Hi Everyone,

I've noticed some white spots on my forearms and thighs for a couple of months now and when i saw my Rhuemy today she wants me to see a dermatologist and get it checked out.Does anyone else have these spots and is it related to MCTD?

Thanks,
Mary

I saw the dermatologist on Tuesday she took a skin biopsy from one of the white spots and is testing it for Scleroderma I will get the results in 2 weeks and will let you know then.
If any of you have time I posted in the Sjorgen's about test results if you know any thing about them can you please post a note.Everything I posted I know is positive what don't know what DX's they are.I know I have MCTD or CREST are they the same?

Thanks,
Mary

Not sure what you mean by 'white spots'. Are these raised as pimples or - under the skins like vitiligo? I have the spots which are caused by loss of pigmentation ie vitiligo - also have MCTD.

I saw the dermatologist on Tuesday she took a skin biopsy from one of the white spots and is testing it for Scleroderma I will get the results in 2 weeks and will let you know then.
If any of you have time I posted in the Sjorgen's about test results if you know any thing about them can you please post a note.Everything I posted I know is positive what don't know what DX's they are.I know I have MCTD or CREST are they the same?

Thanks,
Mary

CREST is one of the autoimmune diseases you see in mctd. It is a form of scleroderma. I have scleroderma, but have never heard of the white spot thing. I have ALOT of skin thickening. You can have calcium deposits but they are usually hard. Mine is the diffuse form though so it may just be a different presentation.

Thanks everyone for responding.I heard from the Dermatologist today and the white spots have to do with the lupus she called it ANETODERMA diffuse something.But she said because I have so much going on she wants me to see the Dr. above her and she'll explain everything .The spots I guess are more of a pigmentation under the skin.I don't have bumps more spread out like alot of them they don't hurt or itch just there.What is a diffuse form?I see the Doc on Monday so I will let you know what she has to say.

Thanks ,
Mary

I had my follow up with the Dermatologist and the skin biopsy came back as Pseudoxanthoma Elasticum does anyone have this skin disease?I looked around the internet and the only thing I can find is its rare skin disease and attacks different organs especially your eyes.I would love any info or other websitesI'm having anxiety attack right now.

Thanks again,
Mary

I had my follow up with the Dermatologist and the skin biopsy came back as Pseudoxanthoma Elasticum does anyone have this skin disease?I looked around the internet and the only thing I can find is its rare skin disease and attacks different organs especially your eyes.I would love any info or other websitesI'm having anxiety attack right now.

Thanks again,
Mary

Hi Mary,
you have PXE? Did your dermatologist recognize these spots? Usually most dermatologists do not even know PXE. How exactly did they recognize it? Did he do a special biopsy?

And what are you doing now?

a747 sorry it took so long to get back but when I called the doctor back he said where would you get the idea you have PXE and of course I said you where would I come up with PXE so no I don't have that I have anetoderma.
That is what they biopsy on my arm a white spot.Have to love Drs.

You know when I had a blood test the nurse even said that I have thick skin is that part of SCLERODREMA?Does anyone know much about SJORGREN"S because I was also dx's with that 2 weeks ago.It seems like its one Dx's after another.Ijust posted about my gallbladder having only 20% function if anyone has any advice on that please let me know.So what else can we be Dx's with in the MCTD?

Thanks again,
Mary

a747 sorry it took so long to get back but when I called the doctor back he said where would you get the idea you have PXE and of course I said you where would I come up with PXE so no I don't have that I have anetoderma.
That is what they biopsy on my arm a white spot.Have to love Drs.

You know when I had a blood test the nurse even said that I have thick skin is that part of SCLERODREMA?Does anyone know much about SJORGREN"S because I was also dx's with that 2 weeks ago.It seems like its one Dx's after another.Ijust posted about my gallbladder having only 20% function if anyone has any advice on that please let me know.So what else can we be Dx's with in the MCTD?

Thanks again,
Mary

Hi Mary,
I'm glad you don't have PXE.
I think Sjorgens is an autoimmune disorder, but I don't know much about it.
Seems like you have many different things going on at the same time. I hope you have good doctors or maybe 1 good doctor who is able to coordinate all your needs.

a747 sorry it took so long to get back but when I called the doctor back he said where would you get the idea you have PXE and of course I said you where would I come up with PXE so no I don't have that I have anetoderma.
That is what they biopsy on my arm a white spot.Have to love Drs.

You know when I had a blood test the nurse even said that I have thick skin is that part of SCLERODREMA?Does anyone know much about SJORGREN"S because I was also dx's with that 2 weeks ago.It seems like its one Dx's after another.Ijust posted about my gallbladder having only 20% function if anyone has any advice on that please let me know.So what else can we be Dx's with in the MCTD?

Thanks again,
Mary

MCTD usually has features of CREST (a limited form of Sclero) raynauds, RA ...if you do a search you will see all of the features of it.


Erin
Dallas TX