Buzzbabe3
05-19-2008, 06:10 PM
Wondering how it goes with other tremblers...;)I know we had posted some time ago and was wondering if any of my fellow internal trembling buddies have found that they follow a pattern and if anything has helped you get it under control!
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you148
05-19-2008, 11:14 PM
Buzzbabe3 - Hi there, I have had internal trembling and shaking for a year now and some days it is very mild and other days its worse. I also notice that when I am painting my nails, sometimes my fingers shake, do you get that too? Or is it just internal only. I have the internal as well when my fingers kind of shake a little. I hate this feeling ......
Sillyme03
05-20-2008, 10:14 AM
Still have my internal shaking, but its a little better. Not sure if I am getting used to it or its milder, but its been more bearable. I have not done much except tried buspar for 2 weeks and then stopped. Not sure if that did anything or not. I am still tired, appetite is better.
I am hoping that this is an upswing for me.
I am hoping that this is an upswing for me.
barb58
06-20-2008, 11:12 PM
Well, I just started this trembling business in March, and I had been VERY worried about it until reading some of the entries on old threads. It's been comforting to know that others have this trembling/vibrating, too! My pharmacist mentioned that it could be related to menopause and hormones, so maybe it is. Mine started when I woke up at 3:00am one night vibrating from the waist up! Since then, it just stays with me. Sometimes others can see my hand tremble, but most of the time, I just feel it inside. It's a very weird thing that I've never heard anyone relate to menopause before. My question is: should I go to see a neurologist?? or is it really just a benign menopausal symptom?
Sillyme03
06-21-2008, 08:32 AM
I am only in perimeno and I got this trembling. I would definitely see a Dr and get some tests done to rule out other things it could be like thyroid or other issues. Just in case, cause you never know.
Mine was better for a bit, but now is back stronger.
Mine was better for a bit, but now is back stronger.
RigelBee
06-25-2008, 01:17 PM
Hello all.
I feel like I have been in perimenopause for EVER. I know I am going to make it into the Guinness Book of World records for the longest perim- EVER. :(
I started that odd trembling also. I have tried to describe it to husband and doctor - like there is low voltage electical current running through me.
No one has had any helpful reasoning for it. I have been tested for so many crazy diseases and nothing is really making any sense.
So, if anyone KNOWS that this is part of that big MENOPAUSE trip, I sure would like to hear it.
Peace of mind is a wonderful thing.
Thanks to all of you gals who lift up and support those of us who are "shaking" in fear and menopause..... or whatever it is....
I feel like I have been in perimenopause for EVER. I know I am going to make it into the Guinness Book of World records for the longest perim- EVER. :(
I started that odd trembling also. I have tried to describe it to husband and doctor - like there is low voltage electical current running through me.
No one has had any helpful reasoning for it. I have been tested for so many crazy diseases and nothing is really making any sense.
So, if anyone KNOWS that this is part of that big MENOPAUSE trip, I sure would like to hear it.
Peace of mind is a wonderful thing.
Thanks to all of you gals who lift up and support those of us who are "shaking" in fear and menopause..... or whatever it is....
Buzzbabe3
06-26-2008, 05:19 PM
The trembling thing was what brought me to the healthboards and I started this post thread...I hear you all...and it is true that most doctors say that it is not a usual symptoms...but I feel so reassured because we are all feeling this...of course, you need to look at the entire picture and have your doc check you out...to be sure...but I am becoming more convinced that it is menopause. I think that there are those of us who have the standard...run of the mill...hellish symptoms and then there are those of us who get the weird quirky unusual ones...we need to keep expressing these symptoms and letting our healthcare professionals know about these...as it truly is a common complaint for a great many of us. Obviously check to be sure that it isnt anything more serious...but I am leaning towards this being a true symptom. I will tell you that my shaking has lessened especially at night since I have started to occasionally take an anti-anxiety and I am getting more sleep...I am also trying some hormones for a bit...I am planning to stop them and see what happens with the symptoms and if they intensify then I will know that it is hormonally based! Stay strong!!!!
kazy68
06-30-2008, 09:58 AM
The "shakes" are back with a vengence, i woke up with them on Saturday morning and they have stayed with me since, oh boy! i really hate this i cant walk without thinking i am going to fall over, lets just hope it doesn't stay for long :(:(:(
Karen
x
Karen
x
Buzzbabe3
07-14-2008, 10:41 AM
Just checking on everyone's shaking and trembling :)...I have the constant little motor revving inside 24/7...the more intense trembling has calmed a bit...but I pretty much have the purring going on all day and night...worse at night! Wondering if anyone has any remedies that have helped!!!!!
Sillyme03
07-14-2008, 11:22 AM
No remedies, still trembling. Small amounts of ativan helps at times. I try not to take it but lately have no choice. I also feel tired and weak. Also noticed I have been more emotional, feel like crying more than usual. Have my period now, but don't remember being quite this emotional. Guess its the hormones working up again.
Buzzbabe, were you ever around or worked in any places involved with chemicals or something similiar?
Buzzbabe, were you ever around or worked in any places involved with chemicals or something similiar?
kazy68
07-14-2008, 06:15 PM
Hi ladies, no remedies here either, im just letting my body do its thing im sure it will pass soon, i haven't been to bad for the last 2 days i seem to be calming down with the trembling finally to be honest the last 2 days have been quite good today being the better one lets hope my body is giving me a few days off finally, it is great to be able to walk round the house and not feel like i am falling over lol.
karen
karen
Buzzbabe3
07-14-2008, 10:34 PM
SillyMe03...Not really...I believe I remember you mentioning that you were around chemicals a great deal. I worked for a short time around sign making vinyl but not in the production of it...just around some of the products. And it was actually a brief time Have you researched the chemical issue at all?
