gorgee
02-13-2008, 09:02 PM
Hi there, I live in New England, and we got an awful storm today. I felt it coming last night. My muscles, especially bottom legs, were extremely sore, they were throbbing with pain, and tender to touch last night. Every time I got up it took me a couple of minutes to get going. Today, same thing, all day my muscles and joints were sore. I am tired too, I took a 2 hour nap with my kids, thank goodness! My legs had the same extreme pain as last night and I just needed to lay down in bed. Usually I am just extremely sore in the morning, if I have over done it, and at night, but today I just needed to rest. I was sore everytime I moved. My tmjd/myofascial pain also was sore (as usual), and I had a couple of stabbing pains that almost took me to the floor. I am glad it is bedtime, and maybe tomorrow will be better. I have not had an official diagnosis on my body pain, but can anybody help me with what might be wrong? And did anybody else have this today due to weather? I know flare-ups can happen anytime, and I have them randomly too. Help please. In advance thank you for your time and responses.
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mama40
02-14-2008, 12:03 AM
I live in New England too (Boston). Yes, I was in horrible pain the last 2 weeks due to the very cold weather, rain and snow. My hands, knees and ankles were killing me!
densgirl
02-14-2008, 09:39 AM
I'm a New Englander also and this winter has been just awful for pain. I have head, neck and back pain ( diagnosed as FIBRO and nerve pain in my face. Also burning and tingling nerve pain in my right foot and everyday as been a challenge. I work full time and by the end of the day I just want to go home and lay down.
Fortunately my kids are grown and gone so it's just my husband and I. As soon as I get supper over with I am done with the day. I end up going to bed a 8 PM, but I try to read every night because it's my only escape.
Aja
Fortunately my kids are grown and gone so it's just my husband and I. As soon as I get supper over with I am done with the day. I end up going to bed a 8 PM, but I try to read every night because it's my only escape.
Aja
bluelakelady
02-14-2008, 09:56 AM
hi east girls,
hey, even here in "sunny" california the weather does the same thing. we have had cold weather and even a bit of snow. nothing like what you all have, just pretty. however, the changes in weather kick my fanny too. we are weather vanes. our bodies know and warn us. it mostly hits my legs and back.
in the winter i also nap alot. i think we get so tired because our bodies need a break from the feeling of our pain. sleep offers that, even if briefly.
peace filled sweet dreams,
bluelakelady
hey, even here in "sunny" california the weather does the same thing. we have had cold weather and even a bit of snow. nothing like what you all have, just pretty. however, the changes in weather kick my fanny too. we are weather vanes. our bodies know and warn us. it mostly hits my legs and back.
in the winter i also nap alot. i think we get so tired because our bodies need a break from the feeling of our pain. sleep offers that, even if briefly.
peace filled sweet dreams,
bluelakelady
sherryrenee0423
02-14-2008, 10:53 AM
I'm in Texas and I've been hurting really bad this last week...last night and this morning being the worst. :confused:
Ishla
02-14-2008, 11:25 AM
Texas here... and I can tell you, anywhere from 2 hours to two days from a front.. depends how strong the front is.. I have horrible all over muscle pain and cramping. My husband now experiences this a bit as well after having shoulder surgery. When I tell him.. "something is comming" he knows to bear up and take his meds because he's found out that a fibromite is the best radar system there is for cold fronts. OUCH!!:(
Backinthesaddle
02-14-2008, 03:47 PM
Texas too but the weather does not affect me. I am always sore and achy. I honestly have no idea anymore what it feels like not to ache and secondly I already forgot how bad I felt just a few months ago when I was flaring. I have been doing so good that I often think I am cured. :) But I do take enough medicines to cul most of the bad pains. I work fulltime so I am really busy and have lots of breaks so that makes the day fly. Then I have my energetic 2 yr old. I hurt sometimes so bad when I actually do sit and relax that I just get up and move so as not to feel. Do you take medicines???
