fast
04-08-2008, 05:52 AM
Hi, I just had my first prolotherapy today, and are feeling bit a ordinary. I have been diagnosed with Ankylosing Spondylitis and no treatment has worked at all to date (Part fused saciral, spine joint problems from head to bottom, with servere pain to boot, had to leave work. Unusually normal ESR & CRP levels positive HBAL 27. Treatments all manual therapy's anti inflameitries & pain relief, exercise's daily, heat ice rest) Any advice much appreciated.
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Round1
04-08-2008, 11:51 AM
Fast, I am really interested in your post. I have chronic back pain for 6 years since the birth of my Son, had a c/section as back was bad. Things got so bad, I couldnt walk far, stand, in awful pain and the only relief I got was lying down. Then last feb 12 months, I wasnt even getting relief lying down. I had a spinal fusion last May and while there is a slight improvement I have still alot of pain, still cant stay up during the day, or walk far, etc..... you might want to read my other posts as I will only be repeating, one post was "do you ever feel something is being overlooked". Anyhow to cut along story short I suspect I have A.S. so much so I went and arranged for blood test. HLAB-27 has come back positive. While my ESR is only 8 !! that is what is throwing a spanner in the works for me. I am going to see a Rhemy at the end of the week. When I questioned A.S. years ago they said my MRI's were fine and I didnt have it. But now I am so much worse, hand cramps, leg cramps, sore to touch....... back aches all over when I try to keep going. S1 Joints are so so sore to even touch...............
I know just on reading up on it alot of people have got relief on Embrel. Have you tried that ? What level of pain are you at, is it neck more than back? Are you under a Rheumy? .... did they make anything of have a low ESR ???????
Would love to hear as I posted on the arthristis board and got no replies and was really disappointed thinking someone surely knows something about it. Take care, and hope to hear from you . Round1
I know just on reading up on it alot of people have got relief on Embrel. Have you tried that ? What level of pain are you at, is it neck more than back? Are you under a Rheumy? .... did they make anything of have a low ESR ???????
Would love to hear as I posted on the arthristis board and got no replies and was really disappointed thinking someone surely knows something about it. Take care, and hope to hear from you . Round1
Toonces1
04-08-2008, 08:02 PM
Fast, have you tried any of the medications in the Remicade/Humira group? I believe they are given as an infusion. I can't give you much info, but my father-in-law has AS, and has lived with is for over 40 years. About 1.5 years ago he started on Remicade, and he said it has made a huge difference for him in terms of pain. You might want to talk to your doc about it if you are really disasbled by the pain. There are quite a few risks with these meds, so you need to weigh the risks with the benefits. Good luck with the prolotherapy.
fast
04-09-2008, 11:48 PM
Hi, Sorry about the wait but I have been very sore after the Prolo therapy. I am seeing a Rheumy And he is the one that is trying me on enbrel (not working so far 5 weeks). Had to 4 months to get the enbrel and I got worse in that period and had to leave work. As far as the low ESR\CRP the Rheumy isn't saying, Although after a chat to him he is going to investigate my pain maybe a bonescan etc.
zoey1
04-10-2008, 03:27 AM
embreal did not work for me huge reaction to it.
However how far have they gone with mextotrexcate plaqinill sulfasellizen there are lots to try before the big stuff. also have you sed rate tests yet. Are they treating the inflamation?
However how far have they gone with mextotrexcate plaqinill sulfasellizen there are lots to try before the big stuff. also have you sed rate tests yet. Are they treating the inflamation?
Arthr Itis
04-10-2008, 10:51 AM
This has me wondering. I've been dealing with back pain for years and now it's in my hands, elbows, knees and feet. The rheumy said something about spondylitis but the subject got changed and I never thought anymore about it. I've tried sulfsalizine which did nothing. He has offered some of the other "big guns" but I'm not ready for them, yet. All I know is it would be nice to have a diagnosis. On the other hand, maybe it's better not knowing.
Fred
Fred