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View Full Version : Mornings: How do you guy manage the dreaded a.m.


 

 

 
gorgee
04-08-2008, 01:25 PM
First thing I must say, as I edit this post, it is how do you guys manage the dreaded a.m?

Ok I am trying to battle the mornings. I am learning to get as much as I can done the night before, like make up drinks for the boys for the morning, and also buy easy breakfast stuff like danishes and muffins for us, so it is easier.

I am so stiff and sore in the morning, and it takes me at least 3 hours to get up and go. How do you all do it, and what if you work?

I need coffee. I know that you should not drink coffee because it does not help with pain, or anxiety, but I need the caffeine. 3 hours seem to be the magic number, for me to get less sore to walk, and the meds to kick in.

What works for you all, and is this common, having fibro, for me not to work well with the mornings?

Thank you,

Kassandra

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builder
04-08-2008, 03:15 PM
I have the same problem. it is hard to even put clothes on in the morning. I bought a 4" memory foam matress pad that has helped quite a bit with my morning stiffness. It really works for me. I also have been taking Provigil. This stuff seems to wake you up almost instantly. But, I cut the pill in half so I can sleep at night.

sandy0224
04-08-2008, 03:28 PM
Honestly, after over 5 years of having fibro and other medical problems I have just decided that it takes what it takes in the morning. I take what meds I have to in the a.m. to get my kids off to school then I go back to bed, for about 3 hours, like you said! I either lay on the couch and watch morning tv, or go back to sleep. I know that I need much more sleep to function then I did before I developed fibro.

I think you are on the right track doing things at night to prepare for the morning. Mornings are terrible.....it literally takes me til about 2 pm to really get moving. I take my pain meds, etc, and just wait it out.

Don't feel guilty about this. You have an illness and like I said, it takes what it takes for you to function. If that's til noon then so be it! I'm assuming you stay home since you have the 3 hours to come alive. I fought the guilt of not being able to move in the a.m, but now my kids and whole family know that I do not do mornings and do the bare minimum til I can hit the couch or bed after they're gone. By the time they get home I'd showered, dresssed, and cleaning the kitchen! LOL

I still hurt all day long and do things in spurts too. I clean something, sit down at the computer or couch for a half hour, on and off all day long. I think it's truly a life adjustment when you have chronic pain. You just have to figure out what is the best way to manage your day so that your pain is at a minimum. Easy to say, hard to do.

I totally understand and empathize with you!!! Honestly, you sound like you have things together though and have thought this through and have a plan. So, good for you!

ps...I drink coffee too. I have to or I'd be half asleep the ENTIRE day!

Sandy

ocdsux108
04-08-2008, 04:06 PM
Hi Kass,
I have the luxury (HAHA) of waking up at 3:30am to get to work for 5am. I just started this schedule (it's been about a month now) & I've never felt worse. I used to joke that I was one of the only people I knew who was a morning person. Well, Fibro took that away from me too! In fact, now, it's 3pm & I'm still in pain! My doc gave me Cymbalta, which I'm forcing myself to take -I haven't yet though. I find that I'm at my stiffest from the time I get up till about 7am (wow...almost 3hrs too!!) then it hits me again after 12pm. I also so most things the night before. It helps alot! Honestly, my opinion is this is all trial & error until you find a point of functioning. Well, that's where I'm at now anyway. Good luck with the mornings!!
P.S. I love caffeine too but it doesn't help my fatigue AT ALL!!!!!

Grapedy
04-08-2008, 10:44 PM
Go ahead and get started on the Cymbalta. :) Nothing ventured nothing gained. Don't think of it as an anti-depressant, think of it as an added weapon in your arsenal against pain. For some strange reason, certain anti-depressants help block some of our over-active pain receptors.

At this point in my life I deal with mornings by sleeping through most of it. My work schedule is currently 2-10, so it's quite easy for me to sleep till 10 or so. By then the morning's nearly over! But I get to quit early tonight because I logged in early.

