lilsis1071
07-29-2008, 07:18 AM
Good Morning Ladies and warriors,
All are in my thoughts today. As most days. I am sorry if we all dont get the chance to chat as often. Seems like a lot has been going on for all.
I havent had it as hard yet. I know we all have the strength to get through this. I will continue to be a shoulder to lean on. I know its not the same as being there in person. Wish there was a way I could!
Please keep in touch and I will have you all in my thoughts and prayers.
A Friend Wendy :angel:
All are in my thoughts today. As most days. I am sorry if we all dont get the chance to chat as often. Seems like a lot has been going on for all.
I havent had it as hard yet. I know we all have the strength to get through this. I will continue to be a shoulder to lean on. I know its not the same as being there in person. Wish there was a way I could!
Please keep in touch and I will have you all in my thoughts and prayers.
A Friend Wendy :angel:
Sponsor
lilsis1071
07-29-2008, 02:58 PM
Good Afternoon,
Ellen , you are a great lady. You have been through the journey and yet continue be a support to others. Thank you for that!! Remember we will be here for you also. As the journey will never be over.
Mary Jean, You have such a heart. You are right to have others help. You need to be what you are Stanleys wife. As you are and have been and I am sure will continue to be a care giver too. I praise you for your strength and compassion. We all are here for you as well. For as long as you need.
Nancy, You are family !! Your very welcome here. I know its not a place any of us wanted to meet. However friends do help and your correct it makes you not feel so alone and think your the only one. I had never heard of RCC until dad got diagnosed and now its around every corner.
Jackie and Keith are especially in my prayers and thoughts. Miss u girl.
To all my friends here thoughts and prayers as always.
Dad will see doc on monday and will let you all know whats going on. Had pet scan yesterday. CT tomorrow. I feel it inside things will not be good. He is in more pain and well anxiety is really getting bad. Dont want to jump the gun here. I'll let u all know next week.
A Friend Wendy
Ellen , you are a great lady. You have been through the journey and yet continue be a support to others. Thank you for that!! Remember we will be here for you also. As the journey will never be over.
Mary Jean, You have such a heart. You are right to have others help. You need to be what you are Stanleys wife. As you are and have been and I am sure will continue to be a care giver too. I praise you for your strength and compassion. We all are here for you as well. For as long as you need.
Nancy, You are family !! Your very welcome here. I know its not a place any of us wanted to meet. However friends do help and your correct it makes you not feel so alone and think your the only one. I had never heard of RCC until dad got diagnosed and now its around every corner.
Jackie and Keith are especially in my prayers and thoughts. Miss u girl.
To all my friends here thoughts and prayers as always.
Dad will see doc on monday and will let you all know whats going on. Had pet scan yesterday. CT tomorrow. I feel it inside things will not be good. He is in more pain and well anxiety is really getting bad. Dont want to jump the gun here. I'll let u all know next week.
A Friend Wendy
me1957
07-30-2008, 07:28 PM
Friends !
no better word to describe what we all are to each other.
Thanks for all the kind words to everyone.
The CNA came here and did such a wonderful job and he did so good with her and my sister. I stayed out on the patio and let her do her work.
Another day with him here physically but not my Stan.
I love and so and I love him enough to let him go on home with our LORD.
Blessings to all every moment in our lives !!!!!! Mary Jean
no better word to describe what we all are to each other.
Thanks for all the kind words to everyone.
The CNA came here and did such a wonderful job and he did so good with her and my sister. I stayed out on the patio and let her do her work.
Another day with him here physically but not my Stan.
I love and so and I love him enough to let him go on home with our LORD.
Blessings to all every moment in our lives !!!!!! Mary Jean
lilsis1071
07-31-2008, 07:52 AM
Mary Jean,
{{{{{{{{{{HUGS}}}}}}}}}} to you and Stan.
I am there with you. Just in not in person. I wish I could be though. I think you are a wonderful woman and you are doing a wonderful job.
Please keep us posted and know that you are in our thoughts and prayers.
A Friend Wendy :angel:
{{{{{{{{{{HUGS}}}}}}}}}} to you and Stan.
I am there with you. Just in not in person. I wish I could be though. I think you are a wonderful woman and you are doing a wonderful job.
Please keep us posted and know that you are in our thoughts and prayers.
A Friend Wendy :angel:
me1957
08-01-2008, 07:39 PM
Hello to all
We are still on our journey and things here are ok. At times there is monents where Stan is kind of there with me if that makes sense to anyone. I treasure those times and YES it does give me hope that he will get up and be ok but I also know I need to be realistic.
