ConnieB52
08-06-2008, 11:25 AM
Hi All,
I just wanted to say Hi and introduce myself.
I am Connie and I am a 13 year NSCLC- Adneocarcinoma, Stage IIIB Lung Cancer Survivor. I had my left lung removed 13 years ago, underwent chemo and radiation back then and as the saying goes, "Life is GOOD!" ;)
This has not been an easy journey by no means, but it is doable. I now have been dealing with Heart problems. The heart problems are caused from radiation treatments I had 13 years ago, BUT, I'm still grateful I'm alive.
I was 43 years YOUNG when I was dx.d with LC. I lost my dad, mom, and sister all to lung cancer. So I am NO stranger to lung cancer or to the lung cancer issues.
I also started up the first ever Lung Cancer Support Group (In Person) here in Minnesota 9 years ago, and this group is STILL going strong. :)
I would like to know how MANY Lung Cancer Patients/Survivors post on this board. I would love to hear your stories and how you patients/survivors are doing.
I hope to get to know you all better. Best wishes to all.
Warm Regards,
Connie
I just wanted to say Hi and introduce myself.
I am Connie and I am a 13 year NSCLC- Adneocarcinoma, Stage IIIB Lung Cancer Survivor. I had my left lung removed 13 years ago, underwent chemo and radiation back then and as the saying goes, "Life is GOOD!" ;)
This has not been an easy journey by no means, but it is doable. I now have been dealing with Heart problems. The heart problems are caused from radiation treatments I had 13 years ago, BUT, I'm still grateful I'm alive.
I was 43 years YOUNG when I was dx.d with LC. I lost my dad, mom, and sister all to lung cancer. So I am NO stranger to lung cancer or to the lung cancer issues.
I also started up the first ever Lung Cancer Support Group (In Person) here in Minnesota 9 years ago, and this group is STILL going strong. :)
I would like to know how MANY Lung Cancer Patients/Survivors post on this board. I would love to hear your stories and how you patients/survivors are doing.
I hope to get to know you all better. Best wishes to all.
Warm Regards,
Connie
Sponsor
james1952
03-29-2009, 03:08 PM
hi connie i really feel for you they found a tumer on my left lung the size of a golf ball.this was found 2-22-09 don't you think it is a little too long for a biopsy?.the dr wants to take half of my lung out if my heart is strong enough.i have been dieing to talk to someone that has been through this.will u chat with me some off and on.this is my first to be in a group.iam a male 57 yrs old.i live in n.c.you was just where i am now connie was it a long operation.?i know you hurt like crazy.my dr. said that cancer didnt make me feel weak or short of breath that's weird isn't it. how long did it take for your biopsy?
snowmelts
03-29-2009, 07:10 PM
I'm around. My Dx is non-small cell stage 4 lung cancer with a couple spin off brain tumors for good measure.
Those brain tumors pressed on my optic nerve totally messing up eyesight and thats how my cancer was discovered. PA Nurse sent me for CT brain scan Jan 5, 2009 cuz of sudden vision mess and had me hospitalized by that very evening. Lung Biopsy done very next morning. 11 days hospital,,constant anti brain swelling drip and oh yeah lotta test and meds.
Since that hospital release
i take strong steroid pill twice a day to contral brain swelling plus meds for tummy cuz of chemo
Since Jan 16 have has a long run of daily spot radiation.. ever Tues all day Chemo and on top of all that 6 Cyber-Knife brain surgeries.
2 days after the 6 Cyber-knife I got dizzy passed out ended up in ER.. anemic. spent 8 more days in hospital.. home now Chemo still every Tuesday but anemia is now basically under controlcuz od weekly shots for that after chemo.,
still cant stand without walker and very hard to see, I'm sort of an awkward lump. But I'm a lump with a comuter so
i can blow up the screen to read when necessary.and communicate ;0)
BUT oncologist did say all the treatmets HAVE shrunk my brain and lung tumor so it's worth it all.
ANYONE ELSE here with NSCLC and spin off brain tumor experience ????????
Those brain tumors pressed on my optic nerve totally messing up eyesight and thats how my cancer was discovered. PA Nurse sent me for CT brain scan Jan 5, 2009 cuz of sudden vision mess and had me hospitalized by that very evening. Lung Biopsy done very next morning. 11 days hospital,,constant anti brain swelling drip and oh yeah lotta test and meds.
Since that hospital release
i take strong steroid pill twice a day to contral brain swelling plus meds for tummy cuz of chemo
Since Jan 16 have has a long run of daily spot radiation.. ever Tues all day Chemo and on top of all that 6 Cyber-Knife brain surgeries.
2 days after the 6 Cyber-knife I got dizzy passed out ended up in ER.. anemic. spent 8 more days in hospital.. home now Chemo still every Tuesday but anemia is now basically under controlcuz od weekly shots for that after chemo.,
still cant stand without walker and very hard to see, I'm sort of an awkward lump. But I'm a lump with a comuter so
i can blow up the screen to read when necessary.and communicate ;0)
BUT oncologist did say all the treatmets HAVE shrunk my brain and lung tumor so it's worth it all.
ANYONE ELSE here with NSCLC and spin off brain tumor experience ????????