cindys601
01-14-2008, 07:02 PM
Hi all~
I wanted to share with you all my recent appointment because I read of so many people getting the brushed off and how frustrating it is for all of us...
At this point in the game, I have had negative MRI's, a negative lumber puncture and much frustration. At 1st, neuro was looking for MS but since all my tests were negative, he said that we would just have to sit back and see if anything gets worse.
Who wants to wait for things to get worse when its already so bad!! I had previously posted that I looked at my MRI and saw that my cerribelium is sitting very low on my spine. So I researched this myself and decided to make an appointment with my PCP and ask him to take a look at what I thought was abnormal.
I saw him on thursday. The only thing he could offer was that the nero reported that my reflexes were off. Thats it.
I explained that I am not a trained specialist but comparing to a normal MRI, I was concerned. He just totally flipped on me!! Here is a man that I have known more than 1/2 my life, and he wigged out!! I asked him to please just look at the comparison and he told me I have no right, nor does he.
He then began saying that maybe I was making myself worried, thinking "oh My god!! It must be this, it must be that" He then started the "it is probobly stress and anxiety. You'll find out in the end"
I was, by this point, so frustrated. But I stood my ground. I told him, I fear nothing at all. I don't care WHAT it is I have, a dx does not create this anxiety. Being told that whatever it is, is unknown, so lets just call this stress, that is what is creating anxiety.
My doctor has walked with me through my journeys in life, through a horrible abusive marriage and then divorce, and some very horrible and stressful times following this. He watched me struggle with being a single parent to 3 traumatized children who had been through so much and had so many issues because of this. Through all of these stressfull events, we overcame them. I worked my butt off to care and provide for my children. He even came to my home and purchased a bird from me, knowing I raised birds on the side to make extra money for my family.
And so with all that being said, I simply told him, that why now, 13 years later, when things are much calmer, I am happy, in a loving marriage, my children are doing much better, and there is a sense of peace in my life, should my body have this horrible reaction to stress? Why didn't my legs stop working then? And I told him I will NEVER accept that. Something is terribly wrong. I go to work every day and push myself, only to collapse when I get home. Simple chores are too much for me to handle. My legs just wont hold me up any longer. I told him when I walk into a store, I look at the wheel chairs and wish I had the courage to use them. Instead, I just don't go into the stores unless I absolutely have to.
At this point, I'm crying!! And he's standing next to me, rubbing my back. He finally said when I fealt ready, to come on out and left. I was so mad at him. One, because I've always trusted him and admired him, and 2ndly because he was now being so unfaithful to me, so condensending. I was angry too, because in all the years he's known me, I would never go to him unless I had good cause. So how could he not believe me on this??
When I pulled myself together and got to the reception area, all the staff turned and looked at me. Then the receptionist asked me what kind of doctor I was seeing outside this practice. I knew they were discussing me by the looks of things. Then I noticed my doctor on a nearby pc. I fealt betrayed that he walked out there and discussed my situation with his staff. I paid my copay, put on a smile, and left.
I got out to my car and just sobbed!! I fealt defeated. I couldn't face going back to work and smiling when I fealt so bad inside. So I waited a couple hours before heading back.
All I could think of is, where does this lead me? Just hopeless...
Today at work, my son called and said my doctor had called, said its very important and to have me return his call as soon as possible. I did call him and he said he just had a long conversation with my neuro and the neuro has agreed to take a closer look at me and wants me to call the office and scedule a time to come in. He told me they were expecting my call.
I called the neoros office, the receptionist asked me to hold, then the neuro got on the phone. He said that he just discussed me with my dr and wants to meet with me to soon. I told him I have a sceduled appointment on the 28th of this month. He said to keep this appointment because he can't be sure he could sqeeze me in sooner. Then he said that he wanted me to know he would treat this is an agressive manner.
WOW!! I was shocked. I'm not sure what happened to lead to this but somehow, I must have gotten through. Maybe over the weekend, he though more clearly about what I said to him. I don't know if my words had anything to do with this, or if they took another look at my MRI but whatever happened, I feel so much relief, that at least he was listening. This is the man I went to, that I could count on. He DID listen, afterall!!
I know this is a very long post but I wanted to share to all of you out there that keep getting knocked down, get back up!! Keep fighting and fight hard!! Doctors can break us down and make us self doubt what we know is right. I am a firm believer, go with your gut and don't ever give up!!
I may still not get answers but I also know that I will never back down. Doctors do miss things. Theres a reason for everything, and I intend to find mine!!
Good luck to all of you out there in the same boat!!
Cindy
I wanted to share with you all my recent appointment because I read of so many people getting the brushed off and how frustrating it is for all of us...
At this point in the game, I have had negative MRI's, a negative lumber puncture and much frustration. At 1st, neuro was looking for MS but since all my tests were negative, he said that we would just have to sit back and see if anything gets worse.
Who wants to wait for things to get worse when its already so bad!! I had previously posted that I looked at my MRI and saw that my cerribelium is sitting very low on my spine. So I researched this myself and decided to make an appointment with my PCP and ask him to take a look at what I thought was abnormal.
I saw him on thursday. The only thing he could offer was that the nero reported that my reflexes were off. Thats it.
I explained that I am not a trained specialist but comparing to a normal MRI, I was concerned. He just totally flipped on me!! Here is a man that I have known more than 1/2 my life, and he wigged out!! I asked him to please just look at the comparison and he told me I have no right, nor does he.
He then began saying that maybe I was making myself worried, thinking "oh My god!! It must be this, it must be that" He then started the "it is probobly stress and anxiety. You'll find out in the end"
I was, by this point, so frustrated. But I stood my ground. I told him, I fear nothing at all. I don't care WHAT it is I have, a dx does not create this anxiety. Being told that whatever it is, is unknown, so lets just call this stress, that is what is creating anxiety.
My doctor has walked with me through my journeys in life, through a horrible abusive marriage and then divorce, and some very horrible and stressful times following this. He watched me struggle with being a single parent to 3 traumatized children who had been through so much and had so many issues because of this. Through all of these stressfull events, we overcame them. I worked my butt off to care and provide for my children. He even came to my home and purchased a bird from me, knowing I raised birds on the side to make extra money for my family.
And so with all that being said, I simply told him, that why now, 13 years later, when things are much calmer, I am happy, in a loving marriage, my children are doing much better, and there is a sense of peace in my life, should my body have this horrible reaction to stress? Why didn't my legs stop working then? And I told him I will NEVER accept that. Something is terribly wrong. I go to work every day and push myself, only to collapse when I get home. Simple chores are too much for me to handle. My legs just wont hold me up any longer. I told him when I walk into a store, I look at the wheel chairs and wish I had the courage to use them. Instead, I just don't go into the stores unless I absolutely have to.
