skych
05-22-2008, 12:56 PM
Hi everyone,
Well the weather here was unseasonably hot this past 7-10 days. Temps were in the high 80's and mid 90's.
Now yesterday and today we have a 20-30 degree difference in the high for the day. I think the high for today is supposed to be 55 degrees, with a chance of rain.
For the last few days I have been waking up in the middles of the night with bad pain and then hard to go back to sleep. It also has been really hard to pull the blankets up or roll over to get out of bed.
The pain when trying to get up out of bed in the morning has been really awfull. Burning over tha scapular area and into my arms. Burning pinching and stabbing in the neck when I move my head. I think that is what wakes me out of sleep.
I think staying in bed untill my Mom gets here today is a good idea. I can't believe the drastic change in temps. I used the airconditioner like 4 days ago and now the heater is back on...Crazy weather
It will be nice to go to the neuro tomorrow and here what he has to say. I am still nervous but will be glad to get on with it.
The quality of life I have just seems so diminished. I dont do anything but stay around my house. It is just not worth it sometimes to go out doing stuff. Other times it is like if it is for someones birthday or something. I feel like my friends are all moving forward with their lives and mine is on hold. I have had 4 people ask me if I am graduating the nursing program this year. I just answer no not yet. If they ask why I just say I have not entered the program yet. Some will ask further questions. I just get sad when I think about it.
I think I took going to work for granted. I would love to go back to work. Not just for the money but for the sense of feeling responsible and accountable.
Recently I gave up my service position as district chair for one of my 12 step groups. I just can't do it anymore. I have to much physical stuff to deal with.
Whe I get into elevated pain like today and yesterday, I start feeling a little down and sad. Sorry for rambling on and on about the same ol' things I always say.
I will feel better when Mom gets here.
Thanks for reading my rambles.
Chrissy
Well the weather here was unseasonably hot this past 7-10 days. Temps were in the high 80's and mid 90's.
Now yesterday and today we have a 20-30 degree difference in the high for the day. I think the high for today is supposed to be 55 degrees, with a chance of rain.
For the last few days I have been waking up in the middles of the night with bad pain and then hard to go back to sleep. It also has been really hard to pull the blankets up or roll over to get out of bed.
The pain when trying to get up out of bed in the morning has been really awfull. Burning over tha scapular area and into my arms. Burning pinching and stabbing in the neck when I move my head. I think that is what wakes me out of sleep.
I think staying in bed untill my Mom gets here today is a good idea. I can't believe the drastic change in temps. I used the airconditioner like 4 days ago and now the heater is back on...Crazy weather
It will be nice to go to the neuro tomorrow and here what he has to say. I am still nervous but will be glad to get on with it.
The quality of life I have just seems so diminished. I dont do anything but stay around my house. It is just not worth it sometimes to go out doing stuff. Other times it is like if it is for someones birthday or something. I feel like my friends are all moving forward with their lives and mine is on hold. I have had 4 people ask me if I am graduating the nursing program this year. I just answer no not yet. If they ask why I just say I have not entered the program yet. Some will ask further questions. I just get sad when I think about it.
I think I took going to work for granted. I would love to go back to work. Not just for the money but for the sense of feeling responsible and accountable.
Recently I gave up my service position as district chair for one of my 12 step groups. I just can't do it anymore. I have to much physical stuff to deal with.
Whe I get into elevated pain like today and yesterday, I start feeling a little down and sad. Sorry for rambling on and on about the same ol' things I always say.
I will feel better when Mom gets here.
Thanks for reading my rambles.
Chrissy
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Arthr Itis
05-22-2008, 02:14 PM
Chrissy, don't be sorry for venting. That's what we are here for. My pain gets a jump every time the weather changes too. Of course I live in Michigan where the weather changes all the time. I don't know why I stay here other than with my luck I would move to someplace worse.
Hang in there, better days are comming!
Fred
Hang in there, better days are comming!
