cmpgirl
04-07-2008, 10:46 AM
Hi everyone:
Just wanted to update you. My primary's office called this a.m. and I have to go over to the office today and give yet another urine specimen. They said the results from the one 2 weeks ago was "inconclusive".
I am so fed up with this office, I could spit! I can read between the lines. When they say inconclusive, it's usually an excuse to cover up their consistant screw-ups. They probably lost the last one or it got botched or mixed up with some poor other soul who is sitting at home, waiting and worrying, like me! How difficult can it be to find out if a person has kidney damage or not!
I just want to get this part over with, so I can find a new primary and not have to deal with these incompetent idiots again!! For someone who is trying to treat my high blood pressure, they are sure not helping! I am not even going to take my BP right now, because I know it won't be good!
I am just at the end of my rope right now. If it was possible, I'd love to have my PM take over all of my health care. He seems to be the only doctor that has a brain in his head AND a heart. I know I've been asking for this a lot lately, but your prayers would be so much appreciated. Thank God for all of you. I don't even want to tell my husband about this. I already feel guilty about the fact that I have not been much help around here. Between the new BP meds and having to take my Xanax every day, just so I won't spike my BP, I've been a slug.
It was beautiful, weather-wise this weekend and I know he wanted to get out and do something, even grocery shopping. The weekends are always "our time" together. And he spent the whole weekend going out running the errands that I usually do during the week. Sometimes I just get so disgusted with myself. I'm not asking for a miracle, just some of my life back! You would think, after all these years, I'd be used to this. I feel like I did way back when I was first having the pain and going from doctor to doctor, just trying to find someone to tell me what was wrong...Why, at 38 years old, I felt like I was 83!
Anyway, sorry for the rambling rant. I'm trying so hard to be positive, but I feel like I'm falling apart. Physically and emotionally. Thank you all for letting me have a place to get this all out. I'll let you know when I get the results back from this one.....IF I ever do. God Bless, cmpgirl
Just wanted to update you. My primary's office called this a.m. and I have to go over to the office today and give yet another urine specimen. They said the results from the one 2 weeks ago was "inconclusive".
I am so fed up with this office, I could spit! I can read between the lines. When they say inconclusive, it's usually an excuse to cover up their consistant screw-ups. They probably lost the last one or it got botched or mixed up with some poor other soul who is sitting at home, waiting and worrying, like me! How difficult can it be to find out if a person has kidney damage or not!
I just want to get this part over with, so I can find a new primary and not have to deal with these incompetent idiots again!! For someone who is trying to treat my high blood pressure, they are sure not helping! I am not even going to take my BP right now, because I know it won't be good!
I am just at the end of my rope right now. If it was possible, I'd love to have my PM take over all of my health care. He seems to be the only doctor that has a brain in his head AND a heart. I know I've been asking for this a lot lately, but your prayers would be so much appreciated. Thank God for all of you. I don't even want to tell my husband about this. I already feel guilty about the fact that I have not been much help around here. Between the new BP meds and having to take my Xanax every day, just so I won't spike my BP, I've been a slug.
It was beautiful, weather-wise this weekend and I know he wanted to get out and do something, even grocery shopping. The weekends are always "our time" together. And he spent the whole weekend going out running the errands that I usually do during the week. Sometimes I just get so disgusted with myself. I'm not asking for a miracle, just some of my life back! You would think, after all these years, I'd be used to this. I feel like I did way back when I was first having the pain and going from doctor to doctor, just trying to find someone to tell me what was wrong...Why, at 38 years old, I felt like I was 83!
