im starting to really think this new Migraine thing may have something to it. im noticing alot of stuff that points to it now that i think of it. they never found inner ear nerve damage. last night i felt great. after stopping vrts and allowing my system to settle down. i notice that when i feel good i don't have those black spot in my vision. today im all off balance again and have alittle pressur ein my head and i have the dots in my eye. i also notice that when i bend over my head fills with more pressure. i don't know why i never thought of this given that its in my family to have migraines. i just never knew it could start and be this constant.

im going on the 23rd for my apointment.

C&R...well I hope that this will end it for you. I too, when I stopped my vrts...and I did them religiously for 16 months..only have stopped 1 week...I feel so much better. My ear fullness and noise sensitivity has poked up again now...but dizzys feel better...not 100%. When I do too much it ramps up, when I rest even for 1 hour or 1/2 hour...I feel much better again.

I wish you the best! I am rooting for an ending for you..whatever that may be.

did you doctor say its common for it to be daily or constant for a long long long time?

Well I just took my first dose..wish me luck.

Yep, C&R...I found it on the CDC website...Migraine&vertigo...search gave me the link.

I told my doc I had woozy/dizzy head feeling plus eyes that flickered, eye tracking behind. Told him of my initial attack. He said, I fit MAV perfectly.

well thats good news. you and i always had almost identical symptoms. i hope i have the same luck.

i was just floored to hear i have no inner ear damage. to me that just points to well something is messing with it and what else than migraine....especailly in my family

Certainly can go on forever if you don't do anything about it. Sometimes it will resolve on its own (another reason the VN diagnosis sometimes works for doctors who don't know what else it could be - its easy to say "oh well its gone now after 2 years.. must've been VN"). It's been 10 years of daily dizziness for me without a break. The migraine meds help A LOT though - its no exaggeration to say they give me my life back...

Its not common for it to be constant.. but it is certainly common if you look at a population like this forum.. the people looking for answers are those that are suffering the most i.e. those with daily dizziness. I have two colleagues at work who also have MAV (the local neuro is much better at diagnosing it than most ...). But their episodes are minor and occasional.. rather than constant.. so they don't seek out forums for help ... Around 2% of the population suffer from MAV .. and a small proportion of these (not sure on exact numbers but at least 10% of these ...) suffer from chronic debilitating dizziness everyday.

No inner ear damage does flag migraine as a possibility.. but unfortunately it is not that easy. Inner ear damage can occur when the patient has MIGRAINE ONLY and no other vestibular disorder. A negative ENG is also possible in someone who does have inner ear damage from a peripheral disorder. It's simply not a very good test. That said, someone who complains of chronic dizziness with a negative ENG is definitely a likely candidate to ask more questions about migraine symptoms and family history etc.

VRT helps some migraineurs, and not others. Invariably the results are very up and down (some days are terrible, some are great).. but sometimes leads to overall improvement it would seem. VRT does not help me at all - the best thing for migraine, during acute terrible symptoms is sleep in a dark room.

how long did it take for you to find out yours was MAV and how long did the meds take to relieve the symptoms

it took 5 years for me to find out. I wasted too much time with ENT's (who just wanted to cut something out - performed useless sinus surgery etc.). i eventually decided to travel to Sydney to see the top dizzy doc in Australia (I would've travelled to the US if I had to).

i got immediate improvement from the first med (pizotifen).. i have had more improvement as the years have gone by, by trialling different medications for migraine and learning more about triggers.