He is total care and I know how awful this would be for him so every day I tell him it is ok to go if he is ready and that I will be ok. That is all I can do. I HAVE to keep reassuring him but I also know he can see right through me. He can tell , he knows me so well but I keep telling him in the beginning it will so awful but as time goes on it will be tolerable and that he will always be in my heart as I know I will be in his.
I pray all is doing as good as can be expected !!!!
I come to this thread every so often to vent and to see how every else is doing.
God Bless Love Mary Jean
We are still on our journey and things here are ok. At times there is monents where Stan is kind of there with me if that makes sense to anyone. I treasure those times and YES it does give me hope that he will get up and be ok but I also know I need to be realistic.
He is total care and I know how awful this would be for him so every day I tell him it is ok to go if he is ready and that I will be ok. That is all I can do. I HAVE to keep reassuring him but I also know he can see right through me. He can tell , he knows me so well but I keep telling him in the beginning it will so awful but as time goes on it will be tolerable and that he will always be in my heart as I know I will be in his.
I pray all is doing as good as can be expected !!!!
I come to this thread every so often to vent and to see how every else is doing.
God Bless Love Mary Jean
me1957
08-03-2008, 10:04 PM
I can't get into the next thread on this board, any answers to my problem
Mary Jean
Mary Jean
eblguim
08-04-2008, 12:24 AM
It seems that the other thread was moved to the Death and Dying folder.
How are you holding on Mary Jean?
I was numb for many days..... Actually it took me a few weeks for reality to hit me. I am sooooo sorry for you and for all of us.
Take good care of yourself in the next few days and weeks. Drink lots of water and eat healthy foods. Grieving is very draining on the body.
Ellen
How are you holding on Mary Jean?
I was numb for many days..... Actually it took me a few weeks for reality to hit me. I am sooooo sorry for you and for all of us.
Take good care of yourself in the next few days and weeks. Drink lots of water and eat healthy foods. Grieving is very draining on the body.
Ellen
lilsis1071
08-04-2008, 10:10 AM
Mary Jean,
You are in my thoughts and prayers. I really do not know what I can say to take away your pain. I know your family is strong and you all will get throught this.
God Bless you all and know that you are in my prayers.
A Friend, Wendy :angel:
You are in my thoughts and prayers. I really do not know what I can say to take away your pain. I know your family is strong and you all will get throught this.
God Bless you all and know that you are in my prayers.
A Friend, Wendy :angel:
lilsis1071
08-09-2008, 10:48 AM
Good Morning all,
Mary you are in my thoughts and prayers I hope all is going as good as expected. Please know we are here for you.
How is everyone else doing? Thoughts are with all.
A Friend Wendy :angel:
Mary you are in my thoughts and prayers I hope all is going as good as expected. Please know we are here for you.
How is everyone else doing? Thoughts are with all.
A Friend Wendy :angel:
me1957
08-09-2008, 08:34 PM
I am here and like Ellen I don't think reality has hit yet so I am fearful what will happen when that happens but I will deal with this somehow. Mary Jean
eblguim
08-09-2008, 08:37 PM
I hope you are all doing well, despite the circunstances.
Mary Jean, I think of you everyday, wondering how you are doing. I'm just a bit ahead of you in this journey that we don't want to take but have no choice. I miss my husband so much it is just unbelievable that he is not coming back.
i tell myself that I just need to take one step at the time and I will make it to the other side of this pain. I hope you are holding on ok.
Take care everyone, Ellen
Mary Jean, I think of you everyday, wondering how you are doing. I'm just a bit ahead of you in this journey that we don't want to take but have no choice. I miss my husband so much it is just unbelievable that he is not coming back.
i tell myself that I just need to take one step at the time and I will make it to the other side of this pain. I hope you are holding on ok.
Take care everyone, Ellen
eblguim
08-10-2008, 10:42 AM
Mary Jean,
It has been very helpful for me to find sites that deal with this journey of grief we are in. There are sites for widowed people only and I have found that it is very helpful to talk with people that are going through exactly what we are going through.
I still come and check in here because you end up caring about the people you exchanged here. But it has been very helpful for me to find other widows and widowers.
One day at the time is what I keep telling myself. I don't look more ahead than a few hours at the time.
I wish you well.
Ellen
It has been very helpful for me to find sites that deal with this journey of grief we are in. There are sites for widowed people only and I have found that it is very helpful to talk with people that are going through exactly what we are going through.