Anyway, sorry for the rambling rant. I'm trying so hard to be positive, but I feel like I'm falling apart. Physically and emotionally. Thank you all for letting me have a place to get this all out. I'll let you know when I get the results back from this one.....IF I ever do. God Bless, cmpgirl
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feelbad
04-07-2008, 11:57 AM
so sorry you are being put thru all this. geez,lets treat a condition then exascerbate the heck out of it for the patient. cmp,if you have not yet done this i really think it needs to be done. obtain ALL of your ongoing medical records from every single doc that has even layed hands on you so you can just read thru everything yourself. this would include all test results and the docs clinic notes that they make on you after every visit. these clinic notes can really tell you alot about just what any given docs impressions of you and your conditions are.
you are just really being given the run around here and it shouldn't be happening. you also really just need to keep copies of all your own test results. i would love to know just what 'inconclusive" actually means there too. you just really need to know what was in those labs they did and exactly what was not within the norm ranges. looking at your own results really does help you to stay on top of things,believe me. if i didn;t do this for myself and my son every six months or so(test results i obtain right away tho) i would seriously be totally lost. just getting all this stuff will at least give you some of your feeling of control back,trust me. i am pretty sure you are feeling like no real control here right now? this will help.
just who is asking you to come in for the UA? is this a primary doc? if it is you really do need a new one,soon. these people have run you ragged just trying to Dx some pretty straight forward stuff. it just shouldn't be this hard ya know? you DO deserve better than you have been getting.
i would make some phone calls today to just get that ball rolling on obtaining ALL your own medical records and test results. all you have to do is just call the places you were seen,ask them to send you out a release of information to obtain all medical records. you simply sign it and send it back and specifically ask for ALL records including test results,then in about a week or so,the records will start showing up in your mailbox.
this will give you at least some sense of being back in control over things again. believe me, i know that feeling all too well. when there is so much going on around you in any medical situation that you simply cannot control,you will eventually start feeling somewhat victimized by the system,this can just lead to a whole lot of other issues. trying to stay on top of things will just give you more power over your own healthcare hon. you just don't 'feel' in your head,quite as helpless. always remember,these people are working for YOU,not the other way around. its just very easy to lose sight of that when we are feeling too overwhelmed by things.
i would start making some phone calls today cmp. hopefuly you can just get in ,get the tests run and get it done. then at least you will have a much clearer idea of where you are at and what your next steps should be. ya just gotta hang in there hon.but DO get those records. i really wish i could do more to help with your situation cmp. just keep us posted on all things you. marcia
you are just really being given the run around here and it shouldn't be happening. you also really just need to keep copies of all your own test results. i would love to know just what 'inconclusive" actually means there too. you just really need to know what was in those labs they did and exactly what was not within the norm ranges. looking at your own results really does help you to stay on top of things,believe me. if i didn;t do this for myself and my son every six months or so(test results i obtain right away tho) i would seriously be totally lost. just getting all this stuff will at least give you some of your feeling of control back,trust me. i am pretty sure you are feeling like no real control here right now? this will help.
just who is asking you to come in for the UA? is this a primary doc? if it is you really do need a new one,soon. these people have run you ragged just trying to Dx some pretty straight forward stuff. it just shouldn't be this hard ya know? you DO deserve better than you have been getting.
i would make some phone calls today to just get that ball rolling on obtaining ALL your own medical records and test results. all you have to do is just call the places you were seen,ask them to send you out a release of information to obtain all medical records. you simply sign it and send it back and specifically ask for ALL records including test results,then in about a week or so,the records will start showing up in your mailbox.
this will give you at least some sense of being back in control over things again. believe me, i know that feeling all too well. when there is so much going on around you in any medical situation that you simply cannot control,you will eventually start feeling somewhat victimized by the system,this can just lead to a whole lot of other issues. trying to stay on top of things will just give you more power over your own healthcare hon. you just don't 'feel' in your head,quite as helpless. always remember,these people are working for YOU,not the other way around. its just very easy to lose sight of that when we are feeling too overwhelmed by things.
i would start making some phone calls today cmp. hopefuly you can just get in ,get the tests run and get it done. then at least you will have a much clearer idea of where you are at and what your next steps should be. ya just gotta hang in there hon.but DO get those records. i really wish i could do more to help with your situation cmp. just keep us posted on all things you. marcia
123dietdrpepper
04-07-2008, 12:28 PM
I hate to say this but I am thinking you would obtain quicker service by changing your primary now. What the heck??
