merme
01-09-2008, 07:51 PM
i hope someone might be able to shed some light on my problem as i have been to the ER four times now and still no answers.
I have a dull aching sore feeling in my intestines. ,mainly lower right side but sometimes all over and it comes and goes.
I am waking up every morning with severe nausea and retching , and a feeling which i can only describe as waves of a sickly feeling flowing through all my body which also makes my arms feel weird inside, like they dont work properly or are numb. body feels achey all over.
I have had this for more than a month now and am unable to work or do anything as i feel so ill generally..but is especially bad in the mornings and i get woken up by the sickly feeling. it seems to be bad when i need a bowel movement and also after i have had one for a few hours.
Have completely lost appetite and having to force food down, lost a lot of weight.
have on and off symptoms such as lots of gas in intestines and bowel movements vary between loose and diarrhea and are slightly yellowish.
Im pretty desperate for an answer and cant see a gastroenterologist for another two weeks.
the intestinal pain i can somehow get by with , but the sick nauseous feeling and the weird numb and aching arms and malaise is so awful every morning that i cant get up til after midday. i feel weak and sometimes feel strange in the head like i cant wake up properly which seems to stem from the sore feeling in the intestines.
can anyone help?
is this a virus, a parasite? intestinal inflammation? blood work was normal , not showing elevated white count and no fever.
please help!! im getting desperate !!
I have a dull aching sore feeling in my intestines. ,mainly lower right side but sometimes all over and it comes and goes.
I am waking up every morning with severe nausea and retching , and a feeling which i can only describe as waves of a sickly feeling flowing through all my body which also makes my arms feel weird inside, like they dont work properly or are numb. body feels achey all over.
I have had this for more than a month now and am unable to work or do anything as i feel so ill generally..but is especially bad in the mornings and i get woken up by the sickly feeling. it seems to be bad when i need a bowel movement and also after i have had one for a few hours.
Have completely lost appetite and having to force food down, lost a lot of weight.
have on and off symptoms such as lots of gas in intestines and bowel movements vary between loose and diarrhea and are slightly yellowish.
Im pretty desperate for an answer and cant see a gastroenterologist for another two weeks.
the intestinal pain i can somehow get by with , but the sick nauseous feeling and the weird numb and aching arms and malaise is so awful every morning that i cant get up til after midday. i feel weak and sometimes feel strange in the head like i cant wake up properly which seems to stem from the sore feeling in the intestines.
can anyone help?
is this a virus, a parasite? intestinal inflammation? blood work was normal , not showing elevated white count and no fever.
please help!! im getting desperate !!
Sponsor
sophie2007
01-12-2008, 10:24 PM
I see you posted this message three days ago and am wondering how you are feeling. I had the same symptoms for several months until they removed my gallbladder in June after an ultrasound showed sludge and debris in my gallbladder. Some say that yellowish, loose stools could be a bile leak. It's been a long recovery because I was ill for several months before the surgery. Have you had your gallbladder checked? Good luck, Soph
merme
01-13-2008, 05:36 PM
Hi there, thanks soo much for your reply. Could yu give me some more detailed info about how your symptoms were? i had an ultrasound 6 weeks ago when it first started and they said looks ok but obviously im not. still unable to get out obed most of the day as feeling so sickly and ill. the sickness radiates through whole body and its debilitating .
did your blood tests show anything? were you diagnosed by ultrasound n the end?
thanks so much. your reply is so helpful i really appreciate it.
did your blood tests show anything? were you diagnosed by ultrasound n the end?
thanks so much. your reply is so helpful i really appreciate it.
