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kelly64
04-30-2008, 02:53 PM
I am going for a my 1st EEG in the morning after no sleep for 24hrs

I was in a car crash in 05 and been having black outs and full body spasms
they got so bad I would fall from them, my Q is will the EEG pick this up?
I found that stress /pain and the cold can bring them on, just me going to the store and talking with someone will make me go in to them, not fun,
and in my sleep sometimes I am not all the way under and I can not move and hear things its like being frozen, then it feels as someone is jumping on my bed I know I try and come out of it and know when I do I can tell you what I hear on the TV in the next room, (if its on) so I know I am awake but cant move , and my eye site is getting worse, went and had my eyes check and seen a red tint, I told the eye Dr and he said something to me about TBI,
what is all of this?

please any info would help,

thank you
kelly

life_is_good
04-30-2008, 04:33 PM
TBI is traumatic brain injury. If you do a search, you can get all sorts of info on it. A 24 hour EEG should give a pretty good idea of what's going on. It's hard staying up all night, I've had several of these tests. If you have long hair, you may want to bring a scrunchie.

The importance of staying up all night is to put your body under stress and fatigue. This is when you are most apt to have a seizure. They'll flash some lights and make you hyperventilate, even allow you to fall asleep during the EEG to get different recordings. There could be seizure activity showing up on the EEG and you may not even feel a thing. But not everyone with epilepsy has abnormal EEGs.

Hope this helps.

kelly64
04-30-2008, 05:55 PM
yes thank you, but do they sound like seizure ? I know all of this started slowey after my car crash, and its been getting worse! my hole family has see a chang in me, and not a good one, I to the point to where I am home bond and will not let anyone in, in fear of them seeing this chang in me, this is really freeking me out,

thank you again for your help
kelly

life_is_good
04-30-2008, 06:53 PM
If they're true seizures, they'll most likely show up. If they're pseudoseizures, I do not think that they will record on an EEG and then it would be more of an anxiety thing. Whatever is causing these episodes must be very frightening and I hope they can figure it all out.

Good luck staying up tonight! Let me know how it goes.

soccerschmee14
04-30-2008, 10:46 PM
you could very well be having szs. hopefully the eeg will be helpful, but like the above poster said even if it is normal that doesnt mean you dont have e. some ppl have to be having szs at the time for the eeg to be abnormal. and also i just wanted to comment on what you said about how you feel "frozen" sometimes when you sleep. it sounds kind of like sleep paralysis to me. i have had that happen to me a couple of times and it is very scary. i will wake up from sleeping and not be able to move at all. i dont know if that is what your experiencing at all but i thought i would just throw it out there. good luck with the eeg.

kelly64
04-30-2008, 11:18 PM
yep that is what I am talking about, but also I can be just falling to sleep and it happens and can not move,feels as someone is jumping on my bed witch I know there is no one there, and hear sounds, All I know just want to open my eyes and yell for help or for someone to come and get me, pull me out of that, there has been times when it happens more then one time in a night, like when I come out of it and then think I am losing my mind and again just as I am falling to sleep it will happen again, and yes I have wet my bed ,not something I like to tell anyone,

thank you for your help, and its going to be a long night, I just know I want to know whats going on then not know, I can handle knowing then not knowing,

life_is_good
05-01-2008, 06:44 AM
Wetting the bed could be indicative of a seizure and something you should definitely mention to the neurologist. Good luck with your test today.

Travis from MN
05-01-2008, 10:59 AM
I've had bladder issues happen in grand-mal's. Rare, but I have had that happen. The muscle simply relaxes post seizure, nothing we can do about it, part of life.

The test can be helping to show if there is any damage to the brain (in electrical activity). A MRI might show "white spots" if trauma happened from the accident an area of the brain.

I had a short (very short) seizure once at a place I go out to eat at. Thankfully there was a nurse next to me. I didn't even fall off my chair. I asked her how long it looked like, she said possibly 5 seconds. I thanked her and made a note. I explained it to the manager that I had seizures but they are well controlled usually. If it ever happens again to not call 911 unless I was bleeding or broke a bone (something serious). That there was nothing the emergency rooms could do but give me high doses of meds. He understood.

My seizures changed to now I no longer have a "warning" before they onset. Something I always liked having before. Oh well.

Thats the other thing. Time lapsed. Trying to tell how long you have been "out" is hard to tell, it is for me anyway. It's almost like a bad edit in a movie. All of a sudden you were blacked out and time stood still, then it slams back into full speed. Trying to tell how long you were out and how much of that was the seizure is NOT easy.

--Travis

kelly64
05-01-2008, 12:02 PM
Thank you for all your help, I just got back, the lady that was giving me the test ask me alot about Parkinsins <--I know I miss spelled that, sorry, and then she said they maybe calling me back for a sleep EEG, that is what I thought I just had!
I am so mix up still
thank you again,
going to bed,
Kelly,

life_is_good
05-01-2008, 12:14 PM
You had a sleep-deprived EEG. A sleep EEG is where you wear an EEG for 24 hours or more. You wear it while home and are free to walk around the house. You can also have a VEEG, where it's done in the hospital, but you're hooked up in bed with wires for several days. Take it one step at a time, let's see what this EEG shows first. Get some rest, you must be beat.

 
 
 




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