Braveheart07
04-07-2008, 12:40 PM
Cmpgirl, Hi-
I came across your post,(actually checking on my friend Feelbad) and thought I'd add my 2 cents--
You sound so depressed...we can all relate to that. I was also depressed recently for many reasons similar to yours...My wife told me to get out of the house, and into the sunshine for a while--natural Vit. D--most people are low in D during the dark days of winter..Especially in upstate NY ! --I started taking 1200mg of vit D, and sitting in the sun for 20-30 minutes, whenever it's out, just to relax---It's worked like a charm---Try it, what have you got to lose ?? Don't let life get you down...there are lots of good days ahead...
Feel better...Doug
PS--I'd change Dr.s if I were you---as many times as you have to, until you're happy with him/her.
I came across your post,(actually checking on my friend Feelbad) and thought I'd add my 2 cents--
You sound so depressed...we can all relate to that. I was also depressed recently for many reasons similar to yours...My wife told me to get out of the house, and into the sunshine for a while--natural Vit. D--most people are low in D during the dark days of winter..Especially in upstate NY ! --I started taking 1200mg of vit D, and sitting in the sun for 20-30 minutes, whenever it's out, just to relax---It's worked like a charm---Try it, what have you got to lose ?? Don't let life get you down...there are lots of good days ahead...
Feel better...Doug
PS--I'd change Dr.s if I were you---as many times as you have to, until you're happy with him/her.
Moldova
04-07-2008, 01:41 PM
Don't worry about venting, we are here to listen... Most of us get in a similar situations and need some support too.
I know how it feels when you have to deal with heartless people. Unfortunatelly it happens for most of us. The worse part when you meet them in a Dr's offices. Been there, done that. And many times I would say same thing: I am done, I never go there again....
I feel for you, but still try to take it easy, you know what stress does to BP - not good, honey.
My prayers with you.... I hope will be a better day for you...
Take care and best of luck!:angel:
I know how it feels when you have to deal with heartless people. Unfortunatelly it happens for most of us. The worse part when you meet them in a Dr's offices. Been there, done that. And many times I would say same thing: I am done, I never go there again....
I feel for you, but still try to take it easy, you know what stress does to BP - not good, honey.
My prayers with you.... I hope will be a better day for you...
Take care and best of luck!:angel:
TexMom85
04-07-2008, 01:46 PM
Cmpgirl,
I so totally understand where you're coming from, on so many levels. No long reply here, just wanted to offer to listen and empathize. Do not feel guilty!!! I struggle with that too, and got a lecture from hubby yesterday about it. Just take care of yourself, first, and you will make everyone around you a lot happier. God will help you find a new doctor soon, I'm sure!
Praying for you!!
Tex
I so totally understand where you're coming from, on so many levels. No long reply here, just wanted to offer to listen and empathize. Do not feel guilty!!! I struggle with that too, and got a lecture from hubby yesterday about it. Just take care of yourself, first, and you will make everyone around you a lot happier. God will help you find a new doctor soon, I'm sure!
Praying for you!!
Tex
cmpgirl
04-07-2008, 02:03 PM
Thanks everyone. It is my primary that is causing all of the problems. I do get copies of everything from my PM doc. I just haven't bothered with my primary's office over the years, because it was rare for me to see them and when I have, it's usually been for colds, flu, etc.
Getting a new primary is the hard part. There aren't that many left in my area, who don't have a subspecialty or a full patient load. Even though I have gone an hour each way to my PM for years, he is worth it and I don't care that I have to go farther.
As for primary care, I would prefer to see someone close to home, if I can. My husband and I have been doing some research and we've narrowed it down to 2 possibles. I just have to call and get an appointment with each one, so I can make sure this will not cause any problems for PM care. I need to make sure that any new doc I choose, is on board with referring me to my PM. (Our insurance requires it) The last thing I need right now is to lose my PM.
I really appreciate all of your kindness and I am so glad you are all here. I am actually concerned about depression. I see a psych already and have an appointment with him this afternoon. I really don't want to start yet another med, so I really hope he doesn't recommend that I do. I guess I'm hoping that this horrible feeling is just temporary. It is a nice day today, so maybe I'll get some of that sunlight as well.
I'm getting ready to head out for my labs and appointment, so I will let you all know how things go. Thanks again and God Bless, cmpgirl
Getting a new primary is the hard part. There aren't that many left in my area, who don't have a subspecialty or a full patient load. Even though I have gone an hour each way to my PM for years, he is worth it and I don't care that I have to go farther.