At this point, I'm crying!! And he's standing next to me, rubbing my back. He finally said when I fealt ready, to come on out and left. I was so mad at him. One, because I've always trusted him and admired him, and 2ndly because he was now being so unfaithful to me, so condensending. I was angry too, because in all the years he's known me, I would never go to him unless I had good cause. So how could he not believe me on this??
When I pulled myself together and got to the reception area, all the staff turned and looked at me. Then the receptionist asked me what kind of doctor I was seeing outside this practice. I knew they were discussing me by the looks of things. Then I noticed my doctor on a nearby pc. I fealt betrayed that he walked out there and discussed my situation with his staff. I paid my copay, put on a smile, and left.
I got out to my car and just sobbed!! I fealt defeated. I couldn't face going back to work and smiling when I fealt so bad inside. So I waited a couple hours before heading back.
All I could think of is, where does this lead me? Just hopeless...
Today at work, my son called and said my doctor had called, said its very important and to have me return his call as soon as possible. I did call him and he said he just had a long conversation with my neuro and the neuro has agreed to take a closer look at me and wants me to call the office and scedule a time to come in. He told me they were expecting my call.
I called the neoros office, the receptionist asked me to hold, then the neuro got on the phone. He said that he just discussed me with my dr and wants to meet with me to soon. I told him I have a sceduled appointment on the 28th of this month. He said to keep this appointment because he can't be sure he could sqeeze me in sooner. Then he said that he wanted me to know he would treat this is an agressive manner.
WOW!! I was shocked. I'm not sure what happened to lead to this but somehow, I must have gotten through. Maybe over the weekend, he though more clearly about what I said to him. I don't know if my words had anything to do with this, or if they took another look at my MRI but whatever happened, I feel so much relief, that at least he was listening. This is the man I went to, that I could count on. He DID listen, afterall!!
I know this is a very long post but I wanted to share to all of you out there that keep getting knocked down, get back up!! Keep fighting and fight hard!! Doctors can break us down and make us self doubt what we know is right. I am a firm believer, go with your gut and don't ever give up!!
I may still not get answers but I also know that I will never back down. Doctors do miss things. Theres a reason for everything, and I intend to find mine!!
Good luck to all of you out there in the same boat!!
Cindy
Sponsor
MSJayhawk
01-14-2008, 07:45 PM
Some great news for you! The 28th is not far off. It is indeed true that the stress and anxiety comes from "not knowing" or having been given the "May be _____ or might be ____". You did great standing your ground. I will remember you in my prayers.
cindys601
01-14-2008, 08:00 PM
Msjayhawk~
Thank you so much for your words of encouragement. 2 weeks from today, brings me that much closer!!
Hope all is well with you and yours,
Cindy
Thank you so much for your words of encouragement. 2 weeks from today, brings me that much closer!!
Hope all is well with you and yours,
Cindy
MSNik
01-14-2008, 08:17 PM
Hi Cindy and wow, what a story! Girlfriend, I always knew you were one of the strongest and this time you proved it! The 28th isnt that far off and its very possible they will call you sooner if its that urgent...but what you did, by getting thru to your doctor goes down as "one for the books" ! Im sure many will be inspired to stand their ground after reading your post. Youre going to start a trend of angry "in betweeners" freaking out on their doctors! Wouldnt that be something to hear about on the evening news?!:D
Meantime, think carefully...throughout your entire time with us, youve told us over and over again how you love this doctor..how secure and comforted you felt by him. Its quite possible that while you were there, he was having a bad day (ever have one of those?) and really didnt connect with you until you broke down and lost it....nothing wrong with that (did it to my husband this morning).....meantime, he felt compelled to work with you, instead of leaving you feeling like he KNEW you felt when you walked out the door....face it, this man KNOWS you...he had to know how freaked out you were when you left his office....
Whatever it took, you did get thru...congrats. Now, lets see what the Neuro thinks..
Cant wait for the sequel to this. Its getting exciting!
Hey Cindy, maybe in our next life we can write a book and each of us can take a chapter, huh? Ive actually been thinking of that in great detail...too bad theres never going to be a chance for us to all meet and talk, but then again, I wouldnt trade the candor on this board for anything in the world!!! Its so refreshing to hear honest stories like yours......
Im very proud of you honey...
Nikki
Meantime, think carefully...throughout your entire time with us, youve told us over and over again how you love this doctor..how secure and comforted you felt by him. Its quite possible that while you were there, he was having a bad day (ever have one of those?) and really didnt connect with you until you broke down and lost it....nothing wrong with that (did it to my husband this morning).....meantime, he felt compelled to work with you, instead of leaving you feeling like he KNEW you felt when you walked out the door....face it, this man KNOWS you...he had to know how freaked out you were when you left his office....
Whatever it took, you did get thru...congrats. Now, lets see what the Neuro thinks..
Cant wait for the sequel to this. Its getting exciting!
Hey Cindy, maybe in our next life we can write a book and each of us can take a chapter, huh? Ive actually been thinking of that in great detail...too bad theres never going to be a chance for us to all meet and talk, but then again, I wouldnt trade the candor on this board for anything in the world!!! Its so refreshing to hear honest stories like yours......
Im very proud of you honey...
Nikki
cindys601
01-14-2008, 09:08 PM
Hi Nikki~
I hope your once again encouraging responses are a sign that your feeling better!! I've missed you here and am glad to see you back but don't overdue helping others. Take care of YOU 1st!!
I'd never want to encourage "angry inbetweeners" LOL but definately encourage strong, proactive stand up for your self kinds. Believe me when I say, I bit my tongue in that office!! I tend to speak my mind when I believe in something but have learned over the years that deliverance is so very important. I really wanted to attack him with words and let him know how angry I was at HIM instead, I stood up and expressed my feeings about what this is doing to ME. Guess it pays off.
Your right though. I have always praised this man. When I was undecisive which Dr to go to with my concerns, my hubby convinced me he would be my best bet. When I came home and cried on my hubbys shoulder, all he could do was say he was sorry for heading me in that direction because even HE expected more out of him. Though I was angry, I almost said to my poor hubby "Its all your fault" :( But I knew he was only trying to help me. Who knows what was going to happen. I thought twice about who I was really angry at and it definately wasn't my hubby.
A book would be great but could NEVER take the place of this board or all the support here.
Without this board, I wouldn't have had all the courage and strength I have. Thanks for being my support!! ~ cindy
I hope your once again encouraging responses are a sign that your feeling better!! I've missed you here and am glad to see you back but don't overdue helping others. Take care of YOU 1st!!
I'd never want to encourage "angry inbetweeners" LOL but definately encourage strong, proactive stand up for your self kinds. Believe me when I say, I bit my tongue in that office!! I tend to speak my mind when I believe in something but have learned over the years that deliverance is so very important. I really wanted to attack him with words and let him know how angry I was at HIM instead, I stood up and expressed my feeings about what this is doing to ME. Guess it pays off.
