gonderj14
01-11-2008, 03:03 PM
I was diagnosed with ms in November after a lot of testing and dealing with a dismissive neurologist. I am now on Rebif and although I am scared of what the future may bring, I am trying to keep it together. Some of the symptoms that I have are not your typical symptoms that you see listed in textbooks.
Do you ever have bladder issues one day and then it feels fine the next day?
Will that intense feeling of injecting liquid fire into myself when doing my Rebiff shot ever go away?
Does it ever feel like your skin hurts? sometimes when my husband will stroke my arm or rub my back, it feels like he's rubbing sandpaper on my skin!
Is anyone else sensitive to hot AND cold?
Do you ever feel like someone is poking a needle or a match into your skin? I have this feeling in random places all over my body at random times only lasting for about 20 seconds or so.
Whenever I have a really long day or am extra stressed or tired, my left arm aches terribly. I usually only notice this at night.
Does anyone else have insensitive co-workers that don't under stand that you can look fine and feel terrible?
These are just a few things that I have noticed recently. I feel grateful that I found a place where I can vent and ask questions.
Do you ever have bladder issues one day and then it feels fine the next day?
Will that intense feeling of injecting liquid fire into myself when doing my Rebiff shot ever go away?
Does it ever feel like your skin hurts? sometimes when my husband will stroke my arm or rub my back, it feels like he's rubbing sandpaper on my skin!
Is anyone else sensitive to hot AND cold?
Do you ever feel like someone is poking a needle or a match into your skin? I have this feeling in random places all over my body at random times only lasting for about 20 seconds or so.
Whenever I have a really long day or am extra stressed or tired, my left arm aches terribly. I usually only notice this at night.
Does anyone else have insensitive co-workers that don't under stand that you can look fine and feel terrible?
These are just a few things that I have noticed recently. I feel grateful that I found a place where I can vent and ask questions.
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Snoopy61
01-11-2008, 03:44 PM
Hi Jennifer.
What your experiencing is normal with MS :(
Many with MS are heat and/or cold intolerant. Heat, for me, brings on more fatigue and a general feeling of "wilting" but heat has also triggered some of my exacerbations. Cold will make me more stiff (spasticity) and cause more pain in my feet and legs.
Skin hurting: yes, I experience it. I have had times when a light touch, sheets, getting dressed or undressed brings me to tears.
You might bring these questions to your neuro. It sounds like you are dealing with a fair amount of pain and it is possible to treat MS pain.
What your experiencing is normal with MS :(
Many with MS are heat and/or cold intolerant. Heat, for me, brings on more fatigue and a general feeling of "wilting" but heat has also triggered some of my exacerbations. Cold will make me more stiff (spasticity) and cause more pain in my feet and legs.
Skin hurting: yes, I experience it. I have had times when a light touch, sheets, getting dressed or undressed brings me to tears.
You might bring these questions to your neuro. It sounds like you are dealing with a fair amount of pain and it is possible to treat MS pain.
jlbrow7
01-11-2008, 04:55 PM
I worked full-time until last July and I fully understand you coworker questions. When you appear "normal" they can have a hard time understanding. Heck, I used a walker but "acted normally" so they tended to treat me as a fellow coworker who had no issues to deal with. Hardly! ;)
cyprian1
01-11-2008, 09:18 PM
Hi Jennifer.
What your experiencing is normal with MS :(
Many with MS are heat and/or cold intolerant. Heat, for me, brings on more fatigue and a general feeling of "wilting" but heat has also triggered some of my exacerbations. Cold will make me more stiff (spasticity) and cause more pain in my feet and legs.
Skin hurting: yes, I experience it. I have had times when a light touch, sheets, getting dressed or undressed brings me to tears.