I still come and check in here because you end up caring about the people you exchanged here. But it has been very helpful for me to find other widows and widowers.
One day at the time is what I keep telling myself. I don't look more ahead than a few hours at the time.
I wish you well.
Ellen
Twiddles
08-11-2008, 12:19 PM
Mary Jean, Ellen, Wendy, and everyone else,
You are all in my thoughts and prayers. I appreciate so much the love and support here on this forum. When many of you have already lost a loved one to cancer, for you to still visit the forums and support people like me who are just now going through this horrible fight, that is amazing to me. Thank you for caring! Mary Jean, I have thought of you often and pray for your strenghth and comfort through this horrible time. I hope you are doing okay.
I would like to ask you all a question please. Is it normal for someone with kidney cancer to have really good days and then suddenly out of the blue have bad ones? Dave was doing quite poorly about 6 weeks ago, then he started the Torisel treatments and they have really helped him. He seemed almost like his old self for a while (he had some pretty bad side effects, but overall he did well). He is tired all the time, and he really has to make sure he gets adequate rest and nutrition, but other than that he's seemed almost normal for the past couple of weeks.
Suddenly, a couple of days ago, he started to get worse again. The mouth sores are coming back, and that is very frustrating for him. Last night he complained of just feeling lousy, and he had some weird pains in his upper abdominal area, across the top part of his stomach. That really scared me. The pain went away after about 3 hours. He was just complaining about feeling rottten, and I rubbed his back and noticed he was hot. He had a fever of 100 degrees. He hasn't been having fevers for nearly a month, and now they are back.
Part of the problem is that I just don't know what to expect. Is it normal for someone to go up and down like this? I feel like I'm sailing in uncharted waters right now. Thank you for your input...
Nancy
You are all in my thoughts and prayers. I appreciate so much the love and support here on this forum. When many of you have already lost a loved one to cancer, for you to still visit the forums and support people like me who are just now going through this horrible fight, that is amazing to me. Thank you for caring! Mary Jean, I have thought of you often and pray for your strenghth and comfort through this horrible time. I hope you are doing okay.
I would like to ask you all a question please. Is it normal for someone with kidney cancer to have really good days and then suddenly out of the blue have bad ones? Dave was doing quite poorly about 6 weeks ago, then he started the Torisel treatments and they have really helped him. He seemed almost like his old self for a while (he had some pretty bad side effects, but overall he did well). He is tired all the time, and he really has to make sure he gets adequate rest and nutrition, but other than that he's seemed almost normal for the past couple of weeks.
Suddenly, a couple of days ago, he started to get worse again. The mouth sores are coming back, and that is very frustrating for him. Last night he complained of just feeling lousy, and he had some weird pains in his upper abdominal area, across the top part of his stomach. That really scared me. The pain went away after about 3 hours. He was just complaining about feeling rottten, and I rubbed his back and noticed he was hot. He had a fever of 100 degrees. He hasn't been having fevers for nearly a month, and now they are back.
Part of the problem is that I just don't know what to expect. Is it normal for someone to go up and down like this? I feel like I'm sailing in uncharted waters right now. Thank you for your input...
Nancy
lilsis1071
08-11-2008, 02:02 PM
To all in my thoughts,
Nancy, yes is the answer to your question. However I hope that hubbys doctor is a aware of all and any new symstoms. I know you are a nurse and a a great one. We just dont know what these treatments can and will do to those we love. We have to wave the pros and cons most always.
Please advise on how hubbys is doing and just know you are in the thoughts and prayers as are the others.
Dad goes for an MRI of his neck on Monday 18th as he has some nodes near the jugular that are active. Not sure what this means or what can or will happen. Please pray for him as well. He is now starting a new treatment Nexavar as the sutent hes been on for 22 months is NO longer working for him. I know the first few months are tough with a new treatment. However he really had a good run with the sutent. I fear the sides will be a lot harder on him with the new drug.
A Friend Wendy :angel:
Nancy, yes is the answer to your question. However I hope that hubbys doctor is a aware of all and any new symstoms. I know you are a nurse and a a great one. We just dont know what these treatments can and will do to those we love. We have to wave the pros and cons most always.
Please advise on how hubbys is doing and just know you are in the thoughts and prayers as are the others.
Dad goes for an MRI of his neck on Monday 18th as he has some nodes near the jugular that are active. Not sure what this means or what can or will happen. Please pray for him as well. He is now starting a new treatment Nexavar as the sutent hes been on for 22 months is NO longer working for him. I know the first few months are tough with a new treatment. However he really had a good run with the sutent. I fear the sides will be a lot harder on him with the new drug.