sophie2007
01-14-2008, 09:08 AM
The first ultrasound wasn't conclusive. They said that there were no stones, but couldn't tell if there was anything else. Of course, I was living in Glasgow, Scotland and the heatlhcare within National Health System is pretty bad. After getting back to America I had every digestive test done and still there was no evidence of infection, blockage, or parasite. And my blood tests did not show anything.I had the same symptoms as you along with high tachycardia. Then they did another ultrasound and found that my gallbladder was full of sludge and debris and that the debris probably had bugs in it that were making me sick. I had the GB removed June 14th. I am still not 100% but am much, much better than before. Your GI specialist will probably order a lot of tests for you, and help you with medications to ease this discomfort. I know exactly how you are feeling. Hang in there. They will find an answer. Sophie
jopa
01-15-2008, 12:08 AM
Hi Merme,
I stumbled across your post tonight. It is interesting because I have many of your symptoms. Mine started 1 1/2 years ago with weird head pain, facial numbness, and tingling in arms and legs. It felt like my head was going to explode or that I was going to have a stroke. Had CT, MRI, etc. all neg. About a month ago I started getting weird gas pains and bloating. My bowel movements have all been loose in that time. I have never has this problem before. It's almost like IBS. I also have a dull almost constant pain in my right upper abdomen. Aside from the GI problems, I can relate to your brain fog, and weird arm/leg pain. Unfortunately I don't have an answer for you because the Dr.s don't have one for me. I believed it was Lyme's, but 2 tests were neg. Although many people test neg. with the basic test and then test positive with a more advanced test from an infectious disease dr. I haven't followed up with another dr. as I just live with it. My advice would be to possibly go to an infectiouse disease dr. for a Lyme's test. Don't try with your primary as they will only give you the basic test anyway. Good luck!
I stumbled across your post tonight. It is interesting because I have many of your symptoms. Mine started 1 1/2 years ago with weird head pain, facial numbness, and tingling in arms and legs. It felt like my head was going to explode or that I was going to have a stroke. Had CT, MRI, etc. all neg. About a month ago I started getting weird gas pains and bloating. My bowel movements have all been loose in that time. I have never has this problem before. It's almost like IBS. I also have a dull almost constant pain in my right upper abdomen. Aside from the GI problems, I can relate to your brain fog, and weird arm/leg pain. Unfortunately I don't have an answer for you because the Dr.s don't have one for me. I believed it was Lyme's, but 2 tests were neg. Although many people test neg. with the basic test and then test positive with a more advanced test from an infectious disease dr. I haven't followed up with another dr. as I just live with it. My advice would be to possibly go to an infectiouse disease dr. for a Lyme's test. Don't try with your primary as they will only give you the basic test anyway. Good luck!
merme
01-16-2008, 08:02 PM
Sophie thanks so much. i am in UK too and the system is awful...being left to just get on with this for 6 weeks and another two to go til i see the gastro. was your pain in the lower intestines or higher up? everythign i see on gall bladder shows upper pain as the main symptom. mine sometimes radiates up over all abdomen and up to my lower back area but i can feel it mainly in the lower right. i feel so sick im scared...thanks so much for replying...it s so helpful !!
merme
01-16-2008, 08:05 PM
Lyme disease...interesting. i will certainly look into it. thanks for the suggestion!!
sophie2007
01-17-2008, 08:35 AM
Merme...I stayed in Syndey for about three months back in 1994. In fact, I've traveled all over Australia except for the center...however, I did spend some time in Lightening Ridge. Anyway, my pain was anywhere from under my right rib cage, all the way down to the top of my thigh, around my back and sometimes underneath my right shoulder blade. Although it radiated to the left side occassionally, it was always mainly on the right. Do you still have your appendix? I am hoping they do a CT scan (with contrast) on you so they can look at your kidneys and colon. I know the illness feeling you are having that makes you have to stay in bed. Nothing ever took that away except when the GB came out, and even now I am not 100%. I still have pain and soreness and get nauseaous for no apparent reason. I wonder if you could get some anti-nausea medication just until you see the GI specialist? Sometimes they help you sleep and give your gut a break. Do you have family to help you out when you are sick? Soph
merme
01-17-2008, 07:33 PM
thanks for all the details. its just a help to talk to someone who knows what its like to go through all this. i hope too i can get a ct scan and some more tests but just worried that i cant wait and survive this! not til 24th.... thing is, i feel very much like the pain is in my lower intestines...but it sometimes radiates all over up to my back but its always only right side.more than the pain is the nauseous sick feeling in waves that and the burning numb feeling in the arms it produces...its scary and didnt know it was possible to feel this bad. for some reason i feel much better in evenings...mysterious.
thanks again so much for replying! ill let you know how it goes!!
thanks again so much for replying! ill let you know how it goes!!