Jenn4508
04-08-2008, 11:49 PM
I also have the same issue and have to get up at 5:30am to get my son up for school and then drive him there... I also have BiPolar 1 and due to all my many meds I take, my psychiatrist prescribed Ritalin for energy, long-acting at that... It is 20 mg that I am to take at 8am and again at noon... It is supposed to last for 8 hours... When I get home from taking my son to school it is hard for me to stay awake because I have already taken one Ritalin and it is supposed to give me energy but because of all the other meds it doesn't help much... I kinda feel like Elvis Presley...

I had to quit working about 2 years ago and it still bothers me that I can no longer work... I was a big workaholic... I don't have the energy to do anything or go anywhere even if I had the money... I don't cook often because I forget about having the stove or oven on and that scares me... If I do clean, I have to take a break every 30 minutes or so.... Someday's I do nothing but sit on the couch because I hurt... I wish I felt good enough to work... Jenn

sandy0224
04-09-2008, 02:05 AM
Was wondering...do you take Lyrica? I've noticed a big difference in my pain since I've been taking it. It doesn't help the fatigue, but with some difference in my pain I've been able to deal with it more. I'm up to 100mg 2x a day. Just a thought.

bluelakelady
04-09-2008, 09:56 AM
hi kids,
guess i am the weird one again. my brother says i bounce out of bed, brain wide awake and i am off and running. he is right. before fibro i was not a morning person. sleeping in was my treat. now i wake about 5 each day and by 11 i am pooped out. afternoons are hardest energy wise.
i love that brother says i bounce. actually me and arthritis delicatly step off the bed. he never sees that part. pain is such a part of my daily life it has to be really big to get my attention. fortunatly that is not often.
sending morning energy to you all. i have plenty to spare today.
hugs and peace,
blue

Lost Robin
04-09-2008, 11:58 AM
Why does 3 (hours) seem to be the magic number? That's about how long it takes me before I feel like I can start to function in the morning. Unfortunately, I had to stop working about 2 1/2 years ago. I tried and tried to keep working but my body just wouldn't let me do it. I'm a single mom and it has really taken a toll on my family in many ways, not just financially. I also loved working, too, so it's been a very difficult adjustment and has affected every aspect of my life.

Once in a while, if for some reason I absolutely must be functional early in the morning, I set my alarm clock for 4 or 5 a.m. (depending on what time I need to be up) and take my pain meds early. I don't like to do this because it throws off my med schedule for the rest of the day but sometimes you just gotta' do what you gotta' do!

BBmama22
04-09-2008, 01:08 PM
I feel like I'm just going thru the motions or by habit. I'm sitting here at work just about to doze off. it's 11:00am and I'm so tired. Someone said they take Porvigil to wake up. Does it also acuse you to have energy? I need to know something to ask for..when I see my dr. Lord knows I'm so tired. I have one of the easiest jobs. My main challenge is staying awake and energy to get out of my chair. Dr. started me on Lyric and today it has seemed to help me with my pain, but I'm so tired...any advice is appriecated.:confused:

Glojer
04-09-2008, 02:06 PM
Ok, again I agree with blue. I was just at my rheumatologist yesterday and again he asks if I am stiff in the mornings. I finally said....well no not that stiff! I am worse in the afternoons and evenings. I am like blue, I get up and get going (but not at 5...I don't work anymore and I don't have to do that) about 7 and by 1 or maybe 2 I am done in. As the day gets into evening and I sit down and totally stop, I am so stiff.....getting out of my chair is so much effort, boy the groaning begins.

Braveman (my hubby for the newbies, blue named him that) hates my cheeriness in the morning, he is a night person and if he has to be up in the mornings I try not to be too cheery on him.....tee...hee! I really feel for those that have the morning problem, I use to have it worse in the mornings when I worked and had to stay on more of a schedule but with the ability to adjust my sleep to fit a more relaxed lifestyle I do so much better in the mornings.