A Friend Wendy :angel:
eblguim
08-11-2008, 02:54 PM
Hi Nancy,
As I told another person on another kidney cancer thread, find the story of Steve Dunn and use him as a starting point for your search. You will find a lot of useful information through him.
Kidney cancer usually behaves differently than other cancers. My husband had good times and bad times, fever and no fever times, and on and on.
Good luck to you.
Wendy, I hope your dad will have a good run on nexavar.
You are all in my thoughts.
Ellen
As I told another person on another kidney cancer thread, find the story of Steve Dunn and use him as a starting point for your search. You will find a lot of useful information through him.
Kidney cancer usually behaves differently than other cancers. My husband had good times and bad times, fever and no fever times, and on and on.
Good luck to you.
Wendy, I hope your dad will have a good run on nexavar.
You are all in my thoughts.
Ellen
lilsis1071
08-11-2008, 07:19 PM
Ellen,
Thank you for the wishes for a good run with nexavar.
Thinking of all. A friend Wendy :angel:
Thank you for the wishes for a good run with nexavar.
Thinking of all. A friend Wendy :angel:
me1957
08-28-2008, 08:48 AM
Hello everyone,
Just checking in to see how things are going for everybody.
I am ok. Miss my Stanley more than words can say BUT I know he is in heaven and without that my life would be horrible.
I plan to go back to work at hospice full time on Sept. 15th. I may go back the week before for 2 days , just haven't made up my mind on the 2 days just yet.
There hasn't been anything on this board for so long , we CAN'T let this board end completely because there are so many out there that need us and so many more to come sad enough to say.
Waiting to hear from all. , Mary Jean
Just checking in to see how things are going for everybody.
I am ok. Miss my Stanley more than words can say BUT I know he is in heaven and without that my life would be horrible.
I plan to go back to work at hospice full time on Sept. 15th. I may go back the week before for 2 days , just haven't made up my mind on the 2 days just yet.
There hasn't been anything on this board for so long , we CAN'T let this board end completely because there are so many out there that need us and so many more to come sad enough to say.
Waiting to hear from all. , Mary Jean
lilsis1071
08-28-2008, 06:44 PM
Mary Jean...... and Ladies...,
SSOOOOO glad to hear from you. I have had my thoughts with you. I know there has not been much posted here in some time, I know I have waited until you and Ellen were ready again. I feel that the time was needed for the warriors that are no longer with us.
However I am so glad that you want to continue to be support for those that are still fighting this battle. You are a true support.
Thank you for that.
Update on my father. He started his new medication on Tuesday. So far things are okay. I think he is waiting to see what his sides are going to be. This is the time of year they get ready to think about going south for the winter. Not sure if and when that will happen.
I am having a family/friend gathering this weekend and he is looking forward to it. Its a "JUST BECAUSE " party. As I know he enjoys them. Hope the weather holds off. I am extremely tired lately as I have not been sleeping well. I have thought about all of this to much I think. I just pray all the time for "time" I am sure you did as well.
Thanks for listening and if we need to start a new post please any one jump in. As always thoughts and prayers to all.
A Friend Wendy :angel:
SSOOOOO glad to hear from you. I have had my thoughts with you. I know there has not been much posted here in some time, I know I have waited until you and Ellen were ready again. I feel that the time was needed for the warriors that are no longer with us.
However I am so glad that you want to continue to be support for those that are still fighting this battle. You are a true support.
Thank you for that.
Update on my father. He started his new medication on Tuesday. So far things are okay. I think he is waiting to see what his sides are going to be. This is the time of year they get ready to think about going south for the winter. Not sure if and when that will happen.
I am having a family/friend gathering this weekend and he is looking forward to it. Its a "JUST BECAUSE " party. As I know he enjoys them. Hope the weather holds off. I am extremely tired lately as I have not been sleeping well. I have thought about all of this to much I think. I just pray all the time for "time" I am sure you did as well.
Thanks for listening and if we need to start a new post please any one jump in. As always thoughts and prayers to all.
A Friend Wendy :angel:
me1957
08-29-2008, 07:42 AM
Wendy and all our CANCER WARRIORS ,
My Stanley IS in heaven and there is no more I can do for him, it is more like what he can do for me now that he is my guardian angel. I no longer have him as in the physical sense BUT I still have him emotionally and spirtially.