Fred
trowftd3
05-22-2008, 02:28 PM
I'm lucky(or unlucky) enough to live in WA where ther weather doesn't fluctuate too much. But, even here we had weather in the 80's a few days ago and now it's down in the 50's. It sucks when the weather changes. Just not good for people in pain.
I, too, want to go back to work just to feel like a useful human. I just found out that the program I was in last year and dropped out of. Well, actually I just failed my last quarter because my mom died. Anyway, I can't just retake the lst quarter...I have to retake the whole program!! Thank God for financial aid. I also hve to write a request to get financial aid again because I did not maintain satisfactory progress. My point...yes I'm getting there...is that I understand.
It's hard to go back to school even without chronic pain. But, when you don't know from one day to the next how bad you're going to feel....
Don't worry if it takes you longer to finish. Just keep plugging along but don't wear yourself out. I hope you have less pain soon. ~Mush
I, too, want to go back to work just to feel like a useful human. I just found out that the program I was in last year and dropped out of. Well, actually I just failed my last quarter because my mom died. Anyway, I can't just retake the lst quarter...I have to retake the whole program!! Thank God for financial aid. I also hve to write a request to get financial aid again because I did not maintain satisfactory progress. My point...yes I'm getting there...is that I understand.
It's hard to go back to school even without chronic pain. But, when you don't know from one day to the next how bad you're going to feel....
Don't worry if it takes you longer to finish. Just keep plugging along but don't wear yourself out. I hope you have less pain soon. ~Mush
Moldova
05-22-2008, 04:46 PM
Chrissy,
so sorry for your pain. I can relate to you in this.
We have non-stop rain days after days. So windy, grey and wet... Definitely it affects body aches for me too.
Hopefully you will feel better soon!
Best wishes and blessings...
so sorry for your pain. I can relate to you in this.
We have non-stop rain days after days. So windy, grey and wet... Definitely it affects body aches for me too.
Hopefully you will feel better soon!
Best wishes and blessings...
cmpgirl
05-22-2008, 07:46 PM
Hey Chrissy, Just wanted to send you some healing thoughts and hugs. We are having the same fluctuating weather and my whole spine and my hips feel like they belong to a 95 year old.
Please don't hesitate to vent. We all go through the same ups and downs and post more about it when it's the down feelings. It's only natural when you have CP. So we all repeat some of the same feelings in our posts. It's just how we feel. So, you are not alone in that.
As I hope you know, I am here for you, for whatever I can do. (not a whole lot, given the cyber constraints) But I can send good thoughts and pray for you to feel better, both physically and emotionally. I hope tomorrow is a better day, in more ways than just the weather. God Bless, CMP/MM
((((((Chrissy)))))) :angel:
Please don't hesitate to vent. We all go through the same ups and downs and post more about it when it's the down feelings. It's only natural when you have CP. So we all repeat some of the same feelings in our posts. It's just how we feel. So, you are not alone in that.
As I hope you know, I am here for you, for whatever I can do. (not a whole lot, given the cyber constraints) But I can send good thoughts and pray for you to feel better, both physically and emotionally. I hope tomorrow is a better day, in more ways than just the weather. God Bless, CMP/MM
((((((Chrissy)))))) :angel:
aussiejono
05-22-2008, 07:57 PM
The part of Australia where I live usualy has warm/hot, dry summer/autum/spring..... when we got the occasional oppressive, hot, humdid day, i find it very opressive, vakes me feel flat, moody and less able to deal with my pain.
I just turn the aircon on, to dry out the air, and stay out of everyones way if i can, and take a Valium if I cant!
I just turn the aircon on, to dry out the air, and stay out of everyones way if i can, and take a Valium if I cant!
123dietdrpepper
05-22-2008, 08:26 PM
Chrissy I am sorry you are having a rough time. This chronic pain stinks and lets face it this board is here so that we have a place to vent, share our fears, talk others through low times, support one another, and to offer words of wisdom.
So keep on posting and now that we are here to lift you up in prayer and provide you with some support.
So keep on posting and now that we are here to lift you up in prayer and provide you with some support.
kim46
05-23-2008, 12:11 AM
The weather has been wet and dreary here and it also causes me additional pain. I had a swollen lump above the injection site that hurt around 7.
