duckie123
01-26-2008, 04:29 PM
Hi there,
Our son of 13 was diagnose last summer after 7 years of research. Wanted to get a dx thru school so he would get the help in school. After we found out he has Aspergers we have found that since we chnge the way we deal with him a lot of stress dissapeared. He finally has answers to the questions like, why am I different. It was a confirmation... he feels better about himself.
Anyway, after reading the book Freaks, Geeks and the Asperger syndrom, he has made the decision to start the diet. It is not easy, we are with 5 in the family. But since he made the decision I have decisded I need to do this with him. One thing you read everywhere, it may not work for all... .Since our son has a pretty "mild" form I hope this will help him in school.
What are good sites to find some clear info on what is okay to eat? I am having a hard time finding info on the caseine, or cowsmilk... can he use lactose? Is this proteine in goat's milk? These are some of the questions I have....
Thanks all...
Our son of 13 was diagnose last summer after 7 years of research. Wanted to get a dx thru school so he would get the help in school. After we found out he has Aspergers we have found that since we chnge the way we deal with him a lot of stress dissapeared. He finally has answers to the questions like, why am I different. It was a confirmation... he feels better about himself.
Anyway, after reading the book Freaks, Geeks and the Asperger syndrom, he has made the decision to start the diet. It is not easy, we are with 5 in the family. But since he made the decision I have decisded I need to do this with him. One thing you read everywhere, it may not work for all... .Since our son has a pretty "mild" form I hope this will help him in school.
What are good sites to find some clear info on what is okay to eat? I am having a hard time finding info on the caseine, or cowsmilk... can he use lactose? Is this proteine in goat's milk? These are some of the questions I have....
Thanks all...
Sponsor
worm
01-27-2008, 02:17 AM
Get a book called the Feingold diet .
sharonka322
01-29-2008, 02:25 PM
I am considering it, but people say it is so expensive and we are so dirt poor right now....and my son had an appointment with a autism clinic and the appointment has to be delayed until JULY because it is a pre-existing condition....
can you recommend some good books on asbergers? I need to be the best for my son.
can you recommend some good books on asbergers? I need to be the best for my son.
golfhat
01-29-2008, 06:59 PM
How would you go about reducing the levels of metal in the body?
My daughter tried the diet and it didn't do a thing for my GS. but she is keeping him away from chocolate and sweets and certain veggies that popped up on the allergy test. He was allergic to turkey of all things...so the allergy testing is good. But he went back to drinking milk once or twice a week and eating a grilled cheese sandwhich several days a week and he is not worse.
She had a lot of trouble with the gluten part of it --- he basically gave up all crackers and bread rather than eat the gluten free products.
As to chelation:
My grandson will take a med and then urinate several hours later and the urine will be sent off for testing for heavy metals. only then will the chelation treatment be given. My grandson has mild SID and is being helped by a doctor specializing in SID.
Frankly I would like to do chelation for heavy metals myself. they say heavy metals in brain are being linked to Alz. It would be worth it if it prevented Alz.
My daughter tried the diet and it didn't do a thing for my GS. but she is keeping him away from chocolate and sweets and certain veggies that popped up on the allergy test. He was allergic to turkey of all things...so the allergy testing is good. But he went back to drinking milk once or twice a week and eating a grilled cheese sandwhich several days a week and he is not worse.
She had a lot of trouble with the gluten part of it --- he basically gave up all crackers and bread rather than eat the gluten free products.
As to chelation:
My grandson will take a med and then urinate several hours later and the urine will be sent off for testing for heavy metals. only then will the chelation treatment be given. My grandson has mild SID and is being helped by a doctor specializing in SID.
Frankly I would like to do chelation for heavy metals myself. they say heavy metals in brain are being linked to Alz. It would be worth it if it prevented Alz.
Reespirit
02-02-2008, 12:33 AM
Hi there,
Our son of 13 was diagnose last summer after 7 years of research. Wanted to get a dx thru school so he would get the help in school. After we found out he has Aspergers we have found that since we chnge the way we deal with him a lot of stress dissapeared. He finally has answers to the questions like, why am I different. It was a confirmation... he feels better about himself.
Anyway, after reading the book Freaks, Geeks and the Asperger syndrom, he has made the decision to start the diet. It is not easy, we are with 5 in the family. But since he made the decision I have decisded I need to do this with him. One thing you read everywhere, it may not work for all... .Since our son has a pretty "mild" form I hope this will help him in school.
What are good sites to find some clear info on what is okay to eat? I am having a hard time finding info on the caseine, or cowsmilk... can he use lactose? Is this proteine in goat's milk? These are some of the questions I have....
Thanks all...
Hi.. I am new to the message board. I work as a Student Support Facilitator A One on One support for autistic children in Massachusetts USA. I am so excited to come here and see that there are so many loving parents that are so deeply involved in the care of their children.
Has your child participated in Discrete Trials when he was smaller?
What do you think has made your child so successful?
It sounds as if you are raising quite the mature young person and he sounds like a blessing.
One of the children in our group in our class is going through chelation right now and we have seen changes in her. Beware though there can be serious side effects also. She is also on a gluten free diet. It is a lot of work but worth it IF IT WORKs... Not all therapies work for everyone...
Good luck to you be well
Ree
Our son of 13 was diagnose last summer after 7 years of research. Wanted to get a dx thru school so he would get the help in school. After we found out he has Aspergers we have found that since we chnge the way we deal with him a lot of stress dissapeared. He finally has answers to the questions like, why am I different. It was a confirmation... he feels better about himself.
Anyway, after reading the book Freaks, Geeks and the Asperger syndrom, he has made the decision to start the diet. It is not easy, we are with 5 in the family. But since he made the decision I have decisded I need to do this with him. One thing you read everywhere, it may not work for all... .Since our son has a pretty "mild" form I hope this will help him in school.
