hi on friday i was having a seizure and after it was over i called my neiro dr and i was trying to talk to him about my seizures getting worse ,he told me in a nasty kind of way IF YOU CALL ANYMORE i will dismiss you ,no questions ask and then he hung up on me that was the only time i ever called his office i even pleaded with him to take me off the depakote cause for one they make me extremly tired and i been on them since dec im very moody and crabby my moods are bad i cry i just dont like them one bit i do have another neuro appt with another dr because he hurt my feelings really bad plus i was suppose to have a MRI done but he decided to try the medications first which did help for allmost 5 mos but the way he treated me on friday wasnt very professional for a dr to treat his patient ,i have never ever had a dr treat me this way ever.he told me to call 911 i cant keep calling 911 everytime i have a seizure .i liked him at first but now i dont after what he did also i have told him about my horrible headaches and he wont do nothing about them and a neuro should help with headaches too both my sisters went to this same dr for there headaches and he fixed theres ,so he blew it when he got mean to me im not letting anyone and exspecially not a dr treat me with disrespect hes suppose to be helping me not treat me like that.
vickie

Hi Vickie,
I went through something similar a few years ago. It was only a couple of years after I had started taking meds for my seizures, and I didn't know my neuro wanted to see me every few months. I was young, and didn't have a lot of experience with a chronic condition like this, so I kept having my meds refilled, and it was probably a year since I'd last seen my neuro. the day before I was going on vacation, I called in my prescription, and the pharmacy called me back and said that the doctor wouldn't refill it. So I called my neuro, and he was very snippy to me on the phone and said he wouldn;t permit a refill on my prescripotion because I hadn't had an appointmernt with him in so long. I said I needed them because I was leaving on a trip and couldn't be in to see him immediately, and I was all out. And he basically told me he didn't want to deal with someone who was just going to take meds and never come in for a check-up. He was very mean to me, and I was very upset. I went to the pharmacy, and luckily, they understood that I couldn't be without my seizure meds, and did a refill for me anyway. But I seriously would have been left without my meds for at least a week if the people working at the pharmacy weren't so understanding because he was too angry to say something like, "Okay, I'll okay a refill now, but you have to make an appointment."
As soon as I got back from my trip, I went to see my primary doc, and got a referral to a different neurologist.

thank you sentencedoing
iam changing drs for one i have went to every appt i was suppose to go to and he checked my levels at 5 mos was that too soon?? ranges are 50-100 he said mine was 50.9 he said mine was suppose to be like 85-100 ok thats cool but shouldnt he have gave me more time to up the dose ? and yes this new neuro dr im going to is there monday through friday 8-5pm so hubby can take me this one im leaving is only there 2-3 days a week and leaves by 2pm i dont like his staff very well either for one have you ever went to a drs office and they not have even one wheelchair?? i see the new neuro dr may 12th at 4pm and she said if we are a little late not to worry come anyway my old one im leaving i was like 3 mins late cause we couldnt find his office the first time so they made me change my appt so da heck with him there are lots of other neuro drs out there and nicer ones too plus why he wouldnt take me off depakote i dont know i do not like them one bit i have 3 nieces who took it too but for bipolar and they were mean and moody and it never worked on them either .they have lots of different meds out there for seizures a friend of ours had a bad seizure and hes on keppra 1000mgs and he started his long before i did hes older then me and has never had any trouble out of his and has not had one seizure since .
so off to the new neuro dr i go on may 12th at 4pm my hubby even likes it better since he wont have to miss work .
thanks so much sentencedoing for responding did your neuro find your seizures on tests or did they go by your symtons ????
cause all my test came back normal but a mental place told me that if i took the depakote for 5 mos and didnt have any seizures its most likely seizures i had a few drs trying to tell me it was severe panic but the mental place said you do not fall down and do what i do with panic plus i been having seizures in my sleep lately too.
thanks vickie:)

thanks so much sentencedoing for responding did your neuro find your seizures on tests or did they go by your symtons ????
cause all my test came back normal but a mental place told me that if i took the depakote for 5 mos and didnt have any seizures its most likely seizures i had a few drs trying to tell me it was severe panic but the mental place said you do not fall down and do what i do with panic plus i been having seizures in my sleep lately too.
thanks vickie:)

My doctors mostly diagnosed me from my symptoms. My EEG's were abnormal, but I think they were all confused by the fact that my seizures can last up to hours at a time. One of the doctors said maybe it wasn't seizures, but then said they must be since I was responding well to the meds. They're not totally under control yet, though, which is why I'm going to have a VEEG in July.