Glojer

sherryrenee0423
04-09-2008, 02:54 PM
BBmama22 fms sufferers deal with fatigue anyways and the Lyrica will make it worse until your body gets used to it. My body never got used to it so my doctor took me off of it. you might try taking yourseld off of caffeine if you drink it because then you won't have the highs and lows that go along with that. good luck!

gorgee
04-09-2008, 06:11 PM
Thank you all for your wonderful posts. I read them all and I am trying remember some of the questions or things I wanted to bring up. I do not work, and I thank the lord and my husband for that. I actually started the process of applying for disability yesterday. I started working for my dad when I was 10, and I worked for him for 13 years, as I worked at other jobs too and went to college. I sometimes had 3 jobs at once and also had classes. I loved making money. I then worked real jobs, I was a flight attendant, and I loved to fly, and I was so active at all my jobs. I did my internship at Walt Disney World, and my first job there was in luggage, talk about having to be active. Even at the last job I did, management for a car rental we had to wear suits and heals, but also clean cars too. That job was so physically hard on me when I was pregnant. I got done 6 weeks before I was due, because I worked hard no matter how pregnant I was, and it was getting harder on me.

I am 31, and I am unable to work. That is a statement I never thought I would say. That is the first time I have officially said it, and I feel safe saying it here. I know the process is long applying for disability, but it would help with doctors appts., medications, and even massages.

I am on lyrica, 150 mg 2x daily. I have noticed a small difference. My dosage was just increased the other day, so we will see.

My hardest mornings are when my son goes to preschool at 9 am. I just throw some clothes on us, pack his snack the night before, and go. The boys and I get up around 7:30-8, and I am not ready for the day yet. I am thankful that his preschool is 10 houses down the road.

From what I have read, some of us work, but the majority of us stay home. How many of us stay home because we can not work due to this illness?

I have little kids, ages 2 and 4, and they have adjusted to having a slow morning watching cartoons. I used to be able to get up, get ready, and go run errands around 8 a.m. with both boys. I no longer can do that. I can't do anything till noon.

When you all are in bed, and you move or roll over, are you in pain? How do you all do with the stairs? I have to take it very easy, and make sure the boys are already down stairs, or behind me.

I wish I could not drink coffee and almost usually I drink it only in the morning. I used to have 1 cup and that was it, recently I have to have 2-3. I look forward to it, and I make it the night before so it is all set for me in the morning. It does not help me with energy, as today I have been so tired.

Like I usually say, I love it that I have people to chat with, but I am sorry we all are going through this. I think most of us say, "how did we get here?" I am so tired of body pain, body twitches when I lay down, migraines, tmj, feet pain and burning, exhaustion and on and on and on.. I want to find better ways to manage all this, with out medications.

Thank you for all your posts, and I look forward to writing to you all. I feel very lucky to have found you all, and this fibro board!

Kassandra

Jenn4508
04-10-2008, 12:52 AM
Kass - I know we have been on many boards together with many others... I can only imagine how hard it must be to have the two little ones that you have to take care of along with this little monster fibro... I think of you often and how hard it must be for you...

I know when I had to quit work it was the hardest thing I ever had to do and it still bothers me to this day and it has been almost two years... I am 45 years old and I have always worked and was a workaholic... Working 16-18 hours a day, 6 and 7 days a week and taking my laptop home all the time...

I filed for Disability after 5 months and that was finally the time I had to accept that I could no longer work... I can't stand to sit in the house day after day thinking about the life I use to have...

I agree with you, this is a wonderful place to have to come to where everyone really understands what it is we go through...

I too wish there was something that would make the pain go away without meds because even with the meds, the pain hardly goes away at all... The muscle spasms are always there and the burning and pins and needles in the hands and feet are sometimes to much to handle...

Just remember, we are all here for each other in good times and bad...

Hang in there my friends... Jenn

sweetjerseygirl
04-10-2008, 08:48 AM
Good morning Kass, Hope you are somewhat well this morning, i know they are rough on you but the bad thing is you have the two little precious one's to take care of, thats rough. When the hubby's alarm went off this morning, i remembered i forgot to make my husbands lunch because i took my walk in the early evening in my slippers like a silly girl and when i returned home i came home and told my hubby i was going to lay in bed for a bit to get off my hurting feet and ankles ! So i jumped out of bed, now how many of us can do that, but i was just like omg and did it and oh boy. Dumb on my part, its not like i didnt have enough time, but i was so sleepy, just wasnt thinking. I said to my hubby, i dont know why, when i opened my eyes i freaked cause i forgot and jumped up like a maniac, so im laying back down now......but i know it will be ok, at least i have that prevlidge. Well my dear, you enjoy your coffee and have a wonderful day...........sending you an :angel:

