lynxgal
05-04-2008, 10:16 AM
Hi. I have a tentative diagnosis (again) for MAV. My doctor thinks the my vertigo may be an atypical presentation of Migraine without headache. He has prescribed Propranolol as a preventative and Zomig as needed. I will be starting these meds shortly.
I have a couple of questions
What has been your experience with these drugs? Helpful?
Anyone with MAV or migraine had episodes of numbness in any area that has lasted weeks to months?
I should also mention that I have had a 20+ year history of classic migraine with vision loss that ended abruptly about a year and a half ago. 6 months after the classic migraine stopped the vertigo started.
pamg6
05-04-2008, 02:04 PM
Hi Lynxgal,
I too have MAV or more of a Migraine Syndrome: Non-Headache Migraine.
My doc started me on another med, but docs tend to have their preferance in meds!
let us know how you are doing.
Pam 3
lilylelani
05-05-2008, 12:21 PM
Have your doctor schedule an ENG test (rotational chair, caloric test, etc) and see if you don't have a slow beating type of nystagmus or oscillopsia. I had the nystagmus which started after head trauma and vertebral artery dissection, which resulted in a stroke, and nearly killed me. Most people die. I am blessed. My contition causes upset stomach, migraine, visual oscillation, and sometimes vertigo. This is aggrivated by occasional sinus and the changing of barometric pressure (rain, snow, etc. esp. w/it is going down) and I sometimes am so dizzy I just lay in bed. Luckily, I will have 2 or 3 good days where I feel great, then will come some bad ones. This repeats itself. I try to get adequate rest, 7-8 hours, and am fortunate to have been able to retire from my job at the age of 49. I take 5mg valium, 60 mg. Cymbalta (which is used for neuro pain as well as depression), and anywhere from 350-700 mg. hydrocodone daily. If I take the hydrocodone in the a.m., sometimes I can avoid a migraine later in the day. Visual changes can trigger those also. I see a neurologist 4 times a year, got a brain MRI as well as an MRA, and try to eliminate unnecessary stress.
1Freebird
05-16-2008, 03:23 PM
lynxgal, did you ever get past all of this. I have had all the tests ran twice. ENT, Neurologist etc. Once about 5 years ago and now again the ENT tests last week came back fine. I go to see a vertigo specialist a neurologist next week and I am wondering if I may have MAV. I have migranes maybe 4-8 times a year and can only see parts of things and then I get a splitting headache. I have had vertigo for over 10 years now and I am wondering if MAV could be the cause of it. Just wanted to know what anyone has found out that can help me. Thanks for any suggestions!!!