Ishla
02-14-2008, 07:29 PM
Oh yes... definitely always achey and sore, but it's just phenomenally painful when the barometric pressure starts to fall. No problem when it's rising, but something weird happens when it drops. Feels kinda like every cell begins to swell up like it's being exposed to a vacuum.. and it hurts so bad. But enough of my bad stories.. Happy Valentines!! :D
gorgee
02-15-2008, 11:28 AM
Thank you all for your responses, I appreciate each and everyone of them. I am having a hard day again, yesterday was good. I am discouraged, I have so much to do today. My son is 2 tomorrow, and I have got to get the house ready, and do a little shopping to get ready for his party. I did cheat a little and ordered food platters, instead of cooking. I have 2 boys, ages 2 and 4. Thank goodness it is a small, family only party, only about 12 people. I am worried through, it is not my family, it is my husbands family, and they are skeptical, and judgemental about my pain and why I take medication. They are worried that I am becoming an addict. I am extremely responsible and I respect the medication. They feel everybody has pain, what makes mine so much harder to deal with and why can't I just deal with it. Also, the neatness and cleanliness of my house is a topic that my husband, mother in law, and sister in law all share. I stay at home with the 2 boys, and they don't understand why I can't do better. I have a big house, 4 bedrooms, 2 living rooms, 2 bathrooms, and stairs gallore. My sister in law works 45 hours a week, her husband too, their 1 daughter is in day care, she just turned 5. They all say she works, and has a pristine house, Kass doesn't work, and can't keep up, why? It hurts me so much. My husband is hard on me sometimes, saying our house is a disgrace, and a pig pen. He feels he works too hard to come home to a house that looks like this, and I am disrespectful and unappreciative to him by me not doing a better job. My house is not that bad, and I love my husband, and I appreciate and respect him. I have 2 very active boys, my house is clean, sometimes not so organized, and I do it all by myself. I take care of the boys with no help. I cook, clean, do baths, bedtime, grocery shopping, everything, and it is the boys and I. Sometimes I cannot keep up, and other days I can. I never ask for help. I learned not to, I only get hurt when the answer is no. My husband has often said that he does not ask for help making money, so I should not ask for help with my job when I am sick. Horrible, huh?
I do take medication. I am being treated for chronic pain being caused by tmjd, myofascial pain syndrome, and possibly arthritis or fibromyalgia. It all just started (the chronic part) in September. I have had tmj for over 7 years, but in September is all stayed. As time went by, my body joined in. My husband does not agree with medications. I have tried to explain my pain, and how I have days that vary on the pain scale. He believes it is my getting older (I am 31), and that I have gained 10-15 pounds that is causing my pain, and everybody has pain as they get older. As you can tell, my husband has a lot to do with my stress and anxiety. Right now, he believes if I put my faith in the lord he will help take my pain away. I have put my faith in the lord, but so far I am still in pain. I was taking vicoprofen, but it was not enough, and I was taking too much ibuprofen, so my doctor switched me to oxycodone LA every 12 hours, and that has helped a lot. I took about 2 weeks to contemplate switching meds, there is so much bad stuff about oxycontin out there. I am so glad I made the right decision, it has given me some normality. I also can take vicoprofen for breakthrough pain. I am also on flexerill, and valium for muscle spasms, and lexapro for anxiety. Today I have called in all the extras to get me through, I also have a migraine and take maxalt. I was so hoping for a good day, and to have as much energy and less pain as possible. I can only do the best I can.
Does anybody have any suggestions on what works for you guys? I am waiting for surgery approval for my tmjd from the insurance company on Tuesday, the 19th, I also have a check up that day for OMT with my regular doctor. He is wonderful, and I could not ask for a better doctor. My husband does not like him, and believes he is over medicating me. When the dr switched me to oxycodone LA, I felt like I got part of my life back. I was so thrilled. I was somewhat crushed by my husband not agreeing with my treatment because it helped. I did not have to take 3-4 vicoprofen every 4-6 hours, now I only have to take 1 pill every 12 hours! I cried for hours, which did not help my pain, and contemplated pleasing my husband, going off meds to make him happy. The pain was so horrible, I felt it was a sign, I realized (as usual) my pain is real, I have a medical problem or problems and I need medication. I have not looked back, and I treat my pain. My boys need me, and I cannot do that from bed.
I am going to ask for a referral to a rhuematologist. My doctor has not done that yet because he believes my body pain is due to excess cortisol being released due to stress in my life and marriage. I, now, think it is more than that. So, what works for you guys, and can you think of anything I should ask or suggest at my next appt. to make it as good of an appointment as I can get?
I also wanted to say, that yes this was a long post, and thank you for reading it. But I am so glad I have joined here. It has helped me immensely. Not only do I get helpful information, but I can maybe help others too.
I do take medication. I am being treated for chronic pain being caused by tmjd, myofascial pain syndrome, and possibly arthritis or fibromyalgia. It all just started (the chronic part) in September. I have had tmj for over 7 years, but in September is all stayed. As time went by, my body joined in. My husband does not agree with medications. I have tried to explain my pain, and how I have days that vary on the pain scale. He believes it is my getting older (I am 31), and that I have gained 10-15 pounds that is causing my pain, and everybody has pain as they get older. As you can tell, my husband has a lot to do with my stress and anxiety. Right now, he believes if I put my faith in the lord he will help take my pain away. I have put my faith in the lord, but so far I am still in pain. I was taking vicoprofen, but it was not enough, and I was taking too much ibuprofen, so my doctor switched me to oxycodone LA every 12 hours, and that has helped a lot. I took about 2 weeks to contemplate switching meds, there is so much bad stuff about oxycontin out there. I am so glad I made the right decision, it has given me some normality. I also can take vicoprofen for breakthrough pain. I am also on flexerill, and valium for muscle spasms, and lexapro for anxiety. Today I have called in all the extras to get me through, I also have a migraine and take maxalt. I was so hoping for a good day, and to have as much energy and less pain as possible. I can only do the best I can.
