teacher2be
02-20-2008, 07:50 PM
i have had fibro atleast 8 years. my main complaints have been bad leg/feet pain and fatigue. even up into hips too. i was wondering is there anyone out there that there legs can hurt so bad they almost feel numb? i have met other people with fibro but the ones i talked to kind of "hurt all over" or there pain is upper part of body like arms. don't get me wrong i hurt all over too but the leg pain can be dull sometimes and then sometimes my legs bones and leg muscles burn, stab, deep aches, almost like someone lit a match and threw on legs. it would be good to hear from someone with similar pain so i kknow i am not only one.
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Jenn4508
02-20-2008, 07:59 PM
I hurt all over but I have started having alot more pain in the leg bones and muscles more so than I use to. So yes there are others out there. It just seems it is never ending does it. Always something new popping up out of nowhere. Then you sit around wondering if it is part of Fibro or something else.
It is good to have these boards so that someone is always near to bounce ideas off of. Jenn
It is good to have these boards so that someone is always near to bounce ideas off of. Jenn
teacher2be
02-20-2008, 08:53 PM
yes i agree with the always something new coming up and i am also always wondering is that part of fibro or not. there are so many fibro symptoms so alot of times it is related to fibro. i am glad to know not alone even though i hate it that there are others out there suffering too. it stinks i hate it. but i have to accept it and go on. its hard.
Jenn4508
02-20-2008, 09:01 PM
It is very hard. I still have a hard time accepting it.... Its like you have this life going along and then poof, its gone... Then you are supposed to accept that the life you had is no longer there and you have this new life you didn't ask for nor do you want. I try to accept it and go on and then when you try to do something that you have always done and you can't, that is when it really sucks. I am not trying to bring you down just stating a fact on how I feel.
Good Luck and have a pain free day. Jenn
Good Luck and have a pain free day. Jenn
tiredpoet
02-20-2008, 11:58 PM
Hi there! I was diagnosed with fibro and cfs back in May. The leg/feet issues are not my main complaint but it's definitely in my top three. My major complaints are fatigue and brain fog/cognitive impairment, but my legs and feet are in constant distress. I don't have much pain elsewhere, just weakness and some crawling sensation and pins and needles occassionally. My legs, on the other hand, are weak and aching/crampy 24/7. The muscles often burn as if they've been overworked. My feet hurt if I'm on them more than a short while, and they burn, especially at night--from what I've read it seems like peripheral neuropathy-type nerve issues.
When I told this to the new doc I saw recently, he did not seem surprised at all and told me I have Lyme Disease, and this is a key symptom. Go figure.
When I told this to the new doc I saw recently, he did not seem surprised at all and told me I have Lyme Disease, and this is a key symptom. Go figure.
glyn51
02-21-2008, 04:26 AM
I have pain all over, but do suffer from lower back pain that radiates down the right leg. And now it's happening to the left! The pain is so bad, I can't sleep. I wake up every 15-30 minutes in severe pain, and try to get comfortable. I eventualy pass out I'm so exhausted. That is when I finally go to sleep. And thats usually 3AM or even later.
I'm also having a lot of foot pain as well, due to Mortons Neuroma! I have to go back to Podiatrist. Hopefully all he will do is give me another Cortisone shot. At least I hope. It helped for quite a few months.
I'm trying everything with the lower back pain, but with no relief. Pain meds only take the edge off, and all the machines only work while I have them on. I'm so sick of this DD!
Hope you have better luck than I am having!:(
I'm also having a lot of foot pain as well, due to Mortons Neuroma! I have to go back to Podiatrist. Hopefully all he will do is give me another Cortisone shot. At least I hope. It helped for quite a few months.
I'm trying everything with the lower back pain, but with no relief. Pain meds only take the edge off, and all the machines only work while I have them on. I'm so sick of this DD!
Hope you have better luck than I am having!:(
robbielee129
02-21-2008, 09:58 AM
i have had fibro atleast 8 years. my main complaints have been bad leg/feet pain and fatigue. even up into hips too. i was wondering is there anyone out there that there legs can hurt so bad they almost feel numb? i have met other people with fibro but the ones i talked to kind of "hurt all over" or there pain is upper part of body like arms. don't get me wrong i hurt all over too but the leg pain can be dull sometimes and then sometimes my legs bones and leg muscles burn, stab, deep aches, almost like someone lit a match and threw on legs. it would be good to hear from someone with similar pain so i kknow i am not only one.
Oh, you're not the only one! Before I was diagnosed with Fibro, I had little or no feeling in my left leg, but it was also very painful. It was like walking on your leg when it's asleep, yet there's this burning sensation that won't go away! Fibro is a very strange ailment, isn't it? One day it seems the pain is all on your right side, the next in your arms and back and then the another day its only on your left side! Very frustrating! My doctor said once that I couldn't feel my leg bones hurt. I told him since he doesn't have Fibro, he doesn't know what it feels like! Your bones definately hurt! I've gone to an acupuncturist and he helped with the leg pain. It was very amazing! After the first treatment, I could feel my toes normally, not all tingling. After a couple more treatments I could actually walk with out a limp!
