I was ready to post an update on a great day I've had yesterday, with hours of feeling great, practically normal.

Today, as I was using a laptop, looking down at it in an awkward position(down and to the left over my bed), I started to feel a little woozy, after some more dizzy free hours in the morning. Following my curiosity, and trying, as always to pinpoint causes of my dizziness, I pretty much kept the position still(it wasn't uncomfortable, I must say) to see what happened, and then it happened.

After 20-30 minutes of that head position with slight eyes and head motion, for reading and writing on the laptop. it came back, a mildly strong slow spinning blip. I stood up and went to take a shower, which I was going to do, and felt unsteady and woozy in several different changes of position.

So, I think that either the rock debris(BPPV), or some liquid(I woke up with mild nose/ear congestion, as almost everyday) moved slowly to a wrong position, and my dizziness started slowly too.

My take is that, once in the wrong place, either liquid or rock debris, keep the whole balance system disturbed, so now I feel dizzy with much less positional or visual input, because I am, in some way, decompensated from this. And once dizziness is set, I felt foggy, as my brain is working extra time to get things right again.

So if I didn't noticed how it all slowly began, I would be confused on which was exactly my dizzy position, trigger or input, because now I feel hiccups in several different ways(visual, positional, etc). I believe that maybe they(the rocks) were already in a "bad position", but my brain had the time to compensate or habituate to that position and input, so I feel all right, without being "cured" from BPPV, or whatever is causing my woes.

The moment this changes I'm in dizzyland again, and this time, I can tell that it doesn't feel as MAV, even as there are times that it does feels like it. The difference? on MAV or `re-migraine, I feel mentally and visually awkward but I don't actually feel dizzy or unbalanced.

That's why the BPPV take is not so out of possibility, and as soon as I get the courage(I posted this under another subject) I might try the Home Epley(instead of the Darhoff sets) because it is a more effective(both in time and statistically), method of BPPV treatment, but it is said that if you're not 100% sure(like in my case) of which one is your wrong side, you can actually move debris to the wrong place too, inducing a BPPV bout(even as it's not as that common as some people here have done it with great results(subs and firechick)

So that's my take for today, I'll wait and see how it develops dureing the day.

Cheers to all.

I was ready to post an update on a great day I've had yesterday, with hours of feeling great, practically normal.

Today, as I was using a laptop, looking down at it in an awkward position(down and to the left over my bed), I started to feel a little woozy, after some more dizzy free hours in the morning. Following my curiosity, and trying, as always to pinpoint causes of my dizziness, I pretty much kept the position still(it wasn't uncomfortable, I must say) to see what happened, and then it happened.

After 20-30 minutes of that head position with slight eyes and head motion, for reading and writing on the laptop. it came back, a mildly strong slow spinning blip. I stood up and went to take a shower, which I was going to do, and felt unsteady and woozy in several different changes of position.

So, I think that either the rock debris(BPPV), or some liquid(I woke up with mild nose/ear congestion, as almost everyday) moved slowly to a wrong position, and my dizziness started slowly too.

My take is that, once in the wrong place, either liquid or rock debris, keep the whole balance system disturbed, so now I feel dizzy with much less positional or visual input, because I am, in some way, decompensated from this. And once dizziness is set, I felt foggy, as my brain is working extra time to get things right again.

So if I didn't noticed how it all slowly began, I would be confused on which was exactly my dizzy position, trigger or input, because now I feel hiccups in several different ways(visual, positional, etc). I believe that maybe they(the rocks) were already in a "bad position", but my brain had the time to compensate or habituate to that position and input, so I feel all right, without being "cured" from BPPV, or whatever is causing my woes.

The moment this changes I'm in dizzyland again, and this time, I can tell that it doesn't feel as MAV, even as there are times that it does feels like it. The difference? on MAV or `re-migraine, I feel mentally and visually awkward but I don't actually feel dizzy or unbalanced.

That's why the BPPV take is not so out of possibility, and as soon as I get the courage(I posted this under another subject) I might try the Home Epley(instead of the Darhoff sets) because it is a more effective(both in time and statistically), method of BPPV treatment, but it is said that if you're not 100% sure(like in my case) of which one is your wrong side, you can actually move debris to the wrong place too, inducing a BPPV bout(even as it's not as that common as some people here have done it with great results(subs and firechick)

So that's my take for today, I'll wait and see how it develops dureing the day.

Cheers to all.

Stargrave,
have you gone to a vestibular PT yet who do these maneuvers? I found I had better success with the after effect when I had someone do these as opposed to doing them myself at home.

They tell by the pattern of your dizziness as well as the direction your eyes are moving, as to where the crystals are located. Then they can guide you through the proper maneuvers to clear the canal.

If you haven't had luck at home, and you haven't tried a PT, it might be a good place to start and help diagnose what's going on.

Good luck!

I'm going to my PT today. My "rocks are stuck" again and I too am experiencing difficulty in all directions.

--snh

Hey snh

I haven't got an Epley, or any kind of manevuer, I was suggested to do the Brandt Darhoff sets, a more "general" approach for the same thing, because all of the Dix-Hallpike tests(where they made you lay down and hang your head and then up again) were either negative or inconclusive, I was practically no dizzy with them, no eye movement, nothing.

As it is unclear which side is affected, even as the right one is the main suspect because it has a caloric detected vestibular dysfunction, they're not sure. So that' why even as they dx me with BPPV, they neither performed nor suggested an Epley maneuver(home or office), and gave me the Darhoff set instead, which is a little less effective(statistically), and takes longer to feel the effects of it.