Your right though. I have always praised this man. When I was undecisive which Dr to go to with my concerns, my hubby convinced me he would be my best bet. When I came home and cried on my hubbys shoulder, all he could do was say he was sorry for heading me in that direction because even HE expected more out of him. Though I was angry, I almost said to my poor hubby "Its all your fault" :( But I knew he was only trying to help me. Who knows what was going to happen. I thought twice about who I was really angry at and it definately wasn't my hubby.
A book would be great but could NEVER take the place of this board or all the support here.
Without this board, I wouldn't have had all the courage and strength I have. Thanks for being my support!! ~ cindy
duttin
01-14-2008, 09:14 PM
Cindy,
I Am So Proud Of You,it Had To Take A Lot For You To Lose It With You Gp---------but After All These Years Of Him Being There For You And This One Instant To Felt Betrayed.
You Have Showed So Many Here Your Strong Will And The Will Not To Give In.
The 28th Will Be Here Soon And Hopefully Your Gp Got On His Computer And Realized That Something Has Been Missed By The Radiologist.
All To Well Radiologist Misdiagnose A Mri, I Got Proper Dx When I Requested My Mri's To Be Sent Out To A Neuro-radiologist Firm.
That Got Me Answers.
You've Been Through Enough Through Your Life And These Drs. Need To Darn Well Respect A Patients Symptoms And Quit Disregarding Them To Stress And Anxiety.
Symptoms Of Unknown Etoligy Can Cause Anxiety Which Can Lead To The Stress.
You Done An Awesome Job By Standing Your Ground.treat Yourself To Something Nice.
Your An Inspiration To All Of Us.
T
I Am So Proud Of You,it Had To Take A Lot For You To Lose It With You Gp---------but After All These Years Of Him Being There For You And This One Instant To Felt Betrayed.
You Have Showed So Many Here Your Strong Will And The Will Not To Give In.
The 28th Will Be Here Soon And Hopefully Your Gp Got On His Computer And Realized That Something Has Been Missed By The Radiologist.
All To Well Radiologist Misdiagnose A Mri, I Got Proper Dx When I Requested My Mri's To Be Sent Out To A Neuro-radiologist Firm.
That Got Me Answers.
You've Been Through Enough Through Your Life And These Drs. Need To Darn Well Respect A Patients Symptoms And Quit Disregarding Them To Stress And Anxiety.
Symptoms Of Unknown Etoligy Can Cause Anxiety Which Can Lead To The Stress.
You Done An Awesome Job By Standing Your Ground.treat Yourself To Something Nice.
Your An Inspiration To All Of Us.
T
cindys601
01-14-2008, 09:39 PM
Hi T~
I think doctors are only human and they make mistakes, too, just as we all do.
Maybe your right, and he looked up my reports and saw something that was missed by the radiologist. But I'm not getting my hopes up that this was even the case. I'll take just the fact that he has enough respect for me, that when I left, he realized that he should have had a more open mind
I think the most infuriating thing a dr can do is blame stress when we are ill, without looking at every avenue. Recently I read a statement, written by a dr. He said that depression is a symptom. When your not feeling well, and noone knows why, your trudging through, feeling lousy, who wouldn't get depressed? He said if you didn't, you wouldn't be normal. Coming from a doctor with an understanding...
But we tend to listen to doctors because for some reason, they are the superior. And what they say, we start to believe. If they say this is anxiety, we start questioning ourselves. THAT is the one thing we need to avoid. We should always believe in ourselves!!
Thanks, T for your support and encouraging words!! That always makes me feel better!!
I hope your feeling better these days:)
Cindy
I think doctors are only human and they make mistakes, too, just as we all do.
Maybe your right, and he looked up my reports and saw something that was missed by the radiologist. But I'm not getting my hopes up that this was even the case. I'll take just the fact that he has enough respect for me, that when I left, he realized that he should have had a more open mind
I think the most infuriating thing a dr can do is blame stress when we are ill, without looking at every avenue. Recently I read a statement, written by a dr. He said that depression is a symptom. When your not feeling well, and noone knows why, your trudging through, feeling lousy, who wouldn't get depressed? He said if you didn't, you wouldn't be normal. Coming from a doctor with an understanding...
But we tend to listen to doctors because for some reason, they are the superior. And what they say, we start to believe. If they say this is anxiety, we start questioning ourselves. THAT is the one thing we need to avoid. We should always believe in ourselves!!
Thanks, T for your support and encouraging words!! That always makes me feel better!!
I hope your feeling better these days:)
Cindy
duttin
01-15-2008, 05:08 AM
Cindy,
I'm Doing Okay,eyes Aren't Back To Normal Yet,still Not Driving Much,only Local.
Thank Goodness On My Laptop I Can Increase The Letter Size To Read Post.
I Had A Dr Once Make A Comment On Women And Stress,i Turned And Looked At Him And Replied Why Wouldn't A Women Be Stressed,we Work Full Time Jobs,take Care Of The Kids,house Work,the Bills,the Kids Come Home Griping,hubby's Come Home Griping,well Lord Forbid If A Women Gripes , Then We Are Complaining Or B*******.why Wouldn't We Be Stressed,anxious Or Depressed,look What Society Puts Upon Us.boy He Shut Right Up.
This Is My Neuro Now,good Guy,but Heck His Wife Don't Work,but She Has A Sitter To Help Her Everyday With The Kids And Someone To Clean Her House.
I Don't Blame You For Not Getting Your Hopes Up,but It Is A Step In The Right Direction.darn Its Time These Drs Start Listening To There Patients And Realize What They Are Saying.
Not Everything Shows Up On Mri's,much Depends On The Machine,the Tech,the Imaging Slices.if Lesions Are Small Our Bodies Have A Natural Mechanism To Heal.
Yes, We Do Tend To Listen To Our Drs,i Put More Stock In My Gp Then What I Do My Neuro.i Feel That My Gp Is Diversed As In My Neuro,deals With Neurological Disorders.i Feel That Some Gps Actually Seem To Know More Then Some Neuro's.
I Do Like My Neuro,its Getting Past His Ego,that Man Can Drive Me Nuts!!!!!!!!!!not Many Neuro's In My Area.theres 2 Unless You Wanna Drive 2-3 Hours Each Way.thats How Far We Are From A Large City.
I'm Glad Your Gp Stepped Up And Seriously Thought About What You Said.sometimes Drs Just Fail To Hear Us,they Listen,but Sometimes They Don't Hear Us.
Stay Positive
T
I'm Doing Okay,eyes Aren't Back To Normal Yet,still Not Driving Much,only Local.
Thank Goodness On My Laptop I Can Increase The Letter Size To Read Post.
