jewels26
04-09-2008, 06:51 PM
hi
hope you are all well and coping
i am really writing to see if it's possible i may have fibro so i will start with my list of symptoms
general aches and pains all over my body most of the time
numbness and tingling sensations
weekness in limbs
mobility is very poor. i can not walk distances and when out and about i use my crutches
stiffness
tight sensation in my feet although they are not swollen
at times sensitivity to light, noise etc
muscle spasms
generalised anxiety
sleep issues
cognitive issues
definate sore spots around my body
visual issues
my mobility has got worse over the months but i'm sure it's due to inactivity and the symptoms and mobility to change day to day. i'm not doing any exercise. one i day i can't climb the stairs very well then the next day alot easier. the severity of the symptoms are always changing day to day. i have had blood tests, cat scan, mri and nothing has shown up. i think it may be something in our family as as other close relatives have complained of simular symptoms over the years but doctors have always put it down to "bad nerves". for example my aunt has a high sensitivity to medications and we have compared notes and symptoms over the years. i have had symptoms or started wiith the anxiety when i was 16, had 2 whiplash injuries over the years. i am now 39. i have n't been out of the house for weeks as i just have no motivation and i am dangerously close to developing agraphobia. i do feel like as my life has been taken away. it seems like it has taken control on my life. but only i can change that, i no.
the aches ad pains and simular symptoms to above have come and gone over the years and i am starting to wonder if these have been flare ups. my mobility has never been effected like this though although after reading somes of the posts i no it's a possibility
any imput would be great
loads of thanks
Julie :)
hope you are all well and coping
i am really writing to see if it's possible i may have fibro so i will start with my list of symptoms
general aches and pains all over my body most of the time
numbness and tingling sensations
weekness in limbs
mobility is very poor. i can not walk distances and when out and about i use my crutches
stiffness
tight sensation in my feet although they are not swollen
at times sensitivity to light, noise etc
muscle spasms
generalised anxiety
sleep issues
cognitive issues
definate sore spots around my body
visual issues
my mobility has got worse over the months but i'm sure it's due to inactivity and the symptoms and mobility to change day to day. i'm not doing any exercise. one i day i can't climb the stairs very well then the next day alot easier. the severity of the symptoms are always changing day to day. i have had blood tests, cat scan, mri and nothing has shown up. i think it may be something in our family as as other close relatives have complained of simular symptoms over the years but doctors have always put it down to "bad nerves". for example my aunt has a high sensitivity to medications and we have compared notes and symptoms over the years. i have had symptoms or started wiith the anxiety when i was 16, had 2 whiplash injuries over the years. i am now 39. i have n't been out of the house for weeks as i just have no motivation and i am dangerously close to developing agraphobia. i do feel like as my life has been taken away. it seems like it has taken control on my life. but only i can change that, i no.
the aches ad pains and simular symptoms to above have come and gone over the years and i am starting to wonder if these have been flare ups. my mobility has never been effected like this though although after reading somes of the posts i no it's a possibility
any imput would be great
loads of thanks
Julie :)
Sponsor
gaudet2
04-09-2008, 07:16 PM
julie...welcome! :wave:
It is a likely possibility that you could have fibro as a lot of your symptoms are related. I would discuss with your PCP that you would like to be referred to a rheumatologist for a consultation. The rheumatologist is who diagnosed my fibro, and they will be able to rule out other auto immune disorders as well. Also, if you do have fibro, exercise helps a lot. I have been told to start out at 5 minutes a day for the first month doing low impact exercising such as walking or swimming and then increase by 5 minutes each month. It will take you a year to get to an hour of exercise, but he advised that your body will thank you. Good luck and I hope you start to feel better.
gaudet2
It is a likely possibility that you could have fibro as a lot of your symptoms are related. I would discuss with your PCP that you would like to be referred to a rheumatologist for a consultation. The rheumatologist is who diagnosed my fibro, and they will be able to rule out other auto immune disorders as well. Also, if you do have fibro, exercise helps a lot. I have been told to start out at 5 minutes a day for the first month doing low impact exercising such as walking or swimming and then increase by 5 minutes each month. It will take you a year to get to an hour of exercise, but he advised that your body will thank you. Good luck and I hope you start to feel better.
gaudet2
sandy0224
04-09-2008, 07:28 PM
Hi :) I'm new too. I also was diagnosed by a rheumatologist. They are able to rule out other problems first with blood work, etc. I do have a couple positive immune illness factors, but nobody can tell me exactly what I have except the fibro is certain.
Your symptoms sound very much like mine. I always find the cognitive issues the scariest. I really forgot how to work the remote control the other day. It just got LOST somewhere in this head of mine. I starred at that thing for the longest time before I figured out how it worked. Then I did some other things recently that have scared me to death...just forgotten words, etc.
It might be a good idea to have your thyroid checked as well because the numbness and tingling can be related to that. I was hypothyroid as well.
Anyway, glad you're here!
Sandy
Your symptoms sound very much like mine. I always find the cognitive issues the scariest. I really forgot how to work the remote control the other day. It just got LOST somewhere in this head of mine. I starred at that thing for the longest time before I figured out how it worked. Then I did some other things recently that have scared me to death...just forgotten words, etc.
It might be a good idea to have your thyroid checked as well because the numbness and tingling can be related to that. I was hypothyroid as well.
Anyway, glad you're here!