It hurts real bad at times but it IS better than what the cancer would have eventually done to him. I KNOW because I work with it sooooo much.
And as for coming back every so often we all are still friends and still fighting the same disease. I am still fighting for all those that have it and are yet to get it because I never know when or if it will knock on my door again, I PRAY not but reality is it probably will.
So take comfort that I am still here with you and everyone else, just maybe not as often but when I do come here I will write and ask and look to see how all is doing.
GOD BLESS!!!!!!!!!!! Mary Jean
My Stanley IS in heaven and there is no more I can do for him, it is more like what he can do for me now that he is my guardian angel. I no longer have him as in the physical sense BUT I still have him emotionally and spirtially.
It hurts real bad at times but it IS better than what the cancer would have eventually done to him. I KNOW because I work with it sooooo much.
And as for coming back every so often we all are still friends and still fighting the same disease. I am still fighting for all those that have it and are yet to get it because I never know when or if it will knock on my door again, I PRAY not but reality is it probably will.
So take comfort that I am still here with you and everyone else, just maybe not as often but when I do come here I will write and ask and look to see how all is doing.
GOD BLESS!!!!!!!!!!! Mary Jean
Beckwith2K
08-29-2008, 10:35 AM
Hello,
I was recently diagnosed with a "suspious" mass on my left kidney. I need more tests, etc. I read your message about Steve Dunn. I did a search & came up with nothing. Any info greatly appreciated!
I suspect cancer.
Becky
I was recently diagnosed with a "suspious" mass on my left kidney. I need more tests, etc. I read your message about Steve Dunn. I did a search & came up with nothing. Any info greatly appreciated!
I suspect cancer.
Becky
eblguim
08-29-2008, 08:28 PM
Hi everyone,
I'm hanging in there... So bad days, some horrible days, and some good days are starting to show up. I miss him so much it is hard to believe that he is really gone. I hope you are all ok, as much as possible.
Regarding Steve Dunn, I don't know why you did not come up with stuff. He beat stage 4 kidney cancer and there should be a way of reading his story and finding all the leads about studies and different drugs. I just did a search on Steve Dunn and kidney cancer and a lot of different pages came up.
I don't know where you are, but if I were you I would look into insuline potentiated treatments. It did not work for my husband, but I personally know 2 people that went into remission after having stage 4.
Good luck to you.
I'm hanging in there... So bad days, some horrible days, and some good days are starting to show up. I miss him so much it is hard to believe that he is really gone. I hope you are all ok, as much as possible.
Regarding Steve Dunn, I don't know why you did not come up with stuff. He beat stage 4 kidney cancer and there should be a way of reading his story and finding all the leads about studies and different drugs. I just did a search on Steve Dunn and kidney cancer and a lot of different pages came up.
I don't know where you are, but if I were you I would look into insuline potentiated treatments. It did not work for my husband, but I personally know 2 people that went into remission after having stage 4.
Good luck to you.
eblguim
08-29-2008, 08:31 PM
There is a great doctor in Long Island that does insuline potentiated treatments and he beat stage 4 lung cancer with this treatment.
me1957
08-29-2008, 11:10 PM
Becky
Hang in there. This may be a long journey you are about to take, I pray for a differnt route for you. Mary Jean
Hang in there. This may be a long journey you are about to take, I pray for a differnt route for you. Mary Jean
eblguim
08-30-2008, 10:46 AM
I also forgot to mention that my husband lived for 12 years after having his kidney and tumor removed. His tumor was 8 cm by 6 cm, pretty big.
He did the Hulda Clark program - parasite cleansing, no chemicals in the house, etc - and the wheatgrass/raw foods for 3 years. It was not strict but he was pretty much good with it.
Any more information, please ask.
He did the Hulda Clark program - parasite cleansing, no chemicals in the house, etc - and the wheatgrass/raw foods for 3 years. It was not strict but he was pretty much good with it.
Any more information, please ask.
lilsis1071
09-01-2008, 04:49 PM
To all the warriors.... Happy Day to all.
Just wanted to say hello and see that all are ok. Hello Becky.. please let us know what you find out. We are hear to listen if you need to chat. There are some here that have been to the end with this disease and some still fighting. No matter we are here together. I pray for all. I wish everyone a day of happiness and no worries. Have to have those every so often. Enjoy!!
Til the next visit all are in my thoughts and prayers.
A Friend Wendy ..:angel:
Just wanted to say hello and see that all are ok. Hello Becky.. please let us know what you find out. We are hear to listen if you need to chat. There are some here that have been to the end with this disease and some still fighting. No matter we are here together. I pray for all. I wish everyone a day of happiness and no worries. Have to have those every so often. Enjoy!!
