Glojer
04-10-2008, 09:52 PM
I know blue had said at one time she was taking baclofen, but I am sure others also take it. I have been taking it for about a year maybe a little longer. I use to take zanaflex, but my liver didn't like that med. So now I am on baclofen. I started on 10mgs. at night, then moved to 10mgs. day and night. I eventually moved up to 20mgs. night and 10mgs. day. I am now having lots of sleep problems even with sleep meds, I take an ambienCR 12.5, the baclofen and 50mgs benadryl. Experimenting on my own I upped my baclofen and finally had enough muscle relaxtion to sleep and feel better in the AM.
When I went to my docs visit Tues. I told him I had tried a higher dosage of baclofen and he now has me trying 20mgs. two hours before bedtime and if I'm not relaxing enough then another 10mgs. at bedtime. FINALLY....my question....I know I can go on and on sometimes.....How high a dosage have others found to work for them???? I know we are all different but I am curious as to the 'average' dosage for we fibromights. My doc says we have up to (ok, fibro fog) I think he said 60mgs to work with (or it could have been 80mg....the fog is wonderful) and I really don't want to get the high. Just any comments anyone has who has or still uses baclofen would be appreciated.
Thanks fellow fmers
Glojer
When I went to my docs visit Tues. I told him I had tried a higher dosage of baclofen and he now has me trying 20mgs. two hours before bedtime and if I'm not relaxing enough then another 10mgs. at bedtime. FINALLY....my question....I know I can go on and on sometimes.....How high a dosage have others found to work for them???? I know we are all different but I am curious as to the 'average' dosage for we fibromights. My doc says we have up to (ok, fibro fog) I think he said 60mgs to work with (or it could have been 80mg....the fog is wonderful) and I really don't want to get the high. Just any comments anyone has who has or still uses baclofen would be appreciated.
Thanks fellow fmers
Glojer
Sponsor
bluelakelady
04-11-2008, 10:52 AM
hi gjojer,
there should not be any "high sensation" associated with baclofen. the worry would be constipation. if that is not an issue then go ahead with the docs plan.
the most i have taken at a time is 20mg. worked some long days moving a couple of years ago and was taking them like candy to get thru the whole mess. i think i was taking a total of 60mg a day.
sorry you are having trouble sleeping. did it start after the change in daylight?
give braveman and miracleman big sloppy mushy hugs for me and slobbery wet kisses on their cheeks.
love,
blue
there should not be any "high sensation" associated with baclofen. the worry would be constipation. if that is not an issue then go ahead with the docs plan.
the most i have taken at a time is 20mg. worked some long days moving a couple of years ago and was taking them like candy to get thru the whole mess. i think i was taking a total of 60mg a day.
sorry you are having trouble sleeping. did it start after the change in daylight?
give braveman and miracleman big sloppy mushy hugs for me and slobbery wet kisses on their cheeks.
love,
blue
Glojer
04-12-2008, 12:23 AM
I remember that move, we were all amazed that you could do that and still live to tell about it. You did a wonderful job, if memory serves me.
I didn't mean to say I didn't want to get THE high, but rather to say I didn't want to get THAT high in dosage. I have had some foggy days lately! I went to the grocery store today and Oh, what fun. I just relax and enjoy the ride.
I do seem to do better with the higher mgs. of baclofen, I am going to try the extra mgs. for sure. No sense turning my nose up on something that can help. I've already tried it and it has helped me to start out of a flare. I knew my rheumy would be ok with trying the extra dose, after 5yrs. we have learned a way of communicating.
I will give braveman and miracleman your hugs. We will be seeing miracleman soon, we have been unable to go see him for a couple months. He was sick with the cold and sinus stuff and some sort of virus was going around the nursing home. Braveman still has to be very careful! We are anxious to see how he is doing, we only get reports by phone.
How are you doing these days. I have been AWOL for a few weeks, time just seems to get away from me. I hate that cause I miss talking to you and everyone. I miss golden and wonder how she and compassionman are doing. I have them in my prayers along with you and everyone here.
Take Care
Glojer
I didn't mean to say I didn't want to get THE high, but rather to say I didn't want to get THAT high in dosage. I have had some foggy days lately! I went to the grocery store today and Oh, what fun. I just relax and enjoy the ride.
I do seem to do better with the higher mgs. of baclofen, I am going to try the extra mgs. for sure. No sense turning my nose up on something that can help. I've already tried it and it has helped me to start out of a flare. I knew my rheumy would be ok with trying the extra dose, after 5yrs. we have learned a way of communicating.
