hsanthuff
02-15-2008, 11:41 AM
Hi all. I know I have asked a similar question before but this is driving me crazy. I want to trust my dr's but at times its hard to. I have had a bone scan (2 actually) and many blood test and everything appears to be normal however I get intense pains that feel like they are in my bones ..mostly in shins and forearms....especially forearms. The drs seem to think its probably fibro however I had none of the tender spots when the dr checked me. He said I probably didnt have them then because I was already on cymbalta and it may have disguised it?! Anyhow, does anyone have intense sharp pains that feels like its in your bones? I dont know what to do anymore..thanks!
Heather
Heather
Sponsor
bluelakelady
02-15-2008, 12:55 PM
hi heather,
i get the bone pain also. you get used to it in time. chances are it is fibro related. i feel mine is. it started out with bone pain many years ago and of course now it posesses my whole body. we share me.
can you take a hot bath? i use my hot tub and it really helps that deep bone pain. i used to think my shins were broken somehow it hurt like that. tho i have never broken a bone i bet it hurts like this does.
heat, massage and deep breathing. under a post by glojer called bluelakelady i have a question. sorta like that title. anyway there is a breathing exercise i do that glojer asked for. perhaps it may help you as well.
peace,
bluelakelady
i get the bone pain also. you get used to it in time. chances are it is fibro related. i feel mine is. it started out with bone pain many years ago and of course now it posesses my whole body. we share me.
can you take a hot bath? i use my hot tub and it really helps that deep bone pain. i used to think my shins were broken somehow it hurt like that. tho i have never broken a bone i bet it hurts like this does.
heat, massage and deep breathing. under a post by glojer called bluelakelady i have a question. sorta like that title. anyway there is a breathing exercise i do that glojer asked for. perhaps it may help you as well.
peace,
bluelakelady
fibrostuff
02-16-2008, 10:11 PM
Hi.
I had just responded to your other post yesterday because I was wondering what your doctor said. Just this week I felt some shin ache. Didn't feel like a shin splint. Did any of the doctors say anything about the tissue that surrounds the bone? There is a name for when that layer is inflammed, but I don't know if that would cause the bone to hurt.
Regarding trigger points- some people think that is more related to myofascial pain syndrome. Some people with fibro have it, some people with fibro don't have it, some people without fibro can have it. To me, fibro is much more than the trigger points.
Do you have other symptoms?
I had just responded to your other post yesterday because I was wondering what your doctor said. Just this week I felt some shin ache. Didn't feel like a shin splint. Did any of the doctors say anything about the tissue that surrounds the bone? There is a name for when that layer is inflammed, but I don't know if that would cause the bone to hurt.
Regarding trigger points- some people think that is more related to myofascial pain syndrome. Some people with fibro have it, some people with fibro don't have it, some people without fibro can have it. To me, fibro is much more than the trigger points.
Do you have other symptoms?
hsanthuff
02-21-2008, 02:16 PM
Thanks for your responses. I am glad to know that I am not alone with the bone pain feeling. It really concerns me at times. As for my dr appt...they both seem to think it could be fibro simply because its all over my body and all my blood work and bone scans have came back fine. I guess there is no way of knowing for 100%?! I am only 24 and it seems like it is gradually getting worse. I just hope it doesnt get worse and worse and worse as I get older or I dont know how I am going to function. My only symptoms beside the pains in my shins and forearms are lately...I have been getting pains in my knees, elbow and shoulder. I am always tired but that could be the cymbalta. The other symptom I wanted to ask you all about is:Since taking cymbalta my sharp shooting pains all over have decreased a lot BUT I still have places that are so sore to the touch 24/7...especially my forearms. Is this normal with fibro? Shouldnt cymbalta help that too? Thanks for your responses!
Heather
Heather
bluelakelady
02-21-2008, 03:39 PM
there is no wonder pill. it is important you know that. there will always be pain you have to feel. fibro works that way. we can dull it or ease it with meds. only the windows are pain free. do you exercise regularly? that is my wonder pill. staying active and limber.
peace,
blue
peace,
blue
fibrostuff
02-21-2008, 03:49 PM
I don't know Cymbalta so I can't respond to that.