As for primary care, I would prefer to see someone close to home, if I can. My husband and I have been doing some research and we've narrowed it down to 2 possibles. I just have to call and get an appointment with each one, so I can make sure this will not cause any problems for PM care. I need to make sure that any new doc I choose, is on board with referring me to my PM. (Our insurance requires it) The last thing I need right now is to lose my PM.
I really appreciate all of your kindness and I am so glad you are all here. I am actually concerned about depression. I see a psych already and have an appointment with him this afternoon. I really don't want to start yet another med, so I really hope he doesn't recommend that I do. I guess I'm hoping that this horrible feeling is just temporary. It is a nice day today, so maybe I'll get some of that sunlight as well.
I'm getting ready to head out for my labs and appointment, so I will let you all know how things go. Thanks again and God Bless, cmpgirl
Round1
04-07-2008, 02:41 PM
cmpgirl, I am sorry you have been messed around so so much, and its even worse to think you are being put thru all of this whilst they are trying to bring the BP down.............. i think they are just succeeding to rise it. I dont understand your medical system over there, and I guess primary is just like our ordinary GP, doctor, Then we go after that to consultant in whatever field we need to go, and normally referred to with a letter my our GP, doctor. Then normally dont return to the dr. only for prescriptions and stay at consultant level for that problem...... Any way thats only by the by........
I hope you get results fast, Give them two sample bottles this time !!!!:cool:
Thinking of you. Hey I am 38 also............. If this is what the 30's were like I am dreading the 40 's !!!!!!!!!
Round1
I hope you get results fast, Give them two sample bottles this time !!!!:cool:
Thinking of you. Hey I am 38 also............. If this is what the 30's were like I am dreading the 40 's !!!!!!!!!
Round1
cmpgirl
04-07-2008, 04:57 PM
Hi Everyone: By the time I actually gor out of here, it was too close to my appt with my psych, to go to the lab first. My feet and ankles are so swollen right now that I could not fit into ANY of my shoes. Not even my clogs or sneakers. So I had to wear my husband's moccasin style slippers to my appts.
My psych saw my feet and was very concerned. (He's also an MD) He actually cut my session short so I could go over to the lab (which is on the lower level of my primary's office.) He told me that when my labs were done, I should go upstairs and insist that I be seen today. So I did. I have an appt with a different PA (not Bob the idiot) at 6:15. They are literally around the corner from my house, so I don't have far to go.
I just want some answers. I can't go on like this. My psych gave me the names of some physicians that he has worked with and that he feels are very good doctors, so that is something. I am going to start calling tomorrow to see if I can get in to see one. I would call today, but I felt I should at least keep this appt tonight and see what happens. Especially with the swelling being this bad.
I told my psych I was concerned about depression and he said he did not feel that I was depressed. He said "You're p****d off, you're frustrated, as you should be, but not depressed." So at least I feel a little better about something.
Thank you Round1. I so appreciate the support, especially with what you and so many others are going through yourselves. (I am actually 46, I started having chronic pain at 38, but thanks, I wouldn't mind being in my 30's again!)
And yes, our primary is like your GP. They usually treat you up to a certain point and then refer to a specialist if necessary.
I am going to go lie down for a bit, until my appointment. Many thanks, cmpgirl
My psych saw my feet and was very concerned. (He's also an MD) He actually cut my session short so I could go over to the lab (which is on the lower level of my primary's office.) He told me that when my labs were done, I should go upstairs and insist that I be seen today. So I did. I have an appt with a different PA (not Bob the idiot) at 6:15. They are literally around the corner from my house, so I don't have far to go.
I just want some answers. I can't go on like this. My psych gave me the names of some physicians that he has worked with and that he feels are very good doctors, so that is something. I am going to start calling tomorrow to see if I can get in to see one. I would call today, but I felt I should at least keep this appt tonight and see what happens. Especially with the swelling being this bad.
I told my psych I was concerned about depression and he said he did not feel that I was depressed. He said "You're p****d off, you're frustrated, as you should be, but not depressed." So at least I feel a little better about something.