bleigh
04-10-2008, 02:05 PM
I wonder if there is something to the three hour morning wake up for fibro sufferers. That's about the amount of time it takes me to get "awake." Usually wake up very stiff, painful feet, and very much feeling like I need to be asleep for a few more hours. I have noticed that if I take my Elavil an hour or so before I go to bed and if I sleep from around 11pm till at least 7:30am I feel much more awake and ready to get up. My only morning medication is coffee. We do make it half caff half decaff so it's not so strong. I admit I don't sleep like I should and I usually take my elavil at bedtime so usually I'm suffering the morning blahs. With a 4yr ofd and 5 year old and husband who works long hours it's hard to get to bed on a schedule.

I'm not a morning person by nature and fibro has made it worse. Luckily, I don't have kids who wake up at the crack of dawn and they've always seemed to understand that mommy needs extra time in the morning (even when they were babies). I like to make sure we have healthy food for our meals and breakfast is not a meal to skimp on. I try not to cook every morning, but if I'm making oatmeal I like to set out all my stuff the night before. At least then, all I have to do is pour my liquids and turn on the stove. Usually the girls have a low sugar/sugar free cereal or fruit and yogurt for breakfast. Thank goodness my 5yr old has learned how to fix their cereal bowls and wash fruit!! She was such a helper two mornings ago when I could not get out of bed till almost 1030....had been awake till 4am.

Don't know how many of you have tried experimenting with your diet, but I've learned for me that if I eat lower carb I don't have as difficult time during my day. I hope I don't come off as sounding as if diet is a cure all and I know it can be frustrating to hear folks preaching about diet and exercise. It's just for me, I almost go into a remission type state when my diet has been low carb for a couple of weeks. Huge difference in morning stiffness and daytime fatigue. I'm not committed as I should be as I don't usually take the time to prepare food for my own needs, but it truly is a blessing in getting relief when I do. Would love to hear if any of you have tried dietary changes and if it helped at all.

sandy0224
04-10-2008, 02:22 PM
I had to leave my job and it's still an issue with me 5 1/2 years later. I still grieve for it. I've never been a morning person and I worked night's, 7p to 7a. That was impossible when all the fatigue of the fibro hit me. I have the leisure of going back to bed in the mornings too, but sometimes I just feel like I should get up and move, even if it's a simple thing just to sit up and watch tv rather than laying down. Movement is so hard for me in the morning and it's the little things that get me moving.

Stretching is a big thing with me too. My muscles always feel so tight when I wake up. I stretch, try and sit up with my coffee and half the time I fall asleep sitting up!

I've really decided that it just takes me 3 hours or so and that's what I have to work with, period.

This afternoon I'm trying to clean....doing one portion of a room at a time, dusting, etc, then I sit down for a while, then do another portion.

I bet to a normal person this would sound ridiculous. Like sitting UP is a big deal or cleaning part of a room then taking a break.

Oh well, it's the way we have to be isn't it? Might as well smile and get on with it...I've got another portion of the family room calling my name! :)

I'm so glad to read all these posts...makes me feel somewhat normal, at least in the world of fibro!

Sandy :)

gorgee
04-11-2008, 10:06 AM
Good morning, or I hope it is!

We all seem to have around a 3hr mark on when we can start moving and doing things. Speaking of moving, I dislike getting out of bed, not because I am too tired and want to go back to sleep, but because it is so painful to move my body. It is terrible, and I have started to dread it even the night before, that is bad! For me to walk down the stairs, I have to put my weight on the wall and walk one step at a time, very slowly.

As I think I mentioned earlier, I made the decision to start my son in kindergarten when he is six. He turns 5 in June, but he is not ready for full day kindergarten. He has always stayed home with me, and then this past year he went to preschool down the road at a great little home based school. She believes he is not ready yet and also his pediatrician does too, and we enrolled him there again but for more days, 3 instead of 2. I am glad to have made the decision, also I have such a hard time with the mornings, I am glad I have a little bit more time to get it together, yah know what I mean.

