Thank you so very much for your reply. I could not believe when I read it how closly your situation matches my mothers. In response to my brothers ability to move around, he can pull himself around on the floor and get himself on and off his wheelchair and bed but he is quite limited in his mobility. I agree with you 100% that a higher rate of mobility would make things much harder. It almost sounds crazy to say we're glad they can't move much. Unless someone dealt with something like this they could never understand. I read your email last night and I can't tell you how happy I was to here from someone else who understands. I've talked to a lot of people who just don't get it no matter how in depth I try to explain. When I told my mother about you she was absolutley thrilled to finally, after 28 years, find out that she is not alone. I would love to hear from you again and maybe even get you connected with my mother. I'm sure the two of you would have a lot to talk about. It means a lot when you are going through so much to have someone besides doctors to talk to. I'll let you know how it turns out if they try that medication. He has an appointment next week and my mother is going to mention the medications you recommended. God bless you and your child. By the way, Happy Holidays!!!!