Thank you Round1. I so appreciate the support, especially with what you and so many others are going through yourselves. (I am actually 46, I started having chronic pain at 38, but thanks, I wouldn't mind being in my 30's again!)
And yes, our primary is like your GP. They usually treat you up to a certain point and then refer to a specialist if necessary.
I am going to go lie down for a bit, until my appointment. Many thanks, cmpgirl
Fabrashamx
04-07-2008, 05:09 PM
((((((Cmp))))))))))
Please do not ever apologize for venting to us, its what we are here for, next week it's my turn again and I will be mad if I miss it! ;)
You are going through so much right now, I am hoping and praying you get some answers so you at least know what you are dealing with and can make plans to treat it.
It sounds like your psych doc is great, and a very good asset for you, I LOVE that he told you to insist on being seen right away, he is correct, these symptoms need to be addressed.
Hey Doug, welcome to the pain boards and if you dont mind, I saw your advice to my girl cmp and I think I will try taking some vitamin D as well, living in Oregon, sunshine can be hard to come by!
Hang in there, I hope you get to the bottom of this and are feeling better soon, please come vent whenever you feel the need!
Your Friend, Fabby :wave:
Please do not ever apologize for venting to us, its what we are here for, next week it's my turn again and I will be mad if I miss it! ;)
You are going through so much right now, I am hoping and praying you get some answers so you at least know what you are dealing with and can make plans to treat it.
It sounds like your psych doc is great, and a very good asset for you, I LOVE that he told you to insist on being seen right away, he is correct, these symptoms need to be addressed.
Hey Doug, welcome to the pain boards and if you dont mind, I saw your advice to my girl cmp and I think I will try taking some vitamin D as well, living in Oregon, sunshine can be hard to come by!
Hang in there, I hope you get to the bottom of this and are feeling better soon, please come vent whenever you feel the need!
Your Friend, Fabby :wave:
cmpgirl
04-07-2008, 10:32 PM
Hey everyone:
I have finally met someone who has a brain in his head. He's another PA, who only does about 10 hours a week at my primary's after hours urgent care. He was a little disgusted at what has been going on and could not understand why they did not have me come in the first time I called about the swelling.
Also, my BP was very high again. 195/123 the first time the nurse took it and 189/120 five minutes later when the PA took it. He immediately said he was prescribing a diauretic, and if my primary or Bob the idiot had a problem with that, they could deal with him. I had not taken it here today before I went, but when I got home I did and it was 190/122. My hubby just went and picked up the script and I have taken my first dose.
He also explained that the protien in my first labs could just be the pressure forcing the protien to "spill" out of the kidneys or it could be damage. He did look to see what was requested for today's labs and said it was a complete panel. I still don't understand why they didn't do a complete panel to begin with......He said he was leaving a note for my primary. He didn't elaborate, but from the way he reacted to the run around I've been getting, I think it was probably not going to be a pleasant one.
Hopefully this is a start. Please keep your fingers crossed for me.
Thank you all again, for your ears (eyes)! God Bless, cmpgirl :angel:
I have finally met someone who has a brain in his head. He's another PA, who only does about 10 hours a week at my primary's after hours urgent care. He was a little disgusted at what has been going on and could not understand why they did not have me come in the first time I called about the swelling.
Also, my BP was very high again. 195/123 the first time the nurse took it and 189/120 five minutes later when the PA took it. He immediately said he was prescribing a diauretic, and if my primary or Bob the idiot had a problem with that, they could deal with him. I had not taken it here today before I went, but when I got home I did and it was 190/122. My hubby just went and picked up the script and I have taken my first dose.
He also explained that the protien in my first labs could just be the pressure forcing the protien to "spill" out of the kidneys or it could be damage. He did look to see what was requested for today's labs and said it was a complete panel. I still don't understand why they didn't do a complete panel to begin with......He said he was leaving a note for my primary. He didn't elaborate, but from the way he reacted to the run around I've been getting, I think it was probably not going to be a pleasant one.
Hopefully this is a start. Please keep your fingers crossed for me.
Thank you all again, for your ears (eyes)! God Bless, cmpgirl :angel:
Fabrashamx
04-07-2008, 11:15 PM
That is great news! Finally, a health care professional that is on your side and ready and willing to go to bat for you!
