stillhere50
04-21-2008, 09:55 PM
I have replied to a few posts on this health board and have received some encouraging replies. I am not sure why I am posting this now but I have been from one end of the spectrum to the other and maybe I just need some words from someone else who knows exactly what I am talking about. Diagnosed with Hep C in June of 2006, liver almost in last stages of failure, liver transplant 12/06. Numerous bothersome infections and 1 transplant rejection in hospital immediately following transplant. Back home in Feb. 2007 and returned to work in March 2007. Lots of ups and downs in those 9 months. Depressed, elated, trying to tell my family what each and every one meant to me because I didn't want to get to the point where I could not. I ran the full circle of emotions, very hard because I have always been an on the go, independent and self sufficient person. Anyway, treatment did not work for me and now I go for my first liver biopsy in 2 days. I really don't want to do it because there is nothing the Drs. can do, whatever the results of the biopsy. Ya'll just say a prayer for me and for my loved ones. Didn't come this far to give up, just need some support right now. My family (particularly my wife gives me alot of support but I feel more of a burden than a husband. Thanks for letting me get this off my chest.
eyesworld
04-21-2008, 11:00 PM
I'll be praying for you:angel:
{{{{{{{{{{stillhere 50}}}}}}}}}}
neena1127
04-23-2008, 01:23 AM
Hey StillHere50, I'll be praying for you as well. And I will add you to our 'prayer circle' at work so that many will be praying for you.
Recently diagnosed with HepC and waiting to see a specialist on May 9.
I watched my stepdad pass - it was long, slow and agonizing - 18 months trying to recover from ulcer complications, fed by machine, etc. - he lived longer than they originally thought they said a week, it turned out to be 18 months of suffering - but I do recall - vividly - as they gave him last rights I thought of all the things I never said to him because we always thought there would be time - this man who raised me, took me to my first circus, cared for me , my mother and my grandparents, and I was filled with a need to have him know how much I loved him and how wonderful a father he was and I was scared, genuinely scared, I would not get that chance. After that I knew that despite the plans of man, we never really know when the words we speak to any of our loved ones might be our last - so tell them everyday how much they mean to you.
Now I tell everyone - :angel:treat me as if this were the last time you might see me.
My prayers will be with you and your family.
phovo
04-26-2008, 01:49 PM
Well said, Neena. Count me in with the ts&ps.
stillhere50
05-06-2008, 05:46 PM
I appreciate the positive responses I received from my last post. Had a liver biopsy on 4/24/08 (CT guided biopsy). Bottom line, my new transplanted liver (had it for 16 months) shows inflammation from the Hep C but there is no fibrosis or cirrohsis. It looks no different than my biopsy in 2/07. Needed some good news :)
neena1127
05-07-2008, 12:21 AM
StillHere - this is good news! no fibrosis! I see the hepatologist (liver doc I guess) on Thursday. I've learned from reading posts to ask lots of questions - write them down and take them with you!
I will keep you in my prayers and pray for your continued improvement and good health.
Be well.
Neena