You might bring these questions to your neuro. It sounds like you are dealing with a fair amount of pain and it is possible to treat MS pain.
i have to agree, it is a hard thing to swallow, and i too am rr .. and i also agree that you need to bring thses issues to your neuro's attention ..
i also recommend a journal. i guess most peopl do keep one and record the things like onset, how you felt , what stayed with you what went away, it was explained to me that the symptoms can move from some parts of your tired ravaged body to another .. maybe i was too descriptive , but you keep going .. i made my way out of a wheelchair and walking with one cane , so look to the positive that you may have gained back , it is important not to dwell too much on your own pain and fatigue ..
co-workers, nurses, some doctors and plenty of folks really have no clue what MS is and what it does , yes, we look normal, sometimes we speak normal, we go thru the day on meds that may make us ill, and i have learned to just put aside "those" who just don't get it .. no one who works or cannot due to or with ms should be proud all the time that we make it thru a day w/o ripping somone's rude head off their shoulders ..
sorry, bit of venting .. but it is nice to feel not alone, it would be even nicer to feel good about you ..
What your experiencing is normal with MS :(
Many with MS are heat and/or cold intolerant. Heat, for me, brings on more fatigue and a general feeling of "wilting" but heat has also triggered some of my exacerbations. Cold will make me more stiff (spasticity) and cause more pain in my feet and legs.
Skin hurting: yes, I experience it. I have had times when a light touch, sheets, getting dressed or undressed brings me to tears.
You might bring these questions to your neuro. It sounds like you are dealing with a fair amount of pain and it is possible to treat MS pain.
i have to agree, it is a hard thing to swallow, and i too am rr .. and i also agree that you need to bring thses issues to your neuro's attention ..
i also recommend a journal. i guess most peopl do keep one and record the things like onset, how you felt , what stayed with you what went away, it was explained to me that the symptoms can move from some parts of your tired ravaged body to another .. maybe i was too descriptive , but you keep going .. i made my way out of a wheelchair and walking with one cane , so look to the positive that you may have gained back , it is important not to dwell too much on your own pain and fatigue ..
co-workers, nurses, some doctors and plenty of folks really have no clue what MS is and what it does , yes, we look normal, sometimes we speak normal, we go thru the day on meds that may make us ill, and i have learned to just put aside "those" who just don't get it .. no one who works or cannot due to or with ms should be proud all the time that we make it thru a day w/o ripping somone's rude head off their shoulders ..
sorry, bit of venting .. but it is nice to feel not alone, it would be even nicer to feel good about you ..
Bearygood
01-11-2008, 09:23 PM
Just wanted to say welcome to the board! Although I personally haven't experienced most of what you're describing, you've already seen that you're not alone! :)
MSJayhawk
01-11-2008, 09:29 PM
Do you ever have bladder issues one day and then it feels fine the next day?
YES
Will that intense feeling of injecting liquid fire into myself when doing my Rebiff shot ever go away?
No Meds here.....
Does it ever feel like your skin hurts? sometimes when my husband will stroke my arm or rub my back, it feels like he's rubbing sandpaper on my skin!
All the time!
Is anyone else sensitive to hot AND cold?
All the time!
Do you ever feel like someone is poking a needle or a match into your skin? I have this feeling in random places all over my body at random times only lasting for about 20 seconds or so.
Often
Whenever I have a really long day or am extra stressed or tired, my left arm aches terribly. I usually only notice this at night.
Mine is my right arm, but not every day.
Does anyone else have insensitive co-workers that don't under stand that you can look fine and feel terrible?
No longer, but I have experienced the feeling.
You are not alone!!:angel::angel::angel:
YES
Will that intense feeling of injecting liquid fire into myself when doing my Rebiff shot ever go away?
No Meds here.....
Does it ever feel like your skin hurts? sometimes when my husband will stroke my arm or rub my back, it feels like he's rubbing sandpaper on my skin!
All the time!
Is anyone else sensitive to hot AND cold?
All the time!
Do you ever feel like someone is poking a needle or a match into your skin? I have this feeling in random places all over my body at random times only lasting for about 20 seconds or so.
Often
Whenever I have a really long day or am extra stressed or tired, my left arm aches terribly. I usually only notice this at night.