Does anybody have any suggestions on what works for you guys? I am waiting for surgery approval for my tmjd from the insurance company on Tuesday, the 19th, I also have a check up that day for OMT with my regular doctor. He is wonderful, and I could not ask for a better doctor. My husband does not like him, and believes he is over medicating me. When the dr switched me to oxycodone LA, I felt like I got part of my life back. I was so thrilled. I was somewhat crushed by my husband not agreeing with my treatment because it helped. I did not have to take 3-4 vicoprofen every 4-6 hours, now I only have to take 1 pill every 12 hours! I cried for hours, which did not help my pain, and contemplated pleasing my husband, going off meds to make him happy. The pain was so horrible, I felt it was a sign, I realized (as usual) my pain is real, I have a medical problem or problems and I need medication. I have not looked back, and I treat my pain. My boys need me, and I cannot do that from bed.
I am going to ask for a referral to a rhuematologist. My doctor has not done that yet because he believes my body pain is due to excess cortisol being released due to stress in my life and marriage. I, now, think it is more than that. So, what works for you guys, and can you think of anything I should ask or suggest at my next appt. to make it as good of an appointment as I can get?
I also wanted to say, that yes this was a long post, and thank you for reading it. But I am so glad I have joined here. It has helped me immensely. Not only do I get helpful information, but I can maybe help others too.
bluelakelady
02-15-2008, 12:51 PM
sweetie just ignore your husbands family. you did not marry them. who cares what they think? when others judge us by their standards they are to be pitied. they don't know any better. it is sad for them as they live in tiny boxes made of rules with no room for change.
you are change every day. how special, unique and wonderful that makes you. your children do not care if the house is messy. they only care that you love them. children are much smarter than adults. kiss your baby happy birthing day for me.
peace,
bluelakelady
you are change every day. how special, unique and wonderful that makes you. your children do not care if the house is messy. they only care that you love them. children are much smarter than adults. kiss your baby happy birthing day for me.
peace,
bluelakelady
gorgee
02-15-2008, 01:12 PM
Thank you bluelakelady, how true you are. You made my day and I will kiss him happy birthday from you. The other day my husband said that he and the boys deserve much more than this. Meaning me dealing with this. My boys love me, and I take care of them 100%. They are happy, healthy, and they are my life. The problem is, is it is not only my husbands family it is my husband too.
I hope you have a wonderful day, you certainly have made mine a lot better. I know you are an amazing, beautiful person. Thank you.
I hope you have a wonderful day, you certainly have made mine a lot better. I know you are an amazing, beautiful person. Thank you.
bluelakelady
02-16-2008, 09:40 AM
may i suggest you tell dear hubby to hire a maid. then he can have his perfect world. there is a line in the marriage vows, for better or for worse, in sickness and in health.
sometimes husbands have to be ignored when they speak words not worthy of the love they say they feel.
men are funny creatures. in their ignorance and fear they speak out words that hurt. often they do not realize what their words truly mean. it is sad and it is wrong. few men are capable of loving sick women, really loving them. with compassion and gentleness.
before my brother finally got it he used to say dumb things to me. i learned to say, if you want it done please help yourself. i can use all the help i can get. i even used to grab my breasts and say, do these mean i am the only one who can?? i don't think so! now he just does it and i never hear about it till he is done. then he is so proud and i am proud of him too. since my last stroke he is even learning to cook!! miracles do happen, giggle.
husbands are different from brothers. the words tho, are the same.
i have found if it really, really matters to another that something be done, they are capable of doing it themselves. if all they do is complain, they just want something to gripe about and pick on you with. attacking the house mess is an attack on you. meant to make you feel guilty for being sick. hello? what's sick about that?!! all of it!
i hope the party was fun and baby had a grand time. you are tired, no doubt, and satisfied for baby.
hey, did anyone help you clean up?
peace,
bluelakelady
sometimes husbands have to be ignored when they speak words not worthy of the love they say they feel.
men are funny creatures. in their ignorance and fear they speak out words that hurt. often they do not realize what their words truly mean. it is sad and it is wrong. few men are capable of loving sick women, really loving them. with compassion and gentleness.
before my brother finally got it he used to say dumb things to me. i learned to say, if you want it done please help yourself. i can use all the help i can get. i even used to grab my breasts and say, do these mean i am the only one who can?? i don't think so! now he just does it and i never hear about it till he is done. then he is so proud and i am proud of him too. since my last stroke he is even learning to cook!! miracles do happen, giggle.
