Hello,
I am interested in anyone getting back to me with any information about Agammaglobulinema. I have a 13 yr old neice that has had it since she was diagnosed a few years ago. She has infusions for it through a port in her chest. She seems to always be on the sick side. She also has problems with her lungs and joints. The doctors arent very descriptive with what all this is and what she is going through. She recently spent 2 weeks in the hospital with breathing difficulties because of pneumonia but what she has makes it worse. I would like any and all comments and I am hoping someone can lead me in the right direction for information so that I can help her in some way. Thank you very much for your help and input.