MarciB
07-15-2008, 09:10 PM
Interesting--someone mentioned rule out other things...well mine first started 9/05...lots of pressure in my head....and I called it low level vibrating in my head and upper body....it has reduced alot...but the interesting part is someone mentioned thyroid...recently i was put on Synthroid as the pattern of slowing down of my thyroid ws quite eveident over the past 3 yrs and my thyroid became enlarged and i have small nodules..I will be interested to see if the vibration stops once my thyroid is more normal...(have only been on the meds 3 weeks)
I have ruled out everything else...went on a quest beginning almost 3 yrs ago since my symptoms became so severe and i had so many of them...so I went on bioidentical homrones and decided to do my part and get as healty as possible---lost excess weight and exercise about 5 times per week...i dont want anything else in the way when I try to get doctor help! and all that other stuff complicates things!
I have ruled out everything else...went on a quest beginning almost 3 yrs ago since my symptoms became so severe and i had so many of them...so I went on bioidentical homrones and decided to do my part and get as healty as possible---lost excess weight and exercise about 5 times per week...i dont want anything else in the way when I try to get doctor help! and all that other stuff complicates things!
Sillyme03
07-16-2008, 07:45 AM
Buzzbabe
I have not researched the chemical thing because I was around so many different kinds at different places. It was just a curiosity question to see if some of us had a common thread and if that could be an underlying issue.
I have not researched the chemical thing because I was around so many different kinds at different places. It was just a curiosity question to see if some of us had a common thread and if that could be an underlying issue.
Sillyme03
07-16-2008, 07:52 AM
MarciB
I also had many tests when this first started in 2003. From Ct Scans, Brain MRI, blood, thyroid, endoscopy for loss of appetite and more. Pretty much all were normal, or if something was slightly off, it was nothing that could cause my symptoms.
However a few weeks after seeing a specialist at the Cleveland clinic I started feeling better and for 4 years I was able to function decently. Not at 100% of what I was, but much better than what I am now.
Something triggered a new episode for me in January, perhaps stress, perhaps hormones or something else.
Recently I have only had a bunch of bloodwork, so far they did find Pre-Diabetes, but that wold not be giving me most of my symptoms. I am going to a cardiologist today to double check if I have low Bp and other issues like circulation.
The first time this happened, it lasted a few months and got better after the CC visit, whether it was psychological or not I don't know, but I have had this since January and so far not much luck getting better. Some days (actually most) it really gets to me and hinders what I can do.
What tests have you had done beside thyroid? What are your symptoms beside vibrations?
I had a bunch of thyroid tests, all normal including antibodies.
I also had many tests when this first started in 2003. From Ct Scans, Brain MRI, blood, thyroid, endoscopy for loss of appetite and more. Pretty much all were normal, or if something was slightly off, it was nothing that could cause my symptoms.
However a few weeks after seeing a specialist at the Cleveland clinic I started feeling better and for 4 years I was able to function decently. Not at 100% of what I was, but much better than what I am now.
Something triggered a new episode for me in January, perhaps stress, perhaps hormones or something else.
Recently I have only had a bunch of bloodwork, so far they did find Pre-Diabetes, but that wold not be giving me most of my symptoms. I am going to a cardiologist today to double check if I have low Bp and other issues like circulation.
The first time this happened, it lasted a few months and got better after the CC visit, whether it was psychological or not I don't know, but I have had this since January and so far not much luck getting better. Some days (actually most) it really gets to me and hinders what I can do.
What tests have you had done beside thyroid? What are your symptoms beside vibrations?
I had a bunch of thyroid tests, all normal including antibodies.
MarciB
07-16-2008, 09:51 PM
SillyMe03...
Did something happen at that cleveland clinic that made you feel better for 4 years???
my symptoms were...
crackling in my head, jitteryness/vibration sometimes moving lik an electric current, mild dizziness, pressure top and sides of head like wearing an old fashion bathing cap, equilibrium off, weakness of body, feeling like I was short curcuiting, decrease in alertness/memory, stiffness, body aches particularly after sleeping, cant sleep through one single night--some nights see every hour, sometimes up hours at a time with nausea, feel like I am running manually instead of on automatic, brain "delay", generalized feeling of unwellness, claustrophia-couldnt close a dorr in the doctor's office!...just to name a few-LOL
But I agree with you--I really felt like I had to change my life on a daily basis due to feeling so unwell--had trouble driving -when i looked in the rear view mirror I couldnt get my eyes back and would feel somewhat dizzy....
definite hindered my wuality of life....when i went to a concert with my husband and i was waiting for him in the full of people lobby--i had to find a wall to hold myself up-whe people whizzing by made me lose my equilibrium-it was that night I decided I had to try the hormones to see if this WAS it...(i had every test prior to that-head, heart, even a balance doctor to no avail, lots of bloodwork for everything!).....I am about 85% improved--I can look in the rear view mirror, thepressure is gone most all the time-periodically on the sides (sometimes I think it is when i would have had a period) , claustrophobia is gone...very rarely nauseous, the vibration is still evident at night but it is much milder etc....I will be curious to see if there is further improvement once i have been on the synthroid for my thyroid for awhile...I know it wasnt that back then when this all started as my numbers were much lower..although who knows? with the thyroid enlarging and nodules starting to form...who knows?
What do you think is happening to you?....by the way--i am 53--this started 3 months after age 50-i was still getting regular periods at the time...then started getting them quarterly for about a year...i have had to periods in the past year--the last one in march...best wishes to you for relief!