I Had A Dr Once Make A Comment On Women And Stress,i Turned And Looked At Him And Replied Why Wouldn't A Women Be Stressed,we Work Full Time Jobs,take Care Of The Kids,house Work,the Bills,the Kids Come Home Griping,hubby's Come Home Griping,well Lord Forbid If A Women Gripes , Then We Are Complaining Or B*******.why Wouldn't We Be Stressed,anxious Or Depressed,look What Society Puts Upon Us.boy He Shut Right Up.
This Is My Neuro Now,good Guy,but Heck His Wife Don't Work,but She Has A Sitter To Help Her Everyday With The Kids And Someone To Clean Her House.
I Don't Blame You For Not Getting Your Hopes Up,but It Is A Step In The Right Direction.darn Its Time These Drs Start Listening To There Patients And Realize What They Are Saying.
Not Everything Shows Up On Mri's,much Depends On The Machine,the Tech,the Imaging Slices.if Lesions Are Small Our Bodies Have A Natural Mechanism To Heal.
Yes, We Do Tend To Listen To Our Drs,i Put More Stock In My Gp Then What I Do My Neuro.i Feel That My Gp Is Diversed As In My Neuro,deals With Neurological Disorders.i Feel That Some Gps Actually Seem To Know More Then Some Neuro's.
I Do Like My Neuro,its Getting Past His Ego,that Man Can Drive Me Nuts!!!!!!!!!!not Many Neuro's In My Area.theres 2 Unless You Wanna Drive 2-3 Hours Each Way.thats How Far We Are From A Large City.
I'm Glad Your Gp Stepped Up And Seriously Thought About What You Said.sometimes Drs Just Fail To Hear Us,they Listen,but Sometimes They Don't Hear Us.
Stay Positive
T
glamour girl
01-15-2008, 07:59 AM
Hi Cindy
Your post gave me chills.. Glad he came through for you.
Good luck with your search for better health.
Your post gave me chills.. Glad he came through for you.
Good luck with your search for better health.
cindys601
01-15-2008, 08:17 PM
Glamour Girl~
Thanks for your words of encouragement. Every little bit we get these days keeps us stronger!!
T~
Its great to see you stand up to for the woman kind!! We definately are a tough breed and withstand so much in life.
Just for the record, don't you wish you had married your neuro?? LOL Life would be sweeeeet!!
Take care of those eyes!!
Cindy
Thanks for your words of encouragement. Every little bit we get these days keeps us stronger!!
T~
Its great to see you stand up to for the woman kind!! We definately are a tough breed and withstand so much in life.
Just for the record, don't you wish you had married your neuro?? LOL Life would be sweeeeet!!
Take care of those eyes!!
Cindy
Tasia W
01-16-2008, 03:39 PM
Hi Cindy,
Good for you standing up for yourself. I am just so sorry that it was such an upsetting experince! Please keep us posted I am annxious to hear about your appointment with the neuro on the 28th. I will be thinking about you and send you my warmest wishes!:angel:
T
Good for you standing up for yourself. I am just so sorry that it was such an upsetting experince! Please keep us posted I am annxious to hear about your appointment with the neuro on the 28th. I will be thinking about you and send you my warmest wishes!:angel:
T
cindys601
01-16-2008, 08:25 PM
Hi Tasia~
Thanks for your kind words!! I was very upset at the time but once I was aknowledged, my anger passed and I'm ready to go the next step and tackle the neuro. I do fear his reaction as well because doctors do not like to here us telling them what we think. Oh well... He'll either have to deal with this and work with me or I'll be pursuing this solo.
Today I called the chiari institute in NY and they emailed me a questioneer to fill out. They look at this and your symptoms list and within 4-6 weeks, they'll contact me to scedule a consult. It isn't covered by insurance so it will cost $550 out of pocket but well worth the second opinion. From what I've researched, this would be my next step in having someone reread my MRI and evaluate my sx..
I figured I'd put this into place "just In case" the neuro decides to blow this off. I'll have another plan of action to pursue.
Hope all is well
Cindy
Thanks for your kind words!! I was very upset at the time but once I was aknowledged, my anger passed and I'm ready to go the next step and tackle the neuro. I do fear his reaction as well because doctors do not like to here us telling them what we think. Oh well... He'll either have to deal with this and work with me or I'll be pursuing this solo.
Today I called the chiari institute in NY and they emailed me a questioneer to fill out. They look at this and your symptoms list and within 4-6 weeks, they'll contact me to scedule a consult. It isn't covered by insurance so it will cost $550 out of pocket but well worth the second opinion. From what I've researched, this would be my next step in having someone reread my MRI and evaluate my sx..
I figured I'd put this into place "just In case" the neuro decides to blow this off. I'll have another plan of action to pursue.
Hope all is well
Cindy
Bearygood
01-16-2008, 09:46 PM
Cindy, you go, girl! :)
You have handled this incredibly well. I know it's taken a lot of energy and I sincerely hope you get the answers you're looking for soon.
You have handled this incredibly well. I know it's taken a lot of energy and I sincerely hope you get the answers you're looking for soon.
cindys601
01-16-2008, 10:03 PM
Bearygood~
I just love having you on my rooting team!! Thanks so much for your endless support you've given me along the way. All of you here keep me going and give me the courage to keep trudging on. I really appreciate that!!
Cindy
I just love having you on my rooting team!! Thanks so much for your endless support you've given me along the way. All of you here keep me going and give me the courage to keep trudging on. I really appreciate that!!
Cindy
Bearygood
01-17-2008, 04:13 AM
Cindy, stories like yours and Blessed4Life's inspire others! We are unfortunately sometimes made to feel helpless by the very people we look to for help!
BTW, I meant to tell you that I got the Sinofresh. Between that and the neti pot, my sinuses are much better. Thank you! But I'm now out of Sinofresh and must re-order! Online this time -- can you believe that this is so hard to find in New York City??!!
BTW, I meant to tell you that I got the Sinofresh. Between that and the neti pot, my sinuses are much better. Thank you! But I'm now out of Sinofresh and must re-order! Online this time -- can you believe that this is so hard to find in New York City??!!
cindys601
01-17-2008, 08:00 AM
Hi Bearygood~
The sino-fresh is a great product. I'm glad its helped. I started sinus issues myself yesterday and thank you for reminding me!! I only use it when they act up. It does help within a day or 2.
I went looking for it and its disappeared. My daughter confiscated my bottle again. She loves it too!!
I just looked in auction and they're selling for around $15 there. I guess I got a bargain on the last one. Thats probobly why they don't sell this in many places. Its expensive and others don't know about it so theres not a great demand for it.
I also wanted to add to Your comment about feeling helpless if I may...
When I began on this board, I was scared and wanted to find out what was happening to me. Months later and many tears gone by, and the only "true" help I've recieved has been here.