This is really good, let us know what happens when you see the primary again, hopefully he will have had an attitude adjustment.
***REMOVED********
Hugs, Fabby :)
This is really good, let us know what happens when you see the primary again, hopefully he will have had an attitude adjustment.
***REMOVED********
Hugs, Fabby :)
TexMom85
04-07-2008, 11:32 PM
Cmpgirl,
So happy to hear there's some real progress. I'll be praying for good results and some effective treatment.
***REMOVED****
Let us know how the doctor works out!
((Hugs))
TexMom
So happy to hear there's some real progress. I'll be praying for good results and some effective treatment.
***REMOVED****
Let us know how the doctor works out!
((Hugs))
TexMom
123dietdrpepper
04-08-2008, 12:43 AM
PRAISE GOD!!
I am so happy that you finally have someone who is taking care of you. I have been really worried about all this run around. As I have posted previously, my hubby went in for a minor checkup and his number were like yours and they would not let him leave without him being medicated and the numbers came back down.
Please take care of yourself and know that WE CARE!!
I am so happy that you finally have someone who is taking care of you. I have been really worried about all this run around. As I have posted previously, my hubby went in for a minor checkup and his number were like yours and they would not let him leave without him being medicated and the numbers came back down.
Please take care of yourself and know that WE CARE!!
trowftd3
04-08-2008, 02:01 AM
***REMOVED**
Cmpgirl, continued good luck with your new pa. I hope he kicks some butt and takes some names for you. No more stupid Bob!!!~Mush
Cmpgirl, continued good luck with your new pa. I hope he kicks some butt and takes some names for you. No more stupid Bob!!!~Mush
cmpgirl
04-08-2008, 02:25 AM
Fabby, Tex and Pepper:
I hope you know how much the support I receive here means to me. I have been so down lately and I've felt almost desperate. That's really the only word I can think of that fits. I try to just plow through each day but between the CP, the fear over this blood pressure, and just feeling like I was not getting anywhere with all of this, it has been such an effort to do even simple things.
Then comes the guilt. It never fails. I can't even remember the last time I have felt this bad. I guess normally, I just don't let myself go there. Like so many women today, I had a family and a career and friends, a life! I've never deluded myself that the day would come when things slowed down, my daughter would grow up, etc. But I sure as he** never thought I'd be forced into it at middle age. (Yes Tex, we are middle aged)
There is so much that I have been blessed with and I know sometimes I forget to think about those things. You hear people use the old saying "At least I have my health", and I never really understood it until I didn't have it.
I am definitely still worried that my BP is still spiking like this. But at least someone listened for a change. At least tonight. It has to be my luck that this PA works only about 10 hours a week at my primary's office. I'm hoping that whatever the note says, it will spur my actual doc to feel the need to step in.
You know Pepper, I wasn't sure he was going to let me leave at first, but he said to go right to the pharm and get the diauretic filled and take it tonight. He also said that if I didn't see any difference in 3 days, to call and tell the desk that he said I was to be seen ASAP.
**REMOVED***
Well, I've rambled on far too long. I wish I could give you all a hug! Thank you all, from the bottom of my heart. I'll keep you posted as I find out more. God Bless you and give you peace comfort and strength. cmpgirl
I hope you know how much the support I receive here means to me. I have been so down lately and I've felt almost desperate. That's really the only word I can think of that fits. I try to just plow through each day but between the CP, the fear over this blood pressure, and just feeling like I was not getting anywhere with all of this, it has been such an effort to do even simple things.
Then comes the guilt. It never fails. I can't even remember the last time I have felt this bad. I guess normally, I just don't let myself go there. Like so many women today, I had a family and a career and friends, a life! I've never deluded myself that the day would come when things slowed down, my daughter would grow up, etc. But I sure as he** never thought I'd be forced into it at middle age. (Yes Tex, we are middle aged)
There is so much that I have been blessed with and I know sometimes I forget to think about those things. You hear people use the old saying "At least I have my health", and I never really understood it until I didn't have it.
I am definitely still worried that my BP is still spiking like this. But at least someone listened for a change. At least tonight. It has to be my luck that this PA works only about 10 hours a week at my primary's office. I'm hoping that whatever the note says, it will spur my actual doc to feel the need to step in.