I hope your day improved. Good luck at the neuro tomorrow and please post about it.
I hope your day improved. Good luck at the neuro tomorrow and please post about it.
brianpain33
05-23-2008, 05:10 AM
Chrissy,
Hello there friend I am sorry to hear that you are not doing so good. You know that weather has a direct relationship with my pain levels and it sounds like yours as well. I could be doing alright, a pain level of 3 and then a storm front is approaching and it shoots to a 7 or 8. Sometimes I forget that it is temporary and that it will come back down. I try not to take all of my BT meds in one day but it is really difficult when the pain gets that bad. Of course if I do try to max out my BT med, then I can not function so it's a catch 22.
I haven't been able to keep up with what is going on with you. I take it that the next step is that artificial disk replacement? I can sympathize with having to put your life on hold. Even now I really don't even want to try to get a different job position. There are things that I would love to try and do but I can't even keep my shoes on the entire day. I would absolutely love to become a veterinarian but you know how much they are on their feet and the thought of all that school starting at age 34, it seems pretty hopeless. I definitely know how you feel. I will pray for you my friend.
brian
Hello there friend I am sorry to hear that you are not doing so good. You know that weather has a direct relationship with my pain levels and it sounds like yours as well. I could be doing alright, a pain level of 3 and then a storm front is approaching and it shoots to a 7 or 8. Sometimes I forget that it is temporary and that it will come back down. I try not to take all of my BT meds in one day but it is really difficult when the pain gets that bad. Of course if I do try to max out my BT med, then I can not function so it's a catch 22.
I haven't been able to keep up with what is going on with you. I take it that the next step is that artificial disk replacement? I can sympathize with having to put your life on hold. Even now I really don't even want to try to get a different job position. There are things that I would love to try and do but I can't even keep my shoes on the entire day. I would absolutely love to become a veterinarian but you know how much they are on their feet and the thought of all that school starting at age 34, it seems pretty hopeless. I definitely know how you feel. I will pray for you my friend.
brian
SpinalMalady
05-23-2008, 09:33 AM
Hi Chrissy:
The weather has been doing the same pattern here. We had some really high 80's, then a cool front came through last Thursday or Friday, and the temp dropped SIGNIFICANTLY!!
I had the double whammy of the atmospheric induced migrane from the storm front that I battled, and had to take rescue meds for that, then for the next three to four days my Rods were killing me due to the weather change. It always hurts me at the surgical site. SO bad. I can't wait to see the PM doc next Tuesday. This has not been a good month. I JUST thought April was a bad month...... eyiiiyiii yiiii!
I hope things settle down and mellow out for you very soon. You so deserve it. I have started to settle into a "summer holding pattern". One week from today is my last "official" day of work until August 1, but I'm really just putting in a "show" at the office, and doing most of my work from home, and via the internet. God Bless Technology!!
Again, I pray you (as well as everyone else) has a better day, week, and MONTH!! We all need a bit of a break! :( *sings McDonald's Theme song* :jester:
~!~ Becky ~!~
The weather has been doing the same pattern here. We had some really high 80's, then a cool front came through last Thursday or Friday, and the temp dropped SIGNIFICANTLY!!
I had the double whammy of the atmospheric induced migrane from the storm front that I battled, and had to take rescue meds for that, then for the next three to four days my Rods were killing me due to the weather change. It always hurts me at the surgical site. SO bad. I can't wait to see the PM doc next Tuesday. This has not been a good month. I JUST thought April was a bad month...... eyiiiyiii yiiii!
I hope things settle down and mellow out for you very soon. You so deserve it. I have started to settle into a "summer holding pattern". One week from today is my last "official" day of work until August 1, but I'm really just putting in a "show" at the office, and doing most of my work from home, and via the internet. God Bless Technology!!
Again, I pray you (as well as everyone else) has a better day, week, and MONTH!! We all need a bit of a break! :( *sings McDonald's Theme song* :jester:
~!~ Becky ~!~
skych
05-23-2008, 10:11 AM
Thanks so much everyone!