Gchem45
01-19-2008, 01:59 AM
I too have pretty much exactly your symtoms and am scouring the internet to find out the problem. Under my upper right rib cage I feel as if there is a rock or a stone or something is inflamed. My left leg feels extremely weak at times and my head feels extremely foggy. I have had hemo-fecal exam to see if I had blood in my stool (neg.) along with Lipid and Metabolic panel (all say I'm in impecable health) the doc seems to think I'm making it up or its stress related, but I am at a loss. I've been having frequent bowel movements (3 or 4 times a day) that are quite large despite not eating much due to my loss of appetite. I feel on and off malaise that seems to change with the wind like on any particular day I could feel energetic to feeling like I want to curl up in a ball in a matter of 5 or 6 hours. So since we seem to have the same symtoms lets try and keep in touch. If you find something that seems to help please let me know as I will you. I plan on calling my doc tomorrow and requesting an ultrasound along with a Monospot test. However, the evenings is when I feel the worst, but the important thing is that we both recognize a difference in feelings within a days period.
Simon53
01-19-2008, 11:11 PM
I have leg pain, brain lesions 7, certified colitis, lymphatic, and have 10-50 bowel movements a day, and I too way told, that my leg pain, and arm pain is me making it up.
I also have never lost in my bladder.
My doc was bad, worse, he was convinced I was a goner despite the real tests, and real diagnosis,(s) her siddenly put me on the cuckoo nut list, but my blood is usual,the regular variants, the "at least" 7 brain lesions likely causes pain, likey contributes to my fog head and my leg pain, numbess, to the point of can't walk one time and every am stiff as a board, and falling asleep standing up., my CFS fluid did not test clear and like you I am told my blood is good. Keep searching, and don't let them send you to the shrinks cause that is where so many of us nuts with real disease processes end up, taking happy pills instead of being persistant.
My mom died like this, they took her off her pain pills, called her anorexic, my sister a lab tech saw her blood one day, after my mom had made and document 156 phone calls for pain.
My sister said "my mom has caners", and my mom was running for a year in half in pain, with no relief. Not that day, they put a patch on her, she was out of in in hours and dead in 3 days// But she let it go. The doctor was found negligent, won't mention name or doctor or hmo. You just keep looking is all I can offer. Iam a bull now, as I know what I feel and I always find my source, because I fight, and I am not saying mental weakness in many of is there, yes it is, and some times, simply maladaptive behaviour is going on to cope, not in need of a pill to make you pain, much less the stupid SSRI's. (my opinion) which made me drool, and lose my mind, and I would not go that route if I was paid.
I also have never lost in my bladder.
My doc was bad, worse, he was convinced I was a goner despite the real tests, and real diagnosis,(s) her siddenly put me on the cuckoo nut list, but my blood is usual,the regular variants, the "at least" 7 brain lesions likely causes pain, likey contributes to my fog head and my leg pain, numbess, to the point of can't walk one time and every am stiff as a board, and falling asleep standing up., my CFS fluid did not test clear and like you I am told my blood is good. Keep searching, and don't let them send you to the shrinks cause that is where so many of us nuts with real disease processes end up, taking happy pills instead of being persistant.
My mom died like this, they took her off her pain pills, called her anorexic, my sister a lab tech saw her blood one day, after my mom had made and document 156 phone calls for pain.
