with the emotions and what could be.I have to focus on the now,forget the past that was yesterday and it can't be changed.And the future none of us knows what it holds.
I'm in a really good spirits today,my daughter will be home in 1 month from today.I'm gonna start decorating for Christmas this weekend.That will pep me up or exhaust me.
I'll update ya on the eye doc.
You have a good day,its to get icy here tonight.YUK!!!!
T
Don't work to hard today.
Just getting around some test results around for the eye doc today.I'm taking the mri report that states ocipital atrophy,the vng report stating ocular movement disorders and the vep that was abnormal.
I'm really okay with everything occuring right night,it just took sometime absorbing it all,dealing with the emotions and what could be.I have to focus on the now,forget the past that was yesterday and it can't be changed.And the future none of us knows what it holds.
I'm in a really good spirits today,my daughter will be home in 1 month from today.I'm gonna start decorating for Christmas this weekend.That will pep me up or exhaust me.
I'll update ya on the eye doc.
You have a good day,its to get icy here tonight.YUK!!!!
T
MSNik
11-21-2007, 11:53 PM
HI, just wanted to find out how the eye doctor went...are you ok?
And, to say Im so happy you have something to look forward to. (your daughters arrival)
Ill be thinking of you on Thanksgiving and giving thanks that you are in my world..virtual or not, you are important to me. Know that.
Hugs,
Nik
And, to say Im so happy you have something to look forward to. (your daughters arrival)
Ill be thinking of you on Thanksgiving and giving thanks that you are in my world..virtual or not, you are important to me. Know that.
Hugs,
Nik
duttin
11-22-2007, 12:41 AM
Eye appointment went good.
That dang gone color book I missed 4 out of the 9.The red and greens and a grey and blue one.
The optical nerves are both pallor on the outside edges,he stated it was consistent with past on or the starting of it.
He also discussed the cateracts and noticed the double vision in the left eye.
But we are gonna leave all that alone and to follow up in 6 months or sooner if need to be.
Thoughts back to ya and HAPPY 41st BIRTHDAY:D
T
That dang gone color book I missed 4 out of the 9.The red and greens and a grey and blue one.
The optical nerves are both pallor on the outside edges,he stated it was consistent with past on or the starting of it.
He also discussed the cateracts and noticed the double vision in the left eye.
But we are gonna leave all that alone and to follow up in 6 months or sooner if need to be.
Thoughts back to ya and HAPPY 41st BIRTHDAY:D
T
MSNik
11-22-2007, 10:30 AM
Good to hear that no big surprises awaited you at the eye doctors. 41? did you say 41? Oh God Im old...Im feeling it today, I really am. ;)
On my way to the shower and then to get dressed and hit moms house. If I dont check in later (its cuz I drank that whole bottle of wine myself) Ill check in tomorrrow.
But T, have a WONDERFUL day and be good to yourself.
Happy Thanksgiving.
Nikki
On my way to the shower and then to get dressed and hit moms house. If I dont check in later (its cuz I drank that whole bottle of wine myself) Ill check in tomorrrow.
But T, have a WONDERFUL day and be good to yourself.
Happy Thanksgiving.
Nikki
duttin
11-22-2007, 08:30 PM
41 is not OLD,thats PRIME!!!!
I'll be 42 and have that many grey hairs and then some.Thank god for the fry and dye.(clairol)
I had a good day,lasted about 3 hours and came home.I won't drive on the pain meds until they are in my system for a few hours.I have been taking them the same time everyday religously.
A whole bottle of wine,good for you.Thats one thing I can't do anymore.I like a drink now and then.
I was good to myself,I ate good,laughted a lot and was with family and got to talk to my navy girl.It was all good.
Tomorrow staying home,not fighting crowds!!!!
T
I'll be 42 and have that many grey hairs and then some.Thank god for the fry and dye.(clairol)
I had a good day,lasted about 3 hours and came home.I won't drive on the pain meds until they are in my system for a few hours.I have been taking them the same time everyday religously.
A whole bottle of wine,good for you.Thats one thing I can't do anymore.I like a drink now and then.
I was good to myself,I ate good,laughted a lot and was with family and got to talk to my navy girl.It was all good.
Tomorrow staying home,not fighting crowds!!!!
T
MSNik
11-23-2007, 12:51 PM
hI pAL. Didnt make it thru the whole bottle of wine, I cant do it anymore either. But, I did have two glasses! LOL. Im a lightweight.
I had a nice day, it was too long though. DIdnt get home until almost 11 pm..
Glad to hear you had a good day. Im spending today wrapping gifts which are already bought and trying to plan a possible vacation in March/April back to Mexico.
Feeling like a truck ran over me! Hope your day is restful and relaxing...
Hugs
N
I had a nice day, it was too long though. DIdnt get home until almost 11 pm..
Glad to hear you had a good day. Im spending today wrapping gifts which are already bought and trying to plan a possible vacation in March/April back to Mexico.
Feeling like a truck ran over me! Hope your day is restful and relaxing...