Did something happen at that cleveland clinic that made you feel better for 4 years???
my symptoms were...
crackling in my head, jitteryness/vibration sometimes moving lik an electric current, mild dizziness, pressure top and sides of head like wearing an old fashion bathing cap, equilibrium off, weakness of body, feeling like I was short curcuiting, decrease in alertness/memory, stiffness, body aches particularly after sleeping, cant sleep through one single night--some nights see every hour, sometimes up hours at a time with nausea, feel like I am running manually instead of on automatic, brain "delay", generalized feeling of unwellness, claustrophia-couldnt close a dorr in the doctor's office!...just to name a few-LOL
But I agree with you--I really felt like I had to change my life on a daily basis due to feeling so unwell--had trouble driving -when i looked in the rear view mirror I couldnt get my eyes back and would feel somewhat dizzy....
definite hindered my wuality of life....when i went to a concert with my husband and i was waiting for him in the full of people lobby--i had to find a wall to hold myself up-whe people whizzing by made me lose my equilibrium-it was that night I decided I had to try the hormones to see if this WAS it...(i had every test prior to that-head, heart, even a balance doctor to no avail, lots of bloodwork for everything!).....I am about 85% improved--I can look in the rear view mirror, thepressure is gone most all the time-periodically on the sides (sometimes I think it is when i would have had a period) , claustrophobia is gone...very rarely nauseous, the vibration is still evident at night but it is much milder etc....I will be curious to see if there is further improvement once i have been on the synthroid for my thyroid for awhile...I know it wasnt that back then when this all started as my numbers were much lower..although who knows? with the thyroid enlarging and nodules starting to form...who knows?
What do you think is happening to you?....by the way--i am 53--this started 3 months after age 50-i was still getting regular periods at the time...then started getting them quarterly for about a year...i have had to periods in the past year--the last one in march...best wishes to you for relief!
Mel52
07-17-2008, 01:04 AM
I posted awhile back in response to the shaking. I tend to think it is related to hypoglycemia for me. I was diagnosed many years ago through symptoms and a 6 hour glucose test. However, I haven't had problems at all until this menopause curse began. It became even more prevalent when I was in the hospital a few months ago for back surgery. The hospital care was pretty bad. The first indication was after surgery I was wheeled up to my room and I said I was ready for food. I guess they forgot about me and my call button wasn't plugged in so I couldn't get help. When my husband came in later, he found me shaking violently and by that time hysterical. A few days later, the dr came in and asked if I was nervous because he saw me shaking. My husband said we were still waiting for the food tray. Dr took care of that and my meals were then delivered in a timely matter. I am finding if I eat a higher protein meal, I tend to not wake up shaking. Sometimes, I get up in the middle of the night and eat something. I find also sometimes certain foods make it worse. I mentioned "reactive hypoglycemia" to my dr but she simply said to eat. When we return from our Hawaii vacation, we are going to knock off the white flour and junk to see if I do better. I certainly can stand to lose a few pounds these days.
I never thought menopause could be such an intrusion. I know they said it was entering a different phase of life, but the details were left out.
I never thought menopause could be such an intrusion. I know they said it was entering a different phase of life, but the details were left out.
Mel52
07-17-2008, 05:35 AM
well so much for that theory. I had cottage cheese about 10 pm before going to bed. At midnight I woke up with the shaking and headache. Now I am having some warm milk. Guess I am going to be tired again in the morning from lack of sleep. So the search for answers and relief goes on.........
Sillyme03
07-17-2008, 07:17 AM
MarciB
The main thing that happened at the CC was I had a tilt table test. They told me I had mild orthostatic hypotension. I got low dose beta blocker, compression hose and low dose florineg ( steroid). I only took florinef for about 2 days because I felt the shaking more on it. I wore the compression knee hi's for a few months, then stopped wearing them. My BP was low then, so I started eating more salt also.
I don't know if psychologically it helped me get better or if the hose and salt helped my blood circulation or if it was time for my hormones to settle down. I always thought it was the hose and medicine, but looking back on it now, I am not sure what it was.
I won't do hormones because we have stroke and heart attack rampant on both sides of family.
I had many of your symptoms as well, although not all of them. Right now my anxiety ( new since 2003) is thru the roof.
The main thing that happened at the CC was I had a tilt table test. They told me I had mild orthostatic hypotension. I got low dose beta blocker, compression hose and low dose florineg ( steroid). I only took florinef for about 2 days because I felt the shaking more on it. I wore the compression knee hi's for a few months, then stopped wearing them. My BP was low then, so I started eating more salt also.
I don't know if psychologically it helped me get better or if the hose and salt helped my blood circulation or if it was time for my hormones to settle down. I always thought it was the hose and medicine, but looking back on it now, I am not sure what it was.
I won't do hormones because we have stroke and heart attack rampant on both sides of family.
I had many of your symptoms as well, although not all of them. Right now my anxiety ( new since 2003) is thru the roof.
Sillyme03
07-17-2008, 07:19 AM
Mel52
I have pre-diabetes, and If I don't eat for a while I get shakey also. But I also can get shakey after I eat, so soetimes food helps, other times not. I have a meter and have tested when shakey, I am usually in the 80's or 90 when its food related, but that is not considered low.
For me sometimes food helps the shakes, other times not.
You may want to have more blood work done now with an endocrinologist to make sure.
I have pre-diabetes, and If I don't eat for a while I get shakey also. But I also can get shakey after I eat, so soetimes food helps, other times not. I have a meter and have tested when shakey, I am usually in the 80's or 90 when its food related, but that is not considered low.
For me sometimes food helps the shakes, other times not.
You may want to have more blood work done now with an endocrinologist to make sure.
Mel52
07-17-2008, 10:10 PM
Hi thanks for answering. My sugar is usually about 74.I did get my thyroid checked. Normal. I would love to get tested for all kinds of things but we switched to a HMO when hubby retired last year. I just requested a switch to another dr if he is accepting patients. I just find it hard to accept that this is all hormones.
MarciB
07-18-2008, 09:29 AM
I did too Mel52 (read back previous post for alot of my symptoms!) and many times I had so much vibration in my head and was so nauseous in the middle of the night for hours--I would feel like I was "shutting down", "short circuiting"-I would be so frightened, I would prop myself up and watch TV to take my mind of it and pass the hours but I was so close to getting my husband up to go to the hospital...well it has been almost 3 years and nothing knowlingly has "progressed" I havent imploded, so I do believe (most of the time) that this is the most horrible meopause time for me...never, and I read alot!, but NEVER did I expect ANYTHING like this--what a well kept secret...