My sister said "my mom has caners", and my mom was running for a year in half in pain, with no relief. Not that day, they put a patch on her, she was out of in in hours and dead in 3 days// But she let it go. The doctor was found negligent, won't mention name or doctor or hmo. You just keep looking is all I can offer. Iam a bull now, as I know what I feel and I always find my source, because I fight, and I am not saying mental weakness in many of is there, yes it is, and some times, simply maladaptive behaviour is going on to cope, not in need of a pill to make you pain, much less the stupid SSRI's. (my opinion) which made me drool, and lose my mind, and I would not go that route if I was paid.
merme
01-20-2008, 01:49 PM
its so frustrating isnt it when the docs just brush you off. i have been stuck at home and mainly in bed for 6 weeks now and docs just say wait for your gastro appointment. if it was them im sure they wouldnt be happy with same answer.
my symptoms are always bad in the morning and get better in the evening...opposite to yours. the foggy head is coming from the digestive probelms for sure....some days i can hardly even think straight from it. let me know how your tests go...im in on thursday..gotta concentrate on holding out til then. been getting weird heart palpitations and irregularity of hearbeat as well now which is scaring me but i cant go again to the ER as they will be sick of me and probabaly think im making it up as ive been there about 5 times in past two months. hope you get to the bottom of whats wrong with you soon too!!
my symptoms are always bad in the morning and get better in the evening...opposite to yours. the foggy head is coming from the digestive probelms for sure....some days i can hardly even think straight from it. let me know how your tests go...im in on thursday..gotta concentrate on holding out til then. been getting weird heart palpitations and irregularity of hearbeat as well now which is scaring me but i cant go again to the ER as they will be sick of me and probabaly think im making it up as ive been there about 5 times in past two months. hope you get to the bottom of whats wrong with you soon too!!
Gchem45
01-21-2008, 02:49 AM
Yeah please tell me how it goes with your GI doctor I hope everything is alright. I also have noticed irregularity with my body temperature it ranges from 97.2-99.2 this is using two different thermometers to make sure it isn't a matter of one malfunctioning. If you get the chance it might help to do routine temp. check to see if we are similar in that respect as well. Today I seem to have a new symptom as my right kidney seems to ache dully. I dunno what to do I have never been sick for more than 3 days in my entire life so this 6 weeks of on and off malaise is really troubling. I can't stand it when they automatically seem to assume your either faking or have stressed yourself into being sick when a problem arises that they can't throw antibiotics at.
Simon53
01-21-2008, 02:47 PM
yes, its hard.
just try to stay away from down the "mental case route" and wasting time dealing with nut house stuff. The trip is hardly magical.
I have to due to what my doc attempted to do.
11 visits at 600 dollars a visit are now due to him sending me to UCSF, as they said i am not a candidate for his hope of admitting me into a shrink joint, and living a block away no less.
i am angry and my time and energy is wasted on an issue -he has, his fear not my fear or problem, so not that i have, and i still see him, and like him in every other way, as his non-narcotic treatment for migraine leg and severe neck pain work. that once a week treatment works, its just when he heard i could not walk, ( and he had been injecting me for two years in legs, and toes and calves for pain so very confused) knows I can not walk in am without help and until provigil sets in, and that i am escorted to kitchen as i will fall or fall asleep on my way to kitchen if not taken. I have serious fatigue, and getting the 3-4 cups of coffee and provigil provides me about 1-5 hours of freedom of tired not pain though. the fentanyl helps, but i am on dose low, lowest, so i feel pain as i fear him doing what he did, but i gave the Rx to my other doc who is not afraid of me, the drug, and would never put me on "vacation hell" again.
I do have to visit a shrink now though as UCSF said i was not going into the shrink ward, i was fine, and i was, but i am pissed. just real hurt and know that i will not get more advance looks at me, given he deeply believes i am somatic ally on over kill, ( with all proven) by technical cases and surgeries and $40,000 in MRI, two years in a row, head to hip ever part has a problem and the MRI shows i should be hurting in places, the last one most my neck and the doc can actually see the spasms in my neck it is maddening. he knows my legs are bad, sees and has commented that my gait is not perfect to others, but i am nuts.
well so be it, i go to shrink , deal with it, i have to. but this guy knows i take no happy brain pills for pain. happy brain pills make this nut truly nuts, and that is a possible side effect, in my case, proven (again).
So good luck, and hopefully an outcome to wok with or a diagnosis you can be aware of to explain things for yourself.
just try to stay away from down the "mental case route" and wasting time dealing with nut house stuff. The trip is hardly magical.
I have to due to what my doc attempted to do.