husbands are different from brothers. the words tho, are the same.
i have found if it really, really matters to another that something be done, they are capable of doing it themselves. if all they do is complain, they just want something to gripe about and pick on you with. attacking the house mess is an attack on you. meant to make you feel guilty for being sick. hello? what's sick about that?!! all of it!
i hope the party was fun and baby had a grand time. you are tired, no doubt, and satisfied for baby.
hey, did anyone help you clean up?
peace,
bluelakelady
gorgee
02-16-2008, 10:49 AM
Thank you, BluelakeLady, you make me giggle. I usually get a chance in the morning to look at these. My boys are watching cartoons and playing, so I take this time for me. This has really helped me (meaning reading and posting on here). It is like therapy, and I realize so much good stuff about me. Not only do I need help and advice, and I can get it here, but I can also help people too.
I cleaned and cleaned yesterday from about 10 am till 8 pm last night. Today,I really hurt and am having a hard time moving around. The house looks good, but still my husband made a comment about how I did not get to the bathroom yet. You are so right about men. They think they are saying loving, caring words but they actually hurtful. He says he loves me, and loves me more everyday, but it does not feel that way everyday. I know that he does not listen to me when I tell him how I feel, what matters to me, what happened that day, how I feel, or what is wrong. It seems he jugdes me on what meds I take, how I might seem slower, or that I have mood swings. The other day, I was crying, he had hurt my feelings, and he said I am not myself, and I have mood swings like nobody's business. I said tell me when was the last time I had a mood swing? He said, well right now. I said, honey, I am crying, you hurt my feelings, that is not a mood swing. You told me you cannot understand how 6 months ago, I was almost medication free, had my wits about me, and now I am on pain medication (I have been on these for migraines for 5 years or so) now I take them daily for my pain, muscle relaxants, and Lexapro (I have been on this for 2 years), and that you and the children deserve better. You hurt my feelings, I am crying, this is not a mood swing. I have got to put myself first, and the boys. They need me to function 100%, and take care of them. I do that, and I take medication so I can. I think that is being a good mom who can recognize that if she does not take the medication she is going to be in bed, in pain, short with them, because she is in pain, and unable to take care of them. Who else is going to help me, nobody, who else is going to take care of them, nobody. I have asked for help from my mother in law and she says my husband can do it. He says he will do it, and then he is tired, or he says I can do it another day, or says why do I need a break? I have to manage it myself, and I can do that when I am feeling good.
Today is the birthday party. I still have some running around to do. I am worried because I have not gotten any presents yet. I have been asking to go do it by myself, or with my older son, but my husband has been too busy, and he does not want me to hire a babysitter. I am hoping to get some decorations, presents, and food all in one sweep. My husband is still asleep and hopefully will get up around 10:30. I am going to try and do it all without getting upset or stressed out. That just leads to pain.
I am going to have the party be as easy as possible. Food platters, and plastic everything. I hope people help me, but we will see. I will let you know.
I have tell you this..the other day, on valentines day, my boys and I went grocery shopping. Throughout the trip, my 4 years old had something behind his back and I never knew it. At checkout, he passed it to me, and said I am buying these for you. I looked down and he had a box of chocolates. I started to cry, I hugged and kissed him. I asked him how did he know that you buy chocolates on valentines, he said because he saw I bought a box for his preschool teacher (it was the same box he got!) and on cartoons that day he saw what the characters did. I was so proud of him. It was the best valentines gift ever. He was so proud of himself. We went on with the day, and my husband gave me a card, the boys each a gift and all of us another box of chocolates. When my husband came home at 8 pm, I told him how proud and excited I was with our son, and the gift he gave me, and how he knew what to do with a gift for valentines for his mommy. I even said it meant so much, and possibly the best gift ever. My husband has never cared or done much for Valentines. Most years I have gotten nothing. I have done so much, like spread hearts throughout the house, made heart shaped brownies, lingerie, cards, homeade cards etc. The next day, I was looking for the box of chocolates that my son had given me and they were gone. The other box was here. I asked my husband 3 times if he knew where they were he said, no. Finally on the 4th try, I said the red box of chocolates, he said he gave them away to a friend! He thought that they were for him. I was very upset, but I had to let it go. At least they went to a friend who was visiting his father at the hospital. That is how much my husband listens to me.
I know that this is a long post. Thank you for reading this, bluelakelady,or anybody else, and thank you for your friendship. I will let you know how the party goes. Please, have a good day, and know how much your words mean to me.
