Hi Alana,

Checking in to see how you are doing? Have u been to the Neuro Opth yet?

hi lynxgal

i received my app thro the post just b4 xmas and it is in feb but i had to go see my gp for a review last friday, he wants me to stay on the a/ds for a while longer tho i have halved the dose for myself as i dont want to stay on them forever......strangely when i took the first half dose i developed a visual spot of grey and silver wavy lines (not shimmering) for the whole of the next day, i was a bit concerned by the following morning when i woke up it was a large disc of black and white small checks that were shimmering and after a few minutes it thankfully disappeared....so halving it seemed to trigger a migraine? but been ok since with that......the zappy things have for the time being eased back again after 6 weeks approx of it being 24/7 they are less and the jolt isnt as forcefull but still in the background....this has happened b4 and then they for some reason come back with a vengance?

still having twitches randomly in back of right arm , lower stomach,neck, legs etc. my neck is troublsome it fixes then cracks very loudly and is quite painfull.

please let me know how things are with you, i hope u had a good xmas hol and H.N.Y.

alana:)

Hi Alana,

Happy New Year. Holidays were busy and good. Hope yours was good as well.

The zappies continue as usual and the intesity varies. I am having a bigger problem with the muscle twitches and spasms in my legs. It is starting to keep me from sleeping when it is bad. I also had some weakness or coordination problems with my right leg this week. Not sure what that is about. My appt is in feb as well. I am trying not to call my PCP about the muscle spasms as I have been to see him soooo much since last spring. If they don't let up soon I may have to go in and see what he can suggested in order to settle my legs down. I am still getting twitches/flutters in my arms, back and most recently just below my rib cage near the abdomin.

Have been seeing the chiropractor about my neck and shoulder pain for the last month. He has definately helped my range of motion in my neck.

Good luck with reducing the meds. Let me know how your appt with the Neuro goes.