Hi all! I just got my new tests results in from my infectious disease specialist who treats my CFIDS. I was wondering if any of you can comment. He faxed these to me b/c he has to leave the counrty and I can't see him for another month.

ANA positive High 1:80
ANA speckled
CMV IGG ABS High 10.39
EBV VCA IGG ABS high 1:640
EBV early AG High 1:40
EBV NUCLEAR AG High 1:80

a few small things with the blood low co2
low got????

Have any of you tested positive with the ANA??? I have been sick for two years and it has always come back negative. So I am surprised. But glad b/c I am always so sick and blood work always looks good. Know what I mean??

Thank for any input,
Deena

Hi Deena, yes I have had a positive ANA. Don't worry yourself over it. You have a automimune problem going on. I also had and still have the super high titers for EBV and CMV....Did this guy put you on any antivirals??? I've been on them for a little over a year and am feeling alot better.

I've also had Lyme and Chlamydia Pnumoniae bacteria's. Plus babesia and bartonella.

Glad someone finally looked into the EBV and CMV...if you read up on them you'll find these herpe virus's can cause many problems...

hope you will be on a treatment plan soon...

:D .

Hi JoJo, Thanks for your reply. I am on a tx plan. Ihave been for over a year. I see a CFIDS specialist 1 x month. I have been on 1 1/2 tabs Valtrex 2 x day as well. I did feel better in the beginning. But over the last 4 to 5 months I am back to almost square one.
He ran the cmv and ebv back then and they were positive but I don't remember the titers. But the ANA has always been negative. They at first thought and tested me for RA but that was negative as well. I have no swelling at all. Even when I hurt so bad I look at my wrists or feet ect....nothing!

Thanks, I am going to see a Rhuemy next week just to be sure. I have no problem with the sun. I love the sun. So I am NOT wanting the Lupus dx!!!

Even to finally have an answer. But your right it's probably just all of the other virus's showing up.

If you know any more about it let me know.
Thank you so much,
Deena

I beleive that anyone with a high ANA should not be diagnosed with CFS or Fibro and left at that. I would say you definitely have some sort of autoimmune disease and require follow up on this.

I saw a rheumy. He did an exam and pronounced I do not have lupus. Supposedly he is good and the only one worth seeing in the high desert. He ran the lupus panel for me anyway. I think it must be negative b/c I called office and of course they won't tell me anything but said the doc did see the results. Of course he never called me. So I have follow up with him in 2 more weeks.
I hate waiting for any results. You would think that after 2 1/2 yrs of tests I would get better at it!!!!!

I agree though that something is up with the titers. Can it just be the CFIDS???

I am sick still. Yesterday I woke up at 6:15 to shower and take the kids to school. I felt fine but as I was spiking their hair I got so dizzy I was bumping into the walls. (I do this all the time anyway) but this was bad. I had to use my cane to take and p/u from school.

Today I feel better but just feverish and flulike and the back of my legs ache so bad like a constant toothache. ALl the way down the legs????

I don't even feel like I have a doctor to turn to. My general is the first to dx me and sent me to my specialist (infectious disease doc) but he is out of the country for a few more weeks. This rheumy is in 2 weeks. What can you do go to the hospital saying I feel like ---- and Have a low grade fever pls help??? No you just lay around and barely get through life basically on your own. Do you ever feel like your personal health care has fallen through the cracks???

Sorry! I guess this latest "flare" is getting me down. I am sorry for anyone who has taken the time to read this!


Bye,
Deena

I beleive that anyone with a high ANA should not be diagnosed with CFS or Fibro and left at that. I would say you definitely have some sort of autoimmune disease and require follow up on this.

I have CFS now for 10 years. They are now thinking it may be lupus. Not sure yet. My ANA from day 1 was always positive but it was either 160 or 320 and then would go back to 160 and then 320. Never went above that. Now I just had it done and it is now 640 and my white count was always low and it just dropped to 2.1.

CindyLou

i've said something of this before. been 28 years here. i had all of those tests and many others at the beginning. so many tests. around 1994 i found a doctor who understood cfs/fibro. he said he could treat the symptoms but doesn't believe the tests have any merit, not to be argumentative, but because they still haven't been proven, again no knocking them. so i read these posts and think...'maybe i should get some of these run.' then i think 'it's been so long, it goes up and down, i've watched and listened for breakthroughs, there don't appear to be any at this time so why get the tests?' does this make sense? or am i being really stupid in not getting them? lol seriously though, please...