I cleaned and cleaned yesterday from about 10 am till 8 pm last night. Today,I really hurt and am having a hard time moving around. The house looks good, but still my husband made a comment about how I did not get to the bathroom yet. You are so right about men. They think they are saying loving, caring words but they actually hurtful. He says he loves me, and loves me more everyday, but it does not feel that way everyday. I know that he does not listen to me when I tell him how I feel, what matters to me, what happened that day, how I feel, or what is wrong. It seems he jugdes me on what meds I take, how I might seem slower, or that I have mood swings. The other day, I was crying, he had hurt my feelings, and he said I am not myself, and I have mood swings like nobody's business. I said tell me when was the last time I had a mood swing? He said, well right now. I said, honey, I am crying, you hurt my feelings, that is not a mood swing. You told me you cannot understand how 6 months ago, I was almost medication free, had my wits about me, and now I am on pain medication (I have been on these for migraines for 5 years or so) now I take them daily for my pain, muscle relaxants, and Lexapro (I have been on this for 2 years), and that you and the children deserve better. You hurt my feelings, I am crying, this is not a mood swing. I have got to put myself first, and the boys. They need me to function 100%, and take care of them. I do that, and I take medication so I can. I think that is being a good mom who can recognize that if she does not take the medication she is going to be in bed, in pain, short with them, because she is in pain, and unable to take care of them. Who else is going to help me, nobody, who else is going to take care of them, nobody. I have asked for help from my mother in law and she says my husband can do it. He says he will do it, and then he is tired, or he says I can do it another day, or says why do I need a break? I have to manage it myself, and I can do that when I am feeling good.
Today is the birthday party. I still have some running around to do. I am worried because I have not gotten any presents yet. I have been asking to go do it by myself, or with my older son, but my husband has been too busy, and he does not want me to hire a babysitter. I am hoping to get some decorations, presents, and food all in one sweep. My husband is still asleep and hopefully will get up around 10:30. I am going to try and do it all without getting upset or stressed out. That just leads to pain.
I am going to have the party be as easy as possible. Food platters, and plastic everything. I hope people help me, but we will see. I will let you know.
I have tell you this..the other day, on valentines day, my boys and I went grocery shopping. Throughout the trip, my 4 years old had something behind his back and I never knew it. At checkout, he passed it to me, and said I am buying these for you. I looked down and he had a box of chocolates. I started to cry, I hugged and kissed him. I asked him how did he know that you buy chocolates on valentines, he said because he saw I bought a box for his preschool teacher (it was the same box he got!) and on cartoons that day he saw what the characters did. I was so proud of him. It was the best valentines gift ever. He was so proud of himself. We went on with the day, and my husband gave me a card, the boys each a gift and all of us another box of chocolates. When my husband came home at 8 pm, I told him how proud and excited I was with our son, and the gift he gave me, and how he knew what to do with a gift for valentines for his mommy. I even said it meant so much, and possibly the best gift ever. My husband has never cared or done much for Valentines. Most years I have gotten nothing. I have done so much, like spread hearts throughout the house, made heart shaped brownies, lingerie, cards, homeade cards etc. The next day, I was looking for the box of chocolates that my son had given me and they were gone. The other box was here. I asked my husband 3 times if he knew where they were he said, no. Finally on the 4th try, I said the red box of chocolates, he said he gave them away to a friend! He thought that they were for him. I was very upset, but I had to let it go. At least they went to a friend who was visiting his father at the hospital. That is how much my husband listens to me.
I know that this is a long post. Thank you for reading this, bluelakelady,or anybody else, and thank you for your friendship. I will let you know how the party goes. Please, have a good day, and know how much your words mean to me.
sweetjerseygirl
02-16-2008, 11:25 AM
Good Morning, Hope all is well for your today. I usually write something but can get long winded. I have been following your thread and hope your party went well and clean up was a breeze with a little bit of help from family members.
I was the girl who wrote no compassion from spouse, things are a wee bit better between us now, so if you need to talk about some more stuff, just ask. I think my husband is finally seeing this as more than what he may have orginally thought, he was ignoring it and me, especially with this last bout of flair ups, but although iv had this condition for a long time, i was unaware of it and we thought it was a million other things causing my problems, until it was confirmed and diagnosed as fibro. I just started a new round of meds and the pain seems to be easing a bit. Your not alone here, as i have found out. Hang in there and im hoping your smiling because in spite of everything your child had a great birthday party, we know u gave it your all ! ;)
I was the girl who wrote no compassion from spouse, things are a wee bit better between us now, so if you need to talk about some more stuff, just ask. I think my husband is finally seeing this as more than what he may have orginally thought, he was ignoring it and me, especially with this last bout of flair ups, but although iv had this condition for a long time, i was unaware of it and we thought it was a million other things causing my problems, until it was confirmed and diagnosed as fibro. I just started a new round of meds and the pain seems to be easing a bit. Your not alone here, as i have found out. Hang in there and im hoping your smiling because in spite of everything your child had a great birthday party, we know u gave it your all ! ;)
mfarmer7
02-16-2008, 12:59 PM
Thank you guys for posting. It means so much to know that I'm not alone. After reading all of your posts, I believe I have Fibromyalgia. I am going to talk to my Rheumy on Weds. (I have been Dx with SLE, Kidney disease, Reynaud's, & Arthritis.)