Hugs
N
duttin
11-23-2007, 11:26 PM
Nikki,
Did ya get the license plate number of that truck:D
I zoned out most of the day,just relaxed and tried to get some medical reports inorder for an appointment Monday.I am working with a rehabilitation vocational center through social security to see if going back to work is an option.After they read everything,I may not be a canidate for there program.
I need to wrap gifts.Yuk!!!!
My right leg was acting up,could be the cold weather.Plus I wasn't on schedules with my meds to day.No excuse for that one.
I'm gonna relax this weekend,I have scheduled test all next week.Yea!!!!!
A vacation sounds great.
T
Did ya get the license plate number of that truck:D
I zoned out most of the day,just relaxed and tried to get some medical reports inorder for an appointment Monday.I am working with a rehabilitation vocational center through social security to see if going back to work is an option.After they read everything,I may not be a canidate for there program.
I need to wrap gifts.Yuk!!!!
My right leg was acting up,could be the cold weather.Plus I wasn't on schedules with my meds to day.No excuse for that one.
I'm gonna relax this weekend,I have scheduled test all next week.Yea!!!!!
A vacation sounds great.
T
MSNik
11-24-2007, 01:16 PM
hi. Im not feeling so good today, either. But, my husband is actually trying to help me- vaccuming the house, cleaning the kitchen, its kind of nice! I did book a trip last night, to mexico in late March. Cant wait. We are going back to the same place we went last year, which isnt my first choice, but its cheap!
Ill be thinking of you with the scheduled tests next week. I hope everything comes out okay...Im working my butt off next week, which is why the rest of this weekend, Im doing absoutely as little as possible.
Have a good weekend.
N
Ill be thinking of you with the scheduled tests next week. I hope everything comes out okay...Im working my butt off next week, which is why the rest of this weekend, Im doing absoutely as little as possible.
Have a good weekend.
N
duttin
11-26-2007, 08:34 PM
Nikki,
Hope you got a well rested weekend,try to get some rest while working your butt off.
Had lumbar MRI today and boy am I glad I didn't eat lunch they done it with enhancement and something else,plus they had to heat the lumbar nerves up,why I don't know,but heat and MS don't go well together.I talked to the tech afterwards,he had to help me put the leg braces back on because my right hand went numb.I ask how the lumbar nerves looked and he stated not good.
I had my appointment with the social security rehabilitation services today,it seems promising.I have to take a job assessment test, a neuro psyc test,I have to have my legs assessed and so forth.She was impressed that I had all my medical records in hand except for GP's and neuro-opthamologist.
They will assist me on getting a new leg brace and getting my hearing retested.
They ask if I have attempted to get a job and if I had been discriminated against for a disabilty.I told her that I had not attempted do to the leg braces as they are a visual red flag and with my meds,I wouldn't pass the standard drug screening.
Just 2 more test this week and they are on thursday.
Hopefully I can get my Christmas decorations up soon.The tree is lying on the living room floor,still in the box,maybe tomorrow.
T
Hope you got a well rested weekend,try to get some rest while working your butt off.
Had lumbar MRI today and boy am I glad I didn't eat lunch they done it with enhancement and something else,plus they had to heat the lumbar nerves up,why I don't know,but heat and MS don't go well together.I talked to the tech afterwards,he had to help me put the leg braces back on because my right hand went numb.I ask how the lumbar nerves looked and he stated not good.
I had my appointment with the social security rehabilitation services today,it seems promising.I have to take a job assessment test, a neuro psyc test,I have to have my legs assessed and so forth.She was impressed that I had all my medical records in hand except for GP's and neuro-opthamologist.
They will assist me on getting a new leg brace and getting my hearing retested.
They ask if I have attempted to get a job and if I had been discriminated against for a disabilty.I told her that I had not attempted do to the leg braces as they are a visual red flag and with my meds,I wouldn't pass the standard drug screening.
Just 2 more test this week and they are on thursday.
Hopefully I can get my Christmas decorations up soon.The tree is lying on the living room floor,still in the box,maybe tomorrow.
T
MSNik
11-26-2007, 09:52 PM
Wow. You have been busy, havent you? Im glad that things are at least looking up right now. But, Im sorry you went thru all you did with the lumbar test. Ive never heard of heating up the lumbar nerves, but I can tell you that today, My PT guy wanted to put a heating pad on my neck and Ive been saying NO to that for 2 weeks now. Today, I gave in and said okay, but if it bothers me, Im yanking it off....guess what? Within 10 minutes of intense heat, I couldnt feel my hand or my feet...he had to help me take it off. Then, I had to sit in my car, in 40 degree temps, with the A/C on full blast before I thought I could drive home. Thanks, PT guy.
At least your Xmas tree is in the living room, mine is still in the attic!
Tonight my husband decided to sell all of our weight equiptment. Im actually glad to get it out of the basement, because other than my gazelle (which he isnt selling) the rest of it is a poor reminder of what I used to do and cant do anymore- but im also wondering, just cuz I cant use it anymore, how come he gets off not having to exercise? Sarcasm aside, Im having a tough time tonight thinking about all the things I figure Ill never really be able to do like I used to, ever again. Its not even a poor me party- its more of a trying not to hate the world party! My left foot is experincing something very similar to my left hand in tingling and numbness, and Im wondering if Im ever going to feel right again- if this is just a mini relapse, or if this is a warning of things to come..
whatever it is, Im having a tough night.