Just a suggestion, but I recommend seeing an acupuncturist. The needles don't hurt a bit! Plus they can help with other Fibro problems.
Robin
Oh, you're not the only one! Before I was diagnosed with Fibro, I had little or no feeling in my left leg, but it was also very painful. It was like walking on your leg when it's asleep, yet there's this burning sensation that won't go away! Fibro is a very strange ailment, isn't it? One day it seems the pain is all on your right side, the next in your arms and back and then the another day its only on your left side! Very frustrating! My doctor said once that I couldn't feel my leg bones hurt. I told him since he doesn't have Fibro, he doesn't know what it feels like! Your bones definately hurt! I've gone to an acupuncturist and he helped with the leg pain. It was very amazing! After the first treatment, I could feel my toes normally, not all tingling. After a couple more treatments I could actually walk with out a limp!
Just a suggestion, but I recommend seeing an acupuncturist. The needles don't hurt a bit! Plus they can help with other Fibro problems.
Robin
SusanG50
02-21-2008, 09:58 AM
I too have huge problems with my legs/feet........they are the worst and lower back.
I have had Fibro 20 years and CFS for 28 years and Arthritis 13 years. NOT FUN and age doesn't help with NEW Things always cropping up. It's like something LIVE that just migrates all over your body.
Sometimes the pain and burning (nerve endings) that I get literally paralyze me........I mean, I cannot move I'm in so much pain. Hubby rushes home to take care of me for I cannot even get up for water to take meds. I would never be able to explain this to a Doc without getting THAT LOOK I'm sure.
I seem to be doing some better with that since taking Calcium/Vit. D/Magnesium every single day. I also take a host of other supplements.
Recently it has HIT MY HIP and lower back with SI Joint Dysf. This may be the MOST PAINFUL thing I've ever had. It is soooooooooooooo bone deep, that I want to cut my leg/hip/groin off.
I'm dreaming more and more of a scooter ( I hate that) for I am not able to do in life anymore what I want to. Can't stand, sit or walk long at all.. losing more and more independence.....and I'm so tired of it, I'm considering up it up for a scooter, at least part time.
This is the most frustrating illness in the world..........I was such a GO GETTER as I'm sure most of you were. Life as I KNEW it left many, many years ago and I'm sooooooooooooooo very tired..........you know.....just tired, weary of hurting. The exhaustion from pain is the pits no ?
Blessings and health to all..............
I have had Fibro 20 years and CFS for 28 years and Arthritis 13 years. NOT FUN and age doesn't help with NEW Things always cropping up. It's like something LIVE that just migrates all over your body.
Sometimes the pain and burning (nerve endings) that I get literally paralyze me........I mean, I cannot move I'm in so much pain. Hubby rushes home to take care of me for I cannot even get up for water to take meds. I would never be able to explain this to a Doc without getting THAT LOOK I'm sure.
I seem to be doing some better with that since taking Calcium/Vit. D/Magnesium every single day. I also take a host of other supplements.
Recently it has HIT MY HIP and lower back with SI Joint Dysf. This may be the MOST PAINFUL thing I've ever had. It is soooooooooooooo bone deep, that I want to cut my leg/hip/groin off.
I'm dreaming more and more of a scooter ( I hate that) for I am not able to do in life anymore what I want to. Can't stand, sit or walk long at all.. losing more and more independence.....and I'm so tired of it, I'm considering up it up for a scooter, at least part time.
This is the most frustrating illness in the world..........I was such a GO GETTER as I'm sure most of you were. Life as I KNEW it left many, many years ago and I'm sooooooooooooooo very tired..........you know.....just tired, weary of hurting. The exhaustion from pain is the pits no ?
Blessings and health to all..............
fibrostuff
02-21-2008, 03:21 PM
I think this got posted twice? I posted to the other thread but will repeat it here-
Check your Vitamin D levels.
I would recommend getting a blood test and talking it over with your doctor instead of just taking a supplement with Vitamin D. If you are low, you would need higher than a supplement.
Check your Vitamin D levels.
I would recommend getting a blood test and talking it over with your doctor instead of just taking a supplement with Vitamin D. If you are low, you would need higher than a supplement.
nycalgal
02-21-2008, 06:08 PM
I'm new to this board, was just dx. I have leg pain and burning feet and also neck, shoulder and back pain. It was so bad, I had to leave a basketball game yesterday at half time and today I'm taking vicadin and using a heating pad. I hate feeling this way and I haven't worked since August. I put in for early retirement. I'm a special ed teacher. Does anyone have luck with any drugs. My doctor gave me flexeril to help with sleep, but it really doesn't do much.