Sorry about the no help with the party, I wish I could have helped! Best of luck to you...
Melissa:)
Sorry about the no help with the party, I wish I could have helped! Best of luck to you...
Melissa:)
gorgee
02-18-2008, 10:58 AM
Thank you all. I cannot tell you how much I appreciate your throughts and care. Our lives are not easy, not only do we have to battle pain and exhaustion, but then we have to battle the pain of our spouse or family not understanding and helping. We all need to stick together. I hope everybody has a great day and is as comfortable as they can be.
Kassandra:angel:
Kassandra:angel:
niecsey
02-18-2008, 05:24 PM
Mine started early evening last night after having a rare l feel great day... :( it started with a pain in my upper back in the middle as if l had been winded... which came and went for a few hours.. then 4 this morning l woke up mainign and groaning and crying l couldnt move my lower body for stiffness and painin the sacrum joints esp left side also mid back and upper back...eventually after asome sleep my left hip is aching the side of my left knee is too and l feel rough :( couldnt even go to docs felt that ill today will see what tonight brings... l wish they would diagnose me with something :( good luck all xx
SusanG50
02-20-2008, 11:02 AM
Full Moon is on the rise..............full Thursday night. Lunar Eclispe tonight.
This always, always makes me worse. Very interesting to study.
This always, always makes me worse. Very interesting to study.
gorgee
02-20-2008, 06:53 PM
Susan G50, I am so glad that you wrote this. I have had a horrible day of joint pain, extreme fatigue, and I just felt horrible. I am going to keep the full moon in the back of my mind, and see how I feel tomorrow and Friday. I had osteomanipulation yesterday, and that is supposed to make you better, not worse. Everytime I get up from the couch, out of my vehicle I am sore. This stinks!!! Good luck everybody, and let us all know how we feel over the next couple of days. Kass
gorgee
02-20-2008, 07:01 PM
niecsey, I too, am stuck with the ups and downs of painful and less painful days. I wish I would be diagnosed too. But maybe I was...on another post a lady posted that myofacsial pain syndrome or disease effects the whole body. Could that be why my feet and hands where so swollen and sore this morning? Or that I hurt to move today, I don't know. I had a full blood workup yesterday, and hopefully that will show something. I think today was the most fatigued day I have ever had. I am a 31 year old woman, who is propping her feet up to help with the pain, and so maybe they won't be so swollen. Good luck all, and lets see if the full moon, Susan G50 mentioned in previous post, makes us worse. You ALL are in my thoughts. Kass
tattoos
02-20-2008, 07:20 PM
Kass-
I live in New England (CT). Do you have any Doctor recommendations? My doctors have been of no help. It has really gotten to me and at times my pain is out of control! So debilitating. About 2 1/2 weeks ago I had the worst flare so far...it lasted about 1 week. I am always in pain but this was off the charts! I can honestly say my labor wasn't as bad as this...at least labor didn't last that long.
I am 31 also and my mom and dad had to help me and my son get through the days. My pain clinic COULD NOT SEE ME! They said only my doctor could treat me and he was away. He isn't much help anyways. Even many doctors are skeptical of this condition. I have also had other problems (still do) TMJ, Chondro Malacia Patella, ulnar neuritis and sublexation of right shoulder. Still doctors don't "think" I am in PAIN! I do not take any narcotic meds and honestly I TRULY need them and doctors don't want to prescribe something they can't confirm in a blood test or x-ray etc...My dad, who is a physician, is also disgusted with my care and has seen what I go through. I wish he could be my doctor but ethically he can't.
It sounds as if your doctor believes you. That is really cool because we have a lot of non-believers out there it really hurts when a doctor dismisses you.
Bella
PS: I am willing to travel to find a good doctor. My parents believe that's what we probably have to do. Any input would be great:). Hope you are feeling well.
PSS: Manipulation makes it worse. I did the Chiropractor thing and physical therapy and it just aggravated the problem. It seems like we try everything, even grining and bearing it....I so don't want to do that anymore....I don't have the strength to do it anymore.
I live in New England (CT). Do you have any Doctor recommendations? My doctors have been of no help. It has really gotten to me and at times my pain is out of control! So debilitating. About 2 1/2 weeks ago I had the worst flare so far...it lasted about 1 week. I am always in pain but this was off the charts! I can honestly say my labor wasn't as bad as this...at least labor didn't last that long.