But, about your age is when I started getting symptoms so I can respond to your concern about getting worse. Some proactive things might help in the flurry of doctor appointments.
-Go to a naturopath or nutritionist
-Do yoga, stretches, any exercising that works with your pain level
-Keep researching and reading and learning
-Stress management
-Find a group of people that are your support group (could be this board). Don't expect your friends and family to understand.
Sounds like you still need to keep working with your doctor to rule anything out. Did they mention follow-up, or were they just saying "It's fibro, see ya"?
But, about your age is when I started getting symptoms so I can respond to your concern about getting worse. Some proactive things might help in the flurry of doctor appointments.
-Go to a naturopath or nutritionist
-Do yoga, stretches, any exercising that works with your pain level
-Keep researching and reading and learning
-Stress management
-Find a group of people that are your support group (could be this board). Don't expect your friends and family to understand.
Sounds like you still need to keep working with your doctor to rule anything out. Did they mention follow-up, or were they just saying "It's fibro, see ya"?
hsanthuff
02-21-2008, 04:02 PM
I agree with you that exercise would probably help...I plan to get back into working out this spring. I am just so so busy with 3 kids 2 and under. Its hard to find time to do anything. My real question was do you guys have spots that are REALLY TENDER to the touch? I didnt know if fibro could cause this sort of pain? Also, the dr pretty much seems to think its fibro and doesnt know what else to test me for since everything has been fine thus far. I do have a follow up appt with him on the 29th so we'll see what else he has to say.
Heather
Heather
Glojer
02-21-2008, 04:53 PM
Yes, I have spots that are more tender than others when I am touched. My upper arms are really bad especially my right. Also my chest, if I had to chose the worst I might pick the chest since there isn't as much fat there for me....giggle. It hurts almost anywhere you touch my body, I have always said my skin hurts but of course it is just the fibro. It is just part of this weird and not so wonderful thing we call fms. It never goes away for me it is just always there but since I have had it for years I don't notice it causing a problem with my everyday life.
Glojer
Glojer
bluelakelady
02-22-2008, 10:34 AM
sorry heather,
yes i do have spots. scream buttons and drop me buttons. push them and step back.
peace,
blue
ps. with 3 tiny ones to chase around i think you get alot of exercise. alot!!
yes i do have spots. scream buttons and drop me buttons. push them and step back.
peace,
blue
ps. with 3 tiny ones to chase around i think you get alot of exercise. alot!!
fibrostuff
02-22-2008, 02:43 PM
My little check list didn't mean to imply you currently don't exercise! I apologize if that's how it came across. What I meant with exercise was more stretching. You can do that now and it can really make a difference, IMO.
I was just looking back to when I was your age and just finding out about fibro and how I wish I had a plan. I wish I was organized. I wish I had the internet and knowledge about fibro that is available now.
So, that was kind of my checklist for my young me! Paging a therapist...
:)
And yes to tender spots!
I was just looking back to when I was your age and just finding out about fibro and how I wish I had a plan. I wish I was organized. I wish I had the internet and knowledge about fibro that is available now.
So, that was kind of my checklist for my young me! Paging a therapist...
:)
And yes to tender spots!
mimgregg
02-23-2008, 01:47 AM
You may be experiencing myofascial pain syndrome which is not uncommon for fm folks. It inflames the fascia, or layer above the muscles and can make places on your bones feel broken, stabbed, burned etc. I had a long flare of this in my right clavicle. It was bizarre because I knew after going on 3 separate occassions for xrays that it was the myofascial syndrome, but it just seemed like there had to be something actually "visibly" damaged. The FM does not "visibly" show except when our faces are not smiling or we are drawn away from others.
Hope this is helpful!
Mim Gregg
Hope this is helpful!
