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View Full Version : wondering what to do about a MRI


Juby
11-23-2007, 05:14 PM
The radiologist sent the following report to my doctor and then my doctor sent me to a neurologist. I am putting the MRI report that was sent to my doctor in this message but two neurologist looked at the MRI and said I was over diagnosed, and that nothing was wrong with me. They did do some in office tests and sent me to have what was called a PING test that came back normal. I can't find anything out about a PING test. I am wondering if I should pursue this further. Any suggestions? The neurologists didn't do the suggested MRV. I was sent to an ENT that didn't find anything wrong either. From there I went to the ER with sever dizzines and feelings of fainting. The ER doctor referred me to a cardiologist and I am wearing a heart monitor now. So far it shows tachicardia. The ER doctor also suggested I have a hormone test run. This MRI has me scared though and I'm thinking about going for a third opinion. Does anyone know anything about any of this, or have had a simular experience?
This is the MRI report:

EXAM: MRI Head wwo IV contrast

INDICATION FOR PROCEDURE: Cephalgia, vertigo and nausea.

TECHNIQUE: Multiplanar, multiecho imaging was performed with and without contrast including diffusion images.

FINDINGS: The ventricles are normal in size. Subarachnoid spaces are not prominent. There is no midline shift or abnormal area of enhancement.

In the right transverse sinus posteriorly there is a filling defect which does not significantly enhance. It measures 7X5 mm. Linear defects in the surrounding area of the transverse sinus may represent feeding or draining vessels. At the vertex on the lift is another are of apparent tangled vessels which erodes into the undersurface of the calvarium. This may represent a prominent area of arachnoid granulation or a vascular malformation.

Apparent flow void in the T1 coronal post contrast images may be related to the plane of section. However there are some prominent draining veins and flow void appears on sagittal images as well as coronal. Veins of Labbe are normal variant prominent veins which drain into the superior sagittal sinus. The possibility of partial thrombosis of the superior sagittal sinus is a consideration.

IMPRESSION
Probable dural AVMs in the right sagittal sinus and along the superior sagittal sinus. Question of partial thrombosis of the superior sagittal sinus is a consideration. If clinically indicated, an MRV may be helpful. Clinical correlation is suggested. Otherwise normal study.

feelbad
11-24-2007, 11:29 AM
first of all,you really DO need to be seeing an actual neurosurgeon and NOT a couple of neurologists who realistically just do not have the overall knowledge and expertise that an actual neurosurgeon has in dealing with any level of vascular malformations.what you have there IS kind of a big deal.AVMs are not something to be blown off as unimportant.obviously these two neuros you saw dont have a flippin clue as to what they are actually seeing there or dealing with.believe me,i lived with what is another type of vascular malformation that actually sat smack in the middle of my spinal cord that was downplayed by real neurosurgeons.two of them.these two really did not realize the true nature of what i was dealing with.my malformation is called a cavernous hemangioma,it is the veinous counterpart to what you actually have in your brain,except what you have is being arterially fed.much higher pressure than the veinous glob i had.

you most definitely need to have at the very least,an MRA,and a consult with a neurointerventional radiologist who would do an angiogram on your brain to really see into the arteries that are involved with the AVM formation.but you HAVE to see a neuroSURGEON who is knowledgable with all the charachteristics of AVM.you can ask when making an appt just how much experience any neurosurgeon has with your particular issue.if you should happen to live near any university type teaching hospital,this is really where i would go to.this is what i ended up doing for my THIRD opinion.i saw the head of neurosurgery about my cavernoma and for the first time,actually found out just what i was actually dealing with,including all the risks of leaving it in there or having it removed.i also found out for the very first time that this glob had actually bled on me ,twice.something the other two rocket scientists failed to even tell me.pretty sick.

but,based on just what i saw in your report,a good knowledgable neurosurgeon is definitely needed for a full consult on what you are actually dealing with and a consult/angio with a neuro rad.really.drop the neurologists,they really cannot actually DO anything for you,nothing.but the NS and the rad can.these are the two specialists who you truely need to be seeing most right now.these two specialists will be able to give you the best possible info and any possibile treatment options for it.the neurologists just don't get it.either get the referral from the neuros or your primary doc at this point.this really does need to be done for you,the sooner the better since it can take awhile to actually get that first appt with the NS.but the INR should not take too long.you just really do need the MRA and the angio.like i mentioned above,if tyou can actually get into see a neurosurgeon at a university type teaching hosp,even if it is a few hours away,i really do feel it would be worth the knowledge and expertise you would find there.my trip was most definitely worth it,believe me.i wish you luck with this.start making some appts to get this ball rolling.please keep me posted on how things are going,K?

Juby
11-24-2007, 04:45 PM
Thank you for the reply. I was feeling like I needed to check into this more. It seems to take so long to get an appointment with doctors but I am going to make one as soon as I can. I'll try to get back here to let you know what I find out. There is a University hospital about sixty miles from where I live so I will probably try to get an appointment there.
Have you ever heard of a PING test? It seemed like it was mostly to do with my eyes. I can't find anything on the net about it.

feelbad
11-24-2007, 11:29 PM
Honestly?i have never actually heard of it before.i have had ALOT of various types of testing due to my cavernoma in my cord and a brain aneurysm two years ago,but never ever heard of this type of test.now you have me all curious and i will have to find out just what it is,lol.i DO think the university teaching hosp is really your best bet right now.these types of facilitys just have soo much more experience with the more involved and rarer types of conditions.these types of hosps are where alot of people go to when they have been given no help with other specialists(usually because even the docs just don't see enough of certain conditions to really gain the needed experience and overall knowledge of certain conditions).i knew i was in some really great,experienced and very knowledgable hands at my very first visit.but you definitely DO need the expertise of a good NS and interventional neurorad.by all means please keep me posted on what you find out,K? i wish you luck and hope you can find the right NS for your particular type of AVM.hang in there juby.marcia

 
 
 




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