I seem to have a pattern of my day, and I bet most of you all do too. I am terrible in the morning and in a lot of pain, I sit and take it easy for about 3 hours, then by that time I can get up and start doing things. Around 12 noon, I can go out if i need too, but I look forward to my 2 year olds nap so I don't want to miss it,so I can lay down too. He naps usually around 2, and I let him sleep till 4. At that point, I feel recharged if I took a nap, and I can do some more stuff around the house or run an errand. I have to be very careful because if I over do it, I enter into the evening in a lot of pain, mostly feet. They ache and burn if I am on them for over an hour. If I sit down, I am very sore getting up. In the evening, around 7, my body does not want to do anything more, and I take it extemely easy. I am learning to try and do things in the evening for the morning, like make the coffee, get cups and bottles full so they have their drinks, and also make sure I have easy breakfast food. My boys do not eat cereal, they like fruit and muffins.

The boys are so young that they have adjusted to mom not being able to do things. I think that is better that they are young, so they did not get used to their mom being nonfibro. My oldest is usually a charm and tells me he will take care of me. They are not too demanding in the morning, and they love cartoons, so I am so thankful. Looking back, I never wanted my boys to watch t.v, and now here I am thankful for it.

Thank you for all your wonderful morning posts. I am so greatful.

Kassandra

Jenn4508
04-11-2008, 03:28 PM
Good Morning, Afternoon or whatever it may be... I am still at the lake with Mom and it has been a blessing... I have been able to sleep in and it has been wonderful especially as we have had lots of rain.... I have tried to help wherever possible down here as it takes a big load off of Mom... Mom and Dad both tell me to take it easy as this is supposed to be my vacation... However, I get antsy sitting here as they work so hard... I have been staying up much later than usually keeping Meme (my grandma) company... so I have been sleeping in until about 10am which is 11am my time... God only knows how hard it will be when I get back home to my scheduled wake up time of 5am on Monday... I will probably not be worth much for the first couple of days but I really don't care... At least you all will understand and I can talk to you all...

I feel like I have at least been here for Mom physically and mentally in helping to lift her load some... She has been really down as her house has flooded and Meme is in pretty good health considering she is almost 92, she walks better than both my parents and myself... However, it doesn't stop any of us from doing what we need to do... Meme does need help bathing but she goes to bingo every Wednesday and reads at church on Sunday's... My Dad takes her to town on those days, 90 miles each way... He is a saint... I use to take her on Sunday's but she had me getting back here around 7 every Sunday night and Mom went off about it so Dad takes her now and he doesn't play her games... They get back here by 1:30 or 2 every Sunday... I didn't mind but Mom and Dad knew how bad it was on me with the car rides and hanging around waiting on her... But that is my Meme... My Mom has 5 other sisters and they do absolutely nothing to help her out which really makes me mad... I know if I said something to all of them it would not be pretty so I will keep my mouth shut until one day... Sorry I rambled but it does stress me out because my Mom and Dad do so much for everyone and they do it because they are wonderful people... Both my Mom and Dad always take my oldest son aside when he is down here and ask how I am doing... They know deep down that I have a hard time with the fibro and BiPolar 1... But I try to keep a good outlook when I talk to them, they have enough to worry about...

Well, I have rambled enough to all my angels out there and so I will send some angels to sit with you all :angel::angel::angel::angel: Jenn

suzanna80
04-27-2008, 08:45 AM
I was never a morning person and the fibro (plus underactive thyroid) has made it worse, but I force myself to get up to make a cup of tea and then I go back to bed or sit on the sofa watching morning programmes for about an hour to two, then I wash the breakfast dishes and watch more morning to lunchtime tv. It helps me a lot.

I still have to nap at about four pm in the afternoon, and I sleep for an hour sometimes and it helps me to tackle the evening, sometimes gives me that extra energy to cook dinner (my dad works full time, my younger brother works part time, and my other brother can't cook, and my mum is in a lot of pain herself, she is waiting for a second hip operation!)

Still, I find if I relax enough during the day I have enough energy ... coffee helps sometimes and the odd cube of chocolate or two.





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