Mine is my right arm, but not every day.
Does anyone else have insensitive co-workers that don't under stand that you can look fine and feel terrible?
No longer, but I have experienced the feeling.
You are not alone!!:angel::angel::angel:
cyprian1
01-11-2008, 09:36 PM
You are not alone!!:angel::angel::angel:
how have you come to be able to take no meds ? what a great feeling that must be .. no tummyaches for you .. lol .. i noticed that you stated this one time before ..
in my dreams i am pain free and my life is like a fairy spirit, i just float thru my life story , and i never see pain ..
how have you accomplished just not having to take meds, or just personal choices ?
how have you come to be able to take no meds ? what a great feeling that must be .. no tummyaches for you .. lol .. i noticed that you stated this one time before ..
in my dreams i am pain free and my life is like a fairy spirit, i just float thru my life story , and i never see pain ..
how have you accomplished just not having to take meds, or just personal choices ?
Bearygood
01-11-2008, 10:00 PM
cyprian, there are several of us on here who do not take DMDs. The others who read this will tell you their story but for me, it's a personal choice.
MSJayhawk
01-11-2008, 10:05 PM
I made the decision to go med free 25 years ago. My doctor told me that while 'roids could make my symptoms go away, the symptoms would go away naturally. I chose natural as a personal choice. My doctor told me at my last visit that med-free works for me.
I also decided that side effects and long term toxins were a quality of life I did not want to enjoy. Note: I am not pain free. My tolerance to pain has increased and I have found acupressure and cold compresses work. In fact, my doctor pushes cold compresses on many patients and never "pushes" the med question.
Med-free is a lifestyle choice I made. I have learned to listen to my body and take rest when I need. Triggers vary, but I have learned what my triggers are and I avoid them as best I can.
I also decided that side effects and long term toxins were a quality of life I did not want to enjoy. Note: I am not pain free. My tolerance to pain has increased and I have found acupressure and cold compresses work. In fact, my doctor pushes cold compresses on many patients and never "pushes" the med question.
Med-free is a lifestyle choice I made. I have learned to listen to my body and take rest when I need. Triggers vary, but I have learned what my triggers are and I avoid them as best I can.
cyprian1
01-11-2008, 11:51 PM
I made the decision to go med free 25 years ago. My doctor told me that while 'roids could make my symptoms go away, the symptoms would go away naturally. I chose natural as a personal choice. My doctor told me at my last visit that med-free works for me.
I also decided that side effects and long term toxins were a quality of life I did not want to enjoy. Note: I am not pain free. My tolerance to pain has increased and I have found acupressure and cold compresses work. In fact, my doctor pushes cold compresses on many patients and never "pushes" the med question.
Med-free is a lifestyle choice I made. I have learned to listen to my body and take rest when I need. Triggers vary, but I have learned what my triggers are and I avoid them as best I can.
To Jayhawk and Beary - I am sorry I don't know what DMD is ? but i like the idea , i thought moving out ere to NM i would find things or sources of more a natural healing , but shrt lived .. i am happy that you can manage your pain, i try to take as little as necessary, and that may be another reason they want to "detox" me .. see what is really causing issues .. on meds you cannot tell sometimes.
I too, know my body pretty well, and knew enough to push for a dx .. sorta gave up .. and came here to find peace witin myself .. i have gained some good insights into me, and my body still speaks volumes when something is wrong .. the anti this and anti that may be causing emotional problems, therefore doing more harm than good at this point .. it is getting off of them that scares me .. i get sick real quick when i miss a dose .. but it is something that i have been thinking about for years now ..
thank you both for your input, peace ...
I also decided that side effects and long term toxins were a quality of life I did not want to enjoy. Note: I am not pain free. My tolerance to pain has increased and I have found acupressure and cold compresses work. In fact, my doctor pushes cold compresses on many patients and never "pushes" the med question.