Some people here have tried the home Epley with great results, I was just a little cautious to do it, because when you don't know which is your bad side it's said that you could move the rocks to the wrong place, something that doesn't happen with Darhoff set...

Thing is, expanding my last post, that once this is set(the dizzy bout), everything goes nuts, from a stress tightened neck, to a mild headache(not right now) and even some rise in bp because of it(not now either), and it all gets much more complicated because of it...

I known that whatever is giving me this bouts either BPPV rocks, liquid or some MAV, I could have one or all, it's not going to recede alone until I pinpoint and treat the cause directly, so that's where I'm right now.

I have to treat them all, or to try em all because of my background and symptoms: Teen Migraneur(MAV), Positional Onsets(BPPV), and perennial allergic(Liquid and Inner ear inflammation), which all by themselves and in combination, can cause my present woes, and tamper my compensation process too. As I do have to compensate for my detected dysfunction, on top of it all.

I know is not Meniere, MS Stroke or Cerebellar(knock on wood in all) cause my vertigo is not spontaneous, that strong, and I don't have any progressive(or any kind of) hearing loss, any other kind of progressive CNS dysfunction, and all my neurological tests were normal.

So it's got to be one(or al) of those three, BBPV is the bet of my medics so, I'll start there, because I know that until I get this treated, whatever the cause, I could be in dizzyland for years

Back on your case(I read your post too), I believe you should see a neurotologyst, for a second take on it, as I think that only in very rare cases where some open transit of the rocks(for some cause), causes your kind of recurrence after reposition maneuvers have been done, I haven't read anywhere that liquid could prevent them to get back into position as I believe that even as liquid(from allergies as an example)can cause you dizziness, this happens outside from where the rocks are, n a whole different process, only related to BPPV by the soreness or inflammation caused to the whole inner ear, but never that liquid could stop the rocks to get back into position, but that's just my opinion.

Hey snh

I haven't got an Epley, or any kind of manevuer, I was suggested to do the Brandt Darhoff sets, a more "general" approach for the same thing, because all of the Dix-Hallpike tests(where they made you lay down and hang your head and then up again) were either negative or inconclusive, I was practically no dizzy with them, no eye movement, nothing.

As it is unclear which side is affected, even as the right one is the main suspect because it has a caloric detected vestibular dysfunction, they're not sure. So that' why even as they dx me with BPPV, they neither performed nor suggested an Epley maneuver(home or office), and gave me the Darhoff set instead, which is a little less effective(statistically), and takes longer to feel the effects of it.

Some people here have tried the home Epley with great results, I was just a little cautious to do it, because when you don't know which is your bad side it's said that you could move the rocks to the wrong place, something that doesn't happen with Darhoff set...

Thing is, expanding my last post, that once this is set(the dizzy bout), everything goes nuts, from a stress tightened neck, to a mild headache(not right now) and even some rise in bp because of it(not now either), and it all gets much more complicated because of it...

I known that whatever is giving me this bouts either BPPV rocks, liquid or some MAV, I could have one or all, it's not going to recede alone until I pinpoint and treat the cause directly, so that's where I'm right now.

I have to treat them all, or to try em all because of my background and symptoms: Teen Migraneur(MAV), Positional Onsets(BPPV), and perennial allergic(Liquid and Inner ear inflammation), which all by themselves and in combination, can cause my present woes, and tamper my compensation process too. As I do have to compensate for my detected dysfunction, on top of it all.

I know is not Meniere, MS Stroke or Cerebellar(knock on wood in all) cause my vertigo is not spontaneous, that strong, and I don't have any progressive(or any kind of) hearing loss, any other kind of progressive CNS dysfunction, and all my neurological tests were normal.

So it's got to be one(or al) of those three, BBPV is the bet of my medics so, I'll start there, because I know that until I get this treated, whatever the cause, I could be in dizzyland for years

Back on your case(I read your post too), I believe you should see a neurotologyst, for a second take on it, as I think that only in very rare cases where some open transit of the rocks(for some cause), causes your kind of recurrence after reposition maneuvers have been done, I haven't read anywhere that liquid could prevent them to get back into position as I believe that even as liquid(from allergies as an example)can cause you dizziness, this happens outside from where the rocks are, n a whole different process, only related to BPPV by the soreness or inflammation caused to the whole inner ear, but never that liquid could stop the rocks to get back into position, but that's just my opinion.


Thanks Stargrave,
I'm going to see if I can't do the ENG/VNG? test again, this time with the caloric and also talk more in depth about other issues with my ENT. There is also a central nervous system type test that I will see if I can take. My ENT suggested I can try putting tubes in to clear my middle ear, which could help that issue. Mostly I just want to know what they can do to determine what kind of damage I have to my inner ear and which test that would be.

I'm fairly certain the main dizzies (BppV spinning) is not because of MAV, but due to some kind of structural or crystal issue.

I'm not sure what other tests a Neuro can do to determine a CNS issue. They've done MRI's and balance type tests, although I wasn't as dizzy as I am now.

I'll keep digging until I get the right test and answers.

Thanks for your suggestions.

snh39--

A few other tests are the VEMP test and rotary chair testing. I imagine there are others as well. Hormonal imbalances can also cause dizziness. I haven't looked into this yet, but apparently women can have dizziness with perimenopause.

--Violet