hey guys. 1st off i hope everyone had a good holiday! well after getting off the phone with my balance doctor i learned some very interesting things. one thing he told me was that hes alittle supirsed that im still having problems because i have NO nerve damage in my inner ear. i asked him if he just meant hearing and he said no. i asked him what the possibility of MAV is and he asked some follow up questions. i told him that i have head pressure and black spots in my eyes and that there is alot of history of migraine in my family and he told me to get an appointment with a neurologist becasue hes pretty sure i will find that i have migrane vertigo.

its so crazy after 2 years to hear that your inner ears are fine after thinking that they were messed up for so long. it makes alot of sense. i remember at the start of this havig horrible headaches. so i am going to look up a neruologist in my area and hopefully start on some meds.

its crazy with all of the MAV talk around here that i mention it to my doctor and its like a light bulb went off in his head. i was expecting him to say....no its not that. but he didn't. anyways thats my update.

Hey C&R,

I don't think you ever mentioned the family history of migraine. You certainly sound like a MAJOR candidate with the family thing, head pressure and visual spots. Amazing how many on this board are really actually dealing with vestibular migraine. Unfortunately it takes a while to see the wood for the trees.

Have you noticed food triggers?

Best .. Scott :cool:

Hey C&R,

I don't think you ever mentioned the family history of migraine. You certainly sound like a MAJOR candidate with the family thing, head pressure and visual spots. Amazing how many on this board are really actually dealing with vestibular migraine. Unfortunately it takes a while to see the wood for the trees.

Have you noticed food triggers?

Best .. Scott :cool:


ive never looked really into food triggers. ive been stuck in the mind frame that i have never damage and it takes time and wait. im a 23 year old so im not very consious on what i eat. im making an appointment tomorrow to see whats up.

it just makes alot of sense so i hope its whats going on.

For the next week or two avoid all of the classic migraine triggers and watch what happens. You might be blown away.

So no cheese, chocolate, nuts, caffeine, or booze. And definitely no pizza.

S :cool:

I never thought that could be me too...but since stopping my vrts...I noticed I didn't have symptoms that were horrible all day. I noticed that I would have good days (not symptom free but where I felt it was much more in the backround). I noticed that my symptoms felt more constant in regular light then ramping up in stores/bad lights.

I ate chocolate last week and the next day, HORRIBLE! I stopped and now am more constant.

Then on Christmas day, I felt pretty good...and had 2 1 hour episodes when I felt like death. I ate something, and felt better within 1/2 hour. Is that part of migraine too?

Anyway, I think we might be on to something. I start my meds on Friday.

So no cheese, chocolate, nuts, caffeine, or booze. And definitely no pizza From my research, if you are going to try cutting these things out, I think you need to cut out the whole list of triggers to see if it makes a difference. Preservatives are a big trigger too and conventional food is loaded with them. I cut all triggers out of my diet for about 10 - 11 months and in the beginning I thought it was helping but I think it only coincided with me coming off klonopin and becoming klonopin free was what really helped. I just started introducing some of the foods back in to my diet over the last 2 months or so and no difference what so ever for me; however, there are some people on this board that seem to think their symptoms are triggered by food so it is definitely worth a try.

Hope your lead turns out to be a positive one.....good luck.

Hey Everyone
Has anyone done any research into CoQ10 as a migrain prevention method? I may have missed out of previous discussion on this topic, but in light of the recent discussion pertaining to MAV and while on another board totally unrelated to inner ear or migrain issues someone posted that they use the CoQ10 for migraines with great results.
Hope everyone had a great holiday...speaking of triggers I was a bad bad girl drinking way too much wine (but only white because red will trigger a migraine in like 10 seeconds for me), way too much chocolate and cheese...looking forward to all these parties being over so I can get back to excercise and eating clean.
FC

I've been taking the CoQ10 for months now and can't notice a huge difference - although it may make the migraines a little less killer. Beware though - it is expensive! I was unaware of the cost and went up to the counter with one bottle of either 30 or 60 tablets and was shocked when the cashier rang me up for $35 or so.

Hi FC,

I know hbep recently saw a leading neurologist in the field of vestibular migraine in London within the last 2 weeks. He recommended using Coenzyme Q10. I'll be trying it again when I return to Sydney.

I've also had a few trigger foods recently and am paying for it today. Wine does me in every time unfortunately. What a drag. I love wine too.

S :cool:

I hear you on the whine about wine!! I haven't had any for a couple of years, I made that decision before any of this inner ear/MAv crap, I could predict when the migraine was going to hit after drinking some.
I was recently at my husbands company christmas party and a lady at my table said that many organic wines do not have the tannins in them and she isn't bothered by them, only regualar wine...just something to think about.
Keep us posted on the CoQ10, am very interested to hear and am thinking about it myself. I am working today and will do some research if I can snag some computer time.
I am sitting here with my left eye closed because of a migraine as we speak, this is a hormonal one that is very predictable, holy crap is my head sore! It is in the same spot every month and although I get some minor residual vestibular type symptoms, they aren't as bad as they could be so that's good.
Happy New Year
FC