Somedays I feel like it would just be better to become an MSr like all of you here because each of you go on with your life from there. For those of us out there undx, we keep trudging on in fear of the unknow and its so very sad. I'm sure others feel this same way too. Ms wouldn't be so bad, because we wouldn't be dealing with heartless professionals who think where just depressed, anxious or crazy. We would only have to deal with all of you here. What a reward!! LOL
I watch my body declining slowly, and no one in the real world can offer any resolve but I know whats happening and that is lifes worse demize. Sadly, it would just be so much easier to become an MSr. Its pretty bad that you can get to this point where you "want" an illness but for those of us out there suffering, this would end this unhappy road we are on.
The other thing is we KNOW our bodies and know when theres something not right within us. I have seen others here get beat down my doctors to the point that they just give up and thats the end of it. If whatever is going on is "truly" affecting your life, don't give up!! Believe in your self and keep going until you find someone to believe in you.
I think because I've had alot of bad roads to travel in my life, I have learned this valuable lesson in life. If you keep going, eventually you will get resolve. If I had given up in other aspects of life in many ways, things would be very different in a not so possitive way. I'm a fighter and will remain that way and encourage others to do the same!!
Have a great day:)
Cindy
The sino-fresh is a great product. I'm glad its helped. I started sinus issues myself yesterday and thank you for reminding me!! I only use it when they act up. It does help within a day or 2.
I went looking for it and its disappeared. My daughter confiscated my bottle again. She loves it too!!
I just looked in auction and they're selling for around $15 there. I guess I got a bargain on the last one. Thats probobly why they don't sell this in many places. Its expensive and others don't know about it so theres not a great demand for it.
I also wanted to add to Your comment about feeling helpless if I may...
When I began on this board, I was scared and wanted to find out what was happening to me. Months later and many tears gone by, and the only "true" help I've recieved has been here.
Somedays I feel like it would just be better to become an MSr like all of you here because each of you go on with your life from there. For those of us out there undx, we keep trudging on in fear of the unknow and its so very sad. I'm sure others feel this same way too. Ms wouldn't be so bad, because we wouldn't be dealing with heartless professionals who think where just depressed, anxious or crazy. We would only have to deal with all of you here. What a reward!! LOL
I watch my body declining slowly, and no one in the real world can offer any resolve but I know whats happening and that is lifes worse demize. Sadly, it would just be so much easier to become an MSr. Its pretty bad that you can get to this point where you "want" an illness but for those of us out there suffering, this would end this unhappy road we are on.
The other thing is we KNOW our bodies and know when theres something not right within us. I have seen others here get beat down my doctors to the point that they just give up and thats the end of it. If whatever is going on is "truly" affecting your life, don't give up!! Believe in your self and keep going until you find someone to believe in you.
I think because I've had alot of bad roads to travel in my life, I have learned this valuable lesson in life. If you keep going, eventually you will get resolve. If I had given up in other aspects of life in many ways, things would be very different in a not so possitive way. I'm a fighter and will remain that way and encourage others to do the same!!
Have a great day:)
Cindy
cindys601
01-27-2008, 04:23 PM
I hope everone is well!!
I haven't posted in a while because I've another hospital trip to the ER. Things are getting worse and I have my neuro appointment tomorrow after my PCP and he had they're conversation.
When all this started, I would get anxious yet excited for upcoming appointments. Now I am just dreading it!! I hate knowing that most likely, I'll leave without getting any answers. I think I'm just tired and weak and I need to get my self motivated and you guys always seem to be my best medicine!! If nothing else, you put a smile into my life when I need it most.
My moms in the hospital still, almost 3 weeks and many days she can't remember who I am. I'm worried about her and I know the added stress isn't helping me focus on myself.
I got a notice for jury duty yesterday and just got so mad!! I just barely make it through my workday and I don't have the energy for 1 more thing!! I know thats just plain STUPID but when your low on energy, anything added at this point is just more than I can think of right now.
Just gotta muster up the energy to get to the neuro and advocate for myself. Generally, I try to look my best when I go, rest so I have more energy but maybe I'll just go as I am and let him see me at my worste!!
Generally, I'm a very upbeat person but this week....Gotta pull myself back up I guess.
Thanks for letting me vent!!:)
Cindy
I haven't posted in a while because I've another hospital trip to the ER. Things are getting worse and I have my neuro appointment tomorrow after my PCP and he had they're conversation.
When all this started, I would get anxious yet excited for upcoming appointments. Now I am just dreading it!! I hate knowing that most likely, I'll leave without getting any answers. I think I'm just tired and weak and I need to get my self motivated and you guys always seem to be my best medicine!! If nothing else, you put a smile into my life when I need it most.
My moms in the hospital still, almost 3 weeks and many days she can't remember who I am. I'm worried about her and I know the added stress isn't helping me focus on myself.
I got a notice for jury duty yesterday and just got so mad!! I just barely make it through my workday and I don't have the energy for 1 more thing!! I know thats just plain STUPID but when your low on energy, anything added at this point is just more than I can think of right now.
Just gotta muster up the energy to get to the neuro and advocate for myself. Generally, I try to look my best when I go, rest so I have more energy but maybe I'll just go as I am and let him see me at my worste!!
Generally, I'm a very upbeat person but this week....Gotta pull myself back up I guess.
Thanks for letting me vent!!:)
Cindy
MSNik
01-27-2008, 08:40 PM
Hi Cindy. Sorry to hear you have been going thru all this. I didnt know about your mom, thats horrible. My best friend is going thru a similar situation to yours- and I see what it is doing to her. Hang tough Girl- youre going to need your strength to deal with what will come..
As for your doctor appt tomorrow, dont stress and dont write it all off yet. You never know, third time is a charm? Or have we passed the third time yet? ;) Whatever comes of this, its always that much closer to the answer. Remember that. What happened in the ER this time? DId they do any tests, get any answers? Im saying a prayer for you my friend..
Really try to get a good nights sleep tonihgt. Take tomorow as it comes and remember we are all rooting for you...please let us know how it goes...
hugs
Nikki
As for your doctor appt tomorrow, dont stress and dont write it all off yet. You never know, third time is a charm? Or have we passed the third time yet? ;) Whatever comes of this, its always that much closer to the answer. Remember that. What happened in the ER this time? DId they do any tests, get any answers? Im saying a prayer for you my friend..