11 visits at 600 dollars a visit are now due to him sending me to UCSF, as they said i am not a candidate for his hope of admitting me into a shrink joint, and living a block away no less.
i am angry and my time and energy is wasted on an issue -he has, his fear not my fear or problem, so not that i have, and i still see him, and like him in every other way, as his non-narcotic treatment for migraine leg and severe neck pain work. that once a week treatment works, its just when he heard i could not walk, ( and he had been injecting me for two years in legs, and toes and calves for pain so very confused) knows I can not walk in am without help and until provigil sets in, and that i am escorted to kitchen as i will fall or fall asleep on my way to kitchen if not taken. I have serious fatigue, and getting the 3-4 cups of coffee and provigil provides me about 1-5 hours of freedom of tired not pain though. the fentanyl helps, but i am on dose low, lowest, so i feel pain as i fear him doing what he did, but i gave the Rx to my other doc who is not afraid of me, the drug, and would never put me on "vacation hell" again.
I do have to visit a shrink now though as UCSF said i was not going into the shrink ward, i was fine, and i was, but i am pissed. just real hurt and know that i will not get more advance looks at me, given he deeply believes i am somatic ally on over kill, ( with all proven) by technical cases and surgeries and $40,000 in MRI, two years in a row, head to hip ever part has a problem and the MRI shows i should be hurting in places, the last one most my neck and the doc can actually see the spasms in my neck it is maddening. he knows my legs are bad, sees and has commented that my gait is not perfect to others, but i am nuts.
well so be it, i go to shrink , deal with it, i have to. but this guy knows i take no happy brain pills for pain. happy brain pills make this nut truly nuts, and that is a possible side effect, in my case, proven (again).
So good luck, and hopefully an outcome to wok with or a diagnosis you can be aware of to explain things for yourself.
shannonb72
01-21-2008, 05:32 PM
to all of you here, I have the same symptoms. I go have a colonoscopy and ct scan on the 29th. I have dealt with this for many yrs and i am only 35. Since thanksgiving, i have been deathly sick. and yes, I too feel that my drs are not believing me because all of the 'neg' test results. It is a good thing for the internet, because I have told my dr some things that she had no idea about.
I just jump in the bath, lukewarm water, with green tea salt. and just rest. it makes me feel better for a few hours.
I will stay in touch as I hope you will too.
shannon
I just jump in the bath, lukewarm water, with green tea salt. and just rest. it makes me feel better for a few hours.
I will stay in touch as I hope you will too.
shannon
Simon53
01-21-2008, 11:58 PM
will do, this site is active. The best one as so many do offer ideas and experience. I have been off now two years, this is the first sight where there is a moderator watching, and people talking.
Very good sight, and I suspect some who talk are in fact doctors or nurses.yes, the messages are good, not all fact but for sure experience we can all relate to and how we handle it, and saying so to others, is good.
Yes, I am watcing and reading the board. Tis good.
Very good sight, and I suspect some who talk are in fact doctors or nurses.yes, the messages are good, not all fact but for sure experience we can all relate to and how we handle it, and saying so to others, is good.
Yes, I am watcing and reading the board. Tis good.
shannonb72
01-30-2008, 08:51 AM
hey yall....it is the morning after my colonoscopy and boy am i sore....he found 2 bad spots so he did some biopsies and i will get results in few days...i have lower back pain and mild cramping in front...taking tylenol.. and walking, not really helping though, didnt sleep very well last night, im gonna call dr today and ask if this is normal due to the biopsies, and ask him if there is any OTC meds that i can take for the cramps/pain....
my next test is ct scan to check the outside of my colon and everything else...
take care, my prayers are with yall,
hugs,
shannon
my next test is ct scan to check the outside of my colon and everything else...
take care, my prayers are with yall,
hugs,
shannon
monkey5
01-31-2008, 10:16 AM
Hey all,i just posted here agian and my symptoms are alot like yours but my Dr. says i've had the ultrasound for my gallbladder and Hidiscan could they not have caught something> It said my rate was 53% And it they always asked me if it matter what i ate or not and i said no because it doesn't, i'm wondering if the first test may have missed something?
Love, Monkey
Love, Monkey