Med-free is a lifestyle choice I made. I have learned to listen to my body and take rest when I need. Triggers vary, but I have learned what my triggers are and I avoid them as best I can.
To Jayhawk and Beary - I am sorry I don't know what DMD is ? but i like the idea , i thought moving out ere to NM i would find things or sources of more a natural healing , but shrt lived .. i am happy that you can manage your pain, i try to take as little as necessary, and that may be another reason they want to "detox" me .. see what is really causing issues .. on meds you cannot tell sometimes.
I too, know my body pretty well, and knew enough to push for a dx .. sorta gave up .. and came here to find peace witin myself .. i have gained some good insights into me, and my body still speaks volumes when something is wrong .. the anti this and anti that may be causing emotional problems, therefore doing more harm than good at this point .. it is getting off of them that scares me .. i get sick real quick when i miss a dose .. but it is something that i have been thinking about for years now ..
thank you both for your input, peace ...
Snoopy61
01-12-2008, 10:41 AM
cyp1,
DMD = Disease Modifying Drugs = Copaxone, Rebif, Avonex, Betaseron and Tysabri.
Some with MS use these drugs and some do not. I have never used a DMD. When I was diagnosed there were no DMDs. Betaseron was the first DMD to become available to the general MS population in 1994 and initially only by lottery.
I had a lottery number but when it came up both my neuro and myself decided to wait - it was the first drug of it's kind and there were many unknowns. I have just choosen through the years not to use any of the DMDs and my neuro does not want me on them at this stage of the game.
I was diagnosed at the age of 25 but I have had symptoms since childhood. This summer will be 22 years diagnosed.
Many with MS use anti -anxiety meds and anti-depressents. Because of MS some can never get off of the "anti" drugs. It is true these drugs can cause problems for some. Each person reacts differently to meds.
I use Klonopin (Clonazepam) which is a Benzo, same category as Valium. I started using Klonopin for antiety/panic attacks that had nothing to do with MS. In using Klonopin I found it helped with some of my MS symptoms - pain, stiffness (spasticity), and tremors. I use Klonopin only as needed.
Other than Klonopin I use Baclofen (only before bed) and Lyrica which I'm looking to go off of.
I exercise, take vitamins/supplements and try to eat healthy.
DMD = Disease Modifying Drugs = Copaxone, Rebif, Avonex, Betaseron and Tysabri.
Some with MS use these drugs and some do not. I have never used a DMD. When I was diagnosed there were no DMDs. Betaseron was the first DMD to become available to the general MS population in 1994 and initially only by lottery.
I had a lottery number but when it came up both my neuro and myself decided to wait - it was the first drug of it's kind and there were many unknowns. I have just choosen through the years not to use any of the DMDs and my neuro does not want me on them at this stage of the game.
I was diagnosed at the age of 25 but I have had symptoms since childhood. This summer will be 22 years diagnosed.
Many with MS use anti -anxiety meds and anti-depressents. Because of MS some can never get off of the "anti" drugs. It is true these drugs can cause problems for some. Each person reacts differently to meds.
I use Klonopin (Clonazepam) which is a Benzo, same category as Valium. I started using Klonopin for antiety/panic attacks that had nothing to do with MS. In using Klonopin I found it helped with some of my MS symptoms - pain, stiffness (spasticity), and tremors. I use Klonopin only as needed.
Other than Klonopin I use Baclofen (only before bed) and Lyrica which I'm looking to go off of.
I exercise, take vitamins/supplements and try to eat healthy.
cyprian1
01-12-2008, 11:32 AM
cyp1,
DMD = Disease Modifying Drugs = Copaxone, Rebif, Avonex, Betaseron and Tysabri.
Some with MS use these drugs and some do not. I have never used a DMD. When I was diagnosed there were no DMDs. Betaseron was the first DMD to become available to the general MS population in 1994 and initially only by lottery.
I had a lottery number but when it came up both my neuro and myself decided to wait - it was the first drug of it's kind and there were many unknowns. I have just choosen through the years not to use any of the DMDs and my neuro does not want me on them at this stage of the game.