Really try to get a good nights sleep tonihgt. Take tomorow as it comes and remember we are all rooting for you...please let us know how it goes...
hugs
Nikki
cindys601
01-27-2008, 09:41 PM
Hi Nikki~
My mom is in rough shape. She told me right before she went in the hospital that she's done fighting and her quality of life is not worth fighting for. Its very sad. I love her very much and comepletly understand how she feels. I've excepted that we may not have her for very long but my dad is struggling and in denial and thats probobly the hardest part to deal with. It breaks my heart when she doesn't remember me but I just keep telling her I love her and that triggers something in her memory. My dad thinks she's coming home soon and will spring back to normal. I keep telling him I need some help taking care of her because I'm barely taking care of myself and he is refusing services for her. She sits in a chair, walks a few steps to the bathroom, but she's incontinent and I end up having to clean the mess up. I have to wash and dress her as well. Its very frustrating. If I was well, I'd do it in a minute, but I'm also taking care of the buisiness in between caring for her. I feal so guilty because I am stressing about her return home and if I'll be able to manage.
Last week, I was standing cooking the guys supper and got really dizzy. I lied down then my heart started pounding out of my chest!! I have taccacardia which they don't know what causes this. These episodes of vertigo since the LP generally pass but this was the worste. I couldn't get up. My dad called an ambulance and the trip to the ER was horrible. They gave me meclizine for the dizziness. My blood pressure was elevated and they said that because it changed from laying, to sitting, to standing, I was most likely dehydrated. I spent the day there and not ONCE did they offer me something to drink. An hour and a half before they released me, they finally did an IV and gave me some fluids. I was so sleepy, kept falling asleep and the dr was getting upset that I wasn't able to stay awake and finally told the nurses to make me stand up. After about a 1/2 hour of standing they sent me home. Could have done all that at home.
I'm just beat and know I have to go there tomorrow and deal. I'm going to go to bed and try to rest up. I'll let you know what happens.
By the way, hope your feeling better too and taking it easy after your surgery!! Have a great night!!
Cindy
My mom is in rough shape. She told me right before she went in the hospital that she's done fighting and her quality of life is not worth fighting for. Its very sad. I love her very much and comepletly understand how she feels. I've excepted that we may not have her for very long but my dad is struggling and in denial and thats probobly the hardest part to deal with. It breaks my heart when she doesn't remember me but I just keep telling her I love her and that triggers something in her memory. My dad thinks she's coming home soon and will spring back to normal. I keep telling him I need some help taking care of her because I'm barely taking care of myself and he is refusing services for her. She sits in a chair, walks a few steps to the bathroom, but she's incontinent and I end up having to clean the mess up. I have to wash and dress her as well. Its very frustrating. If I was well, I'd do it in a minute, but I'm also taking care of the buisiness in between caring for her. I feal so guilty because I am stressing about her return home and if I'll be able to manage.
Last week, I was standing cooking the guys supper and got really dizzy. I lied down then my heart started pounding out of my chest!! I have taccacardia which they don't know what causes this. These episodes of vertigo since the LP generally pass but this was the worste. I couldn't get up. My dad called an ambulance and the trip to the ER was horrible. They gave me meclizine for the dizziness. My blood pressure was elevated and they said that because it changed from laying, to sitting, to standing, I was most likely dehydrated. I spent the day there and not ONCE did they offer me something to drink. An hour and a half before they released me, they finally did an IV and gave me some fluids. I was so sleepy, kept falling asleep and the dr was getting upset that I wasn't able to stay awake and finally told the nurses to make me stand up. After about a 1/2 hour of standing they sent me home. Could have done all that at home.
I'm just beat and know I have to go there tomorrow and deal. I'm going to go to bed and try to rest up. I'll let you know what happens.
By the way, hope your feeling better too and taking it easy after your surgery!! Have a great night!!
Cindy
duttin
01-28-2008, 12:27 AM
Cindy,
As hard as it may seem,you need to focus a little on you and getting you well.
If you are down ,you are no good to yourself,family, your mom or the business,it comes a time when we have to wave the flag and call time out.
These words, I don't want to sound harsh, but I ended up in the ER not once but twice last week.I have been in a relapse since october and many circumstances have added to it.
Boiling down to it is I was dragging b-u-t-t doing for everyone and trying to have a full plate and not giving myself any down time.
My heart brakes for you ,your dad and your mom,some how you need to have your dad get some help into the home if its just a few hours a day.
Don't feel quilty about struggling taking care of your mother,your mother would not want that.
Best of luck tomorrow with your neuro appointment,keep in mind this is all a new start with a new DR. hopefully some much needed advice will come from it.
My first trip to the ER last week didn't do crap,well they done a cat scan to make sure I didn't have a stroke,it was like hey morons I have MS,it was the first time I had ever had tremors.
2ND trip was to a ER that has a MS department,what a difference in treatment.
Keep us posted,I have you and your mother in my prayers,
T
As hard as it may seem,you need to focus a little on you and getting you well.
If you are down ,you are no good to yourself,family, your mom or the business,it comes a time when we have to wave the flag and call time out.
These words, I don't want to sound harsh, but I ended up in the ER not once but twice last week.I have been in a relapse since october and many circumstances have added to it.
Boiling down to it is I was dragging b-u-t-t doing for everyone and trying to have a full plate and not giving myself any down time.
My heart brakes for you ,your dad and your mom,some how you need to have your dad get some help into the home if its just a few hours a day.
Don't feel quilty about struggling taking care of your mother,your mother would not want that.
Best of luck tomorrow with your neuro appointment,keep in mind this is all a new start with a new DR. hopefully some much needed advice will come from it.
My first trip to the ER last week didn't do crap,well they done a cat scan to make sure I didn't have a stroke,it was like hey morons I have MS,it was the first time I had ever had tremors.
2ND trip was to a ER that has a MS department,what a difference in treatment.
Keep us posted,I have you and your mother in my prayers,
T
MSNik
01-28-2008, 06:33 PM
Cindy, please let us know how your appointment went. I feel so badly for you. Taking care of your mom is hard, but taking care of your father while he is in the state he is in, is almost impossible. Cindy, youre going to have to think about getting him some additional help- I know its a financial thing, and you are taking care of all your veterns, but you CANT DO IT ALL! Im worried about you..and sweetie, you better start being worried about you too.
Duttin is right. Your mom wouldnt want you feeling guilty and she is also right that if you dont take care of you, you will wind up in the ER again and again..
Please let us knw how you are....and know that you have friends here, who really care!
Nikki
Duttin is right. Your mom wouldnt want you feeling guilty and she is also right that if you dont take care of you, you will wind up in the ER again and again..
Please let us knw how you are....and know that you have friends here, who really care!
Nikki
cindys601
01-28-2008, 07:36 PM
T and Nikki~
All of your words ring in my own ears every day. I know I have to make changes because of my health and I'm definately not able to care for myself because I have so many others that depend on me and what has do be done, I have no choice at that moment to do it. For example, one of my veterans fell yesterday. His legs decided they just didn't want to work (sound familiar?) I couldn't leave him lying on the floor so I and another veteran carried this 250 pound of dead weight man up into a wheelchair. Somehow when you have no choice, you muster up the strength and pay the price later.