Mel52
07-19-2008, 01:33 AM
Nausea too? Maybe I am lucky as I don't have that. I seem to mostly shake at night waking up out of sleep because of the shaking. Pretty frustrating, because I wake up enough as it is because of the hot flashes. A friend today said she gets a trickle down her back. That sounded feminine and not too bad. Not me. I get a flood of sweat down my back. I sweat so much I drink water with electrolyes in it. The hot flashes seem to ease up for awhile and then return.
I want my periods back!
I want my periods back!
scout316
07-19-2008, 02:32 AM
hi everyone!I posted to Buzzbabe3 before about the B12 shots helping me.So anyways I was wondering if any of you experience times where your hands get really cold?I have noticed that when my hot sweats seem to be very mild or let up for a bit my hands get soooo cold!I was a really extreme trembler/shaker,but the B12 shots help so much...I noticed I start getting some anxiety half way thru the month and right before my next shot I am a bundle of nerves!My next shot is monday(I can't wait!)....I am hoping so much to find an answer for the twitching I get in my ankles and also I get severe muscle fatigue after doing little things like the other day I was pricing some things to give my daughter-in-law for her yard sale...I felt like I was a really "disabled" person...menopause has kicked my bum really good.I feel for all of you...ya I have a "laundry list" of symptoms and I tend to think most of them are related to menopause,because there are some(just a few!)days where I feel "normal" again....ya like no symptoms....figure that out!I have been "period free" for 1 year now. Scout
kazy68
07-19-2008, 11:54 AM
hi all, i have woke up today with the worst shaking ever, i did the washing up and got more water over me :(. i find this so debilitating i am sitting on the sofa now but i am shaking every where, i feel sick and have a lot of gas too, my head is dizzy and i have a mild head ache that i hope does not get worse, how much longer do we have to go on like this, i don't take any meds for perimeno just things for the normal aches and pains, i think i should go see the doc for something i can't cope with this, it is the holidays now and i would love to do something with my youngest (10) but i can see us sitting in the house for the next 6 weeks what a crock, i want me back even if it is for a few weeks so we can have a little fun :(:(:(
Karen
x
Karen
x
Sillyme03
07-19-2008, 12:22 PM
Kazy, I feel for you, and know what you're going thru for sure
I feel the same way. I feel lousy almost every day with internal shaking,which gives me wobbly legs and calves. I have an 11 year old and would love to do things with her.
We have a water park that we have gone to for the past 7 years or so weekly with season passes. I did not even get the passes this year. I also can't tolerate the heat and its been over 90 here 4 days in a row.
I think I also have some inner ear problems compounding things. I also can't sleep past 5:30am, and am tired and miserable from that also
I hope today passes for you and we are all on our way to feeling better.
I saw a new cardiologist last week. Total waste of time, even for cardio issues. I mentioned thought some of my symptoms like shaking could be peri-meno. He said no, never heard of it. I kept my mouth shut because he was horrible with my other symptoms, which could be BP related. I felt like saying he needs to read internet meno boards, as there are quite a few mentioning inner tremors.
I feel the same way. I feel lousy almost every day with internal shaking,which gives me wobbly legs and calves. I have an 11 year old and would love to do things with her.
We have a water park that we have gone to for the past 7 years or so weekly with season passes. I did not even get the passes this year. I also can't tolerate the heat and its been over 90 here 4 days in a row.
I think I also have some inner ear problems compounding things. I also can't sleep past 5:30am, and am tired and miserable from that also
I hope today passes for you and we are all on our way to feeling better.
I saw a new cardiologist last week. Total waste of time, even for cardio issues. I mentioned thought some of my symptoms like shaking could be peri-meno. He said no, never heard of it. I kept my mouth shut because he was horrible with my other symptoms, which could be BP related. I felt like saying he needs to read internet meno boards, as there are quite a few mentioning inner tremors.
kazy68
07-19-2008, 02:52 PM
Hi there sillyme, i know what you mean about the cardio doc, a few years ago when all this started (fells like a life time to be honest) i went to see a neurologist at my local Hospital, oh boy i hated the man didnt want to give me any tests for anything in the end i felt like i was begging for them, and then at the follow up he was talking to the piece of paper on his desk instead of me, the last test i had was a lumbar puncher way back in May last year and i still have not had a follow up appointment for the results, to be honest i would rather see anyone other than this man he gives me the creeps and i get all wound up about going to see him anyway.
I do hope you start to feel better also, these rough days can be REALLY REALLY rough, not only on us but on our families to, i hate that i feel so useless especially when Bradley (the 10 year old) asks me every morning if i feel OK, and if i lie down he asks me if i need any help with anything and if my head is OK, this is so wrong shouldn't it be the other way round ?
We have just come back from fetching my eldest son Alex (21) he has been to watch the Open (golf) he has had a fab day and now he had took hid dad to play bless him lol, but on the way to fetch him witch was about an hour and half away i couldn't relax in the car my anxiety went sky high my mind was racing, i kept thinking we were going to end up on the side of the road, what awful thought s went through my head, i am so glad to be back in the house it was terrible i hope this isn't going to rear its ugly head, that is all i need anxiety on top of all the rest of this.
Sorry for long post.
Karen
x
I do hope you start to feel better also, these rough days can be REALLY REALLY rough, not only on us but on our families to, i hate that i feel so useless especially when Bradley (the 10 year old) asks me every morning if i feel OK, and if i lie down he asks me if i need any help with anything and if my head is OK, this is so wrong shouldn't it be the other way round ?
We have just come back from fetching my eldest son Alex (21) he has been to watch the Open (golf) he has had a fab day and now he had took hid dad to play bless him lol, but on the way to fetch him witch was about an hour and half away i couldn't relax in the car my anxiety went sky high my mind was racing, i kept thinking we were going to end up on the side of the road, what awful thought s went through my head, i am so glad to be back in the house it was terrible i hope this isn't going to rear its ugly head, that is all i need anxiety on top of all the rest of this.
Sorry for long post.