I will give braveman and miracleman your hugs. We will be seeing miracleman soon, we have been unable to go see him for a couple months. He was sick with the cold and sinus stuff and some sort of virus was going around the nursing home. Braveman still has to be very careful! We are anxious to see how he is doing, we only get reports by phone.
How are you doing these days. I have been AWOL for a few weeks, time just seems to get away from me. I hate that cause I miss talking to you and everyone. I miss golden and wonder how she and compassionman are doing. I have them in my prayers along with you and everyone here.
Take Care
Glojer
bluelakelady
04-12-2008, 11:24 AM
giggle, and here i thought you were looking to get high. tee hee. fibro fog sure is silly fun sometimes.
i am doing good. went to a neuro who says my mri's were misread and there is no stroke damage to my brain. he even said till this upcoming mri comes back he won't even use the word stroke for me. the aggrenox was bad news. quit that and then new doc said stay off it and go back to asprine (darn sp is wrong!). anyway, i asked him, then what is going on inside me? answer, i don't know. so, leaves me with a "normal" brain, giggle, which is grand news. still no explaination for what has happened. we see. i am not worried. i asked him if this means i am back to being just weird old marci who presents with symptoms unexplainable. love to challenge them i suppose. giggle.
you know how i have a way of knowing things? we will see our golden friend again soon. i trust my feelings. i feel frustration not illness. giggle. maybe it's her computer. that would do it for me.
actually girlfriend i am feeling so good i plan to shave my head then go out and strap on the weedeater and shave my weeds too!! giggle.
hugs, peace, and love,
blue
i am doing good. went to a neuro who says my mri's were misread and there is no stroke damage to my brain. he even said till this upcoming mri comes back he won't even use the word stroke for me. the aggrenox was bad news. quit that and then new doc said stay off it and go back to asprine (darn sp is wrong!). anyway, i asked him, then what is going on inside me? answer, i don't know. so, leaves me with a "normal" brain, giggle, which is grand news. still no explaination for what has happened. we see. i am not worried. i asked him if this means i am back to being just weird old marci who presents with symptoms unexplainable. love to challenge them i suppose. giggle.
you know how i have a way of knowing things? we will see our golden friend again soon. i trust my feelings. i feel frustration not illness. giggle. maybe it's her computer. that would do it for me.
actually girlfriend i am feeling so good i plan to shave my head then go out and strap on the weedeater and shave my weeds too!! giggle.
hugs, peace, and love,
blue
Glojer
04-12-2008, 03:11 PM
A normal brain.....How do I get one of those....she says laughing! Really I am so glad to hear it wasn't a stroke. Of course that does leave the 'what is it' question. You and braveman, you have these weird and unexplainable illness' and problems, always keeping the docs challenged and on their toes. That's what they are constantly saying about him.
Time to shave the head, it must be warming up your direction. We went right back to cold weather here. If you watch the national news we have had lots of flooding with all this rain. It doesn't effect me I'm on high ground, but when you live in an area with so many rivers, high water is going to get you sooner or later. This rain and the weird winter we have had with the snow and all has played heck with my joints and pain. I asked my rheumy if others had complained of such a bad winter. He said all of his patients with joint problems even the ones who don't have a serious problem. For some reason that made me feel better. I was hoping there was a light at the end of this tunnel.
Enjoy your weedeating, when the weather finally turns for the better here braveman and I are going to put out some flowers. It will be the first time in about three years. I am determine to not let fibro control my life, the only way I know how to do that is to keep going and doing the things that make me feel good. And flowers always make me feel good.
Keep Hanging in there friend!
Glojer
Time to shave the head, it must be warming up your direction. We went right back to cold weather here. If you watch the national news we have had lots of flooding with all this rain. It doesn't effect me I'm on high ground, but when you live in an area with so many rivers, high water is going to get you sooner or later. This rain and the weird winter we have had with the snow and all has played heck with my joints and pain. I asked my rheumy if others had complained of such a bad winter. He said all of his patients with joint problems even the ones who don't have a serious problem. For some reason that made me feel better. I was hoping there was a light at the end of this tunnel.
Enjoy your weedeating, when the weather finally turns for the better here braveman and I are going to put out some flowers. It will be the first time in about three years. I am determine to not let fibro control my life, the only way I know how to do that is to keep going and doing the things that make me feel good. And flowers always make me feel good.
Keep Hanging in there friend!
Glojer