Daily, I tell myself that I have to change things. I've thought of just telling my dad its too much and I need to leave for my own health but that would greatly affect so many lives, including my parents.
When my mom was crying to me that she didn't want to live any more, I hugged her and said "lets just get out of the buisiness and together we'll take care of each other somewhere else" Without the damands of the buisiness, I could care for her. It was a salution but my dad (in his denial) said we couldn't afford to give up the buisiness. Thats untrue but he wants it all and isn't willing to sacrifice any of it.
I'm trying to get help. My 18 yr old son has offered to work a few hours a week to help out. But in the back of my mind, I know that this isn't going to last long term. Unless some miracle happens and I'm back to myself again. You never know... miracles do happen.
The neuro appointment went better than expected. I showed him my MRI and pointed out my concerns and he honestly told me that he never looked at that part of the MRI, he only looked for lesions. He said he knows of a radiologist that is very knowlegable in many areas and he's going to bring the MRI to her tomorrow and ask her to do a second reading.
He asked me where I gained my knowlege and what pointed me in this direction and seemed unthreatened that I was bringing this up, as I figured a DR would be. He said he will investigate this and to call his office tomorrow.
Then he offered my neurontin for the pain. I have resisted pain meds because I don't want to feel dopey. The energy level is low enough these days and I can't afford to be groggy on top of everything else. But something has to give so I agreed to try it. He told me to try it at night and see how it affects me. I took it an hour ago and maybe its mind over matter but I definate feal some relief. Its worth a shot.
So all in all, I feal much better today because I didn't have a dr sending me out of an office in frustration and tears, but actually with a bit of hope!!
Thank you for being there to support me. Nobody in my world truly knows the day to day struggles we walk through when we're not well. And honestly, its hard to share so much with those closest to us when they're used to us being strong, and we are feeling so weak. All of you here, never judge, just encourage. I am so greatfull I have you all!! ~ Cindy
All of your words ring in my own ears every day. I know I have to make changes because of my health and I'm definately not able to care for myself because I have so many others that depend on me and what has do be done, I have no choice at that moment to do it. For example, one of my veterans fell yesterday. His legs decided they just didn't want to work (sound familiar?) I couldn't leave him lying on the floor so I and another veteran carried this 250 pound of dead weight man up into a wheelchair. Somehow when you have no choice, you muster up the strength and pay the price later.
Daily, I tell myself that I have to change things. I've thought of just telling my dad its too much and I need to leave for my own health but that would greatly affect so many lives, including my parents.
When my mom was crying to me that she didn't want to live any more, I hugged her and said "lets just get out of the buisiness and together we'll take care of each other somewhere else" Without the damands of the buisiness, I could care for her. It was a salution but my dad (in his denial) said we couldn't afford to give up the buisiness. Thats untrue but he wants it all and isn't willing to sacrifice any of it.
I'm trying to get help. My 18 yr old son has offered to work a few hours a week to help out. But in the back of my mind, I know that this isn't going to last long term. Unless some miracle happens and I'm back to myself again. You never know... miracles do happen.
The neuro appointment went better than expected. I showed him my MRI and pointed out my concerns and he honestly told me that he never looked at that part of the MRI, he only looked for lesions. He said he knows of a radiologist that is very knowlegable in many areas and he's going to bring the MRI to her tomorrow and ask her to do a second reading.
He asked me where I gained my knowlege and what pointed me in this direction and seemed unthreatened that I was bringing this up, as I figured a DR would be. He said he will investigate this and to call his office tomorrow.
Then he offered my neurontin for the pain. I have resisted pain meds because I don't want to feel dopey. The energy level is low enough these days and I can't afford to be groggy on top of everything else. But something has to give so I agreed to try it. He told me to try it at night and see how it affects me. I took it an hour ago and maybe its mind over matter but I definate feal some relief. Its worth a shot.
So all in all, I feal much better today because I didn't have a dr sending me out of an office in frustration and tears, but actually with a bit of hope!!
Thank you for being there to support me. Nobody in my world truly knows the day to day struggles we walk through when we're not well. And honestly, its hard to share so much with those closest to us when they're used to us being strong, and we are feeling so weak. All of you here, never judge, just encourage. I am so greatfull I have you all!! ~ Cindy
MSNik
01-28-2008, 08:35 PM
Hi Girlfriend. I do hope the Neurontin helps you. I took it for months with no relief at all, but I have heard that for others, it helps. Do what you must...just dont stop it abruptly. ok? Its an anti-seziure med and it can cause seziures if you dont wean yourself off of it....
As for the family thing; I told you my best friend has been going thru the same type of thing. Cindy, her mother died at 4 am this morning....talk about guilt? She is coping with relief, distress, mourning, and her father is blaming the entire family for not doing more! My friend has been with her mother for a year, round the clock, taking care of her to all extremes. She was there when her mother was first dx with Altheimers (sp?) as well as Cancer...she took her to every single appt and sat with her thru Chemo- even when her mother had no clue who she was.....she cried to me over many cups of coffee. Weve cancelled so many things because her mother was always taking a turn for the worse...and now, my friend- has been dx with both Diabetes as well as dangerously high cholesterol....shes starting injections this week as well as cholesterol meds...she also has three kids which NEED their mother to be healthy....do you see a pattern here? If you DONT take care of yourself, we wont be having this conversation in another year...youll be bed ridden, with chronic relapses (youll have a dx of something for sure by then) and youll be kicking yourself for NOT taking care of you. You need to stop and think about how you are going to deal with all of this- and convince your father that you need more help.. picking up 250 lb vets isnt exactly what the rest of us call exercise!
Now, as for your appt today- that sounds promising. Please let us know what he researches and comes up with when you talk to him. Im really glad that at least one other person showed concern for you and your health...progress- right? Your on the way to getting answers. I know that once you get them tons of relief will come- and youll have alot less stress....I honestly think having this over your head is what is contributing to ER visits, tacacardia as well as this overwhleming feeling you have of NOT being able to do what you think you should be doing....YOU CAN DO IT, but you ALSO NEED HELP. Let your son pitch in for now- keep talking to those social workers about support- and please know that you dont have to say thank you to us ( at least me). Im here for you to vent to- get support, whenver you need it.
Big Hugs my strong friend..