Karen
x
Buzzbabe3
07-28-2008, 03:20 AM
Just checking on you all...having a bad night myself! Just got back from vacation and checked the boards. I really am amazed at the responses here..and where this board has gone so far. I posted it initially as I was so frustrated that NO professional seemed to know anything about this symptom. I am so frustrated as well...and the anxiety seems to have lessened a bit...more because I have found comfort in hearing that this is just not a symptom that I have and possibly something more serious...but something that a good number of us have. I am going to try the B-12 shots as that sounds like a worthwhile try...I have been taking Vit D, Magnesium, L-Thianine and Rhodiola as some supps. Actually thought it seemed like I slept better when I took a tiny piece of lorazopam and the D and Mag at night. Hang in tehre all...and lets keep in touch on this...I think it is really important as this shaking thing is scary...Night! I'd say sleep welll...but you know how that goes;)
Sillyme03
07-28-2008, 08:10 AM
Hi ladies
I am still here, still shaking. Have been wondering how you were doing. I am starting on small amounts of buspar again, to see if it helps. I am only taking half a pill right now, working my way up slowly to try to avoid side effects.
I still haven't decided if I should seek other Dr.'s or other tests to make sure there is nothing else I can do. I am still tired, and am up 2 or 3 times a night going to the bathroom. That might be why I am so tired. I also think my inner ear is not 100% cured and is acting to the mix. I read that can also cause anxiety.
I was such a strong, fairly healthy person, never in my wildest dreams would I have thought 10 years ago that I would feel so bad without a 100% definite cause. I worked part time selling electronics at a major retailer. Some days I would stand up for hours on end during a big sale, we worked on commision. Now I can't stand up for half an hour and I start feeling bad. How things have changed. This may be a BP issue at times howeve.
I am stuggling to keep weight on also. I have always been 15 to 30 or more pounds overweight. I am not overweight now, but struggling to keep it on. Having Pre-diabetes does not help either. All my clothes are huge and I have not broke down yet to buy new ones hoping this whole mess will go away soon.
Keep in touch ladies
I am still here, still shaking. Have been wondering how you were doing. I am starting on small amounts of buspar again, to see if it helps. I am only taking half a pill right now, working my way up slowly to try to avoid side effects.
I still haven't decided if I should seek other Dr.'s or other tests to make sure there is nothing else I can do. I am still tired, and am up 2 or 3 times a night going to the bathroom. That might be why I am so tired. I also think my inner ear is not 100% cured and is acting to the mix. I read that can also cause anxiety.
I was such a strong, fairly healthy person, never in my wildest dreams would I have thought 10 years ago that I would feel so bad without a 100% definite cause. I worked part time selling electronics at a major retailer. Some days I would stand up for hours on end during a big sale, we worked on commision. Now I can't stand up for half an hour and I start feeling bad. How things have changed. This may be a BP issue at times howeve.
I am stuggling to keep weight on also. I have always been 15 to 30 or more pounds overweight. I am not overweight now, but struggling to keep it on. Having Pre-diabetes does not help either. All my clothes are huge and I have not broke down yet to buy new ones hoping this whole mess will go away soon.
Keep in touch ladies
kazy68
07-28-2008, 10:35 AM
Hi there ladies, im still here too lol, not shaking so much thankfully, i have had some trouble with the tingling in my head yet again, this is so weird at first when i used to have it it sent me into a real bad anxiety attack, i could not sit down and was pacing the floor at all times of the day and night but now i just let it go on its own, some times it lasts for weeks and other times it is there then gone, my period is due today :( so i have had a rough week leading up to it but i don't know when it will appear i hope it doesn't come at all but i guess im not that lucky lol, glad to hear you are all ok.
Karen
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Karen
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pammcat
07-28-2008, 07:51 PM
Hi Kazy..i Can Feel Everyones Anxiety As I Have My Own Degree...as For My Tremors They Are Very Slight And Seldom But As You Mentioned Tingling In The Head ...i Too Have This And It Is A Bit Worse Now ..no Full Period 2 Mnths Just Spotting....do You Have Any Advice For The Tingling ....are Any Other Ladies Experiencing The Weird Head Tingling...i Have No Insurance, I Know I Have Been In Peri For A Few Years And Have Had 33 Other Symptoms Along The Way...well Take Care All.......pam
scout316
07-29-2008, 03:01 AM
Hi Buzzbabe...I was wondering how you were doing....I read the other posts on here and was shocked to read how others are having so many of the same symptoms I have had.That "tingling" in the head was one of them along with a feeling of "fullness"in my head making me have a "closed in feeling",so anyways I have no idea what causes that,but I do know several of my symptoms have decreased and some are gone since I have gotten the B12 shots(17 shots so far).Did you get a B12 test?I hope the shots help you....I talked to a nurse at the hospital once and she said she had to get B12 shots also when she was going thru the change.Well I wish you all the best....I should get to bed..I purposely stay up late so then I sleep thru the night and get a good 6 hours sleep....it'd be so lovely to get 8 hours sleep,but I guess that's just wishfulthinking!Hope to hear that the B12 is helping you....it doesn't give me energy,but it does help in so many other ways....hope it helps you too. take care scout
kazy68
07-29-2008, 07:02 AM
Hi there pammcat, i'm sorry to tell you that i don't have any answer to the tingling in the head, today mine is the worst it has been in a long time, it just comes and goes all day, and i have some pressure at the front of my head too, so when i move my eyes around it hurts my head, i have heard that it could be some kind of migraine but to be honest i think i would prefer a normal migraine then i would just go to sleep in a dark room until it decides to go away, if you come up with any ideas on how to help with this please let us know, like you i have had many of the symptoms around 30-33 and have been going through peri for nearly 4 years now and to be honest i have had enough of it all and i wish some one could tell me when it will all end, my period was due yesterday and there is no sign of it yet, i dont have the spotting at all just my period when it turns up, my symptoms get worse the week before it is due and whatever symptom i get that week stays with me until the next month so i never know what is going to pop up, i hate the fact that i see friends who i went to school with and they are all doing fine and getting on with their lives and i just cant do it because i feel ill most days, hope you find some relief soon keep well.