I was diagnosed at the age of 25 but I have had symptoms since childhood. This summer will be 22 years diagnosed.
Many with MS use anti -anxiety meds and anti-depressents. Because of MS some can never get off of the "anti" drugs. It is true these drugs can cause problems for some. Each person reacts differently to meds.
I use Klonopin (Clonazepam) which is a Benzo, same category as Valium. I started using Klonopin for antiety/panic attacks that had nothing to do with MS. In using Klonopin I found it helped with some of my MS symptoms - pain, stiffness (spasticity), and tremors. I use Klonopin only as needed.
Other than Klonopin I use Baclofen (only before bed) and Lyrica which I'm looking to go off of.
I exercise, take vitamins/supplements and try to eat healthy.
Thanks so much Snoopy61, i have heard those called the ABC's , but i also am not using DMD's, although it has been offered by all neurologists i see, i tried rebif, but found that treating my symtoms was more appropriate .. and i have been told i "may" have to stay on these anti's forever .. that's okay too. I am happy how i am, i am just now learning to live with my new/old symptoms and am catching up with as many people with MS as I possibly can so we are a team ..
when legislation for APF or any proposals having to do with the cutting of aid for people in pain i get really involved lately that i don't want to lose my roots .. and with so much new info being thrown around, it was time to catch up ... disseminating is tough, but acceptance of my MS and embracing my aches and pains , i do better ..
but that is me .. so i don't feel so bad about not knowing a dmd ( almost wmd) , and all the i knew them as abc's , times and terminology do change over the years .. god bless for you having lived with this for as long as you have.
and after reading some of the posts and hearing what others are going thru i guess i am blessed , and it was/has helped me to embrace all of me .. thanks for the explaination .. :)
DMD = Disease Modifying Drugs = Copaxone, Rebif, Avonex, Betaseron and Tysabri.
Some with MS use these drugs and some do not. I have never used a DMD. When I was diagnosed there were no DMDs. Betaseron was the first DMD to become available to the general MS population in 1994 and initially only by lottery.
I had a lottery number but when it came up both my neuro and myself decided to wait - it was the first drug of it's kind and there were many unknowns. I have just choosen through the years not to use any of the DMDs and my neuro does not want me on them at this stage of the game.
I was diagnosed at the age of 25 but I have had symptoms since childhood. This summer will be 22 years diagnosed.
Many with MS use anti -anxiety meds and anti-depressents. Because of MS some can never get off of the "anti" drugs. It is true these drugs can cause problems for some. Each person reacts differently to meds.
I use Klonopin (Clonazepam) which is a Benzo, same category as Valium. I started using Klonopin for antiety/panic attacks that had nothing to do with MS. In using Klonopin I found it helped with some of my MS symptoms - pain, stiffness (spasticity), and tremors. I use Klonopin only as needed.
Other than Klonopin I use Baclofen (only before bed) and Lyrica which I'm looking to go off of.
I exercise, take vitamins/supplements and try to eat healthy.
Thanks so much Snoopy61, i have heard those called the ABC's , but i also am not using DMD's, although it has been offered by all neurologists i see, i tried rebif, but found that treating my symtoms was more appropriate .. and i have been told i "may" have to stay on these anti's forever .. that's okay too. I am happy how i am, i am just now learning to live with my new/old symptoms and am catching up with as many people with MS as I possibly can so we are a team ..
when legislation for APF or any proposals having to do with the cutting of aid for people in pain i get really involved lately that i don't want to lose my roots .. and with so much new info being thrown around, it was time to catch up ... disseminating is tough, but acceptance of my MS and embracing my aches and pains , i do better ..
but that is me .. so i don't feel so bad about not knowing a dmd ( almost wmd) , and all the i knew them as abc's , times and terminology do change over the years .. god bless for you having lived with this for as long as you have.
and after reading some of the posts and hearing what others are going thru i guess i am blessed , and it was/has helped me to embrace all of me .. thanks for the explaination .. :)
Bearygood
01-12-2008, 03:19 PM
The first four drugs that Snoopy cited are the reason they were called CRABs (their initials) but now there's a "T" drug (Tysabri); hence the change to DMDs.
