I had an xray that showed calcifications in the kidney, ie: stones. CT scan set for next week. My symptoms come and go however. One day, I have blood and strong urine despite how much water I drink... and I have pain, not always spasmadoc but some. Then the next couple of days I'll be fine and then all of a sudden it all comes back. A friend of mine told me she had one that was triangle shaped and it would float into the ureter then go back to the kidney. Does that sound like what is happening?
jana65
03-26-2008, 07:47 PM
It sounds like stones to me. I never had a CT scan but had an IVP to get a better look at the stones. I had 4 large ones. 2 in each kidney and had a total of 5 lithotripsys to get rid of them. I still have a small one in the lower pole of my left kidney. My were too big to pass and didn't move much, thankfully, but what I felt was a kind of " crampy " pain. Stones are shaped differently, depending on what they are made of. Calcium is the most common but there are others. To determine what they are made of they have to have a piece of the stone itself. Then, depending on the cause of the formation of stones, you can take medication to prevent more stones.
Jana65
jake8888
03-26-2008, 08:36 PM
I've had kidney stones for over ten years now. When I first had them, there was a lot of pain and eventually I had lithotrypsy, twice. Then they went in and removed them with a scope.
I still had stones after those procedures. But I decided that was enough. I continued to pass stones, sometimes with pain. But the pain gradually stopped. And now I seem to pass stones every so often but with minimal pain if any.
I try to avoid foods that will produce them (like soy), but even if I'm very careful my body will still produce stones. But I gather now they are so small, and if I drink plenty of water, they pass without causing any serious problem.
But I do still get fevers on occasion.
Some years back I passed a difficult stone that pushed my belly button right out. My belly button never completey went back in.
A few weeks ago, I had a stone attack. More painful than usual (but not as bad as the old days) and my belly button pushed out and became sensitive.
Then the other day the same thing happened. The passing of the stone wasn't painful, but my belly button was pushed out so much that the strain around it was painful.
After that, although I think the stone passed or simply moved into a comfortable position, I had a large hard area beneath my skin right next to my belly button. This mass has decreased gradually, but I can still feel a swollen hard area next to my belly button.
I most probably will go to the doctor to have this looked at, although I hesitate because the previous procedures seemed to do me more harm than good.
I wonder how alarmed I should be. Very alarmed (life threatening), cautiously alarmed (might be an obstruction), or not seriously alarmed (it should go away in time).
jake8888
03-28-2008, 01:27 PM
okay. still waiting for any replies.
Haven't gone to the doctor yet. I don't have a regular doctor, so I probably would have to go to the emergency room at the hospital. And they would probably want to admit me. But I'm supposed to be starting a new job on Monday, and I would lose the job if I ended up in the hospital and couldn't work.
The affected area has gone down in size. And this morning, lying in bed, I gave my belly button a push and pushed the hard underlying mass away. So I think it must be a stone that's been trapped there all these years and just growing in size. Trapped in the soft tissue, and not able to move very far because it's too big.
Which is a good thing, since if it was smaller it would move downward and that's seems to be where the stones cause the most damage and the most pain.
If I had a procedure, I think they would try to break up the stone. But in the past I've never liked that result. Because then I keep having pains everytime one of those little stones passes, and lots of blood in my urine. And those procedures had a huge impact on my bladder function and my sexual function. So I don't want to go that route again.
It would be good if they could simply go in through my navel, pick out the stone(s) and then sew my navel back up. That seems a lot less invasive rather than the last procedure where they made an incision in the head of my penis and went up with a scope through the ureter and tried to pick out the stones (but didn't get them all in the end).
Anyway, it would be nice if someone responded with any thoughts or advice or similar experiences.
jake8888
03-28-2008, 01:34 PM
Oh one other thing, I keep hearing these faint noises, and I think they're coming from my abdomen, kind of like weezing. Maybe gas sounds, like perhaps there's gas trapped there.
It's all very embarassing and doesn't make me feel very attractive. I haven't seen my girlfriend since this all happened. But when I do see her, I don't know that I would want her to feel my tummy or listen to these weird noises.
lovemy2girls
03-31-2008, 05:56 AM
sounds to me like you have a hernia I have never known of stones causing your belly button to push out like that. You might need to have that checked.
jake8888
04-05-2008, 06:12 PM
The affected area around my navel seems to have gotten smaller. When it was a bit large I could push it away, now there's very little there, although I don't know if this means the stone has passed.
In the past, I just found my various urologists incompetent and uncaring. They didn't go to much trouble to help me and would just as soon leave me in pain.
I carefully collected the stones with a strainer and they were sent off to a lab. I waited for a long time to hear back from the doctor and finally he said oh the lab must have lost the stones.
I was never given adequate information on what to eat or not eat. For the longest time I avoided Ibuprofen because from what the urologist had said I assumed I should avoid this and aspirin. But now I find Ibuprofen is something that usually eases the pain and helps the stone to pass.
Through trial and error mostly, I found what foods triggered my attacks. I realized most of my problems started when I tried being vegetarian and ate a lot of soy. Whenever I ate anything soy I had attacks. So I cut out soy. But soy is very hard to avoid since it's in everything.
At first I avoided all beans, but then I realized it was just soy beans that had this effect. I could eat chili without any cramps or pains.
But at my current place of work they have a white bean soup. Usually I don't eat this but on the two past occasions when I had the pain with my navel being pushed out, I had eaten the white bean soup the day before. And I realize now this was the cause.
Other high risk foods don't seem to have an affect on my kind of stones. I can eat chocolate and peanut butter without suffering.
lovemy2girls
04-07-2008, 05:37 AM
my nephew's belly button is like that and he can push it in, they want him to have surgery for a rupture. that is why I suggested it.