Til the next visit all are in my thoughts and prayers.
A Friend Wendy ..:angel:
Twiddles
09-02-2008, 01:30 AM
Hello to all the Warriors!
First, let me say to Mary Jean that I have kept you in my prayers and hope things are getting a little easier for you. May God pour His love over you and comfort you during this devastating time.
I almost feel guilty for sharing a little good news now when so many of the Warriors are going through so much hardship. Just a little refresher for you...my husband Dave was diagnosed with stage IV RCC on June 27, 2008. Large tumor in left kidney, 10.5 x 10 cm, smaller tumor in right kidney, metastases to both adrenal glands, over 30 nodules in lungs, and also mets to thoracic lymph nodes. He was deemed inoperable at the time of diagnosis due to his extensive metastases and also his weakened condition. He started on Torisel 25 mg and has had a total of 7 doses so far. He goes for dose #8 tomorrow.
Well, I have some good news!! Last Monday Dave had a CT scan which was compared with the first one, to see how well the Torisel is working (or not working). The scan showed that ALL the tumors, yes, ALL OF THEM, have reduced in size by at least 20 to 30%. Wow!!! That's GREAT!! We are so excited. Our oncologist did tell us that these drugs usually have good response in the beginning but seem to stop working fairly quickly, so we know that things could change at any moment, but for now we're celebrating this victory and hoping the good effects from the Torisel continue. Dave has had some pretty nasty side effects. The worst have been horrible mouth sores. At times he can't eat anything solid and has to take liquids only. He's just now getting over a spell of nearly 2 weeks without solid food. But two days ago the sores went away, and now he's eating everything in sight. He says the mouth sores are a small price to pay if the Torisel is shrinking the tumors. The doctor says if the next CT scan shows more shrinkage then Dave can have his kidney removed. That's what we're hoping for.
When Dave was initially diagnosed we decided to make a goal and strive for it. We enjoy camping, so we reserved our favorite campsite at our favorite campground for the last 2 weeks of September, and that goal is going to be realized! Two months ago we didn't even know if Dave would still be alive in September, but here we are, and Dave is doing pretty well. He does get tired easily, and he needs to get plenty of rest and also keep his nutritional intake up, but he's doing better than the doctor expected.
Thanks to everyone for all your care, concern, compassion, and kindness. And mostly for your prayers. They really work!
Nancy
First, let me say to Mary Jean that I have kept you in my prayers and hope things are getting a little easier for you. May God pour His love over you and comfort you during this devastating time.
I almost feel guilty for sharing a little good news now when so many of the Warriors are going through so much hardship. Just a little refresher for you...my husband Dave was diagnosed with stage IV RCC on June 27, 2008. Large tumor in left kidney, 10.5 x 10 cm, smaller tumor in right kidney, metastases to both adrenal glands, over 30 nodules in lungs, and also mets to thoracic lymph nodes. He was deemed inoperable at the time of diagnosis due to his extensive metastases and also his weakened condition. He started on Torisel 25 mg and has had a total of 7 doses so far. He goes for dose #8 tomorrow.
Well, I have some good news!! Last Monday Dave had a CT scan which was compared with the first one, to see how well the Torisel is working (or not working). The scan showed that ALL the tumors, yes, ALL OF THEM, have reduced in size by at least 20 to 30%. Wow!!! That's GREAT!! We are so excited. Our oncologist did tell us that these drugs usually have good response in the beginning but seem to stop working fairly quickly, so we know that things could change at any moment, but for now we're celebrating this victory and hoping the good effects from the Torisel continue. Dave has had some pretty nasty side effects. The worst have been horrible mouth sores. At times he can't eat anything solid and has to take liquids only. He's just now getting over a spell of nearly 2 weeks without solid food. But two days ago the sores went away, and now he's eating everything in sight. He says the mouth sores are a small price to pay if the Torisel is shrinking the tumors. The doctor says if the next CT scan shows more shrinkage then Dave can have his kidney removed. That's what we're hoping for.
When Dave was initially diagnosed we decided to make a goal and strive for it. We enjoy camping, so we reserved our favorite campsite at our favorite campground for the last 2 weeks of September, and that goal is going to be realized! Two months ago we didn't even know if Dave would still be alive in September, but here we are, and Dave is doing pretty well. He does get tired easily, and he needs to get plenty of rest and also keep his nutritional intake up, but he's doing better than the doctor expected.