Mim Gregg
Backinthesaddle
02-24-2008, 10:03 AM
I have bone pain in my arms. They hurt burning and I have shooting stabbing pains in my hands and fingers on a daily basis. The muscles in my arms are painful both radial and ulnar (no impingement). The inside of both of my elbows hurt to the touch as does the SNZ muscles down the sides of my neck. I also hurt to the touch most days where the head and neck connect. Mind you all this started over cervical spine damage. I also have pain the the touch where my arm and shoulder connect sorta the backside of the underarm.
When I am feeling OK I walk 2-3 times a day on my breaks since we have a treadmill, bike and weights here. My legs feel ok so I can walk alot. However swinging my arms do hurt after awhile. I still lift weights despite what my Rhuemy says because I worked hard for years to get some size and shape. Yes it hurts but frankly it hurts either way.
Mgregg how can you tell if it is myofascial or not? is there a tests?
When I am feeling OK I walk 2-3 times a day on my breaks since we have a treadmill, bike and weights here. My legs feel ok so I can walk alot. However swinging my arms do hurt after awhile. I still lift weights despite what my Rhuemy says because I worked hard for years to get some size and shape. Yes it hurts but frankly it hurts either way.
Mgregg how can you tell if it is myofascial or not? is there a tests?
hsanthuff
02-25-2008, 11:52 AM
Thank you for all your answers. I didnt at all take offense to the exercise thing. Its very nice to have you all to talk to! My arms are hurting so bad today. I swear it feels just like my bone when I press on it. Its like its the inner underneath part of my outer forearms. When I press on it it makes me want to jump through the roof. It also seems as if the tender areas are getting larger. When I first noticed it was a very small area on my forearms NOW there is like a 4 inch area that is insanely tender. If I just lay my arm down and the arms of a chair or something its like holy cow! Anyhow, you guys are making me feel a lot better. I was convinced I had something TERRIBLE and unheard of wrong with me.
Heather
Heather
baserockermom
02-27-2008, 03:04 AM
I've had that pain. For me, it feels like too much energy in my forearms and calves when it is mild. When it is full-blown, it feels like the skin is being ripped from the bones. Right now the pain has moved up through the front of the shoulder and down through the hands--all originating from the forearms.
Only things that have ever helped are flexiril and upper body weight exercise. I have fibro and I take Lyrica for it. Lyrica hasn't touched this pain and it has just gotten worse for me. Picking up the salad tongs hurts. Hope you find a solution and will post it for all of us.
Only things that have ever helped are flexiril and upper body weight exercise. I have fibro and I take Lyrica for it. Lyrica hasn't touched this pain and it has just gotten worse for me. Picking up the salad tongs hurts. Hope you find a solution and will post it for all of us.
mimgregg
02-27-2008, 08:11 PM
Backinthesaddle, my first neurologist dx with the myofascial syndrome because of the pain I had and the knots or nodules he could actually feel in my tissue. That along with the time frame of it not going away well ever since it started. It just moves around to different areas. I have not had injections like some folks I have read about on here. My sister is a massage therapist and tried working on the knots but I ended up getting physically sick and feeling like I had been in a car wreck for a week or so. She lives 6 hours away, so we could not keep trying it and I cannot afford massage here but I have heard that if you can get through the worst of it (about 2 weeks) it really helps. I hope that answered your question which I just caught when I reread this thread!
Mim Gregg
Mim Gregg
bopper
02-28-2008, 01:34 PM
My first manifestation of pain from fibro was in my lower legs. About 15 years ago. It felt like it was within the bone.
I have described it as feeling like the bone is freezing cold. I find if a fan or significant draft nears my legs, it will activate the pain.
Pain seems to be most intense late in the day and especially at bedtime.
At times, the pain is so bad, I cry. Like many others have said, you get used to it plus, you learn methods to manage.
I have described it as feeling like the bone is freezing cold. I find if a fan or significant draft nears my legs, it will activate the pain.
Pain seems to be most intense late in the day and especially at bedtime.
At times, the pain is so bad, I cry. Like many others have said, you get used to it plus, you learn methods to manage.