It is "said" that if you can't be treated with anti-epileptic drugs, then most likely you are having psycho-genic seizures. Supposedly only "True Epileptics" can have their seizures reduced with AEDs.

OK, two years into this and I'm on my fifth medication comboniation. I flat-out asked my doc if he thought they were psychogenic and he said absolutely not...even though my last EEG was norma. My first EEG was not, however plus I had seizures as an infant and took phenobarbatol until I was 2.

I'd say, in your case, that the best thing to do would be to see an Epileptologist at a major Epilepsy Center. You don't deserve the treatment your current Neurologist is providing.

Hi, I had one Doctor for 12 years and my mom and I were up at Disney foe the weekend and happened 3 times, we got back and my mom call the doctor, and he told her, he didn't know what the _ _ _ _ to do anymore and that I needed to find a different doctor and hung up. The doctor after that said we were going to keep doing the same thing and she told him that was not working that was way we changed doctors, he told her that he was the doctor and that was what we were going to do and she told him NO and his comment to that was, there are people worse off then I was and I needed to get a _ _ _ dam life and walked out. I also had one doctor when I was 14 ask my what kind of drugs I wanted, he was not sure what was wrong but I needed to be on drugs and what kind did I want. There were lots of things I could have said but I don't like taking any drugs, advil is bad enough. I stop seeing any doctors for a long time till I found out about Dr. Tatun and now my Neurosurgeon Dr. Vale in Tampa. Dr. Vale is AWSOME and listens. Good Luck with everything, Jen.

BAD BAD Neuros! I would have been looking for another one!

I LOVE Tripp's neuro!! I can not tell you the number of times I have called her. If she does not come right to the phone she returns my call ASAP. She has even called me before checking on Tripp after I had called her 3 times in one day because Tripp kept having seizures and each time she would tell me what to do or called in some other meds. I can not say just how wonderful she and her staff are!! I feel bad that she does not charge me for these calls. ;)

I don't know if this really will help you or not but it's a sort of funny story.

Where I live I really don't have a choice of neuros. There is one hospital in the area that deals with the things that I have going on inside my head.

I had one woman neuro that was a real (swear word!!!). She really didn't listen to what I had to say and would tell Me what My symptoms were and what was wrong. Even when we would tell her things and suggest things it didn't matter she was the boss.

Well every time I go to the neuro I have to take out all the meds that I am on and show it to them so they know. I have bad problems with dry skin and the dermatologist gave me a lotion for it. My family calls it my "scabies cream"

Well I didn't know that scabies was an actual thing. It's a bug that you can get in your skin and you have to use all sorts of creams and meds to get rid of it.

I had been looking for it to use it and I hadn't been able to find it. When I was taking all my meds out of my bag there was the cream at the very bottom of the bag.

I looked over at my mom, who had taken me to the appointment, and said "Here's my scabies cream!"

The neuro started stepping away from me with a really scared look on her face. Well needless to say I haven't seen her since and have a new wonderful neuro! I don't know if she sent me off to him or not because she thought I had scabies or not but it all worked out for the better in the end.

Don't know if maybe you could find some scabies cream and it would get rid of your lousy doc or not;)

Good luck though

i found a new neuro dr i go the 12th and im hoping he/she is much better for one i told him the old one im seeing now that the depakote makes me very tired he said he never ever heard of that and said i must be tired from something else plus i have the horrible bad headaches and he wont treat me for headaches and then he acts as though he dont care as long as he gets his money well the new place im going to is at a hospital and they have more then just one dr there and are ope 5 days a week and from 8-5pm this one im leaving is there 2-3 days a week sometimes less and hes only there till 1:30pm so yes i hope thi new one helps cause i know for a fact i was never tired like iam now till i started on the depakote plus it makes me crabby he still wouldnt listen said its not the depakote well i called the drugstore and they said yes it does cause this plus its right on the bottle i should go shove it in his face and have him read what the bottle says but im not im just going to the new neuro and also when i was at one of my appts before he upped my dose i had a seizure right there in the waiting room they did nothing alls they said was your going to have to get up how do you get up while having a seizure the staff and him dont even care about there patients it seemed like .
vickie