I am still feeling pretty poorly. Yesterday when my Mom got here we went to a used bookstore to look for some books to read. The store was unusually tiny. So tiny you could barley walk through it and the books were high on some of the shelves.
I picked up a book and looked at it and then put it back. The shelf was just above my head. Well that darn book fell off the shlf and just barley hit my head, but the bad thing was that it starteled me and I hurt my neck from the startling movement.
It just made everything worse! I hate to be such a complainer, but I actually cried from the pain. We immediatley left the cracker box book store and i got in the car and lost it with the tears.
I felt the pain getting worse imediately afterward. The windy was blowing a cold wind and everything combined, my emotions, the weather, the book incident...just made the pain even worse.
We ate dinner and then I went home and went to lay down.
BRIAN....How nice to see you my friend! I understand obout your pain. I am sorry that you can't even kkeo your shoes on all day. That must be really tough! I wish we all could get that break that
Becky was talking about.
To answer your questions. I will see the Neuro today as you may have read, and I am hoping that he will offer me the ADR. If he thinks that more than one level will need treatment I may need to have an ACDF. I don't really want to be fused, because I am somewhat scared of that surgery because it is not reversible. The ADR can later be made into a fusion , but the fusion I think is not able to be taken apart so to speak
Brian, it is never to late to go to school. I started school about 4 years ago this August. I will be 39 in December. It is never to late. You will find your way....just dont give up dreams. Sometimes they have to be modified, but they are still obtainable. If I cant be a nurse, I may have to modify and find another profession that I can help people.
Anyway..I must put it all in Gods hands! Trusting is the tough part. I have all of you to help me through it. That in and of itself is something to be grateful for.
Chrissy
I am still feeling pretty poorly. Yesterday when my Mom got here we went to a used bookstore to look for some books to read. The store was unusually tiny. So tiny you could barley walk through it and the books were high on some of the shelves.
I picked up a book and looked at it and then put it back. The shelf was just above my head. Well that darn book fell off the shlf and just barley hit my head, but the bad thing was that it starteled me and I hurt my neck from the startling movement.
It just made everything worse! I hate to be such a complainer, but I actually cried from the pain. We immediatley left the cracker box book store and i got in the car and lost it with the tears.
I felt the pain getting worse imediately afterward. The windy was blowing a cold wind and everything combined, my emotions, the weather, the book incident...just made the pain even worse.
We ate dinner and then I went home and went to lay down.
BRIAN....How nice to see you my friend! I understand obout your pain. I am sorry that you can't even kkeo your shoes on all day. That must be really tough! I wish we all could get that break that
Becky was talking about.
To answer your questions. I will see the Neuro today as you may have read, and I am hoping that he will offer me the ADR. If he thinks that more than one level will need treatment I may need to have an ACDF. I don't really want to be fused, because I am somewhat scared of that surgery because it is not reversible. The ADR can later be made into a fusion , but the fusion I think is not able to be taken apart so to speak
Brian, it is never to late to go to school. I started school about 4 years ago this August. I will be 39 in December. It is never to late. You will find your way....just dont give up dreams. Sometimes they have to be modified, but they are still obtainable. If I cant be a nurse, I may have to modify and find another profession that I can help people.
Anyway..I must put it all in Gods hands! Trusting is the tough part. I have all of you to help me through it. That in and of itself is something to be grateful for.
Chrissy
sammyo1
05-23-2008, 12:56 PM
Chrissy, I am so sorry my friend that you are still suffering so. One day at a time for us all. I am sick of this weather, I am with Fred, here in Michigan & I feel cheated out of spring. It is to darn cold for this time of year. I am with you Fred, so pack it up & lets go, but you choose where, I don't want to be the blame if we end up some where worse (Ha). If it stays damp I just ache all day. But lets face it not much we can do about the weather. You can tell Mother nature is a female, she just can't make up her mind (ha)!
Hang in there & don't feel rushed to make decisions about school. Sammy
Hang in there & don't feel rushed to make decisions about school. Sammy