I woke up on Oct 15, 2007 with my leg swollen three times the size of my left. I thought it was a reaction to seafood eaten the previous night. I work for the ER dept so I decided to go see one of the doctors and they admitted right away. They diagnosised me with DVT and their main concern at the time was chamber compression in the leg. The DVT extended from the pelvic to the foot on the left side. After a week in the hospital I was sent home on Coumdim/Warfin with Heperin shots for almost two months for twice a day. The doctors said it was a waiting game.....I would have to live with clotting the rest of my life to include swelling and pain in the leg and not be able to do long distance trips and etc.

I started researching and found a program at NIH (National Institute of Health) from another posting on this site back in April 2006 and they treat first time DVT's within 7-11 days of diagnosis. I was already double this. I chanced it and called them. The doctors were wonderful and wanted to see me. They were able to get permission to treat me due to how bad it was at the time.

After two different weeks of stay in the hospital for treatments it was waiting again. I found out I have low Protein C and low factor V with birth control and May-Thurner Syndrome (right illiact artery compresses on the left illiact vein) it contributed to the DVT.

I went for a followup in at the end of January 2008 and I have about 80-85% recovery flow in the left leg and about 50-55% recovery in the pelvic. They said most clots start from bottom up but due to May-Thurner Syndrome it started in the pelvic and went down. Also I had a stint placement in the vein to keep the vein open and to help with the artery weighing down the vein.

There is only about 10 years of very little history on stints. The plan know is to see my doctors at NIH in May and they will take me off the Warfin for two weeks and test my Protein C to see if I will need to be on Warfin longer or the rest of my life.

My question is to see if anyone out there has been diagnosised with May-Thurner Syndrome, had stint placement in a vein and then what to expect after DVT when I stop the Warfin to see what advice they recommed.

Most of the things I have read on line about this is so limited and the postings here have been helpful. I have had very little pain with my DVT except I get tired easily with the Warfin and I hate the weekly blood test for INR levels.

Thanks and sorry so long. :)