Forgoing traditional MS meds is not for everyone. At the end of the day, however you treat MS is a risk. There are no guarantees for anyone and some things may work for some and not others. I DO do things, just in the natural/alternative mode.
Back to gonder -- please let us know how you're doing.
Forgoing traditional MS meds is not for everyone. At the end of the day, however you treat MS is a risk. There are no guarantees for anyone and some things may work for some and not others. I DO do things, just in the natural/alternative mode.
Back to gonder -- please let us know how you're doing.
taosdaphne
01-12-2008, 04:56 PM
We're all here for you, and all of us have experienced some, if not all, of the symptoms you describe. It's an unpedidtable disease.
See good urologist wit MS experience--there are drugs to help, but your average urologist is clueless--they'd rather play with thr prostate.
I was on Rebif for about 3 months, but my hair was falling out and my liver enzymes were through the roof. Took a 3 month break from all meds, and am now taking Copaxone (not toxic to liver) and a bunch of supplements. My biggest complaint is enormous fatigue. But I seem to be in remission and have actually done a couple of short snowshoes. So life isn't over with MS--you just have to accomodate.
See good urologist wit MS experience--there are drugs to help, but your average urologist is clueless--they'd rather play with thr prostate.
I was on Rebif for about 3 months, but my hair was falling out and my liver enzymes were through the roof. Took a 3 month break from all meds, and am now taking Copaxone (not toxic to liver) and a bunch of supplements. My biggest complaint is enormous fatigue. But I seem to be in remission and have actually done a couple of short snowshoes. So life isn't over with MS--you just have to accomodate.
Glenno
01-14-2008, 06:04 PM
Good Morning from Australia, this is my first attempt at this , but I wanted to share a few things with you.
I was diagnosed 6 years ago, and for 12 months it was panic time...then I realized that life does go on , and you must keep a positive attitude. All the symptoms are so frustrating as you feel like its only happening to you , thats not true , and it is normal to feel all the things you do. I have balance problems but still 6 years later I play golf ( in a golf cart ) ride my exersise bike 17 kms per day.
I have 2 children that know , no different and keep me normal , my company set up a trust and it is a wonderful way to stay positive.
As I read this back I think , that when I was first diagnosed this advice may well have angered me with "its alright for you", well that feeling is normal and you will work through it.
Good Luck , feel free to ask any advice , I am learning as I go myself :)
I was diagnosed 6 years ago, and for 12 months it was panic time...then I realized that life does go on , and you must keep a positive attitude. All the symptoms are so frustrating as you feel like its only happening to you , thats not true , and it is normal to feel all the things you do. I have balance problems but still 6 years later I play golf ( in a golf cart ) ride my exersise bike 17 kms per day.
I have 2 children that know , no different and keep me normal , my company set up a trust and it is a wonderful way to stay positive.
As I read this back I think , that when I was first diagnosed this advice may well have angered me with "its alright for you", well that feeling is normal and you will work through it.
Good Luck , feel free to ask any advice , I am learning as I go myself :)
moderator2
01-14-2008, 06:36 PM
Please use this website anonymously, as per the posting policy and the membership agreement. Do not post your personal webpage here.
cyprian1
01-14-2008, 08:48 PM
Good Morning from Australia, this is my first attempt at this , but I wanted to share a few things with you.
I was diagnosed 6 years ago, and for 12 months it was panic time...then I realized that life does go on , and you must keep a positive attitude. All the symptoms are so frustrating as you feel like its only happening to you , thats not true , and it is normal to feel all the things you do. I have balance problems but still 6 years later I play golf ( in a golf cart ) ride my exersise bike 17 kms per day.