I am 31 also and my mom and dad had to help me and my son get through the days. My pain clinic COULD NOT SEE ME! They said only my doctor could treat me and he was away. He isn't much help anyways. Even many doctors are skeptical of this condition. I have also had other problems (still do) TMJ, Chondro Malacia Patella, ulnar neuritis and sublexation of right shoulder. Still doctors don't "think" I am in PAIN! I do not take any narcotic meds and honestly I TRULY need them and doctors don't want to prescribe something they can't confirm in a blood test or x-ray etc...My dad, who is a physician, is also disgusted with my care and has seen what I go through. I wish he could be my doctor but ethically he can't.
It sounds as if your doctor believes you. That is really cool because we have a lot of non-believers out there it really hurts when a doctor dismisses you.
Bella
PS: I am willing to travel to find a good doctor. My parents believe that's what we probably have to do. Any input would be great:). Hope you are feeling well.
PSS: Manipulation makes it worse. I did the Chiropractor thing and physical therapy and it just aggravated the problem. It seems like we try everything, even grining and bearing it....I so don't want to do that anymore....I don't have the strength to do it anymore.
Jenn4508
02-20-2008, 08:47 PM
Thank you bluelakelady, how true you are. You made my day and I will kiss him happy birthday from you. The other day my husband said that he and the boys deserve much more than this. Meaning me dealing with this. My boys love me, and I take care of them 100%. They are happy, healthy, and they are my life. The problem is, is it is not only my husbands family it is my husband too.
I hope you have a wonderful day, you certainly have made mine a lot better. I know you are an amazing, beautiful person. Thank you.
I really had to jump in here to tell you that you are a wonderful person... I take alot of meds due to the fibro, chronic myofascial pain, hypermobility, migraines and BiPolar 1... Just last week, my husband fell off the wagon again (drinking) and there was a huge argument... I try not to engage in conversation when he is drinking but he wanted to engage about my meds. The final straw was when he said that whiskey was his crutch just like my drugs were my crutch... Now mind you, I have them in a pill box that is fixed up for 7 days and 4 sections in each day.... Honey I said, oh, this is my crutch to get through the day, I threw that pill box across the room and pills went flying everywhere. I was Pi**ed. Then I started picking up pills because I didn't want my dogs to get into them.... I started putting them in piles on my bed and he said look at all this.... I said do you even know what any of them are for... His answer, no and I don't want to know.... I said well at least mine are prescribed, where is the prescription for your whiskey and what doctor is prescribing it. I am still not over that.... He tells me the docs are over medicating me also.... I said I have told you that you can go to any of my doctors appts at any time and tell them how you feel... You have never been interested in going.
I have bought him books on Fibro and BiPolar 1 and he said he doesn't like to read.
I can no longer work and have only been married to him for two years... So I Kind of feel like I am stuck right now... I have filed for SSD and am awaiting a hearing with the Judge.
Sometimes these people that judge us, I wish they had to live just 24 hours in our bodies and then tell us what is best for us. I bet they would change their minds then.
Hang in there and keep doing the wonderful job you are doing. Don't over extend to please others or you and your kids will be the ones that pay for it.
Have a pain free day.
PS.... I think everyone with fibro should be weatherpeople, we would do a much better job. Jenn
I hope you have a wonderful day, you certainly have made mine a lot better. I know you are an amazing, beautiful person. Thank you.
I really had to jump in here to tell you that you are a wonderful person... I take alot of meds due to the fibro, chronic myofascial pain, hypermobility, migraines and BiPolar 1... Just last week, my husband fell off the wagon again (drinking) and there was a huge argument... I try not to engage in conversation when he is drinking but he wanted to engage about my meds. The final straw was when he said that whiskey was his crutch just like my drugs were my crutch... Now mind you, I have them in a pill box that is fixed up for 7 days and 4 sections in each day.... Honey I said, oh, this is my crutch to get through the day, I threw that pill box across the room and pills went flying everywhere. I was Pi**ed. Then I started picking up pills because I didn't want my dogs to get into them.... I started putting them in piles on my bed and he said look at all this.... I said do you even know what any of them are for... His answer, no and I don't want to know.... I said well at least mine are prescribed, where is the prescription for your whiskey and what doctor is prescribing it. I am still not over that.... He tells me the docs are over medicating me also.... I said I have told you that you can go to any of my doctors appts at any time and tell them how you feel... You have never been interested in going.
I have bought him books on Fibro and BiPolar 1 and he said he doesn't like to read.
I can no longer work and have only been married to him for two years... So I Kind of feel like I am stuck right now... I have filed for SSD and am awaiting a hearing with the Judge.
Sometimes these people that judge us, I wish they had to live just 24 hours in our bodies and then tell us what is best for us. I bet they would change their minds then.
Hang in there and keep doing the wonderful job you are doing. Don't over extend to please others or you and your kids will be the ones that pay for it.