Thanks for being here.
Gail
Thanks for being here.
Gail
kate26444
02-22-2008, 10:21 AM
My legs and hips hurt so badly at night. The worse time is when I first get into bed and try to get comfortable. I'm on my feet all day long and they don't hurt until then. The pain is so bad I could just scream. I put a heating pad on my lower back, take 100 mg. ultram, and 10 mg. ambien. Within a half an hour, I can just feel the pain lifting from my legs and hips. The combination of the two helps immensely. I sleep like a log and feel wonderful when morning comes unless, of course, I'm in a flare. I also have a jacuzzi tub and a nice hot bath helps too...even if for a short time. Take care! kate
medtech
10-04-2009, 04:53 PM
my knees and feet are the worst of my problem....halfway though the workday i am leaning on my medcart to alleviate the pressure on my feet...I was on a prednisone regime for 10 days and that helped for awhile.
thesweetlife
10-04-2009, 07:58 PM
I get severe pain in both of my thighs (like I've run a marathon) which then burns and then the most awful pain in my hips - it leaves me hobbling. I've found getting a physio to work on the trigger points which I have hundreds of helps (and actually I've dicovered or rather the physio has) that where the trigger points are the pain isn't always at it's worst - weird!!!
EmptyNester1960
10-07-2009, 04:26 PM
Hi. I, at first, thought my rheumy was nuts because he told me I had fibro. I didn't and couldn't find 11 of 18 tender points. Now they say a person doesn't have to have them all of the time. As long as the person has other symptoms of Fibro. Well, I have what you have. My legs and arms ache so bad sometimes. My right hip, my feet all of the time. My feet feel like a piece of furniture fell on them -kinda bruised, but not really bruised. The tiny bones all ache. My right hip hurts all the time. I have tenderpoints at the base of my skull, where my head connects to to my spine, well, actually from the back of my head allllllllll the way down to my right hip. Migraines. Walk into walls. Cut corners too close. Act kinda drunk when I walk sometimes. Can actually be standing still and lose my balance! Have fallen off my shoes more than once - in flats!!! I always land on my knees. Dang, it hurts when I do that. I have sooo many bruises on my arms and legs from cutting the corners too short. I startle easily. Even in my own home. Mitral Valve Prolapse. Hypothyroid. Depression. Fibro fog where I can't remember doing something, or how to do something, or where I put something. I can get lost while driving really easily. And sometimes, the things I say just don't make alot of sense. I mean, I speak english and all. I speak in complete sentences. But sometimes my hubby just looks at me as if I just grew 2 horns!!
Ishla
10-08-2009, 08:51 AM
My main complaint is leg and foot pain. I also have "severe peripheral neuropothy" (sp), hands and feet. Early on, the pain felt like I was being run over by a steam roller from about mid thigh down. I would spend hours of each day just wimpering in terrifying crushing pain. I am better now, but still it's horribly painful. What helped me was being diagnosed with very low Vit. D levels. I was placed on perscription strength Vit. D for a couple of months, and now take 2000 units each day. Anyway, the pain is much better now, even though it still hurts. I also have to take tramadol, and recently was upped to 400 mg a day, just to keep sane. I have hydrocodone for breakthrough, which is often, but just a part of life for me.
My advice is get your D levels tested. Vit. D is very important to help your body control pain levels, I just can't remember how to explain how... lol. (good ole' fibro fog)
My advice is get your D levels tested. Vit. D is very important to help your body control pain levels, I just can't remember how to explain how... lol. (good ole' fibro fog)
BelleoftheSouth
10-08-2009, 11:07 AM
Lately I have noticed sore spots on the bottom of my feet...I just roll my eyes and think Fibro and hobble on...
Seriously though..I don't know why I have sore spots..I keep thinking it's weight gain :mad: (again I HATE FIBRO )
~Belle~
Seriously though..I don't know why I have sore spots..I keep thinking it's weight gain :mad: (again I HATE FIBRO )
~Belle~
HOTFLASHIN
10-08-2009, 06:56 PM
It is not necessarily weight gain...it is just our muscles and bones saying "too much."
Take a load off when you can, take hot baths, hot showers and get PT with massage if your health care provider will sign off on it.
I know I am.
Pam
Take a load off when you can, take hot baths, hot showers and get PT with massage if your health care provider will sign off on it.
I know I am.
Pam
medtech
10-09-2009, 01:24 PM
I had very low vitamin D level and took 50000 untis for 10 weeks and then a 1000 untis a day since...just got rechecked yesterday , no results yet. Taking the vitamin D did help with my fatigue but not the pain and numbness in my feet and legs and arms.