Thanks to everyone for all your care, concern, compassion, and kindness. And mostly for your prayers. They really work!
Nancy
eblguim
09-02-2008, 10:11 AM
These are great news! And miracles do happen - my husband was proof of it (even though he did recently, he lived 10 years beyond the prediction)!
May you have many more camping trips!
May you have many more camping trips!
me1957
09-04-2008, 12:46 PM
To ALL
DON'T ever be sorry to share good news because we ALL need to hear the good with the bad.
I amhaving very bad times right now b ecause it really has hit thta Stanley is not coming home to me BUT I will go home to him one day.
I enjoy reading the good news and I won't lie and say to myself why couldn't that had been Stan and I BUT GOD had other plans and we never know what they are till they are alid at our feet.
Whenever a good moment can be grabbed then by GOD GRAB it take alot of pectures and or video tape it because they are things you will want to hold close. Mary Jean
DON'T ever be sorry to share good news because we ALL need to hear the good with the bad.
I amhaving very bad times right now b ecause it really has hit thta Stanley is not coming home to me BUT I will go home to him one day.
I enjoy reading the good news and I won't lie and say to myself why couldn't that had been Stan and I BUT GOD had other plans and we never know what they are till they are alid at our feet.
Whenever a good moment can be grabbed then by GOD GRAB it take alot of pectures and or video tape it because they are things you will want to hold close. Mary Jean
lilsis1071
09-11-2008, 12:25 PM
Hello everyone,
I hope this finds you all well. I know time is passing each day and we are not here as often. However I would like everyone to know all are in my thoughts.
My father started his new meds about three weeks ago. He is not feeling as well as he would like. I know we will not know if the meds are working for another month or longer. I pray he can tolerate this med and it is working.
I hate this time of year as it is stressful for him and my mother. Not knowing whats "gonna happen" and what to do. They usually go south for the winter and when it gets to be time to decide whether to go or not because of "cancer" I believe is very frustrating on all. As we dont know !! I can not imagion whats in his mind. I am doing the best I can to support any decisions that he makes.
I am thinking about all and prayers are with everyone.
A Friend Wendy :angel:
I hope this finds you all well. I know time is passing each day and we are not here as often. However I would like everyone to know all are in my thoughts.
My father started his new meds about three weeks ago. He is not feeling as well as he would like. I know we will not know if the meds are working for another month or longer. I pray he can tolerate this med and it is working.
I hate this time of year as it is stressful for him and my mother. Not knowing whats "gonna happen" and what to do. They usually go south for the winter and when it gets to be time to decide whether to go or not because of "cancer" I believe is very frustrating on all. As we dont know !! I can not imagion whats in his mind. I am doing the best I can to support any decisions that he makes.
I am thinking about all and prayers are with everyone.
A Friend Wendy :angel:
Twiddles
09-12-2008, 12:30 AM
Wendy, you and your family are in my thoughts and prayers. Please keep us posted on how your father is doing. What medicine is he on? I hope it works well for him with minimal side effects. It is so difficult watching those we love have to go through such uncertain and difficult times. They are lucky to have such a loving and supportive daughter. I'm sure you are a big help to them. Hang in there,
Love,
Nancy
Love,
Nancy
lilsis1071
09-12-2008, 09:39 AM
Nancy,
Thank you for your prayers. How are things with you and hubby? This truly is a bumpy road we have to ride. My father is now on Nexavar. He was on sutent for about 2 years. Sutent no longer held him stable. So new coarse of action. I just know that all the unknown stresses him and I hate to see the cancer take over. He has been dealing with mrcc now for three years.
Although he feels its been a few years before that. As he had blood in his urine.(unseen by the eye) He was a truck driver and had to have a physical yearly. They told him he needed to get it checked out and he did not. He kicks himself in the bum all the time now. The would haves, could haves and should haves are always there!! I told him he can not do that to himself. Thats the past now we have to fight for the future.
I think he is scared and does not want to die. I can not blame him. I am not sure how if it was me , how would I feel. Altough I know its him sometimes it feels like its me. I do not know what life would be like with out my parents. Besides my family they are the best people in my life.
I am sorry if this sounds to depressing or negative. It is what it is and well its something I and others have to think about. I truly am sorry ... that we all have to go this road.
Thanks again for all your support and prayers.