Have a pain free day.
PS.... I think everyone with fibro should be weatherpeople, we would do a much better job. Jenn
mfarmer7
02-20-2008, 11:03 PM
Kass-
I live in New England (CT). Do you have any Doctor recommendations? My doctors have been of no help. It has really gotten to me and at times my pain is out of control! So debilitating. About 2 1/2 weeks ago I had the worst flare so far...it lasted about 1 week. I am always in pain but this was off the charts! I can honestly say my labor wasn't as bad as this...at least labor didn't last that long.
I am 31 also and my mom and dad had to help me and my son get through the days. My pain clinic COULD NOT SEE ME! They said only my doctor could treat me and he was away. He isn't much help anyways. Even many doctors are skeptical of this condition. I have also had other problems (still do) TMJ, Chondro Malacia Patella, ulnar neuritis and sublexation of right shoulder. Still doctors don't "think" I am in PAIN! I do not take any narcotic meds and honestly I TRULY need them and doctors don't want to prescribe something they can't confirm in a blood test or x-ray etc...My dad, who is a physician, is also disgusted with my care and has seen what I go through. I wish he could be my doctor but ethically he can't.
It sounds as if your doctor believes you. That is really cool because we have a lot of non-believers out there it really hurts when a doctor dismisses you.
Bella
PS: I am willing to travel to find a good doctor. My parents believe that's what we probably have to do. Any input would be great:). Hope you are feeling well.
PSS: Manipulation makes it worse. I did the Chiropractor thing and physical therapy and it just aggravated the problem. It seems like we try everything, even grining and bearing it....I so don't want to do that anymore....I don't have the strength to do it anymore.
Hi. I have SLE, RA, Raynaud's phenomenon, Kidney disease & today I was diagnosed with Fibromyalgia when visiting my Rheumy. She raised my amitriptylin to 25MG, upped my prednisone back to 10MG (can't go higher bad,bad things happen...) & prescribed aquatic water therapy. She says excercise helps, but can hurt if you over do it, so water is easy on the joints. (She had offered pain meds on my last visit, but I already take 16-20 pills a day without them.) I go to University of Cincinnati Rheumatology clinic in Cincinnati,OH. I know that is so far away, but they were listed in US News' list of America's best hospitals 2007. Out of all the doctors I have seen, she
is by far the VERY best! I wish I knew of somewhere closer to help you out! Hopefully someone near you will post & let you know of a terrific DR. Best of luck to you. Have a pleasant evening.
Melissa :)
I live in New England (CT). Do you have any Doctor recommendations? My doctors have been of no help. It has really gotten to me and at times my pain is out of control! So debilitating. About 2 1/2 weeks ago I had the worst flare so far...it lasted about 1 week. I am always in pain but this was off the charts! I can honestly say my labor wasn't as bad as this...at least labor didn't last that long.
I am 31 also and my mom and dad had to help me and my son get through the days. My pain clinic COULD NOT SEE ME! They said only my doctor could treat me and he was away. He isn't much help anyways. Even many doctors are skeptical of this condition. I have also had other problems (still do) TMJ, Chondro Malacia Patella, ulnar neuritis and sublexation of right shoulder. Still doctors don't "think" I am in PAIN! I do not take any narcotic meds and honestly I TRULY need them and doctors don't want to prescribe something they can't confirm in a blood test or x-ray etc...My dad, who is a physician, is also disgusted with my care and has seen what I go through. I wish he could be my doctor but ethically he can't.
It sounds as if your doctor believes you. That is really cool because we have a lot of non-believers out there it really hurts when a doctor dismisses you.
Bella
PS: I am willing to travel to find a good doctor. My parents believe that's what we probably have to do. Any input would be great:). Hope you are feeling well.
PSS: Manipulation makes it worse. I did the Chiropractor thing and physical therapy and it just aggravated the problem. It seems like we try everything, even grining and bearing it....I so don't want to do that anymore....I don't have the strength to do it anymore.
Hi. I have SLE, RA, Raynaud's phenomenon, Kidney disease & today I was diagnosed with Fibromyalgia when visiting my Rheumy. She raised my amitriptylin to 25MG, upped my prednisone back to 10MG (can't go higher bad,bad things happen...) & prescribed aquatic water therapy. She says excercise helps, but can hurt if you over do it, so water is easy on the joints. (She had offered pain meds on my last visit, but I already take 16-20 pills a day without them.) I go to University of Cincinnati Rheumatology clinic in Cincinnati,OH. I know that is so far away, but they were listed in US News' list of America's best hospitals 2007. Out of all the doctors I have seen, she
is by far the VERY best! I wish I knew of somewhere closer to help you out! Hopefully someone near you will post & let you know of a terrific DR. Best of luck to you. Have a pleasant evening.
Melissa :)