Nikki
As for the family thing; I told you my best friend has been going thru the same type of thing. Cindy, her mother died at 4 am this morning....talk about guilt? She is coping with relief, distress, mourning, and her father is blaming the entire family for not doing more! My friend has been with her mother for a year, round the clock, taking care of her to all extremes. She was there when her mother was first dx with Altheimers (sp?) as well as Cancer...she took her to every single appt and sat with her thru Chemo- even when her mother had no clue who she was.....she cried to me over many cups of coffee. Weve cancelled so many things because her mother was always taking a turn for the worse...and now, my friend- has been dx with both Diabetes as well as dangerously high cholesterol....shes starting injections this week as well as cholesterol meds...she also has three kids which NEED their mother to be healthy....do you see a pattern here? If you DONT take care of yourself, we wont be having this conversation in another year...youll be bed ridden, with chronic relapses (youll have a dx of something for sure by then) and youll be kicking yourself for NOT taking care of you. You need to stop and think about how you are going to deal with all of this- and convince your father that you need more help.. picking up 250 lb vets isnt exactly what the rest of us call exercise!
Now, as for your appt today- that sounds promising. Please let us know what he researches and comes up with when you talk to him. Im really glad that at least one other person showed concern for you and your health...progress- right? Your on the way to getting answers. I know that once you get them tons of relief will come- and youll have alot less stress....I honestly think having this over your head is what is contributing to ER visits, tacacardia as well as this overwhleming feeling you have of NOT being able to do what you think you should be doing....YOU CAN DO IT, but you ALSO NEED HELP. Let your son pitch in for now- keep talking to those social workers about support- and please know that you dont have to say thank you to us ( at least me). Im here for you to vent to- get support, whenver you need it.
Big Hugs my strong friend..
Nikki
cindys601
01-29-2008, 07:49 PM
Nikki~
My heart goes out to your friend. I can only imagine what she's going through. It definately takes its toll emotionally and phisically. I hope now that theres some closure, she'll be able to take care of herself.
I know what your saying about a pattern but my hands are tied in so many ways. I tried talking to my dad last night. He was crying to me about my mom. I tried consoling him and his guilty feelings on decisions he's made in her behalf. I told him that I support him 100% and think he's doing a great job. The only thing I don't agree with is his willingness to get some outside help in caring for her.
I was very clear that phisically, I am unable to continue doing this without any help. Its not a financial thing because she could get services , I believe. Its all oldfashioned pride!! He said he's just going to step up to the plate and do more for her. I know his intensions are good but he wont be able to take care of her personal needs and such. But I'm going to call him on this and let him see the need. Generally, when she soils the floor, I clean it up and hide this to save her pride. Maybe its time for him to clean it. At this point, she's unable to even feed herself or walk and today they were trying to discharge her. Very frustrating.
I called the neuro today but the radiologist that he wanted to reread the MRI wasn't in. I'll try tomorrow.
Thanks for making me aware that the neuronton has to be weaned off because he didn't make me aware of that.
Ya know Nikki, For the last week I have been feeling just plain YUK but just your kind words always have a way of lifting me up. Your friend is a lucky girl to have you for a best friend. I'm sure you've helped her in the same way
Big hugs back to you!!
Cindy
My heart goes out to your friend. I can only imagine what she's going through. It definately takes its toll emotionally and phisically. I hope now that theres some closure, she'll be able to take care of herself.
I know what your saying about a pattern but my hands are tied in so many ways. I tried talking to my dad last night. He was crying to me about my mom. I tried consoling him and his guilty feelings on decisions he's made in her behalf. I told him that I support him 100% and think he's doing a great job. The only thing I don't agree with is his willingness to get some outside help in caring for her.
I was very clear that phisically, I am unable to continue doing this without any help. Its not a financial thing because she could get services , I believe. Its all oldfashioned pride!! He said he's just going to step up to the plate and do more for her. I know his intensions are good but he wont be able to take care of her personal needs and such. But I'm going to call him on this and let him see the need. Generally, when she soils the floor, I clean it up and hide this to save her pride. Maybe its time for him to clean it. At this point, she's unable to even feed herself or walk and today they were trying to discharge her. Very frustrating.
I called the neuro today but the radiologist that he wanted to reread the MRI wasn't in. I'll try tomorrow.
Thanks for making me aware that the neuronton has to be weaned off because he didn't make me aware of that.
Ya know Nikki, For the last week I have been feeling just plain YUK but just your kind words always have a way of lifting me up. Your friend is a lucky girl to have you for a best friend. I'm sure you've helped her in the same way
Big hugs back to you!!
Cindy
MSNik
01-29-2008, 08:01 PM
Hey Cindy. Thanks for the nice compliment you wrote at the end of your post, but really- its just me. Its not me doing anything special...my friend, isnt very responsive to much right now. Shes up to her neck in family stuff. I didnt mention before that we live 2 hours apart now....we usually try to meet for coffee or brunch a couple of times a month when my territory takes me towards her direction...but now, when I wish I could be there for her, shes sourrounded by her immediate and extended family...all I can do is keep in touch by phone. There arent any services, per her mothers wishes....
Meanwhile, about YOUR idea. I think it might work. I think if your father sees how much you DO and realizes that he cant do as much, he might give in and welcome some help...once that happens it should ease the stress on you and the burden on both of you...give it a try.
Sorry to hear that your dr didnt have answers- yet, but he will. Keep on him and please let us know what comes out of it..
Anytime you need me, Cindy, Im here....keep your chin up. Bad days turn into NOT so bad days...this miserably cold weather isnt helping! Spring is about 50 days away..and counting.
Hugs
Nikki
Meanwhile, about YOUR idea. I think it might work. I think if your father sees how much you DO and realizes that he cant do as much, he might give in and welcome some help...once that happens it should ease the stress on you and the burden on both of you...give it a try.
Sorry to hear that your dr didnt have answers- yet, but he will. Keep on him and please let us know what comes out of it..
Anytime you need me, Cindy, Im here....keep your chin up. Bad days turn into NOT so bad days...this miserably cold weather isnt helping! Spring is about 50 days away..and counting.
Hugs
Nikki
cindys601
01-31-2008, 08:24 PM
Hi all~
I got word from the neuro today that there is indead something to my interpretation of my MRI but he's not sure if this would cause my sx. I told him I was going to a specialist to investigate this further and he was supportive and agreeable and asked me to let him know what I find out.
I fealt great knowing he would support me on this but he is not a specialist. A step in the right direction!!
This has been a long journey so far and I'm utterly drained from it. I have to muster up the strength to continue this through. It just takes it toll emotionally and phisically and I know its a long road ahead.
One day at a time and 1 foot in front of the other... Eventually I'll get there!!
Hope everyones well!!:)
Cindy
I got word from the neuro today that there is indead something to my interpretation of my MRI but he's not sure if this would cause my sx. I told him I was going to a specialist to investigate this further and he was supportive and agreeable and asked me to let him know what I find out.
I fealt great knowing he would support me on this but he is not a specialist. A step in the right direction!!
This has been a long journey so far and I'm utterly drained from it. I have to muster up the strength to continue this through. It just takes it toll emotionally and phisically and I know its a long road ahead.
One day at a time and 1 foot in front of the other... Eventually I'll get there!!
Hope everyones well!!:)
Cindy