Im glad to hear you are still smiling!
Hugs,
N
At least your Xmas tree is in the living room, mine is still in the attic!
Tonight my husband decided to sell all of our weight equiptment. Im actually glad to get it out of the basement, because other than my gazelle (which he isnt selling) the rest of it is a poor reminder of what I used to do and cant do anymore- but im also wondering, just cuz I cant use it anymore, how come he gets off not having to exercise? Sarcasm aside, Im having a tough time tonight thinking about all the things I figure Ill never really be able to do like I used to, ever again. Its not even a poor me party- its more of a trying not to hate the world party! My left foot is experincing something very similar to my left hand in tingling and numbness, and Im wondering if Im ever going to feel right again- if this is just a mini relapse, or if this is a warning of things to come..
whatever it is, Im having a tough night.
Im glad to hear you are still smiling!
Hugs,
N
duttin
11-26-2007, 10:42 PM
Nikki,
Sorry to hear your having a rough night,what use to be was then,theres just a different world for us today and tomorrow.
The exercise equipment maybe a reminder of yester years.but there is equipment thats available to still keep us in shape and exercised just in a different way.
Its okay to have a hate world anger,not one us here has not thought that at one point or another.
Hopefully the heating pad has just aggravated things.I know I had the AC on in the truck and it was snowing.
Ya know for a long time I wondered if I was ever gonna feel right again,its been so long that I don't really remember when the last time I even felt half a** normal.
Theres many things I can't do anymore,I just find other interest and hoppies,but all in all it gets depressing and frustrating.
Get a good night sleep and tell that PT guy no more heat it AIN'T good for us!!!
T
Sorry to hear your having a rough night,what use to be was then,theres just a different world for us today and tomorrow.
The exercise equipment maybe a reminder of yester years.but there is equipment thats available to still keep us in shape and exercised just in a different way.
Its okay to have a hate world anger,not one us here has not thought that at one point or another.
Hopefully the heating pad has just aggravated things.I know I had the AC on in the truck and it was snowing.
Ya know for a long time I wondered if I was ever gonna feel right again,its been so long that I don't really remember when the last time I even felt half a** normal.
Theres many things I can't do anymore,I just find other interest and hoppies,but all in all it gets depressing and frustrating.
Get a good night sleep and tell that PT guy no more heat it AIN'T good for us!!!
T
MSNik
11-26-2007, 11:01 PM
Thanks buddy. NO MORE HEAT promise. Im headed to bed...but you have a great day tomorrow and thanks for caring...Ill be okay, just need a break and some real sleep. Saturday sounds like a good day for sleep, huh? If I can just make it that long....
hugs
N
hugs
N
duttin
11-27-2007, 09:36 PM
Nikki,
Hoping you had a better day today.
I didn't get my rear up until 10 this morning and I sat down on the couch this afternoon and slept for 3 hours.So needless to say not much got done.
My neck is a buzzing and my ears are ringing so bad that I can't see straight,its enough to make me sick.I went through this a year ago.I swear its the change of seasons or something.
Saturday does sound like a good day for sleeping in,but the pup usually wakes up at 5 am.
Gonna go and lay down to try to collect my bearings.
T
Hoping you had a better day today.
I didn't get my rear up until 10 this morning and I sat down on the couch this afternoon and slept for 3 hours.So needless to say not much got done.
My neck is a buzzing and my ears are ringing so bad that I can't see straight,its enough to make me sick.I went through this a year ago.I swear its the change of seasons or something.
Saturday does sound like a good day for sleeping in,but the pup usually wakes up at 5 am.
Gonna go and lay down to try to collect my bearings.
T
MSNik
11-27-2007, 11:08 PM
Not feeling 100% myself..but writing it ALL off to stresss. Have had a bad couple of days at work...and now computer issues which Im working on fixing...health wise, my legs feel like they have lead weights tied to them and my eyes are screaming again...this happens at the first sign of stress and Im starting to belive nothing is ever going to 'stress-proof" my life. Ive got to work on this!
Saturday's coming..
hugs
N
Saturday's coming..
hugs
N
duttin
11-28-2007, 09:03 PM
Nikki,
You are absolutely correct when nothing in life is stress - proof.
I have a new saying put it in a bubble and let it go.If I can change it I'll attempt.If I can't then let it go.
We are really having some cold weather right now.I thinl thats attributing to the way I feel.
Last 2 test tomorrow.The way my eyes feel I'm not ready for the vep.Any quick movement is enough to make me sick.I stayed in bed most of the day.
hope you get some rest and feel better
T
You are absolutely correct when nothing in life is stress - proof.
I have a new saying put it in a bubble and let it go.If I can change it I'll attempt.If I can't then let it go.
We are really having some cold weather right now.I thinl thats attributing to the way I feel.
Last 2 test tomorrow.The way my eyes feel I'm not ready for the vep.Any quick movement is enough to make me sick.I stayed in bed most of the day.
hope you get some rest and feel better
T