Karen
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Karen
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pammcat
07-29-2008, 09:00 AM
Kazy...thanks For The Reply...i Can Relate To All Your Concerns My Symptoms Have Decreased Drastically Over The Past Year But This Head Tingling Started Out Once In A While And Is Now Quite Often.....doesnt Really Distract Me But If I Think About It Then It Becomes A Pain In The But......well Like Sooooo Many Women We Are Not Alone And The Idea Of Networking Is So Helpful....i Will Share Any Relief If I Find Some...i Think I Will Start Taking B12 Im Sure It Cant Hurt Even If It Doesnt Offer Relief To The Head Other Body Parts Should Benefit........so To All The Ladies Out There Remember That These Crazy Symptoms Do Stop Eventually....keep Telling Yourself That.............take Care To All......pam
Buzzbabe3
07-29-2008, 09:26 AM
SillyMe3...sorry to hear that you arent doing too well...hang in there...I must admit that I am a bit jealous that you are losing weight when most of us are beefing up...:).
I have been trying to get into more exercise.. <removed> Cant hurt...right? anyway...stay in touch!
I have been trying to get into more exercise.. <removed> Cant hurt...right? anyway...stay in touch!
Buzzbabe3
07-29-2008, 09:31 AM
Scout316...thanks and I will try the B-12 shots...just wondering though if any of you experience any sternum pain...seems like I get it after a night's sleep (thats an exaggeration...what sleep? :) )...I wake up with that more intense pounding and trembling inside and then my sternum hurts...not really feeling like it us heart related but more sternum...anyway...just wondering! Then once up it goes away...and I usually never feel it during the day. Is that angina do u think? Oh well...Stay well...
sandra63
08-03-2008, 12:47 AM
I am so glad I found this website and board and I now know I am not alone. I have this trembling feeling as well and I have been scared stiff my head feels soggy all the time and I get dizzy it is terrible I have only had it for a couples of weeks but I just want to be normal again.
Sillyme03
08-03-2008, 07:38 AM
How are we all doing? So far I am about the same. Still go to bathroom several times a night. 6 months ago I slept thru the night, just went once early morning.
I am still shakey, started on buspar to see if it will help. Has not been long enough.
I am also dizzy, but I think mine also had to do with recent inner ear problem.
I also notice my nerves are so frayed ( this was not like me the rest of my life) that any startling, loud noise, yelling etc can get me shaking like crazy. My whole body has changed so much. I am the thinnest I have been since getting married over 20 years ago.
I ask myself why all the time.
Hope you ladies start feeling better soon
I am still shakey, started on buspar to see if it will help. Has not been long enough.
I am also dizzy, but I think mine also had to do with recent inner ear problem.
I also notice my nerves are so frayed ( this was not like me the rest of my life) that any startling, loud noise, yelling etc can get me shaking like crazy. My whole body has changed so much. I am the thinnest I have been since getting married over 20 years ago.
I ask myself why all the time.
Hope you ladies start feeling better soon
scout316
08-04-2008, 01:52 AM
Hi Everyone...hey you guys hang in there....I have to tell you this...when I missed my very first period I had awoken one night with severe vertigo and after that I was never the same.I was constantly dizzy for over 6 whole weeks.Drs. couldn't find ANYTHING wrong with me then(but I had the very low B12 level)so I am urging all of you to think aboit the B12 PLUS I know this is going to be a lot to take in,BUT you might think abouit having an MRI,because my neurologist was OVERWHELMED with the symptoms I presented(most of which were probably brought on by menopause changes).I was found to have "Chiari Malformation I"...it has been something that wasn't looked for in people until recently and it is a thing where your brain "tonsils" slope down...one in every four people have this.I know this seems really crazy,but lots of women in menopause feel like they have swelling going on(arthritus symptoms) and I just wonder with all the dizziness,shaking,trembling,tingling so many of you have if it's anyhow related to the Chiari thing.I have a lot of health issues going on,but the thing that gets me wondering is the way ALL my problems started with the menopause.Well it's just something to think about and have any of you gone to see a neurologist about your trembling,etc.?I don't mean to be so blunt about it,but I care and regular MD docs just seem to want to "fix" everything with anti-depressants?anxiety meds.~~~~wishing the best for all of us!~~~~Scout
Sillyme03
08-04-2008, 07:50 AM
Hi
Thanks for your reply. I had a brain MRI first time in 2003. I think I will ask for another one. I have not recently been to neurologist (well to one that specializes in inner ear, but not much else). I had my B12 tested, and it was nowhere near low at all.
I have heard of chiari. This is just the problem. We blame it on menopause, or peri-meno in my case, as I have yet to miss a period, but in all actuality it could be hormones, or it could be something else.
I agree, we are all told it anxiety. It could be. In my case I do get more nervous or shakey if something startles or scares me etc. However this was NOT the case the first 43 years of my life as I was known as Miss Very Laid Back.
What happened to her, I may never know.
Thanks for your reply. I had a brain MRI first time in 2003. I think I will ask for another one. I have not recently been to neurologist (well to one that specializes in inner ear, but not much else). I had my B12 tested, and it was nowhere near low at all.
I have heard of chiari. This is just the problem. We blame it on menopause, or peri-meno in my case, as I have yet to miss a period, but in all actuality it could be hormones, or it could be something else.
I agree, we are all told it anxiety. It could be. In my case I do get more nervous or shakey if something startles or scares me etc. However this was NOT the case the first 43 years of my life as I was known as Miss Very Laid Back.
What happened to her, I may never know.
RigelBee
08-04-2008, 11:24 AM
Hi.
Sillyme, I am in total agreement with your comment about blaming it on menopause - but it could be something else.
I am up at 3 a.m. AGAIN because this whatever it is will not let me sleep. My left arm and left breast and back are feeling so much pressure that I want to cry. This has been going on for 13 months. My periods have been irregular for years, but I am not yet able to be classified as menopausal.
