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View Full Version : Worried and long distance!!


crazgrl
04-14-2008, 02:17 AM
Hi
My parents live a number of states away. They are both in their 70s. Mom has not had the greatest health, but she is cognitively fine. She has been telling us more and more about my father. For a long time, he has had memory issues. We have felt that it was due to aluminum in antacids that he took daily for about 20 yrs. That is a whole long other story about drs who never helped :( I saw my father over last summer so I observed a few things. But I have been told a bit more from a brother and my mother. My mother and father have always been very private about their medical issues, but out of frustration, I think my mother is opening up some more. There is a slight chance that she knows what is wrong, but I rather doubt it. This is what I do know....

You cannot have much of a conversation with Dad. He does not seem to remember anything about his past. He does do Soduku and puzzle books. He hides candy around the house. He has also been known to flush the wrappers down the toilet. He also misses the toilet while going to the bathroom. My mother has encouraged him to sit, but he won't listen to her. He also says apparently inappropriate things to people. I cannot tell what kinds of things these are. Most often these things are said to women -- teasing. My father was a minister so this is rather odd behavior for him. My mother will not go into details about the conversations, but has told me that the women have asked him to stop. When we visited recently, he repeated certain nonsense things to my 15yo dd. He has always had a mischievous streak, but it did seem quite odd to me since he did not speak much otherwise. On occasion, when I call, he is able to speak to me and answer questions. She has asked him to do thinks like pick up sticks in the yard, and he returns moments later saying he is done. She sends him out again, and he is back in a few minutes again. But my brother did say that he will do things if you give him directions.

I worked in a nursing home for a number of years. I am really concerned. I have not thought it is Alzheimer's due to his lack of long term memory, but I don't know everything about Alzheimer's. We are trying to encourage mom to take him to a neuro. I have two brothers who live within a few hours of them, but one is extremely busy and somewhat uninvolved. I would love to have my parents live with me, but I have no room (we have 6 dc) and I don't think we would be able to move to a larger home with the housing market. One big problem is that my sil thinks that my mother is seeking attention. My brother and mom had a conversation with my other brother and his wife and she yelled at my brother because she thinks that there is nothing wrong with dad and mom just wants people to feel sorry for her. I wonder if she thinks they will be expected to take my parents in. They are the only ones who have room and my brother is the power of attorney. My poor mother had open heart surgery this past year and now has to run the entire household and switch roles entirely with my father. He was her dear friend and now she has no one. When I talked to her, she sounded almost like she did not like him anymore. :( It broke my heart and did not sound like my mother at all. My brother tried to encourage her and say that Dad's behavior isn't his fault, but I don't think she will accept it until he is diagnosed with something. She has applied to two homes (hoping for an apartment), but one has not contacted her in two months and the other one is a bit beyond their price range. He is on Arocept (sp?) and one other medication that I don't know what it is. Mom is very discouraged and depressed. She is also diabetic and this is not good for her blood sugar.

Does any of this sound familiar to anyone?
I am so sad for my parents. I would love to have them here, but we just cannot do it in my present house. I am sorry to babble on, but I am so worried, sad and feel so useless so far away.

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Martha H
04-14-2008, 07:53 AM
Very familiar.

Aricept is a medication given to Dementia victims. It supposedly holds off the fast progress of the disease, but does not cure it or prevent eventual worsening.

If someone prescribed Aricept, he already has been diagnosed with Alzheimer's disease. If your mother doesn't seem to understand this, she is either in denial or is having problems herself.

Saying inappropriate things to women (or anybody) is very common in Alzheimer's. You see, we all have certain thoughts which we do not express out loud - but the AD patient has lost the inhibitions that prevented him from saying them. Now he says whatever comes to mind. Having been a minister makes it more embarrassing, but he cannot help it at all. Going outside to complete a task and not remembering what he was supposed to do (thus saying "I'm finished" ) is also typical. By the time he got out there, he had no idea what the task was, both times.

Your nearby family memers are desperately trying to shrug it off or blame the caregiver -this is more than typical. It also happened to me. It was MY fault that Mom was getting lost, forgetting to bathe, and 2000 other things. The person who thinks your mother is exaggerating to get attention should take your Dad for 30 days just to see how much HE 'exaggerates' after that! He will be first in line to admit him to a nursing home. It is easy to criticise, hard to find a real solution.

You may have to go to your parents home and see for yourself. Your mother feels overwhelmed, scared, and at her wits end. Your Dad needs constant help. At the least, he should be in Day Care for adults for several hours a day to give her a break. You have no idea how frustrating and difficult it is to be alone with a person who has changed so radically. Sounds like she doesn't like him any more? She loves him, but she hates this disease which has already taken away much of what she used to love.

He needs help, she needs help. All the kids have to get together -even if it's by phone - and make out a plan. Get a specialist's opinion. This only gets worse. Intervene now before something bizarre happens. I hope he is not driving a car, for example, or fooling around with guns in the house? All that has to be taken out of his reach.

I sympathize with you, but someone has to stand up and 'be a hero' for your parents!

love,

Martha

ibake&pray
04-14-2008, 11:34 AM
Martha gave you good advice.

Another thing is that people with the disease can focus well for a short while-such as while they are on the phone. So, you may be able to carry on a conversation with your dad and think that he is doing OK because he answered you appropriately and was lucid for the entire time. They have that ability. But I bet that if you asked him who he was talking to he didn't have a clue.

I live in VA and my folks were in Minn. so I know how awful it is to live in one state and have your folks far away and have them suffering-but refusing to admit how bad it is. You need to go and stay with them for a few weeks to make sure that the bills are being paid, that they are eating right, that your dad isn't wandering... then all of you kids need to decide as a group what needs to be done for your parents. Whether it is assisted living or what. Someone needs to help your Mom find a place for them to live. Don't let her struggle on her own. It sounds like she is at the end of her rope and is past being able to make rational decisions. She will just settle for whatever comes along at this point.

good luck...you are in my thoughts and prayers.....

 
 
 




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