I am once again suffering with micro burst headaches, these last about “one second” just behind my temple, they can only be described as being shot in the head just behind the temple, they can happen on either side of the head, often they put me onto my knees.

I had a brain scan and saw the neurologist, he said everything on the scan was ok, he said it was muscle tension on the brain caused by CFS, he prescribed me Dosulepin 2X25mg nightly, I’ve now been taking these for 10 months and now the symptoms are returning, I am now waiting to see the neurologist again.

Do any of you also suffer with this?

Yes, I have them, along with all other kinds of headaches and migraines. I have been diagnosed with temporal tendonitis, from the temporalmandibular joint, and then the muscles spasming in my face, and behind my eye. I used to believe they were migraines, but now I believe I have both. They are disabaling, and I am now unable to drive long distances, I can drive to the pharmacy, and grocery store, but that is about it. The only the thing that helps me is pain medications, vicoprofen, valium, as a muscle relaxant, and then also shut the eye down, a eye patch, and usually sunglasses over that. I am confined to the couch, sometimes with heat or ice patches on my eye. They are horrible and sometimes eveyday.

On top of that, I have exactly what you are talking about, and my husband does too. They take you to your knees and shoot through your scalp. I seem to get them for a couple of days and then not have them for awhile. Now that I learned how much our face, my tmjd, is connected to the muscles in my face, neck, and shoulders, I know how painful the muscle spasms can be. I am waiting to see a neurologist too.

I hope you get to see the doctor soon. I feel for you, and know what you are going through. It is so hard, and sometimes discouraging when you are controlled by our illnesses.

Good luck and keep writing. We are here for you.

Kassandra

Could you possibly be having episodes of Trigeminal Neuralgia? It is a lightening bolt type of pain that tends to cycle over a period of days and then reapperas later in the same fashion. It is felt mostly from the eye to the area over the ear and it is excruciating. I have had this since 1974 and it appears about as mysteriously as it disappears. I know that some who experience this malady are treated with anticonvulsants and some have a surgical interruption of the trigeminal nerve. I am fortunate that my own experience is not constant and it usually runs it's course in a few days and maybe have episodes a couple of times a year. It also is common in those with TMJ.

Thanks for the information, it sounds like you both received better information regarding this than I did.

After looking up TMJ (new to me) I have realised the two visits I had to A&E (ER) with my disabling jaw pain was probably connected.

Thanks, this should prove very helpful when I receive my consultation.

HI

I to have these pains they are more on the top of my head (my son says its my horns coming thru :)) actually it is in that exact place!!

These are connected to TMJD and tension type head aches, i was in bed for 4 months with this, only leavin to go to the doctors or hospital convinced it was more. But through many tests and constant trips to the docs ( when i say constant i mean daily for 3 weeks!) i am learning to cope with them. As someone else has said, i find ice and heat packs work. Many times my husband has come home to find me with fozen peas tied to my neck and frozen meatballs of my face, not a pretty sight i can tell you.
I have been on the Dosulepin for 5 months, they have helped a lot, but i have had a headache for past few days, same spasm, shooting pain. I agree with whoever said, it seems it comes and goes.

I really feel for you and hope you have got some comfort from the replies. Without my fibro friends on here, i actually belive i would have gone mad - well more mad than i am now :)

Thanks peops xx