What are good sites to find some clear info on what is okay to eat? I am having a hard time finding info on the caseine, or cowsmilk... can he use lactose? Is this proteine in goat's milk? These are some of the questions I have....
Thanks all...
Hi.. I am new to the message board. I work as a Student Support Facilitator A One on One support for autistic children in Massachusetts USA. I am so excited to come here and see that there are so many loving parents that are so deeply involved in the care of their children.
Has your child participated in Discrete Trials when he was smaller?
What do you think has made your child so successful?
It sounds as if you are raising quite the mature young person and he sounds like a blessing.
One of the children in our group in our class is going through chelation right now and we have seen changes in her. Beware though there can be serious side effects also. She is also on a gluten free diet. It is a lot of work but worth it IF IT WORKs... Not all therapies work for everyone...
Good luck to you be well
Ree
welch1
02-13-2008, 09:44 AM
As far as expensive--well that depends on how much your child eats. I started our son on this diet 2 years ago. It stopped his arm flapping and spinning in circles. It also seemed to let him recognize people around him. Today, he is still on the diet. We have introduced "regular" food into his diet now and again as a test. He has some backlash from it, but nothing compared to the past. When I dug into this years ago--I read that 50% of kids saw some reward of the diet and that 47% would outgrow the need for this diet. Our son is 4 yrs old today and has been on the diet for 2 yrs. Today and everyday he shows growth in being more typical. Back to the cost. If you try it--the first shoping trip is great $$, but once you have the basics--you are only feeding one little person. Give it 3 months and then decide if it is worth the difference you see in your child. For us it is a "no brainer" The cost and more so the extra work is so worth seeing him see ME! Good luck to all of you.
rebecca197334
02-17-2008, 04:15 PM
I've had my son on this diet and some expensive vitamins for about a week now. It has cost us a lot. We too are struggling finacially, because i also have post partum depresssion and right now our daycare bills are killing us, and i'm not working. I have already seem an improvement in my son. He flaps his arms for hours and screaches like a parot because something is out of order or feels funny and he'll never get over it. But for 4 days now, We have not had a single meltdown. He starts to flap and then stops and looks at us, as if he can't think of why he'd do that. He just stops and moves on. he doesn't obsess as much. We are excited at the change. I think i'd sell our second car to keep him on the gleuton free diet. But really he doesn't like the imagatations much. Mostly we spend more $ on meat.
jen2be2
03-03-2008, 10:32 PM
2 of my kids have Celiac Disease and all of us are on a GF diet.
My son will have an official Dx tomorrow, but we suspect that he is on the PPD spectrum( will update tomorrow). I can tell you that after being GF for a year and then doing a gluten challenge~ I could really see a huge difference in his behavior. In just 4 days he went from being able to hold eyecontact 50% of the time to just about 2% and his behavoir was off the charts bad.
It is true that a GF diet is hard to follow ( if you are strict) and quite expensive, but it is worth every $ and work that you put into it.
If you have any questions, feel free to pm me or post a question to me and I can help you out with the diet.
My son will have an official Dx tomorrow, but we suspect that he is on the PPD spectrum( will update tomorrow). I can tell you that after being GF for a year and then doing a gluten challenge~ I could really see a huge difference in his behavior. In just 4 days he went from being able to hold eyecontact 50% of the time to just about 2% and his behavoir was off the charts bad.
It is true that a GF diet is hard to follow ( if you are strict) and quite expensive, but it is worth every $ and work that you put into it.
If you have any questions, feel free to pm me or post a question to me and I can help you out with the diet.
roses4lace
03-04-2008, 04:25 AM
It works for me! I have Aspergers and numerous allergies. I have had reactions to wheat for many, many years, but ignored them. About 3-4 years ago I started swelling in my joints and they didn't work well, my knees would buckle going down stairs, and got brain fog and couldn't think, couldn't reason, couldn't carry on a conversation nor understand technical documents that I used to read. I started back on my allergy drops, but the swelling continued. The ENT put me on a rotation diet, and I finally figured out it was the wheat causing me to swell. So I cut out most gluten products. Now I rarely wake up swollen in the mornings, my thinking is gradually getting clearer, and I'm getting out in public again. I have no desire to go back to eating gluten products.
For spaghetti, I use rice straws or bean threads from a Chinese grocery. I"ve been ordering hamburgers without the bread, just the meat, cheese, lettuce, tomato, pickle, but I understand some of the patties have wheat in them. No fried and battered items, but roasted chicken is just as good. I've finally found a GF recipe for crackers that tastes good enough to eat with my cheese spread, and a recipe for cornbread that omits flour. Most of the time it looks like I'm eating what others are eating.
Check for a Celiac or GF group or forum in your area, they have great ideas of how to live with this. The group in my area even has a baker who will make gluten free cakes, cookies, etc.
If you don't want to commit to this kind of diet, you could try it for a couple of weeks and see if there is a difference.
For spaghetti, I use rice straws or bean threads from a Chinese grocery. I"ve been ordering hamburgers without the bread, just the meat, cheese, lettuce, tomato, pickle, but I understand some of the patties have wheat in them. No fried and battered items, but roasted chicken is just as good. I've finally found a GF recipe for crackers that tastes good enough to eat with my cheese spread, and a recipe for cornbread that omits flour. Most of the time it looks like I'm eating what others are eating.
Check for a Celiac or GF group or forum in your area, they have great ideas of how to live with this. The group in my area even has a baker who will make gluten free cakes, cookies, etc.
If you don't want to commit to this kind of diet, you could try it for a couple of weeks and see if there is a difference.