Hi lately i am feeling a lot worse but again the consultant has cancilied another clinic so wont see him for ages again! The last test i had was in november for a water deprivation test as i am extreemly thirsty, need the loo alot and always appear dehydrated from my blood tests (diabetes seems excluded). Anyway had the test and it took over 20 hours for my urine to start to concentrate, so because it has concenetrated that will probably be dismissed! In the morningings my blood pressure is usually around 80/30 am really pale feel dreadfull and my head is like fuzzy and im really really thirsty! Also i have problems with low blood sugar, i had a glucose tollerence test to test for reactive hypoglycaemia and my levels went from 5.9 to 3.3. And i had a 72 hour fast thing is my blood sugar when to 2.1 and i was fed so the consultant didnt get that reading and thinks im making it up- why would i want to do that its horrible to feel lkie this! Asside from that when ever i walk even a very short distance i feel this:
weak, shakey especially legs, drained like my energy is disappearing, nauseaus, faint, dizzy, heart races,
this is happening very frequently now i dont know whether it is hypoglycaemia or something else it is all the time now i cant go out much now because i know im going to feel like this and then i wont be able to do anything for therest of the day or even next. Its getting silly that a 20 year old doesnt want to go out because itll make tham ill.
As if this isnt bad enough i went like i said above at university and my tutor is now saying that its in my head and should see a psychiatrist- this is real not in my head i just dont know what to do. I have been on iron tablets for a few months now as i was abit anemic and theyve improved my bloods but not my symptoms at all. What do you think?
does it sound like something to do with cortisol?
is this common to feel like this, i hate feeling like this?
i just dont know how to fix it but it is getting very obvious to my friends, family, and work collegues that im not well at all and its so anoying when they go are you not feeling well again like it goes away-it never goes away, luckily i take antiskiness tablets now so i can actually eat and be around others but if i were i wouldnt eat much at all(i cant aford to lose weight before i had them i lost half a stone in three days bmi is only 15)
Please post back im despirate, noone close to me really understands, thank you.

Hard to read what you said but all that thirst - sounds like diabetes insipides and that is pituitary based. Very few docs know what that is. If you have that, you have to keep drinking.
Can you find a pituitary specialist?
Often when someone feels this bad, and a doctor cannot find an easy answer, they will simply look for "horses hooves" and give anti-depressants. Been there, done that. It takes a lot to prove that you are a zebra and that they need to prove attention. Some doctors will never see it even if the hooves hit them in the face. Part of it, in my own story, was they saw my personality as my health (sad - I was depressed - ok mood - I was fine!) and getting them to see the real issues and getting testing took a lot of work. It may take changing doctors a lot to find the right combination and someone who will work with you.

Hey Jen,
How much do you wiegh? In pounds? Are you losing wieght? Do you crave salt? What do your nuckles look like? Are They darker than the rest of your hand? And its not all in your head! If you think theres somithing off, then that means there is! Don't let others tell you its all ok, and don't go see a psychiatrist they will put you on something that will make it worse. You may have addisons, I have it and your symtoms sound like you might, tell me more about what is going on.
Jenni12

Thanks for your post. I weigh 109lb and have lost a bit of weight not vast amounts tho. My bmi is 15 and i have had the anorexia talk thrown at me. I tend to feel nauseaus in the mornings, when i am ill (just a cough really puts me in bed), and if i have walked or worked hard. Therefore i am on skiness tablets to keep me eating. I am very pale skined and so cant see very dark patchs. My knuckles appear a bit more prominant and my palms are red/brown looking. I do however have ligh brown patches on my stomach and shoulders and armpits (they arnt raised itchy or anything). Sometimes if i feel dizzy, weak, nauseaus and i eat something very salty i feel better (at the moment event foods which are heaverly salted i cant taste that much salt). Ive also noticed that my tongue gets sore alot. My lips, tongue, and inner cheeks appear to be bluish in coulour. I just dont know what to do as the tests that are done keep coming back 'normal'. However they dont see that i cant physically do things that are in normal eg walking into town (im 20 years old) and arnt testing at that moment. Lately ive noticed that my blood pressure is around 110/80 and drops about 10 (top number) when standing, in the mornings my blood pressure is 70/30. What do you think, how were you diagnosed? thanks.