How in the world do people survive this time?
I am blue! :( and confused :confused:
I don't know where to turn.
Sillyme, I am in total agreement with your comment about blaming it on menopause - but it could be something else.
I am up at 3 a.m. AGAIN because this whatever it is will not let me sleep. My left arm and left breast and back are feeling so much pressure that I want to cry. This has been going on for 13 months. My periods have been irregular for years, but I am not yet able to be classified as menopausal.
How in the world do people survive this time?
I am blue! :( and confused :confused:
I don't know where to turn.
Sillyme03
08-04-2008, 01:16 PM
Rigelbee
I feel for you. Have you had your hormones tested? Mine came back all normal as well.
I also have back pain daily, but because I have so many other issues, I just try to deal with the pain. Advil/Motrin here we come! I am up all night running to the bathroom. I wish I could get a nice full night of restful sleep. Thank goodness I don't currently work, I would not be able to do it I don't think.
What we woman suffer is not easy. My mother only had hot flashes. I don't know about my grandmothers, but hope they never had anything close to what I am feeling, and hope my daughters never have to suffer what I am going thru as well.
I have been more emotional lately also. Can tear up very eastily. I still get periods every month. Sometimes 23 days, sometimes 28 days. Other than one or two very heavy days, not much else has changed about them.
I feel for you. Have you had your hormones tested? Mine came back all normal as well.
I also have back pain daily, but because I have so many other issues, I just try to deal with the pain. Advil/Motrin here we come! I am up all night running to the bathroom. I wish I could get a nice full night of restful sleep. Thank goodness I don't currently work, I would not be able to do it I don't think.
What we woman suffer is not easy. My mother only had hot flashes. I don't know about my grandmothers, but hope they never had anything close to what I am feeling, and hope my daughters never have to suffer what I am going thru as well.
I have been more emotional lately also. Can tear up very eastily. I still get periods every month. Sometimes 23 days, sometimes 28 days. Other than one or two very heavy days, not much else has changed about them.
kazy68
08-04-2008, 01:42 PM
Hi there sillyme,
like you i have been very emotional lately, last Friday all i did was cry, and i don't know why, to be honest i can cry at anything, i have no idea what is going on, then to top it off every day at the same time i get this raging head ache about 5.00pm and it is really wearing me out it is all at the front of my head and down the left side of my eye today, it changes day by day sometimes the left sometimes the right, this peri-meno is the worst thing ever i wish it was all over and done with.
Karen
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like you i have been very emotional lately, last Friday all i did was cry, and i don't know why, to be honest i can cry at anything, i have no idea what is going on, then to top it off every day at the same time i get this raging head ache about 5.00pm and it is really wearing me out it is all at the front of my head and down the left side of my eye today, it changes day by day sometimes the left sometimes the right, this peri-meno is the worst thing ever i wish it was all over and done with.
Karen
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RigelBee
08-04-2008, 01:43 PM
Hi SillyMe.
Yes. I have 40+ pages of lab work because I have been struggling with this for over a year. All of my lab work is normal except for female hormones indicate POST menopausal (even though I had a period 45 days ago). My periods have been bizarre for 2-3 years. 90 days, 35 days, 45 days, etc....
I am just worried. I have had the summer to try and recuperate. It has helped me, but school starts in a week and a half. Then I will be back to my 4:30 a.m. mornings and long hard days at work. I pray that I can make it JUST ONE MORE YEAR. Then, I will retire because I cannot do this anymore. I had planned to teach for a few more years, but my health and fragile state just won't allow it, or so it seems.
I agree with all of your comments about our daughters. I have know gals who struggled through menopause, but I NEVER heard a single one of them have what I have endured. Maybe they were just stronger and more gracious than me. I am a walking disaster.
RBee
Yes. I have 40+ pages of lab work because I have been struggling with this for over a year. All of my lab work is normal except for female hormones indicate POST menopausal (even though I had a period 45 days ago). My periods have been bizarre for 2-3 years. 90 days, 35 days, 45 days, etc....
I am just worried. I have had the summer to try and recuperate. It has helped me, but school starts in a week and a half. Then I will be back to my 4:30 a.m. mornings and long hard days at work. I pray that I can make it JUST ONE MORE YEAR. Then, I will retire because I cannot do this anymore. I had planned to teach for a few more years, but my health and fragile state just won't allow it, or so it seems.
I agree with all of your comments about our daughters. I have know gals who struggled through menopause, but I NEVER heard a single one of them have what I have endured. Maybe they were just stronger and more gracious than me. I am a walking disaster.
RBee
Sillyme03
08-04-2008, 03:21 PM
Rbee
I am wondering how the bloodwork for hormones works now. If your getting periods, how can it say post meno?
I just got mine today. Semi surprise. I did not expect it for another week or so. Its been 25 days. Changes every month
I don't think its that we are weak. I was always so strong, could go all day. Worked a mommy job when I had my 3rd, and I would stand up all day for hours. Other than some sore feet, I was fine. Now I, like you, am a disaster
what is hard is that my hubby and kids are ok, but I wish for just one of my bad days I could trade with hubby. Just so he could really feel what I feel like, same with a friend or two. They are great and listen, but I know they can't relate. They are my age, but not going thru any of this at all.
what makes things worse is that we look ok. well, I look thin and worn, but when someone asks me what is going on, I can't really 100% pinpoint it for sure. I think its hormones, but cold be inner ear related for me, anxiety or a blood ciculation, pressure ( low, not high) issue perhaps, or something else.
At least some people know for sure what they have. With todays technology we are still kind of up in the air.
I am wondering how the bloodwork for hormones works now. If your getting periods, how can it say post meno?
