ok i just came back from my neuro today. hes actally really good and was highly ranked in the country so that was nice. anyways he did the dix hallpike move and saw nothing indicated inner ear with that...which is good cause 2 years ago my balance doc did it and saw alittle nystagmus and its no longer there which means ive compensated. he prescribed me Norytympine....wow im sure i spelled that way wrong......for migraines. im starting that tonight.

he did tell me that its possible that i may always have some sort of symptoms due to the fact that its not set in stone that everyone gets to 100% and that i may have to learn to live with certain symptoms. my heart suck when he said that but also my balace doc is confident that with this migraine meds and more vrt i should improve.

i asked him to read into my ENG more and explain it. my eng said something about Bi-lateral but there is nothing indicting if its a central problem or if its a inner ear problem. he said given my hearing test are normal and that he didn't see any indication of nystagmus with the tests he ran that he can't be sure its inner ear. and with a clear mri and the lack of other neurological findings that hes going to try me on some migraine meds and see if i improve.

i hope and pray that with goes away with time and that i won't have to live with this forever.

charlotte was this basically what your appointment was like??

C&R,

Nice one! Let us know how you go on the nortriptyline. It may just totally kill this thing for you. Do you avoid food triggers? Any diff if you do?

S

Good luck. I hope it helps you out.


he did tell me that its possible that i may always have some sort of symptoms due to the fact that its not set in stone that everyone gets to 100% and that i may have to learn to live with certain symptoms. my heart suck when he said that but also my balace doc is confident that with this migraine meds and more vrt i should improve.


Don't take this to heart; they don't know all there is about the brain.

yeah its just hard to be told you may have to feel this way for a long time.
my balance doctor always tells me i will get to 100% and hes would know more than a neurologist would about that.

i just hope i can recover to the point i can swim

C&R, that is the medication I am on. My appt is still going..I have a follow up in Feb to do a rotary chair test and eng. Never had an eng due to pregnancy. My specialist did about 30 mins of tests in the office. One where I wore goggles and he shook my head all around to see what my eyes did. He said he would be surprised if there was inner ear damage...but that he wanted the other 2 tests to confirm what he felt was true.

He said even if there is damage...migraine would be slowing me down from compensation.

Scoop is...after almost 2 weeks on meds...I have not had the terrible bad that I was having. I am having much better days, doing much more and not "paying for it" afterwards. My eyes are still off...just not "as bad"...my head feels so much better.

I am not 100%..but I am enjoying my life much more.

Try the med, see what happens.

hey charlotte

have you tried vision therapy? I think I remember you saying you did but I am not sure

I have, I have stopped for now.

Ok that's what i thought I was just thinking that may help with the stiff eyes but mostly likely it is a reaction to the migraine activity that is going on??? that's the only thing I can think of. :( I know that with MAV you don't necessarily get a migraine but you still probably have the same symptoms as if you had one and I know that when I get a migraine my eyes get very stiff.