I have 2 children that know , no different and keep me normal , my company set up a trust and it is a wonderful way to stay positive.
As I read this back I think , that when I was first diagnosed this advice may well have angered me with "its alright for you", well that feeling is normal and you will work through it.
Good Luck , feel free to ask any advice , I am learning as I go myself :)
welcome australia ... that is one place i have always wanted to visit , and still may .. glad you joined us .. please keep posting , i have been dx'd 6 yrs ago myself .. this year it will be 7 .. and have had only one major relapse .. but it is true, keeping a positive attitude and trying to keep a structured excersize routine is good for the body .. i bet when you are riding your bike you are thought free ..
nice that you have two children and they understand, quite a few mom's and dad's here .. hopefully you will find a connection or two .. so we are all not alone .. 2.4 million worldwide and growing .. wish we could have an official MS month .. and everyone from wherever can get the word out about the growing number of people with this issue ... thanks for writing ...
I was diagnosed 6 years ago, and for 12 months it was panic time...then I realized that life does go on , and you must keep a positive attitude. All the symptoms are so frustrating as you feel like its only happening to you , thats not true , and it is normal to feel all the things you do. I have balance problems but still 6 years later I play golf ( in a golf cart ) ride my exersise bike 17 kms per day.
I have 2 children that know , no different and keep me normal , my company set up a trust and it is a wonderful way to stay positive.
As I read this back I think , that when I was first diagnosed this advice may well have angered me with "its alright for you", well that feeling is normal and you will work through it.
Good Luck , feel free to ask any advice , I am learning as I go myself :)
welcome australia ... that is one place i have always wanted to visit , and still may .. glad you joined us .. please keep posting , i have been dx'd 6 yrs ago myself .. this year it will be 7 .. and have had only one major relapse .. but it is true, keeping a positive attitude and trying to keep a structured excersize routine is good for the body .. i bet when you are riding your bike you are thought free ..
nice that you have two children and they understand, quite a few mom's and dad's here .. hopefully you will find a connection or two .. so we are all not alone .. 2.4 million worldwide and growing .. wish we could have an official MS month .. and everyone from wherever can get the word out about the growing number of people with this issue ... thanks for writing ...
glamour girl
01-15-2008, 07:41 AM
Hi Glenno..
Welcome to the board.. Nice to see another Aussie.. A great place to be for sharing and yes the occasional venting. I sure have had my share.
I found this board through a book i read.. Thankgod. Its amazing talking to the people over this site. I feel like i know them personally even though i don't. There nothing like this board in Australia.
I was dx 7 years ago. I too have two kids.
I had a major relapse last year, just when i joined this board. The advice i got on this board saved me through alot of heartache with decisions regarding my MS. Alot of wise people on this.
With meds i was off them for a while to complete my family. It was with my relapse and the courage from people on this board i'm back on meds, Very grateful too, because i was so scared. Feeling soooo much better now.:)
I'm back at the gym 4 days a week. Not allowing this MonSter to get to me.
We all have off day, I have my pity party, but with young kids, it doesn't last too long..
Hope everyone is having a better day. Take care all.
Welcome to the board.. Nice to see another Aussie.. A great place to be for sharing and yes the occasional venting. I sure have had my share.
I found this board through a book i read.. Thankgod. Its amazing talking to the people over this site. I feel like i know them personally even though i don't. There nothing like this board in Australia.
I was dx 7 years ago. I too have two kids.
I had a major relapse last year, just when i joined this board. The advice i got on this board saved me through alot of heartache with decisions regarding my MS. Alot of wise people on this.
With meds i was off them for a while to complete my family. It was with my relapse and the courage from people on this board i'm back on meds, Very grateful too, because i was so scared. Feeling soooo much better now.:)
I'm back at the gym 4 days a week. Not allowing this MonSter to get to me.
We all have off day, I have my pity party, but with young kids, it doesn't last too long..
Hope everyone is having a better day. Take care all.