:mad:This illness has taken total control of my life I had it. I am in store and out of not a may have flare up where I can not walk or talk. It start off last maybe a few hours to forty-eight hours. I have lost three jobs because of it I am unable to keep a job because the all employer wants a guarantee that I have my illness under control and I don't. My doctor can't help me neither can my specialist. Is it too much to ask to have a normal life again with a regular paycheck.

i'm very very sorry to hear your story. i've been there and still am. there is hope. i've had a very very hard time working since I was 18 and I'm 45. I had to take SSDI (social security disability income) and it sucks. It comes with a stigma. It's not even close to being enough to live on. Medicare sucks. (thanks be to GOD that I was grandathered in on a title xix thing where my med costs are paid for.) With some people it gets better. I hope that is your case. I also have Chronic Fatigue Syndrome and it sounds like maybe you might have that too from the way you say you are so wiped out for a couple days. The fibro causes really bad pain for me but when I get wiped out it's the cfs. just something to think about. i'm not a doctor and am in no way trying to diagnose you. i hope it eases. If it doesn't, I'm afraid you're gonna have to try different approaches to work. free lancing on days you feel well, etc. it's not easy and i would wish it upon nobody but that's been what I've had to do. Quickly.....i forgot to mention if you really got this so severely and can't work you qualify for disability. the social security thing is whole other ball game but it's gotten better.

Thanks for the encouragement. I tried the SSI three times they denied me they said I could work part time. Ha that is funny