A Friend Wendy :angel:
Thank you for your prayers. How are things with you and hubby? This truly is a bumpy road we have to ride. My father is now on Nexavar. He was on sutent for about 2 years. Sutent no longer held him stable. So new coarse of action. I just know that all the unknown stresses him and I hate to see the cancer take over. He has been dealing with mrcc now for three years.
Although he feels its been a few years before that. As he had blood in his urine.(unseen by the eye) He was a truck driver and had to have a physical yearly. They told him he needed to get it checked out and he did not. He kicks himself in the bum all the time now. The would haves, could haves and should haves are always there!! I told him he can not do that to himself. Thats the past now we have to fight for the future.
I think he is scared and does not want to die. I can not blame him. I am not sure how if it was me , how would I feel. Altough I know its him sometimes it feels like its me. I do not know what life would be like with out my parents. Besides my family they are the best people in my life.
I am sorry if this sounds to depressing or negative. It is what it is and well its something I and others have to think about. I truly am sorry ... that we all have to go this road.
Thanks again for all your support and prayers.
A Friend Wendy :angel:
me1957
09-12-2008, 06:09 PM
I am ok. I have sad moments bad monents and horrible moments BUT I work through and get through them. There is no other choice.
I miss Stanley immensley but I know he is in heaven and he is well and happy and will NEVER have any more pain sadness tireness or anything we may feel and that is what gets me through.
I went back to work on this past Tuesday and Thrusday and go back to work full time on Monday and yes I have gone back to hospice. It is the only way for me to know if I can go back to that kind of work but I feel I can and I will be ok.
I hope everyone has as many good times and days as they want and deserve. My time with Stanley wa short from the time we found out , only 10 months but alot was said and done in that small timeand he was so ready to go and wanted to go. He had accepted his sentence way before I did and that aways made me feel as he was giving up but in all honestyhe had not given up he had been fighting for a better life where there would be no sickness and no pain. He is my hero in more ways than I ever could say.
I will always miss him but I know he isn't coming home to me but one day I will go home to him.
Everyone take care and hold all close . God Bless.... Mary Jean
I miss Stanley immensley but I know he is in heaven and he is well and happy and will NEVER have any more pain sadness tireness or anything we may feel and that is what gets me through.
I went back to work on this past Tuesday and Thrusday and go back to work full time on Monday and yes I have gone back to hospice. It is the only way for me to know if I can go back to that kind of work but I feel I can and I will be ok.
I hope everyone has as many good times and days as they want and deserve. My time with Stanley wa short from the time we found out , only 10 months but alot was said and done in that small timeand he was so ready to go and wanted to go. He had accepted his sentence way before I did and that aways made me feel as he was giving up but in all honestyhe had not given up he had been fighting for a better life where there would be no sickness and no pain. He is my hero in more ways than I ever could say.
I will always miss him but I know he isn't coming home to me but one day I will go home to him.
Everyone take care and hold all close . God Bless.... Mary Jean
lilsis1071
09-16-2008, 11:59 AM
Mary Jean,
I am thinking about you !! I hope you are doing as good as to be expected.
How is work going are things okay there. It has to be hard for you. God bless you for the work you do. You are a true inspiration.
We are hanging in there here. Just wanted to let you and Ellen know you continue to be in our thoughts.
A Friend Wendy :angel:
I am thinking about you !! I hope you are doing as good as to be expected.
How is work going are things okay there. It has to be hard for you. God bless you for the work you do. You are a true inspiration.
We are hanging in there here. Just wanted to let you and Ellen know you continue to be in our thoughts.
A Friend Wendy :angel:
me1957
09-16-2008, 09:22 PM
Wendy
I am doing ok. I usually cry a lot these days but I guess that goes with the territory.
Work is ok I am soooooo tired at the end of the day since I just started back. It will catch up with me and I will adjust.
As for doing my work it is what I love to do so I will keep on.
Everyone please keep me informed how things are going. Mary Jean
I am doing ok. I usually cry a lot these days but I guess that goes with the territory.
Work is ok I am soooooo tired at the end of the day since I just started back. It will catch up with me and I will adjust.
As for doing my work it is what I love to do so I will keep on.
Everyone please keep me informed how things are going. Mary Jean
lilsis1071
09-21-2008, 05:44 PM
Just wanted to say thinking about you.
Also going to start a new thread. So see you all there.
A Friend Wendy
Also going to start a new thread. So see you all there.
A Friend Wendy
me1957
09-21-2008, 09:03 PM
What will be the name of the thread???
lilsis1071
09-22-2008, 08:53 AM
"Kidney Cancer Warriors Part Two "
See you there. :)
See you there. :)