1968inNC
02-29-2008, 02:44 PM
My ferritin levels are high, but I tested negative for the Hereditary Hemochromatosis Gene (my mother has it & maternal grandparents both died from it) what next? I don't have exact numbers will get them today. With my fam history it seems like HH, but could it be something else? I am 39 yr old male. Your input is appreciated.
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FLFLOWERGIRL
03-01-2008, 07:55 PM
Hi--My husband has the double gene and is currently being treated for HH. My children are both carriers. So you are a carrier right? That would put you at risk for developing HH from what I understand. Maybe you are in the process of this at your age. My kids are in their 20's still too young I suppose.
Also, in the past year I was DX'd with anemia and learned a lot about ferritn because I had none. I was a 2, I learned that you can have a false elevation in the presence of inflammation of the body or disease.
FYI-- when my DH was DX'd they told him that he had Hep-C, I wasn't too happy, but it wasn't true. His Ferritin was just under 3,000, now he is down to 691. So how does your mom handle it? We have only known for a year. FLFLOWERGIRL:)
Also, in the past year I was DX'd with anemia and learned a lot about ferritn because I had none. I was a 2, I learned that you can have a false elevation in the presence of inflammation of the body or disease.
FYI-- when my DH was DX'd they told him that he had Hep-C, I wasn't too happy, but it wasn't true. His Ferritin was just under 3,000, now he is down to 691. So how does your mom handle it? We have only known for a year. FLFLOWERGIRL:)