You know Pepper, I wasn't sure he was going to let me leave at first, but he said to go right to the pharm and get the diauretic filled and take it tonight. He also said that if I didn't see any difference in 3 days, to call and tell the desk that he said I was to be seen ASAP.
**REMOVED***
Well, I've rambled on far too long. I wish I could give you all a hug! Thank you all, from the bottom of my heart. I'll keep you posted as I find out more. God Bless you and give you peace comfort and strength. cmpgirl
Round1
04-08-2008, 07:38 AM
cmpgirl, had to laugh when you are calling yourself middle age............ got the age wrong, but you are only a few years older........ but young at heart !
Yes I had it all too.......... a life....... no pain.......... and everything was just perfect................ and then wham......... this. Of course you are going to have down days and we all have them we would be lying if we said we didnt , but as you say we have to get on with it and be there for the family even though at times we really just want to curl up somewhere (only cant bend to curl !). Here I am reading all the posts that ye are writing when I am sound asleep and I feel I reply then after the events................. Sounds like you have got someone to finally sit up and take note re the BP. Hope it starts making its way down for you today and gets to a normal level fast .
I have my Rheumy visit on thursday and I am just wishing the week away. I want answers and want to know if I do have A.S. and if he thinks I dont, why am I still suffering like this and why is it 90% test positive have it. But then I cant go in and tell him what I think I have, we all know how they react to that. !
Mind yourself cmpgirl,
Round1
Yes I had it all too.......... a life....... no pain.......... and everything was just perfect................ and then wham......... this. Of course you are going to have down days and we all have them we would be lying if we said we didnt , but as you say we have to get on with it and be there for the family even though at times we really just want to curl up somewhere (only cant bend to curl !). Here I am reading all the posts that ye are writing when I am sound asleep and I feel I reply then after the events................. Sounds like you have got someone to finally sit up and take note re the BP. Hope it starts making its way down for you today and gets to a normal level fast .
I have my Rheumy visit on thursday and I am just wishing the week away. I want answers and want to know if I do have A.S. and if he thinks I dont, why am I still suffering like this and why is it 90% test positive have it. But then I cant go in and tell him what I think I have, we all know how they react to that. !
Mind yourself cmpgirl,
Round1
feelbad
04-08-2008, 12:34 PM
well its about time cmp! someone finally saw the need here? geez. i would take that diuretic asap just to reduce the overload you are carying around also get those legs elevated above your heart when you sleep or even just are taking a nap,it does help in keeping the feet and legs from becoming too overly engorged with extra fliud. you will of cousre be peeing like theres no tomorrow but thats life. at least someone else is also pissed for you too. let tham take on THAT load for you,K? just keep hangin in there,hopefully you will find out something more solid soon. and of course,please keep us posted. i REALLY am relieved an happy for you cmp. now go relax,someone else is working things out for you. Marcia
cmpgirl
04-08-2008, 02:27 PM
Round1 and Marcia: Thanks so much for being there for me. I am seeing a slight reduction in swelling, but at this point, I'll take it! The PA said this type of diauretic is potassium sparing. He explained that most diauretics cause a drop in potassium (which I knew before) but this one (triamterene HCTZ) has a dual action. One drug lowers it and the other replenishes it. My psych had told me about something similar (dyazide) when I was there yesterday. He had Rx'd it back when he was interning. The PA said this is the same, just newer. He also said less trips to the toilet! Yippee!
I plan to veg today and keep my feet elevated as much as possible. I've had a slight lingering headache since last night, but I'm not sure if it's from the med or the overall stress. Isn't it just lovely that we get to experience all kinds of side effects, just to "feel better"? And my pain is definitely spiked right up there. I would say 8 or 9. I know it will get better now that this whole BP thing is being looked into properly.
You are so right Round1, I can't really bend or curl anymore either! And Marcia, I said to my hubby last night that he can no longer complain about all of the pillows on the family room couch! I knew they'd come in handy. I have several on the footstool to keep my legs elevated above my heart.