Sandy
sweetjerseygirl
04-09-2008, 11:37 PM
Hi and welcome, you have found yourself in a good place. There are alot of kind and caring people here. Most of us have had some type of trauma, you have had two whiplashes. I had an accident, had back surgery and went through a lot after that. Then i noticed all the changes in my body and i wasnt the same but i couldnt understand why. I had the surgery, did rehab, did everything they told me to do, was off the meds, thought i was better and would be 100% again but i never was. :( I had so much energy before you could barely stop me, I went through something similar. Lots of tests, blood tests, then it was different prescriptions. My doctor or doctors could never find anything, he would be practically scratching his head and i would always leave feeling disappointed. Maybe with a new prescription in hand. I started having stomach problems, constantly complaining about these sharp pains though out different parts of the body. I never felt good but kept pushing myself and would get knocked down often. Most of the time when i would wake up the first words out of my mouth was, i feel like a mack truck hit me, my face would be hurting, i would be achey, my hands hurt. Would almost like pass out at times, even at work. It was ten years of suddently putting the pieces to the puzzle together and it was the rummy who found out about the fibro, so i would take that suggestion. Good luck to you and if you are diagnosed i hope they can get you on proper medications as quickly as possible so you will be able to function with less pain. Mornings seem to be the worst for most of us. It is a good idea to keep moving, even in small bouts, so your muscles dont stiffen up too much. It makes it harder to get them going again and can be more painful. some type of exercise is a good idea for us but like i said baby steps first, even the smallest walks are helpful, so you can get rid of your crutches. Hope you find out soon enough so you can get on the right track with things. Have a good one and get to feeling better.
gaudet2
04-10-2008, 12:03 AM
I agree with you sandy. Cognitive issues are up there as being one of the worst parts of fibro. That is what ultimately pulled me out of work. Even the smallest, easiest of tasks I was making errors on at work. I was always the "go to" person at work and when someone would ask me a question I was now just staring at them like they had 12 heads because I couldn't even comprehend the question they just asked me. I have always prided myself on being able to help others and now I feel like that is being taken away from me.
Today, for example, I kept calling Q-Tips toothpicks. Can you imagine if I actually tried to use a toothpick like a Q-Tip? Luckily my brother was there and set me straight.
Has anyone found anything that has helped them with their cognitive issues? This is my major problem aside from the pain, but we can manage the pain. I can't figure out how to fix the "fibro fog".
gaudet2
Today, for example, I kept calling Q-Tips toothpicks. Can you imagine if I actually tried to use a toothpick like a Q-Tip? Luckily my brother was there and set me straight.
Has anyone found anything that has helped them with their cognitive issues? This is my major problem aside from the pain, but we can manage the pain. I can't figure out how to fix the "fibro fog".
gaudet2
mista0316
04-10-2008, 04:44 PM
Hi Jewels,
There is a possibility that you do have fibro. With the trauma that you had could be the cause. Fibro is brought on by trauma. Exercise is very important. A little bit everyday to keep your body working is very important. Believe it or not you hurt a little less if you exercise. I know it hurts but, for me the pain is a little less intense when I exercise.
Hi Sandy,
I have been forgetting alot too. It's really weird how you can just pick up something you have been doing for years and have no clue on how it works. I have been doing a lot of that lately. Just this morning I had put the bread in the toaster oven and just kept stairring at it wondering how it works. My husband askes me what am I doing? I told him I couldn't remember how it works. Then he showed me. He had noticed that I've been doing that a lot lately. I am going to see my DR next week and hope I don't forget to look on my list of things to ask..
Sorry I wrote more than I thought. I just wanted to let you know you are not alone.
take care,
M
There is a possibility that you do have fibro. With the trauma that you had could be the cause. Fibro is brought on by trauma. Exercise is very important. A little bit everyday to keep your body working is very important. Believe it or not you hurt a little less if you exercise. I know it hurts but, for me the pain is a little less intense when I exercise.
Hi Sandy,
I have been forgetting alot too. It's really weird how you can just pick up something you have been doing for years and have no clue on how it works. I have been doing a lot of that lately. Just this morning I had put the bread in the toaster oven and just kept stairring at it wondering how it works. My husband askes me what am I doing? I told him I couldn't remember how it works. Then he showed me. He had noticed that I've been doing that a lot lately. I am going to see my DR next week and hope I don't forget to look on my list of things to ask..
Sorry I wrote more than I thought. I just wanted to let you know you are not alone.
take care,
M
jewels26
04-10-2008, 07:16 PM
hi all
thank you all for your replies. it is reasuring to hear from others and comforting.
i had a community physio come out to visit me today who was lovely and been a physio for 30 years but when i mentioned that i could possibly have fibro she said she didn't think that it could cause disability to the extent people found it so difficult to walk. i did say that from what i have read that actually she would be quite surprised at the list off symptoms which can occur. just an indication that more education on fibro is needed.
i did forget to mention about the fatigue and stiffness in the mornings, it does tend to ease in the after noons then gets worse again in the evenings. i am finding relaxation techniques helpful to an extent so shall continue with those
thankyou all for your input
Keep well and safe
Julie :)
thank you all for your replies. it is reasuring to hear from others and comforting.
i had a community physio come out to visit me today who was lovely and been a physio for 30 years but when i mentioned that i could possibly have fibro she said she didn't think that it could cause disability to the extent people found it so difficult to walk. i did say that from what i have read that actually she would be quite surprised at the list off symptoms which can occur. just an indication that more education on fibro is needed.
i did forget to mention about the fatigue and stiffness in the mornings, it does tend to ease in the after noons then gets worse again in the evenings. i am finding relaxation techniques helpful to an extent so shall continue with those
thankyou all for your input
Keep well and safe
Julie :)