I just got mine today. Semi surprise. I did not expect it for another week or so. Its been 25 days. Changes every month
I don't think its that we are weak. I was always so strong, could go all day. Worked a mommy job when I had my 3rd, and I would stand up all day for hours. Other than some sore feet, I was fine. Now I, like you, am a disaster
what is hard is that my hubby and kids are ok, but I wish for just one of my bad days I could trade with hubby. Just so he could really feel what I feel like, same with a friend or two. They are great and listen, but I know they can't relate. They are my age, but not going thru any of this at all.
what makes things worse is that we look ok. well, I look thin and worn, but when someone asks me what is going on, I can't really 100% pinpoint it for sure. I think its hormones, but cold be inner ear related for me, anxiety or a blood ciculation, pressure ( low, not high) issue perhaps, or something else.
At least some people know for sure what they have. With todays technology we are still kind of up in the air.
Sillyme03
08-04-2008, 03:24 PM
By the way, have you had many other tests besides bloodwork. The first time this happened to me in 2003, I found that my BP went from high, 140/90 to low 90/60. That also cause me many problems and after I was diagnosed with orthostatic hypotension, got compression hose, low dose beta blocker and told to eat salt, I got so much better. I did not even think it was hormones. That lasted 4 years. Now my BP is mostly normal, so I don't think its it again. I had a tilt table test to confirm that diagnosis.
I wish you much luck at work. I could not work right now, not the way I feel. I give you lots of credit. When the internal trembling gets really bad ( I have it almost all the time) I don't know what I would do.
I wish you much luck at work. I could not work right now, not the way I feel. I give you lots of credit. When the internal trembling gets really bad ( I have it almost all the time) I don't know what I would do.
scout316
08-04-2008, 04:51 PM
Hi ladies....I just read all your posts...plain & simple diagnosis"A LIVING NIGHTMARE" we are living in!I have researched to the point I felt like vomitting and seen several doctors and asked qtons of questions(even a so-called gyno that was a "specialist"(he was the worst dr. I ever met!)and he recently retired(GOOD!).My regular MD(not too bright,but decent enough!)has lead me to believe that when your hormones decide to "change"it like a domino effect and it throes everything off,but not to the point that labs and other tests will be out of range or positive..so I guess anxiety overcomes us and we get treated like were zombies(and we certainly FEEL like one).I went thru peri for 10 years and that wasn't fun,but when my periods did stop..it hit me like a brick...all kinds of symptoms popped up.I have had no periods for 13 months,so I am officially menopausal and the only thing I can tell all of you who aren't there yet is for me it has gotten better,but I don't know if it's from my B12 level being better now(it's 500) or that my hormones (I have never taken any HRT)are more leveled off now.I still get hot flashes/night sweats,but I deal with that.The ANXIETY was very bad at the start of the peri,but went away,but I actually went to a psychiatrist who tryed me on ativan(low dose knocked me out) then klonopin(I was on that for 3 months),but that gave me breathing problems(asthma)...I didn't know then I was B12 deficient.So I decided to go it on my own and deal with it.Then I got the B12 shots...a life saver for me.I am drug sensitive,so that makes it hard for drs. to help me.I f I could I would've taken anxiety meds longer(because they did ease all the nervous symptoms).I too have to "run" to the john all the time,but some days it's better(go figure!).I am thin too (5'6''..109 lbs.)....I agree with the not working...I can barely function in my own house...it's like being sick most of the time and it drives me nuts(and my husband!),because everyday it's like something different..one day it's a headache,then anxiety,then back pain or neck pain,or dizziness,feeling hot or freezing,ringing in the ears,tingling in head or hands,you name it I got it....let's face it...when we know we were fine all of our lives and then this "change" came about and now we are "emotionally & physically" disabled.....we know our bodies better than anyone and we need doctors to take us seriously and not just send us away as though we are fine and we aren't....anyways I can seriously relate to the fact that we all long to be normal...like we used to be...hopefully someday that will come about.For now we have to just take care of ourselves and do whatever we can to keep ourselves calm and comfortable.~~~Scout
RigelBee
08-04-2008, 04:54 PM
Hi SillyMe.
I have been seen by internists, 2 rheumatologists, physiatrist, neurologist, chiropractor, physical therapist..... I have had at least 5 ECG's (heart),
4 MRI's (spine and brain), a CT scan (thoracic), 3 chest x-rays, 2 left arm x-rays,electro-nerve testing, breast ultrasound, mammogram, ........ my GOSH I cannot remember it all it has been such a long time and so many doctors.
I know what you mean about the female hormone thing being baffling. I cannot for the life of me figure it out. I had that blood drawn 12 days after my last period. It said my progesterone, total estrogen, and estradiol were all POST menopausal. I sat there thinking about that..... How can I have a period and 12 days later be POST menopausal? Of course, no one has that answer.
I only know that my back hurts. My left breast at times is a little puffy like maybe lymphatic edema????? My left arm sometimes aches. The pain in my back sometimes extends from my neck to my buttocks.
I have an appointment tomorrow with my PCM. We will see what he tells me this time......
Bee
I have been seen by internists, 2 rheumatologists, physiatrist, neurologist, chiropractor, physical therapist..... I have had at least 5 ECG's (heart),
4 MRI's (spine and brain), a CT scan (thoracic), 3 chest x-rays, 2 left arm x-rays,electro-nerve testing, breast ultrasound, mammogram, ........ my GOSH I cannot remember it all it has been such a long time and so many doctors.
I know what you mean about the female hormone thing being baffling. I cannot for the life of me figure it out. I had that blood drawn 12 days after my last period. It said my progesterone, total estrogen, and estradiol were all POST menopausal. I sat there thinking about that..... How can I have a period and 12 days later be POST menopausal? Of course, no one has that answer.
I only know that my back hurts. My left breast at times is a little puffy like maybe lymphatic edema????? My left arm sometimes aches. The pain in my back sometimes extends from my neck to my buttocks.
I have an appointment tomorrow with my PCM. We will see what he tells me this time......
Bee
mod-anon
08-06-2008, 04:31 PM
Ladies, in an attempt to speed up the system for all users we are closing threads that are more than a couple of months old. Please feel free to start another thread to continue your discussion.