Thanks so much again for all of your support. It seems like everyone here is getting slammed by something lately! It is amazing how we all come together like this. I am so very blessed to be a part of this family. Take care and know that I'm here for you all too. God Bless, cmpgirl :angel:
I plan to veg today and keep my feet elevated as much as possible. I've had a slight lingering headache since last night, but I'm not sure if it's from the med or the overall stress. Isn't it just lovely that we get to experience all kinds of side effects, just to "feel better"? And my pain is definitely spiked right up there. I would say 8 or 9. I know it will get better now that this whole BP thing is being looked into properly.
You are so right Round1, I can't really bend or curl anymore either! And Marcia, I said to my hubby last night that he can no longer complain about all of the pillows on the family room couch! I knew they'd come in handy. I have several on the footstool to keep my legs elevated above my heart.
Thanks so much again for all of your support. It seems like everyone here is getting slammed by something lately! It is amazing how we all come together like this. I am so very blessed to be a part of this family. Take care and know that I'm here for you all too. God Bless, cmpgirl :angel:
123dietdrpepper
04-08-2008, 05:42 PM
It is amazing how we all come together like this. I am so very blessed to be a part of this family.
We all are very blessed for healthboards and each other!! :angel:
We all are very blessed for healthboards and each other!! :angel:
Round1
04-08-2008, 05:45 PM
Veg away cmpgirl, and keep those legs up ;) hopefully the headache will disappear soon, I remember posting saying my head was just open after taking the oxycontin, I am now on 10 mg at night and 5 during the day which I am going to change now to 10mg. Do I feel any better pain wise no........... and I dont have a headache from it now either...........
So hopefully might see a better result on 10 during the day. But all this could change with my Rheumys visit on thursday, hears hoping he thinks there are other problems there and it is just not the fusion and he will take this A.S. seriously.
Round1
So hopefully might see a better result on 10 during the day. But all this could change with my Rheumys visit on thursday, hears hoping he thinks there are other problems there and it is just not the fusion and he will take this A.S. seriously.
Round1
cmpgirl
04-09-2008, 03:28 AM
Mush...Sorry I didn't see your post til just now. We must have crossed in cyberspace somewhere. Thank you, I hope he definitely kicks Bob's butt!
I've had a weird day today. It probably has something to do with the diauretic, but I've noticed some pressure when I pee. Not pain, just pressure I guess, in my bladder area. It goes away when I'm done, but it's been consistant every time I've gone. Which has been a lot. The swelling is going up and down throughout the day, depending on whether I've been up or resting, but still better than yesterday.
I also need to call the pharmacy to see if it's OK to take Ibuprofen with this diauretic. I was going to take some for my headache this afternoon and remembered that the PA asked me if I took anti-inflams for my CP. I said no, but never thought at the time to ask why? The pharm printout doesn't say anything about a reaction with them, but who knows. I'd rather be safe than sorry.
Mush: always thought Shaun Cassidy was a sissy. I liked David much better and I do remember Lancelot Link. My brother loved that show and I used to tease him by saying he only liked it because they looked alike! (How fifth grade is that?? LOL)
Well, I guess I need to go to bed. I dozed on and off so much today that I'm really not that tired. Thanks again to everyone. ((((My CP family))))
I've had a weird day today. It probably has something to do with the diauretic, but I've noticed some pressure when I pee. Not pain, just pressure I guess, in my bladder area. It goes away when I'm done, but it's been consistant every time I've gone. Which has been a lot. The swelling is going up and down throughout the day, depending on whether I've been up or resting, but still better than yesterday.
I also need to call the pharmacy to see if it's OK to take Ibuprofen with this diauretic. I was going to take some for my headache this afternoon and remembered that the PA asked me if I took anti-inflams for my CP. I said no, but never thought at the time to ask why? The pharm printout doesn't say anything about a reaction with them, but who knows. I'd rather be safe than sorry.
Mush: always thought Shaun Cassidy was a sissy. I liked David much better and I do remember Lancelot Link. My brother loved that show and I used to tease him by saying he only liked it because they looked alike! (How fifth grade is that?? LOL)
Well, I guess I need to go to bed. I dozed on and off so much today that I'm really not that tired. Thanks again to everyone. ((((My CP family))))